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What Treatment - Or No Treatment Advice?
I am interested in what would be advised for a fit and active almost 78-year-old, In NED from stage 4 UTUC upper tract urothelial carcinoma. Initial prognosis 6 - 9 months in April 2017. Now only one kidney (GFR 42) No other co-morbidities. Good BMI. Never smoker or drinker. Not on any medication
I am interested in what would be advised for a fit and active almost 78-year-old, In NED from stage 4 UTUC upper tract urothelial carcinoma. Initial prognosis 6 - 9 months in April 2017. Now only one kidney (GFR 42) No other co-morbidities. Good BMI. Never smoker or drinker. Not on any medication
Nordman
in
Advanced Prostate Cancer
7 months ago
What's next for crumbling bones when Zytiga was not tolerable?
My dad just stopped his Zytiga due to nausea, and other intolerable side effects. He just got his first two shots that they give for osteoporosis...due to a spontaneous fracture in his pelvis. He's using a walker but has gotten relatively stronger from the day it happened a month ago...from doing exercises
My dad just stopped his Zytiga due to nausea, and other intolerable side effects. He just got his first two shots that they give for osteoporosis...due to a spontaneous fracture in his pelvis. He's using a walker but has gotten relatively stronger from the day it happened a month ago...from doing exercises
dadsdrdawn
in
Advanced Prostate Cancer
11 months ago
Doctor suggesting HIFU
Hello All, I was diagnosed in Oct. 2017 with Gleason score of 6 and PSA 5.8. PSA was gradually going up and up. Had blood work done June 6th 2023 for a shoulder surgery and PSA was 15.3 had a PSA test done on July 24th 2023 for fusion biopsy on July 31st 2023 and it went up to 18.3 (1 month jumped
Hello All, I was diagnosed in Oct. 2017 with Gleason score of 6 and PSA 5.8. PSA was gradually going up and up. Had blood work done June 6th 2023 for a shoulder surgery and PSA was 15.3 had a PSA test done on July 24th 2023 for fusion biopsy on July 31st 2023 and it went up to 18.3 (1 month jumped
jbsnv
in
Prostate Cancer Network
10 months ago
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Uric Acid [UA] & PCa Mortality
I once had a gouty foot. It was self-induced - I was having a brief but intense craving for high-purine foods, particularly anchovies. (Perhaps PCa was driving the craving - lol.) At some point I looked at the PCa / Uric Acid [UA] literature (more than I expected), but it was mixed & failed to impress
I once had a gouty foot. It was self-induced - I was having a brief but intense craving for high-purine foods, particularly anchovies. (Perhaps PCa was driving the craving - lol.) At some point I looked at the PCa / Uric Acid [UA] literature (more than I expected), but it was mixed & failed to impress
pca2004
in
Fight Prostate Cancer
11 months ago
should I stop Zytiga early?
hello, i’m new here and encouraged by all the experience and caring nature of the conversations. Would love if anyone has wisdom around a decision to stop Zytiga early? I am 56 and was diagnosed 2/21 with Gleason 9 no lymph nodes invasion, but some vesicle invasion and perhaps a little outside margins
hello, i’m new here and encouraged by all the experience and caring nature of the conversations. Would love if anyone has wisdom around a decision to stop Zytiga early? I am 56 and was diagnosed 2/21 with Gleason 9 no lymph nodes invasion, but some vesicle invasion and perhaps a little outside margins
PaulJR
in
Advanced Prostate Cancer
10 months ago
2nd Opinion Recommendation for North Carolinia/Virginia/DC
Hello, New to the board looking for some advice on Doctors in North Carolina/Virginia/DC area for 2nd opinion. I underwent MRI, and MRI guided Transperineal Biopsy with Inova Schar Cancer Institute in Fairfax VA. MRI on Oct 9 2023 resulted in PI-Rad 5 Score for 1 suspicious lesion, Seminal Vesticles
Hello, New to the board looking for some advice on Doctors in North Carolina/Virginia/DC area for 2nd opinion. I underwent MRI, and MRI guided Transperineal Biopsy with Inova Schar Cancer Institute in Fairfax VA. MRI on Oct 9 2023 resulted in PI-Rad 5 Score for 1 suspicious lesion, Seminal Vesticles
Seminole0412
in
Prostate Cancer Network
7 months ago
PSA doubled 3 months after chemo - normal or a concern?
I don’t see Dr Dorff until next week, but had labs drawn today. I’m prepping any questions I might have for the appointment. My PSA has more than doubled in 3 months from 0.014 to 0.039. Testosterone at time of both tests was <7. At these low levels, is that doubling in 3 months a concern? I’m
I don’t see Dr Dorff until next week, but had labs drawn today. I’m prepping any questions I might have for the appointment. My PSA has more than doubled in 3 months from 0.014 to 0.039. Testosterone at time of both tests was <7. At these low levels, is that doubling in 3 months a concern? I’m
Gl448
in
Advanced Prostate Cancer
10 months ago
Olaparib? Chemo? or both ?
