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Rise in PSA
Hello everyone, I am 72 and have been on active surveillance for prostate cancer since I was diagnosed in August 2021 but probably had it prior to my first MRI in 2020. I have had 2 biopsies and 5 MRI's and countless PSA tests. The first bx showed 3 cores at 3+3 and 2 cores suspicious, confirmatory bx
Hello everyone, I am 72 and have been on active surveillance for prostate cancer since I was diagnosed in August 2021 but probably had it prior to my first MRI in 2020. I have had 2 biopsies and 5 MRI's and countless PSA tests. The first bx showed 3 cores at 3+3 and 2 cores suspicious, confirmatory bx
ironmanburg
in
Active Surveillance - Prostate Cancer
2 months ago
Dexa scan
Well, that was refreshing. I have just had a repeat dexa scan, and the radiographer took the time to question me about PMR and PsA. When I told her I had managed to reduce to 5mgs of pred, she said' Slowly, slowly now then, at that level don't reduce by more than 1/2 mg ' I was amazed she had more understanding
Well, that was refreshing. I have just had a repeat dexa scan, and the radiographer took the time to question me about PMR and PsA. When I told her I had managed to reduce to 5mgs of pred, she said' Slowly, slowly now then, at that level don't reduce by more than 1/2 mg ' I was amazed she had more understanding
Jooster
in
PMRGCAuk
2 months ago
Stopping Lupron?
I have been on Lupron and Xtandi for 2 years and 4 months. My lupron injections are for 3 months, and with insurance it is costing me about $1,300 per injection OOP due to my $8,700 total TOOP. I'm thinking about stopping Lupron, it's such a beat down and it's made life very difficult. The fatigue alone
I have been on Lupron and Xtandi for 2 years and 4 months. My lupron injections are for 3 months, and with insurance it is costing me about $1,300 per injection OOP due to my $8,700 total TOOP. I'm thinking about stopping Lupron, it's such a beat down and it's made life very difficult. The fatigue alone
DalTx
in
Prostate Cancer And Gay Men
2 months ago
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Orgovyx: Check, Barrigel: Check, Next Up: Ray-Gunz!
After 16 weeks on Orgovyx (relugovix) my PSA: 0.71 (from 16.5) and my Testosterone: 25-ng/dl (from I don't know what. Normal T is 250-800 I'm told.) I want to pass on that I've been able to greatly diminish some SEs from the drug. I now take the pill in the evening vs morning, at approx. 9 to 10 pm.
After 16 weeks on Orgovyx (relugovix) my PSA: 0.71 (from 16.5) and my Testosterone: 25-ng/dl (from I don't know what. Normal T is 250-800 I'm told.) I want to pass on that I've been able to greatly diminish some SEs from the drug. I now take the pill in the evening vs morning, at approx. 9 to 10 pm.
mababa
in
Advanced Prostate Cancer
2 months ago
Leflunamide
Good morning, I've been diagnosed with PsA and been on mtx 15mg injections for 8 months. No noticeable change. Rheumy wants me to try leflunamide now but I'm not happy as I have stomach problems due to a burst stomach ulcer so need to be careful. Anyone have experience of this drug and if so was
Good morning, I've been diagnosed with PsA and been on mtx 15mg injections for 8 months. No noticeable change. Rheumy wants me to try leflunamide now but I'm not happy as I have stomach problems due to a burst stomach ulcer so need to be careful. Anyone have experience of this drug and if so was
Cheylann
in
NRAS
2 months ago
SalllyJones
My husband was diagnosed in Jan. 2022 by his Urologist for Stage 3b Highly Aggressive (label they gave it) prostate cancer, Gleason score of 8, into seminal vessicles, but no mets seen on PET Scan. Received Lupron for 18 months and Casodex 50mg was initiated immediately and continued once a day
My husband was diagnosed in Jan. 2022 by his Urologist for Stage 3b Highly Aggressive (label they gave it) prostate cancer, Gleason score of 8, into seminal vessicles, but no mets seen on PET Scan. Received Lupron for 18 months and Casodex 50mg was initiated immediately and continued once a day
SallyJones
in
Advanced Prostate Cancer
6 months ago
Brand new here. Whopping high first PSA test
I see Urology tomorrow. I'm 68 and had my first PSA test ever last week. The result was 33 ng/ml and my family practice MD was alarmed and referred me right away. For the past 2 yrs I've been taking Flomax, 1 at night, to help with frequent urination at night. It also has helped with starting/stopping
I see Urology tomorrow. I'm 68 and had my first PSA test ever last week. The result was 33 ng/ml and my family practice MD was alarmed and referred me right away. For the past 2 yrs I've been taking Flomax, 1 at night, to help with frequent urination at night. It also has helped with starting/stopping
RazorSaw
in
Active Surveillance - Prostate Cancer
2 months ago
psma findings
Haven’t heard from my Mo but I just opened the psma report and I don’t have any finding of metastasis. So I guess I run another psa? Monitor I guess? Anyway I’m happy for sure. I guess we will stay on top of it with psma and psas. Surprised my mo hasn’t called yet lol. She last said she was intrigued
Haven’t heard from my Mo but I just opened the psma report and I don’t have any finding of metastasis. So I guess I run another psa? Monitor I guess? Anyway I’m happy for sure. I guess we will stay on top of it with psma and psas. Surprised my mo hasn’t called yet lol. She last said she was intrigued
Mikes21
in
Advanced Prostate Cancer
2 months ago
What's typical PSA drop over time after SBRT?
