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Experiences with
Primary progressive multiple sclerosis
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Interstitial Cystitis/Low Thyroid Link?
I was diagnosed with Hashimotos this year at age 61 with several months of issues including leg spasms, hot flashes, brittle hair, fatigue and memory confusion. TSH of 40 to 49 after TSH tests even though thyroid test three months earlier had a TSH of 1.8. Nodules on thyroid. One year ago I was diagnosed
I was diagnosed with Hashimotos this year at age 61 with several months of issues including leg spasms, hot flashes, brittle hair, fatigue and memory confusion. TSH of 40 to 49 after TSH tests even though thyroid test three months earlier had a TSH of 1.8. Nodules on thyroid. One year ago I was diagnosed
MountainMel
in
Thyroid UK
7 years ago
Urine Infection
So the last few days have been interesting. I ended up at the out of hours gp at 2am Thursday morning with a raging urine infection. It went from just constantly needing a pee at 7pm to being doubled over in pain with blood in my urine by half past 10. Not pleasant! What made it worse was that I'm on
So the last few days have been interesting. I ended up at the out of hours gp at 2am Thursday morning with a raging urine infection. It went from just constantly needing a pee at 7pm to being doubled over in pain with blood in my urine by half past 10. Not pleasant! What made it worse was that I'm on
Athens94
in
LUPUS UK
7 years ago
UTIs and bowel issues - endo link?
I keep reading so many people talking about endometriosis and UTIs. I’ve suffered with chronic UTIs since I was 16, constant cystitis. Sometimes infections would show up other times not. There was some inflammation seen on a cystoscopy inside my bladder and bleeding. At this point I had pain free periods
I keep reading so many people talking about endometriosis and UTIs. I’ve suffered with chronic UTIs since I was 16, constant cystitis. Sometimes infections would show up other times not. There was some inflammation seen on a cystoscopy inside my bladder and bleeding. At this point I had pain free periods
Kate345
in
Endometriosis UK
7 years ago
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Pudendual nerve pain, interstitial cystitis and?
Hi everyone, I really need ur help as I am feeling desperate for answers and relief. 18 months ago I had extreme bladder and kidney infection . 9 plus antibiotics and almost 6 months later to clear. Extreme pain/pressure in vagina perineurium and rectum. Pain never cleared, has only gotten worse
Hi everyone, I really need ur help as I am feeling desperate for answers and relief. 18 months ago I had extreme bladder and kidney infection . 9 plus antibiotics and almost 6 months later to clear. Extreme pain/pressure in vagina perineurium and rectum. Pain never cleared, has only gotten worse
STUBBORNGIRL7368
in
Pelvic Pain Support Network
7 years ago
Pain
Am I the only one who when I have too much to drink, not alcohol, usually water, I get 'cystitis' pain even though I don't have an infection and I'm fine other times?
Am I the only one who when I have too much to drink, not alcohol, usually water, I get 'cystitis' pain even though I don't have an infection and I'm fine other times?
Looneytunes
in
Pelvic Pain Support Network
7 years ago
Pule
Yes I am one that has
Primary
Progressive
Multiple
Sclerosis
. I have had this now since 1999. So I have now had this for 18 years. It really has been a very hard to take illness. I have my Neurologist telling me that he is going to put me on this medication, Ocrevus.
Yes I am one that has
Primary
Progressive
Multiple
Sclerosis
. I have had this now since 1999. So I have now had this for 18 years. It really has been a very hard to take illness. I have my Neurologist telling me that he is going to put me on this medication, Ocrevus.
Pule
in
My MSAA Community
7 years ago
Anyone out there suffering with intersiastal cystitis?
Hi , I'm Jessie, I'm about to turn 34(😓) I have endometriosis (have had it seems forever) and I was recently diagnosed with intersiastal cystitis. It seems no one understands endometriosis and absolutely no one understands intersiastal cystitis . Anyone out there suffering with this ? I'm having my
Hi , I'm Jessie, I'm about to turn 34(😓) I have endometriosis (have had it seems forever) and I was recently diagnosed with intersiastal cystitis. It seems no one understands endometriosis and absolutely no one understands intersiastal cystitis . Anyone out there suffering with this ? I'm having my
Jcwy
in
Endometriosis UK
7 years ago
Bacteria in urine after lap
Hi So i had my lap 17 days ago, nothing was found apart from my blood clots to quick but that not what im worried about... so i had painful urine after and burning nothing major some of the ladies mentioned cystitis relief sachets which i used and it all went away! On Monday went to dr to have stitches
Hi So i had my lap 17 days ago, nothing was found apart from my blood clots to quick but that not what im worried about... so i had painful urine after and burning nothing major some of the ladies mentioned cystitis relief sachets which i used and it all went away! On Monday went to dr to have stitches
Lulububs
in
Endometriosis UK
7 years ago
Blood in urine?
I am undiagnosed. I have an appointment at the end of August for Rheumatology. I have come up positive for RA but have not had the tests yet for Lupus specifically (it's only that RA doesn't explain my neurological problems and I have rashes - so I want testing for Lupus as well). My bladder is a problem
I am undiagnosed. I have an appointment at the end of August for Rheumatology. I have come up positive for RA but have not had the tests yet for Lupus specifically (it's only that RA doesn't explain my neurological problems and I have rashes - so I want testing for Lupus as well). My bladder is a problem
cheshcat
in
LUPUS UK
7 years ago
UTI's
Do any of you guys experience frequent UTI's? I seem to constantly have them and whenever the doctors test it, the results always say blood in the urine. Is this a symptom of endo?