Hi All, Fathers latest PSA reading is 3.87 (up from 2.3 in 9/23) , he was switched from Enza to Abi last month but apparently it hasnt worked. He was also tested for germline mutations and found to be BRCA 2 +. His blood counts are relatively low with Hgb at 10.7 and RBC at 3.9 What are the options
Hi All, Fathers latest PSA reading is 3.87 (up from 2.3 in 9/23) , he was switched from Enza to Abi last month but apparently it hasnt worked. He was also tested for germline mutations and found to be BRCA 2 +. His blood counts are relatively low with Hgb at 10.7 and RBC at 3.9 What are the options
dudubaya
in
Advanced Prostate Cancer
7 months ago
PSMA scan result
I have been diagnosed with mCSPC in May 2023 and been on Lupron for 3 months and Zytiga/ Pre since last 2 months. My PSA was initially 21.5 and as of last week is down to 0.3. I had my PSMA scan done again today and was hoping that some lesions in regional and distant Lymph nodes would be gone but
I have been diagnosed with mCSPC in May 2023 and been on Lupron for 3 months and Zytiga/ Pre since last 2 months. My PSA was initially 21.5 and as of last week is down to 0.3. I had my PSMA scan done again today and was hoping that some lesions in regional and distant Lymph nodes would be gone but
ST0705
in
Advanced Prostate Cancer
10 months ago
Decision Time Very Soon
My profile is updated, but briefly, diagnosed de novo, high volume metastatic in April 2022. PSA 28.2, Gleason 4+5. ADT & 6 rounds chemo brought PSA to 0.48 in Jan. 2023 & then started creeping up. In June, went over 2 & MO felt was castrate resistant. Stopped abi. and started Keytruda (I am MSI- high
My profile is updated, but briefly, diagnosed de novo, high volume metastatic in April 2022. PSA 28.2, Gleason 4+5. ADT & 6 rounds chemo brought PSA to 0.48 in Jan. 2023 & then started creeping up. In June, went over 2 & MO felt was castrate resistant. Stopped abi. and started Keytruda (I am MSI- high
rsgdmd
in
Advanced Prostate Cancer
10 months ago
Help! Hubby's PSA doubling time one week!
Diagnosed 2016, RP G4+5, aRT, ADT + zytiga, holiday, ADT + Erleada. mCRPC Recently completed 6 week Lutetium trial June 2023. Complete response, undetectable PSA!!! Healthy eating, clean living, good exercise. 67 years. No genetic mutations detected. Doubling time before LU was 2 weeks and I realized
Diagnosed 2016, RP G4+5, aRT, ADT + zytiga, holiday, ADT + Erleada. mCRPC Recently completed 6 week Lutetium trial June 2023. Complete response, undetectable PSA!!! Healthy eating, clean living, good exercise. 67 years. No genetic mutations detected. Doubling time before LU was 2 weeks and I realized
cancervictim
in
Advanced Prostate Cancer
10 months ago
CDK12 gene mutation
My husband continues to be hormone sensitive but Sept. 4, 2023 he developed intense and unrelenting pain in his right mandible. The oncologist and palliative care nurse prescribed morphine and dilaudid to help reduce the pain. These pain meds are helping although he can still feel pain and gets breakthrough
My husband continues to be hormone sensitive but Sept. 4, 2023 he developed intense and unrelenting pain in his right mandible. The oncologist and palliative care nurse prescribed morphine and dilaudid to help reduce the pain. These pain meds are helping although he can still feel pain and gets breakthrough
Decktime
in
Advanced Prostate Cancer
8 months ago
Just completed a whole gland TULSA procedure
This was salvage treatment after failure of SBRT by MRIdian in Mar 2020.PSA nadir after SBRT was 2.4 and it rose to 5.3 just 3 years later, when a PSMA scan showed 2 possible tumours within the gland. A subsequent biopsy confirmed local tumour recurrence with Gleason 4+4. Interventional radiotherapy
This was salvage treatment after failure of SBRT by MRIdian in Mar 2020.PSA nadir after SBRT was 2.4 and it rose to 5.3 just 3 years later, when a PSMA scan showed 2 possible tumours within the gland. A subsequent biopsy confirmed local tumour recurrence with Gleason 4+4. Interventional radiotherapy
Packidge
in
Advanced Prostate Cancer
8 months ago
Can I radiate a tumor mass abutting rectum wall & bladder wall on prostate bed?