Hi All, I'm 10 months post SBRT w/o ADT (on a study that randomized me for no ADT with low Decipher score), so wondering if anyone has any info on what I would expect for PSA percentage drop over time? A year ago my PSA was 11.0 and this past week, I'm at 5.3. I'm happy that it is less than half what
Hi All, I'm 10 months post SBRT w/o ADT (on a study that randomized me for no ADT with low Decipher score), so wondering if anyone has any info on what I would expect for PSA percentage drop over time? A year ago my PSA was 11.0 and this past week, I'm at 5.3. I'm happy that it is less than half what
LiveLongAndPropser
in
Prostate Cancer Under 60
2 months ago
PSA rise
I have been undetectable for about 2 years. On Dec 6 my PSA was 0.04 then on March 19 it was 0.21 so this indicates a rise in Mets. Is this too low for a scan? What should be the next steps?
I have been undetectable for about 2 years. On Dec 6 my PSA was 0.04 then on March 19 it was 0.21 so this indicates a rise in Mets. Is this too low for a scan? What should be the next steps?
Howard53545
in
Advanced Prostate Cancer
7 months ago
Prostate cancer treatment and sexual mutilation
Well well. In the midst of the club no one wants to be a part of and just wanted to add my input. It seems that the treatment of prostate cancer often glazes over the fact that you will be sexually impacted severely. Depending on treatment outcome that could be a 0 to 7. Seems like the topic isn’t really
Well well. In the midst of the club no one wants to be a part of and just wanted to add my input. It seems that the treatment of prostate cancer often glazes over the fact that you will be sexually impacted severely. Depending on treatment outcome that could be a 0 to 7. Seems like the topic isn’t really
Yokohama2023
in
Advanced Prostate Cancer
9 months ago
Finding consensus on treatment and side effects
As per earlier posts I’m 72 yrs old with Stage 4 Gleason 9 with some spread outside of prostate. I started ADT treatment in April and finished 4 weeks of radiation therapy on July 5. Statistically I think I’m doing well. My PSA went from 8.4 to .012 in two months. Until recently I had really no side
As per earlier posts I’m 72 yrs old with Stage 4 Gleason 9 with some spread outside of prostate. I started ADT treatment in April and finished 4 weeks of radiation therapy on July 5. Statistically I think I’m doing well. My PSA went from 8.4 to .012 in two months. Until recently I had really no side
Willie51
in
Prostate Cancer And Gay Men
2 months ago
PSA: Amazon.de hydroxocobalamin shipping to US again
My usual source for Pasco B12 Depot is once again shipping to the USA: https://www.amazon.de/-/en/gp/product/B00ELRR7EK/ref=ppx_od_dt_b_asin_title_s00?ie=UTF8&psc=1 Hadn't been able to order for a number of months but was just now able to place an order. Options for clean hydroxo in the US are usually
My usual source for Pasco B12 Depot is once again shipping to the USA: https://www.amazon.de/-/en/gp/product/B00ELRR7EK/ref=ppx_od_dt_b_asin_title_s00?ie=UTF8&psc=1 Hadn't been able to order for a number of months but was just now able to place an order. Options for clean hydroxo in the US are usually
NaturesChild123
in
Pernicious Anaemia Society
2 months ago
Help with Results
I just updated my Bio and just received my PSMA Gallium scan results. Appointment is tomorrow to review but from what I see even with a low PSA of 0.052 a lymph node lit up which is rare. Is this correct and given this my guess SOC is whole pelvic adjuvant radiation and higher dose to lymph nodes or?
