From about age 14-15 (when I started my period) I remember having excruciating and completely crippling period pain. I also had a really weak bladder. I'd get bad urgency walking home from school when I neared my house/a toilet and sometimes wouldn't be able to hold it in and also urinated during my sleep. I then went on the pill from about age 16/17-21 and I don't recall suffering particularly badly from either of those things.
From the age of 21 I decided to stop taking contraception in a bid to get my body back to being in its natural rhythm. With this came painful periods again, pain during sex, intermittent bleeding, tiredness, symptoms of recurring UTIs, etc.
I ended up having 2 laparoscopys in 2012 where only small amounts of endo were found (although I've since found some people can have a lot with no symptoms, and some people have a tiny bit and have bad symptoms). Parts of my bowel were stuck to other organs, I had a few small cysts on my fallopian tubes and during my second op an 8cm cyst was removed.
After the op I felt fine. My periods were normal, my bladder was normal - all good. Until last June when the familiar bladder issue came back. Urgency to pee, sometimes unable to hold it in before getting to a toilet, symptoms of a UTI without any bacteria present, urinating during my sleep and a seriously uncomfortable feeling around what i imagine is my bladder.
My question is, does anyone else get these symptoms? And is it endo, or interstitial cystitis, which I have never been diagnosed with but have read a lot about and the symptoms seem to cross over.
I cannot cope with the symptoms any more. I regularly get flare ups where I feel like I have a UTI - right now where I imagine my bladder to be feels sore and inflamed on the inside, my urethra/vagina feels swollen and hurts, it's uncomfortable to sit down, the only minor relief from the uncomfortable feeling is straining down on the toilet or in the bath as though I'm trying to push every trace of urine from my bladder. This is always worse mid-cycle and during my period, the symptoms seem to coincide. I also can't use my menstrual cup as placing this inside seems to make my lower stomach ache like crazy. Orgasms and sex also seem to be a trigger and can make the discomfort 100 x worse.
Does anyone else experience anything like this and what is it