RP w/ PLNR 03/2023 PSA RISING Nov 7, 2023 0.11ng/mL <=3.99 ng/mL Oct 10, 2023 0.09ng/mL <=3.99 ng/mL Sep 7, 2023 <0.06ng/mL <=3.99 ng/mL Aug 8, 2023 <0.06ng/mL <=3.99 ng/mL Jul 6, 2023 <0.06ng/mL <=3.99 ng/mL Isn’t it difficult to radiate a mass on prostate
RP w/ PLNR 03/2023 PSA RISING Nov 7, 2023 0.11ng/mL <=3.99 ng/mL Oct 10, 2023 0.09ng/mL <=3.99 ng/mL Sep 7, 2023 <0.06ng/mL <=3.99 ng/mL Aug 8, 2023 <0.06ng/mL <=3.99 ng/mL Jul 6, 2023 <0.06ng/mL <=3.99 ng/mL Isn’t it difficult to radiate a mass on prostate
Shorehousejam
in
Advanced Prostate Cancer
8 months ago
Prostate cancer - repurposed drugs?
I am 60 and have been diagnosed with localised, non-metastatic, low grade prostate cancer: Grade 1/Gleason 6 cT2c intermediate risk 65 cc size (moderate) A detailed CT-PET scan (PSMA) (in addition to biopsy and MRI) lit up a fair bit and has shown moderate amount of bilateral disease but oddly in
I am 60 and have been diagnosed with localised, non-metastatic, low grade prostate cancer: Grade 1/Gleason 6 cT2c intermediate risk 65 cc size (moderate) A detailed CT-PET scan (PSMA) (in addition to biopsy and MRI) lit up a fair bit and has shown moderate amount of bilateral disease but oddly in
Thunderball1
in
Fight Prostate Cancer
11 months ago
Lutetium 177 for "early" grade 4 pc or amino acid suppression ?
Dear All,It's a story of two brothers in the uk. Older brother was identified with 4+5 pc. His urologist recommended that any sibling be tested for pc. I did so and it was discovered that I had 3+4 pc. Older brother , via our national health care system, NHS, has systemic treatment ( chemo and hormone
Dear All,It's a story of two brothers in the uk. Older brother was identified with 4+5 pc. His urologist recommended that any sibling be tested for pc. I did so and it was discovered that I had 3+4 pc. Older brother , via our national health care system, NHS, has systemic treatment ( chemo and hormone
Wishyouwerehere
in
Prostate Cancer Network
8 months ago
Feeling sore and tired
I am a 51-year-old that is closing in on five years dealing with this.. a quick history, I was diagnosed October 2018, Gleason nine and had four spots showing in the scans and my bones. I have been on Lupron since the beginning, I had radiation to my prostate as well as the other four spots back in
I am a 51-year-old that is closing in on five years dealing with this.. a quick history, I was diagnosed October 2018, Gleason nine and had four spots showing in the scans and my bones. I have been on Lupron since the beginning, I had radiation to my prostate as well as the other four spots back in
Oct18
in
Advanced Prostate Cancer
10 months ago
is Farmagon better than Lupron ?
i have been on Farmagon for 3 months and feels much better and supposed to take Erleada Apalutamide 60 mg also. My PSA is 2.9 and my testosterone is low. Now another doctor wants me to switch me to Lupron. Which one would be better .? In my hospital I see a different doctor everytime. another doc
i have been on Farmagon for 3 months and feels much better and supposed to take Erleada Apalutamide 60 mg also. My PSA is 2.9 and my testosterone is low. Now another doctor wants me to switch me to Lupron. Which one would be better .? In my hospital I see a different doctor everytime. another doc
Raminagrobis
in
Advanced Prostate Cancer
10 months ago
Blood Test Results.
Some of you will remember it took me a month to get blood test results because in the first instance the Doc who arranged them wanted to give me the results. Made about 3 appointments which were cancelled because he changed his working days or whatever so eventually decided that just to get the results
Some of you will remember it took me a month to get blood test results because in the first instance the Doc who arranged them wanted to give me the results. Made about 3 appointments which were cancelled because he changed his working days or whatever so eventually decided that just to get the results
Desanthony
in
Atrial Fibrillation Support
8 months ago
My 72 yr old Brother MRI Result Question what to do next?
Should he continue active surveillance? He is going for a biopsy and most likely radiation Have his prostate removed or radiation? Any helpful advice appreciated EXAMINATION: MRI prostate without contrast IMPRESSION: Lesion #1: Apex left posterior peripheral zone, 1.7 cm, slightly increased
Should he continue active surveillance? He is going for a biopsy and most likely radiation Have his prostate removed or radiation? Any helpful advice appreciated EXAMINATION: MRI prostate without contrast IMPRESSION: Lesion #1: Apex left posterior peripheral zone, 1.7 cm, slightly increased
Shorehousejam
in
Advanced Prostate Cancer
11 months ago
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