Do any of you guys experience frequent UTI's? I seem to constantly have them and whenever the doctors test it, the results always say blood in the urine. Is this a symptom of endo?
staceymacg
in
Endometriosis UK
7 years ago
Interstitial cystitis back with a vengeance
I suffered from interstitial cystitis for a horrible intense miserable year back in 2012 for the last four years I have been almost symptom free until a week ago when everything has returned with a vengeance. Any thoughts on how to get things back under control?
I suffered from interstitial cystitis for a horrible intense miserable year back in 2012 for the last four years I have been almost symptom free until a week ago when everything has returned with a vengeance. Any thoughts on how to get things back under control?
shelley1872
in
Pelvic Pain Support Network
7 years ago
Levothyroxine, Interstitial Cystitis & Cystitis
I am on 100mcgs of levothyroxine and suffer with interstitial cystitis and recurring cystitis. I believe levothyroxine is playing a huge role in contributing to the pain I suffer with cystitis. I stopped my levothyroxine for 1 day and the pain improved by 80%, but of course you start to feel very hypothyroid
I am on 100mcgs of levothyroxine and suffer with interstitial cystitis and recurring cystitis. I believe levothyroxine is playing a huge role in contributing to the pain I suffer with cystitis. I stopped my levothyroxine for 1 day and the pain improved by 80%, but of course you start to feel very hypothyroid
janeold25
in
Thyroid UK
7 years ago
Fungal inflection
I found my vagina was itching yesterday, and it burns when I pee. Maybe just cystitis? I went to boots bought some medicine today morning, not only the treatment for cystitis, but also the treatment for thrush inflection. Cos I found I also got the symptoms which is the vaginal discharge think and white
I found my vagina was itching yesterday, and it burns when I pee. Maybe just cystitis? I went to boots bought some medicine today morning, not only the treatment for cystitis, but also the treatment for thrush inflection. Cos I found I also got the symptoms which is the vaginal discharge think and white
AlisonShi
in
Women's Health
7 years ago
Urinary retention
I have a UTI at the moment, but prior to being diagnosed hypo I had noticed that my urine stream had weakened a little. It seems to have weakened more since going on levo and I don't pee as much (maybe the apparent retention is the cause of the UTI - I don't usually suffer). My question is - did anyone
I have a UTI at the moment, but prior to being diagnosed hypo I had noticed that my urine stream had weakened a little. It seems to have weakened more since going on levo and I don't pee as much (maybe the apparent retention is the cause of the UTI - I don't usually suffer). My question is - did anyone
MCDW
in
Thyroid UK
7 years ago
Levothyroxine Interstitial Cystitis
I have had an underactive thyroid for 13 years and have been on Levothyroxine. I also have interstitial cystitis. Can Levothyroxine upset interstitial cystitis? Contracted both conditions within a year of each other. If thyroid not controlled properly, can that upsetiinterstitial cystitis?
I have had an underactive thyroid for 13 years and have been on Levothyroxine. I also have interstitial cystitis. Can Levothyroxine upset interstitial cystitis? Contracted both conditions within a year of each other. If thyroid not controlled properly, can that upsetiinterstitial cystitis?
janeold25
in
Thyroid UK
7 years ago
UTIs,IBS and Endo
Hi Feeling really low today and just wanted to ask you guys if you suffer from recurring urinary tract infections along with your Endo?it feels like every time we now have sex it results in me getting a UTI and when you are trying to conceive this is hard,especially because a lot of the time sex can
Hi Feeling really low today and just wanted to ask you guys if you suffer from recurring urinary tract infections along with your Endo?it feels like every time we now have sex it results in me getting a UTI and when you are trying to conceive this is hard,especially because a lot of the time sex can
DebsB33
in
Endometriosis UK
7 years ago
Endometriosis, adenomyosis and interstitial cystitis 😩
Hi guys! Is anyone else taking gabapentin! Ive just been prescribed it at quite a high dose an quite worried on the side effects! Any advice? Thank you :)
Hi guys! Is anyone else taking gabapentin! Ive just been prescribed it at quite a high dose an quite worried on the side effects! Any advice? Thank you :)
KimmyDonk
in
Endometriosis UK
7 years ago
Interstitial Cystitis
Since 2010 I have had a bladder tumour removed followed by BCG treatment a radical prostatectomy. For the last 3 years I have had all the exact symptoms of Interstitial Cystitis as described by many sufferers. However I have always been told it was not Interstitial Cystitis but a bladder infection despite
Since 2010 I have had a bladder tumour removed followed by BCG treatment a radical prostatectomy. For the last 3 years I have had all the exact symptoms of Interstitial Cystitis as described by many sufferers. However I have always been told it was not Interstitial Cystitis but a bladder infection despite
palmac
in
Pelvic Pain Support Network
8 years ago
Blood in urine
wondered if anyone could help, have had lots of tests & nothing found in bladder or kidneys, could the blood in urine be due to painful bladder syndrome as I have symptoms which sound the same
wondered if anyone could help, have had lots of tests & nothing found in bladder or kidneys, could the blood in urine be due to painful bladder syndrome as I have symptoms which sound the same
2Nanny
in
Pelvic Pain Support Network
8 years ago
Am I crazy? Bladder, UTIs, IC & Endo
From about age 14-15 (when I started my period) I remember having excruciating and completely crippling period pain. I also had a really weak bladder. I'd get bad urgency walking home from school when I neared my house/a toilet and sometimes wouldn't be able to hold it in and also urinated during my
From about age 14-15 (when I started my period) I remember having excruciating and completely crippling period pain. I also had a really weak bladder. I'd get bad urgency walking home from school when I neared my house/a toilet and sometimes wouldn't be able to hold it in and also urinated during my
Delilah90
in
Endometriosis UK
8 years ago
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