Search
Search
About
Log in
Join
Experiences with
Primary progressive multiple sclerosis
Posts
Communities
216 public posts
Filter results
Endometriosis and Interstitial cystitis
Does any one suffer with both endo and Interstitial cystitis. After my long journey with endo I've recently found out I also have interstitial cystitis. I'm only 23 newly married but really finding things tough at the moment. I feel extremely run down and spending more and more time in bed. Has anyone
Does any one suffer with both endo and Interstitial cystitis. After my long journey with endo I've recently found out I also have interstitial cystitis. I'm only 23 newly married but really finding things tough at the moment. I feel extremely run down and spending more and more time in bed. Has anyone
OliviaRose
in
Endometriosis UK
11 years ago
Do I have IC? ( interstitial cystitis ) or Endo on my bladder.
Hello I was wondering if I had IC. So here's what has been happening to me. A few months ago when I was diagnosed with Endo. I always had to use the bathroom like 15 times a day, because every time my bladder gets full (I drink A LOT of water) I would feel this dull aching pain deep inside of me. But
Hello I was wondering if I had IC. So here's what has been happening to me. A few months ago when I was diagnosed with Endo. I always had to use the bathroom like 15 times a day, because every time my bladder gets full (I drink A LOT of water) I would feel this dull aching pain deep inside of me. But
Hidden
in
Endometriosis UK
11 years ago
Finally a diagnosis
As if I don't have enough already to deal with, having
Primary
Progressive
Multiple
Sclerosis
, Bi Polar this is just something else to throw in the mix to deal with .... :(
As if I don't have enough already to deal with, having
Primary
Progressive
Multiple
Sclerosis
, Bi Polar this is just something else to throw in the mix to deal with .... :(
karen6550
in
Lung Conditions Community Forum
11 years ago
Want to take advantage of all our features? Just log in!
Log in
or
Join
Having tests - can anyone advise me?
My problems are now affecting my life ( I dont work as I am a carer for my husband who has
primary
progressive
multiple
sclerosis
).
My problems are now affecting my life ( I dont work as I am a carer for my husband who has
primary
progressive
multiple
sclerosis
).
2catsuk
in
My Ovacome
11 years ago
Rant at myself
Mum has
primary
progressive
multiple
sclerosis
. She has choking fits and has trouble walking. I admire her very much as she is so strong-minded and will not let her illness beat her. She is currently in Tenerife with my stepdad, who she married in 2008. The hot weather helps her.
Mum has
primary
progressive
multiple
sclerosis
. She has choking fits and has trouble walking. I admire her very much as she is so strong-minded and will not let her illness beat her. She is currently in Tenerife with my stepdad, who she married in 2008. The hot weather helps her.
Hidden
in
Thyroid UK
11 years ago
What blood tests other than thyroid ones are recommended in Hashi's?
Family history Mum - Diabetes Type 1 and
Primary
Progressive
Multiple
Sclerosis
Nan - Diabetes Type 1, High Cholesterol and Angina Grandad - High Cholesterol and stroke before 40.
Family history Mum - Diabetes Type 1 and
Primary
Progressive
Multiple
Sclerosis
Nan - Diabetes Type 1, High Cholesterol and Angina Grandad - High Cholesterol and stroke before 40.
Hidden
in
Thyroid UK
11 years ago
The convoluted history of Campath and when side effects can be useful
Here's a fascinating article about off-label use of Campath (from Cambridge Pathology), a monoclonal antibody developed for CLL which was repackaged as Lemtrada, (also known as Campath-1H or alemtuzumab) for the treatment of Multiple Sclerosis. It was approved for that purpose by European regulators
Here's a fascinating article about off-label use of Campath (from Cambridge Pathology), a monoclonal antibody developed for CLL which was repackaged as Lemtrada, (also known as Campath-1H or alemtuzumab) for the treatment of Multiple Sclerosis. It was approved for that purpose by European regulators
AussieNeil
Partner
in
CLL Support
11 years ago
Blood tests, symptoms, meds -- from scratch
Progressive
Multiple
Sclerosis
Nan - Diabetes Type 1, High Cholesterol and Angina Grandad - High Cholesterol and stroke before 40.
Progressive
Multiple
Sclerosis
Nan - Diabetes Type 1, High Cholesterol and Angina Grandad - High Cholesterol and stroke before 40.
Hidden
in
Thyroid UK
11 years ago
Endo and UTI's - Is there a connection?
Hi, I was just wondering if anyone else has issues with constantly reoccurring UTI's and or if it is or has been connected to endo? I'm awaiting official diagnosis via laparoscopy after over 10 years of pain and an awful lot of pushing for answers! I'm actually really surprised that a lot of Ladies
Hi, I was just wondering if anyone else has issues with constantly reoccurring UTI's and or if it is or has been connected to endo? I'm awaiting official diagnosis via laparoscopy after over 10 years of pain and an awful lot of pushing for answers! I'm actually really surprised that a lot of Ladies
Sarve
in
Endometriosis UK
11 years ago
Last month I had a lap to remove endo in bladder and ovaries and this month I still got blood in urine while on period. Has it come back?
I started having blood in urine while on my period some months ago, when the endo symptoms started becoming worse. Last month I had a lap and two endometriomas <3cm were removed, as well as some endo in my bladder. Now I got my period, but there is still blood in my urine. Does this mean that the endo
I started having blood in urine while on my period some months ago, when the endo symptoms started becoming worse. Last month I had a lap and two endometriomas <3cm were removed, as well as some endo in my bladder. Now I got my period, but there is still blood in my urine. Does this mean that the endo
margen
in
Endometriosis UK
11 years ago
Water retention
Water retention I recently had a massage and I was told that I had a lot of water retention and when I went to my gp I was simply told that it is part of having Lupus (Helpful) Dose anyone have any tips?
