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Experiences with
Primary biliary cholangitis (PBC)
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Cirrhosis - tiredness
Hi. I was told I have cirrhosis at the start of the year, not caused by alcohol. I get tired so much of the time - any ideas how to overcome this?
Hi. I was told I have cirrhosis at the start of the year, not caused by alcohol. I get tired so much of the time - any ideas how to overcome this?
Hidden
in
British Liver Trust
6 years ago
Serositis or interstitial cystitis
Hello everybody. I would really like to know if anyone was diagnosed with serositis or interstitial cystitis. What symptoms you have and how these conditions were diagnosed. I have had pain and inflammation and swelling in my lower abdomen for decades but all test were always negative (gynaecology, CT
Hello everybody. I would really like to know if anyone was diagnosed with serositis or interstitial cystitis. What symptoms you have and how these conditions were diagnosed. I have had pain and inflammation and swelling in my lower abdomen for decades but all test were always negative (gynaecology, CT
Petrof
in
LUPUS UK
6 years ago
PVC’s, PAC’s and a leaky valve
I am 26 years old and have just given birth to my second child currently 12 days postpartum. Everything went well and I came home 4 days later when all of a sudden I started getting palpitations big thump feeling in my throat that took my breath away I figured it was from lack of sleep and stress but
I am 26 years old and have just given birth to my second child currently 12 days postpartum. Everything went well and I came home 4 days later when all of a sudden I started getting palpitations big thump feeling in my throat that took my breath away I figured it was from lack of sleep and stress but
Singhy2010
in
Arrhythmia Alliance
6 years ago
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Lupus?
Ok so I'm new here, I'm 39 and have been suffering with an unknown illness for about 15 years now. It started when I was 22 with what I thought to be constant urinary tract infections as constantly had protein in my urine, finally after 8 years of being pumped full of antibiotics which did nothing, My
Ok so I'm new here, I'm 39 and have been suffering with an unknown illness for about 15 years now. It started when I was 22 with what I thought to be constant urinary tract infections as constantly had protein in my urine, finally after 8 years of being pumped full of antibiotics which did nothing, My
rosieredchops
in
LUPUS UK
6 years ago
Bisoprolol and Flacainide
Saw the cardiologist yesterday and the wanted to start me on flacainide along with my bisoprolol. The flacainide is supposed to help with the PVCs that I get. I’m just nervous because they do a EKG 2 days after starting it because it can effect your rhythm. She said there is less then a 1% chance that
Saw the cardiologist yesterday and the wanted to start me on flacainide along with my bisoprolol. The flacainide is supposed to help with the PVCs that I get. I’m just nervous because they do a EKG 2 days after starting it because it can effect your rhythm. She said there is less then a 1% chance that
DisneyMom3
in
Arrhythmia Alliance
6 years ago
can i do gym with liver cirrhosis ? as i used to be a weight trainer before getting diagnosed by it.
my fibroscan reads 11.7 , SGPT- 86 & SGOT 71 with ALP on 186. I want to know that is it possible for me to start working out and do weight training again with these results ???
my fibroscan reads 11.7 , SGPT- 86 & SGOT 71 with ALP on 186. I want to know that is it possible for me to start working out and do weight training again with these results ???
ayushsingh977
in
British Liver Trust
6 years ago
blood test results
just got my results back. hg gone up but platelets gone down. Is it better to have high haemoglobin and low platelets or low hg and high platelets?
just got my results back. hg gone up but platelets gone down. Is it better to have high haemoglobin and low platelets or low hg and high platelets?
suzannah16
in
LUPUS UK
6 years ago
PVCs while laying down..
Well it’s time for bed.. I actually dread this time of day because when I lay on my back, or my right side, my PVCs start acting up. It’s so annoying!! Anyone else?
Well it’s time for bed.. I actually dread this time of day because when I lay on my back, or my right side, my PVCs start acting up. It’s so annoying!! Anyone else?
