Hi everyone, I really need ur help as I am feeling desperate for answers and relief. 18 months ago I had extreme bladder and kidney infection . 9 plus antibiotics and almost 6 months later to clear. Extreme pain/pressure in vagina perineurium and rectum. Pain never cleared, has only gotten worse with time. Burning in left side under ribs w spasms clear to groin, pain in left low back and down back of buttock and leg. Pain radiates in front to knee. I had a very odd sensation in bladder that felt literally like I was electrocuted and have had this level of pain since then. Was diagnosed w initial cystitis and a host of back problems. I have had nerve ablattion in my back, 8 epidurals and injections. I only get about two hours relief from each procedure and pain returns. I literally feel like I am in childbirth a great portion of my day, also feels like I am sitting on a rock. Most of the vaginal pressure seems to stay on one side, oddly enough. I started seeing a pelvic floor specialist today and she said there is pudendual nerve involvement. I am desperate for any amount of pain relief. Can the interstitial cystitis cause this level of pain? Literally, I would amputate a limb to get some relief. I have always been told i have high pain tolerance but obviosly with this, my tolerance is not there. I should add that I am a below knee amputee and she said my pelvis is really tilted down on one side and up on the other.literally when I woke up from my amputation is not even as much pain as I experience now. I am 48 years old, have had a full hysterectomy 15 years ago and have never been on any hormones . is there a specific kind of doctor I should seek treatment with? I live in Washington united States. Have been put on every med for the cystitis that they have according to urologist. The only one that has helped at all is mybetriq. Urologist wanted to put in a spinal cord stimulator, but I have held off, as I have felt it was something more than cystitis. Please, any advice I would cherish. I am so sorry that all of u suffer so greatly.
I take fentyl patch 75 micrograms for pain and 6 htdrocodeine 7.5 per day for pain and I can't get any relief. Pain gets worse as day progresses and is the best upon waking. Thank u all for responding