I just updated my Bio and just received my PSMA Gallium scan results. Appointment is tomorrow to review but from what I see even with a low PSA of 0.052 a lymph node lit up which is rare. Is this correct and given this my guess SOC is whole pelvic adjuvant radiation and higher dose to lymph nodes or?
Peppertree602
in
Advanced Prostate Cancer
7 months ago
PSA rise due to physical activity
My PSA has been rising slowly.. 4-5 points in 3 months. Until January when it went from 29 to 43 in one month. By end of February it was still at 43. I feel fine! Here is a quote from the National Library of Medicine: “Physical activity releases prostate-specific antigen (PSA) from the prostate
My PSA has been rising slowly.. 4-5 points in 3 months. Until January when it went from 29 to 43 in one month. By end of February it was still at 43. I feel fine! Here is a quote from the National Library of Medicine: “Physical activity releases prostate-specific antigen (PSA) from the prostate
Ian99
in
Advanced Prostate Cancer
7 months ago
Finasteride: "Miracle drug" regrows hair, heals prostate, and also boosts heart health ByEric Ralls Earth.com
I am now thinking to add Finasteride to Bicalutamide plus degarelix injections. Would/could it help me if on the psma pet scan my only visible cancer is in my prostate? I had radiation therapy to my prostate but my prostate cancer is back and looks like that the radiation therapy failed and the most
I am now thinking to add Finasteride to Bicalutamide plus degarelix injections. Would/could it help me if on the psma pet scan my only visible cancer is in my prostate? I had radiation therapy to my prostate but my prostate cancer is back and looks like that the radiation therapy failed and the most
Seasid
in
Advanced Prostate Cancer
7 months ago
Cannot stand the heat
I am currently on methotrexate, folic acid and leflunomide for my PSA and have recently had my leflunomide upped as it wasnt doing anything. I know the UK is incredibly muggy right now because of our awful weather but I was wondering if any of these meds make it to a point where the heat affects us
I am currently on methotrexate, folic acid and leflunomide for my PSA and have recently had my leflunomide upped as it wasnt doing anything. I know the UK is incredibly muggy right now because of our awful weather but I was wondering if any of these meds make it to a point where the heat affects us
hannahlouise2208
in
Beyond Psoriasis
2 months ago
Treatment Plan
To update my journey, diagnosed on Oct. 2023 with pc, psa of 24.6. PSMA scan showed one met to sacrum, everything else clear. Did 28 rounds radiation and am currently on Lupron and Xtandi. Urologist yesterday said Lupron for one year then off and watch PSA with new PSMA scan also. Medical oncologist
To update my journey, diagnosed on Oct. 2023 with pc, psa of 24.6. PSMA scan showed one met to sacrum, everything else clear. Did 28 rounds radiation and am currently on Lupron and Xtandi. Urologist yesterday said Lupron for one year then off and watch PSA with new PSMA scan also. Medical oncologist
Jeffdanger
in
Advanced Prostate Cancer
7 months ago
Short-term tactics to keep PSA in check
Good morning fellow warriors. My docetaxel adventure was without side effects but gave an ineffective response. The cabazitaxel/carboplatin combo was effective but brutal in its attack on my immune system. Having had no treatment at all while my body tries to recover, I'm currently being considered by
Good morning fellow warriors. My docetaxel adventure was without side effects but gave an ineffective response. The cabazitaxel/carboplatin combo was effective but brutal in its attack on my immune system. Having had no treatment at all while my body tries to recover, I'm currently being considered by
CrocodileShoes
in
Advanced Prostate Cancer
7 months ago
trelstar
hi warriors. I have been on trelstar for 8 years and was wondering if anyone else has been on it. I have been undetectable at <.006 and now my psa is rising to .014. Maybe trelstar is losing its touch. Anyway I am doing a psma tomorrow. Had a pet ct last week that didn’t light up so I know the psma probably
hi warriors. I have been on trelstar for 8 years and was wondering if anyone else has been on it. I have been undetectable at <.006 and now my psa is rising to .014. Maybe trelstar is losing its touch. Anyway I am doing a psma tomorrow. Had a pet ct last week that didn’t light up so I know the psma probably
Mikes21
in
Advanced Prostate Cancer
3 months ago
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