DisneyMom3
in
Arrhythmia Alliance
6 years ago
Bad mornings
As soon as I stood up out of bed this morning my heart rate shot up to 162... this is not unusual for me! Most mornings for the past year my heart rate has been doing this. I’m at my wits end with it! Everyone tells me I’m fine. I’m on 2.5 bisoprolol twice a day. All day long my heart rate is normal,
As soon as I stood up out of bed this morning my heart rate shot up to 162... this is not unusual for me! Most mornings for the past year my heart rate has been doing this. I’m at my wits end with it! Everyone tells me I’m fine. I’m on 2.5 bisoprolol twice a day. All day long my heart rate is normal,
DisneyMom3
in
Anxiety Support
6 years ago
Crazy high heart rate
As soon as I stood up out of bed this morning my heart rate shot up to 162... this is not unusual for me! Most mornings for the pay year my heart rate has been doing this. I’m at my wits end with it! Everyone tells me I’m fine. I’m on 2.5 bisoprolol twice a day. All day long my heart rate is normal,
As soon as I stood up out of bed this morning my heart rate shot up to 162... this is not unusual for me! Most mornings for the pay year my heart rate has been doing this. I’m at my wits end with it! Everyone tells me I’m fine. I’m on 2.5 bisoprolol twice a day. All day long my heart rate is normal,
DisneyMom3
in
Arrhythmia Alliance
6 years ago
Why does it take so long
As a bit of my history, I was admitted September, 2017 with decompenated cirrhosis and a meld of 42. I was considered a goner with my labs all out of whack, HE and ascites. I have been fortunate to improve greatly and now have a meld of 10 and child Pugh A. My diuretics have been stopped for 6 months
As a bit of my history, I was admitted September, 2017 with decompenated cirrhosis and a meld of 42. I was considered a goner with my labs all out of whack, HE and ascites. I have been fortunate to improve greatly and now have a meld of 10 and child Pugh A. My diuretics have been stopped for 6 months
Johnhstn
in
British Liver Trust
6 years ago
PVCS HAS TAKEN OVER MY LIFE
I think about them everyday, talk about them everyday, and of course feel them everyday. Its been coming up to 3 months now, so hasn't been long but it has been the hardest 3 months of my life. My doctor decided to give me Xanax and I dno if that makes me more nervous, I know how serious of a drug it
I think about them everyday, talk about them everyday, and of course feel them everyday. Its been coming up to 3 months now, so hasn't been long but it has been the hardest 3 months of my life. My doctor decided to give me Xanax and I dno if that makes me more nervous, I know how serious of a drug it
Latoya13
in
Arrhythmia Alliance
6 years ago
HE
Is it normal for HE to cause this much memory loss? I literally forget everything and cannot remember what happened yesterday, blank slate, Or even what ive done today!Once I've been given rifaxamin will this improve? Currently taking 40ml lactulose twice a day but not doing anything apart from giving
Is it normal for HE to cause this much memory loss? I literally forget everything and cannot remember what happened yesterday, blank slate, Or even what ive done today!Once I've been given rifaxamin will this improve? Currently taking 40ml lactulose twice a day but not doing anything apart from giving
ktan49
in
British Liver Trust
6 years ago
CRT
Has anyone had a CRT device implanted to correct PVC? Ablation has not worked and I get shortness of breath just sanding up and walking 5 feet. It's also terribly uncomfortable when it starts.
Has anyone had a CRT device implanted to correct PVC? Ablation has not worked and I get shortness of breath just sanding up and walking 5 feet. It's also terribly uncomfortable when it starts.
Larry0304
in
AF Association
6 years ago
Premature Ventricular Contractions
I take Nature- Throid (dessicated pig thyroid) for Hashis. I have started to have borderline High BP and PVCs. I have a nuclear stress test scheduled. Anyone had a connection? Dropping the dose didn't help
I take Nature- Throid (dessicated pig thyroid) for Hashis. I have started to have borderline High BP and PVCs. I have a nuclear stress test scheduled. Anyone had a connection? Dropping the dose didn't help
Tink68
in
Thyroid UK
6 years ago
muscle wastage
Hi I have cirrosis of the liver and had a grip test done 3 over the past 4 months and my average grip strength is 3.5kg in each arm which im being told is bad they havnt offered any advice on how to combat this ive upped my protein and tried swimming but i find this very difficult with the strenth in
Hi I have cirrosis of the liver and had a grip test done 3 over the past 4 months and my average grip strength is 3.5kg in each arm which im being told is bad they havnt offered any advice on how to combat this ive upped my protein and tried swimming but i find this very difficult with the strenth in
kaya12
in
British Liver Trust
6 years ago
AFib with No Meds
Is anyone else not on meds? I was pregnant when diagnosed and refused the meds due to possible effects on the baby. It's been three years and I'm still not on meds. I am usually fine but I'm in a stressful marriage and homeschool four little ones. I don't experience any arrhythmia or flutters, but
Is anyone else not on meds? I was pregnant when diagnosed and refused the meds due to possible effects on the baby. It's been three years and I'm still not on meds. I am usually fine but I'm in a stressful marriage and homeschool four little ones. I don't experience any arrhythmia or flutters, but
Need2sleep0819
in
AF Association
6 years ago
Alcohol & pvc
I can’t seem to drink alcohol starts off runs of ectopics or could it be the bisoprolo that is not mixing well with alcohol 🍷
I can’t seem to drink alcohol starts off runs of ectopics or could it be the bisoprolo that is not mixing well with alcohol 🍷
2468abcmuk
in
Arrhythmia Alliance
6 years ago
Latest
Just got off the phone to arrythmia nurse at the Brompton, my holter monitor was mostly sinus rhythm, with rare pac's and rare pvc's, burden of 0.1%....however one run 5 beats on 29th October of broad complex tachycardia....so I'm still none the wiser, 😂😂😂😂, not sure if that's serious or not.
Just got off the phone to arrythmia nurse at the Brompton, my holter monitor was mostly sinus rhythm, with rare pac's and rare pvc's, burden of 0.1%....however one run 5 beats on 29th October of broad complex tachycardia....so I'm still none the wiser, 😂😂😂😂, not sure if that's serious or not.
Hidden
in
AF Association
6 years ago
Signed off from haematologist today.
I went to see the haematologist I was originally referred to for anaemia back in February. It was she who recognised the spider naevie and felt my enlarged liver. She referred me for a liver scan and a gastroscopy and colonoscopy which confirmed the diagnosis of cirrhosis. She said that I should still
I went to see the haematologist I was originally referred to for anaemia back in February. It was she who recognised the spider naevie and felt my enlarged liver. She referred me for a liver scan and a gastroscopy and colonoscopy which confirmed the diagnosis of cirrhosis. She said that I should still
GrandmaDylan
in
British Liver Trust
6 years ago
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