Water retention I recently had a massage and I was told that I had a lot of water retention and when I went to my gp I was simply told that it is part of having Lupus (Helpful) Dose anyone have any tips?
wotshernameagain
in
LUPUS UK
11 years ago
Does anyone have an unbearable pain as the bladder fills and a horrible tightening after urinating within the vulvar area? No doctors know.
They call it interstitial cystitis with pelvic floor muscle dysfunction...But I'm not sure that's what it is. No UTI for over a year, although feels like one 24/7 for me. Any response will be truly appreciated! -C
They call it interstitial cystitis with pelvic floor muscle dysfunction...But I'm not sure that's what it is. No UTI for over a year, although feels like one 24/7 for me. Any response will be truly appreciated! -C
lagunagirl93
in
Pelvic Pain Support Network
11 years ago
I have interstitial cystitis/ pelvic floor dysfunction. I used to get Utis growing up but now I've had chronic main with no bacteria.
Does anyone know the best relief for this traumatic nerve damage in both bladder and vulvar area? Thanks guys
Does anyone know the best relief for this traumatic nerve damage in both bladder and vulvar area? Thanks guys
Hidden
in
Pelvic Pain Support Network
11 years ago
Thyroid and cystitis.
I seem to have developed cystitis. Was diagnosed almost a year ago with Graves. On Carbmazole and levo (75mcg alternating with 100mcg) and doing ok - I have a feeling I might be needing a bit more levo but not sure so will see what next blood tests say, anyway I now seem to have developed cystitis.
I seem to have developed cystitis. Was diagnosed almost a year ago with Graves. On Carbmazole and levo (75mcg alternating with 100mcg) and doing ok - I have a feeling I might be needing a bit more levo but not sure so will see what next blood tests say, anyway I now seem to have developed cystitis.
Fruitandnutcase
in
Thyroid UK
11 years ago
Cystitis
Hi ladies! So, I've been suffering with possible endo related symptoms for years now on and off. My main symptoms are: pain during and after sex, random bleeding during and after sex, lower abdo pain that is like pulling or tugging (it's agony), fatigue, bowel irregularities and I'm sure there's more
Hi ladies! So, I've been suffering with possible endo related symptoms for years now on and off. My main symptoms are: pain during and after sex, random bleeding during and after sex, lower abdo pain that is like pulling or tugging (it's agony), fatigue, bowel irregularities and I'm sure there's more
Cat_face
in
Endometriosis UK
11 years ago
1st gynae appointment. What to expect before diagnosis? Advice please?
Hi everyone! After reading a few posts, I was wondering if anyone could offer me any advice / tell me what to expect (as I always end up forgetting everything once i get to the doctors, so want to be prepared)/ even tell me if they think my symptoms could be endo? I am 20 years old and for the last
Hi everyone! After reading a few posts, I was wondering if anyone could offer me any advice / tell me what to expect (as I always end up forgetting everything once i get to the doctors, so want to be prepared)/ even tell me if they think my symptoms could be endo? I am 20 years old and for the last
Andys_Girl
in
Endometriosis UK
11 years ago
Irritable Bladder or Intercystial Cystitis
Does anyone get an Irritable bladder? With no ability to hold it in despite fairly good pelvic muscles. It burns and I am back and forwards to the loo five minutes after I've just been. It also hurts in my abdomen and kidneys. Consultant says its irritable bladder or Intercystial cystitis. Anyone
Does anyone get an Irritable bladder? With no ability to hold it in despite fairly good pelvic muscles. It burns and I am back and forwards to the loo five minutes after I've just been. It also hurts in my abdomen and kidneys. Consultant says its irritable bladder or Intercystial cystitis. Anyone
lcm27
in
Fibromyalgia Action UK
11 years ago
Cystitis even while on anti-biotics? Plus certain infections connected to hypothyroid?
I am currently on Amoxicillin 500, which was not given for cystitis (have a bacterial chest infection) but can be used as such, yet I am still having mild symptoms of a urinary tract infection. I am very prone to them and have been for a number of years. In the past any anti-biotic took care of it without
I am currently on Amoxicillin 500, which was not given for cystitis (have a bacterial chest infection) but can be used as such, yet I am still having mild symptoms of a urinary tract infection. I am very prone to them and have been for a number of years. In the past any anti-biotic took care of it without
ladytelita
in
Thyroid UK
11 years ago
Endo and uti
I have another Uti this one is a bad one in total agony had it almost 3 weeks now been on 2. Different antibiotics some times I get so fed up Xxx
I have another Uti this one is a bad one in total agony had it almost 3 weeks now been on 2. Different antibiotics some times I get so fed up Xxx
Sunset81
in
Endometriosis UK
11 years ago
And a return of last weeks UTI :( ..... SO DO ANTIBIOTICS AFFECT ARMOUR THYROID or vice versa?
Had a UTI almost two weeks ago, as discussed in a previous question I am a regular sufferer of UTI's with no apparent cause. Have prophalactic antibiotics on perscription, i.e one to take after intercourse (tres romantic) This has worked for the last 8 months until almost two weeks ago (a week after
Had a UTI almost two weeks ago, as discussed in a previous question I am a regular sufferer of UTI's with no apparent cause. Have prophalactic antibiotics on perscription, i.e one to take after intercourse (tres romantic) This has worked for the last 8 months until almost two weeks ago (a week after
Femme1
in
Thyroid UK
11 years ago
1
...
9
10
11
Next page
10
Filter results
Clear filters
Posted in
All communities
Endometriosis UK
78 results
Thyroid UK
37 results
Pelvic Pain Support Network
30 results
View top 10 communities
Sort by
Most Relevant
Newest