I have been on Lupron and Xtandi for 2 years and 4 months. My lupron injections are for 3 months, and with insurance it is costing me about $1,300 per injection OOP due to my $8,700 total TOOP. I'm thinking about stopping Lupron, it's such a beat down and it's made life very difficult. The fatigue alone is enough, but what it does to my brain is worse. My memory is absolutely awful, and now legal things i've missed or forgotten to handle for my autistic brother, who lives with me, are becoming a huge problem. I'm so limited to what I can do so much of the time, and forget about it as soon as it's out of sight. I've been trying to get him SSI and into a group home but dealing with the local SS office is a nightmare for many reasons and haven't made any progress in over 1.5 years. I would continue the Xtandi which the insurance covers 100%. I am stage 4 metastatic with metases to distant lymph nodes that can't be radiated without serious side effects. My bloodwork has been great, PSA is always <.05 and has been for a year or more. I also began a vegan diet 3 weeks ago, in hopes of more energy, losing weight and getting rid of brain fog. I've also made it back to the gym a few times and will be starting the Livestrong 12 week series at my local YMCA the end of August.
Anyone else just taking second line therapy?
Best to all of you!