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Experiences with
Primary biliary cholangitis (PBC)
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How would you take this??
Decompensated liver Feb 2020 with ascites. Hospital outpatient drain. Just over 7 stone. Currently 11 1/2 stone with good muscle mass. Off spirlactatone. No fluid. Ruled out pancreatitis. Portal hypertension on carvidol. Had endoscopy,small grade 1 varcie. Evidence of cirrhosis,can’t tell me how much
Decompensated liver Feb 2020 with ascites. Hospital outpatient drain. Just over 7 stone. Currently 11 1/2 stone with good muscle mass. Off spirlactatone. No fluid. Ruled out pancreatitis. Portal hypertension on carvidol. Had endoscopy,small grade 1 varcie. Evidence of cirrhosis,can’t tell me how much
deanw41
in
British Liver Trust
4 years ago
Cardiac Ablation for Frequent PVC and PACs - 6 Weeks out and struggling
Hello! I am new here, 28F, and 6 weeks post-ablation. I am told my ablation was a success, since they weren't able to duplicate the PVCs, PACs, and NSVT. However, I have had an awful recovery and I'm looking for some advice as to whether or not this is normal. I've been to my physician's office countless
Hello! I am new here, 28F, and 6 weeks post-ablation. I am told my ablation was a success, since they weren't able to duplicate the PVCs, PACs, and NSVT. However, I have had an awful recovery and I'm looking for some advice as to whether or not this is normal. I've been to my physician's office countless
Bnicole28
in
Arrhythmia Alliance
3 years ago
Fibroscan over 65
Hello, my uncle has been unwell for sometime and has lost alot of weight. He has been told he has liver disease and has had a fibroscan with a kpa of over 65. The hospital dont seem to be very forthcoming with what the next steps are. I havent heard the word cirrhosis mentioned but from what I can see
Hello, my uncle has been unwell for sometime and has lost alot of weight. He has been told he has liver disease and has had a fibroscan with a kpa of over 65. The hospital dont seem to be very forthcoming with what the next steps are. I havent heard the word cirrhosis mentioned but from what I can see
daisydo1
in
British Liver Trust
4 years ago
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Ablation for PVCs²
I've been told by my EP that he recommends that I have an ablation, as I have PVCs. I'm only 40 and currently take Flecainide twice a day, 50mg per time and have done this for around a year. I'm terrified of having the ablation done, as any heart procedure sounds terrifying to me. I asked could I have
I've been told by my EP that he recommends that I have an ablation, as I have PVCs. I'm only 40 and currently take Flecainide twice a day, 50mg per time and have done this for around a year. I'm terrified of having the ablation done, as any heart procedure sounds terrifying to me. I asked could I have
Bahrain22
in
AF Association
3 years ago
Ablation for PVCs
I've been told by my EP that he recommends that I have an ablation, as I have PVCs. I'm only 40 and currently take Flecainide twice a day, 50mg per time and have done this for around a year. I'm terrified of having the ablation done, as any heart procedure sounds terrifying to me. I asked could I have
I've been told by my EP that he recommends that I have an ablation, as I have PVCs. I'm only 40 and currently take Flecainide twice a day, 50mg per time and have done this for around a year. I'm terrified of having the ablation done, as any heart procedure sounds terrifying to me. I asked could I have
Bahrain22
in
British Heart Foundation
3 years ago
Atrial bigeminy, ectopics, PVCs and low heart rate
I'm 57 and have atrial bigeminy which is almost constant, my resting heart rate ranges between 38 and 44 on average. I've had ECGs and EKGs showing my heart is strong but misfiring. A 24 hour halter monitor revealed very frequent ectopics and I've been waiting over a year for a treadmill stress test
I'm 57 and have atrial bigeminy which is almost constant, my resting heart rate ranges between 38 and 44 on average. I've had ECGs and EKGs showing my heart is strong but misfiring. A 24 hour halter monitor revealed very frequent ectopics and I've been waiting over a year for a treadmill stress test
PaulMichaels
in
British Heart Foundation
4 years ago
Low urea count..
Hi all. I posted regarding my partner who has decompensated liver cirrhosis, ascites, portal hypertension, hernia and an enlarged spleen, and I had some really good advice and feedback from some of you. He's had the results of a kidney blood test and his urea is low. I wonder if anyone could give me
Hi all. I posted regarding my partner who has decompensated liver cirrhosis, ascites, portal hypertension, hernia and an enlarged spleen, and I had some really good advice and feedback from some of you. He's had the results of a kidney blood test and his urea is low. I wonder if anyone could give me
Hidden
in
British Liver Trust
4 years ago
Ultrasound scan on liver
I'm so scared for tomorrow to get this scan done like I've never been so scared what if they say I've got live cirrhosis or something I know my GGT was 43 but it still can happen I'm so so so scared 😭😭
I'm so scared for tomorrow to get this scan done like I've never been so scared what if they say I've got live cirrhosis or something I know my GGT was 43 but it still can happen I'm so so so scared 😭😭
Cashiee97
in
British Liver Trust
4 years ago
Exhaustion
I have severe PACs and PVCs that I can feel. I take an anti arrhythmic medicine but still feel some. On particularly bad episode days where I feel them most of the day I am completely exhausted by the end of the day. I mean so exhausted that all I can do is go to bed because I can not physically do anything
I have severe PACs and PVCs that I can feel. I take an anti arrhythmic medicine but still feel some. On particularly bad episode days where I feel them most of the day I am completely exhausted by the end of the day. I mean so exhausted that all I can do is go to bed because I can not physically do anything
dh1120
in
Arrhythmia Alliance
4 years ago
Low platelets and swollen spleen
Hope this isn't a silly question. Can anyone explain why l have low platelets and swollen spleen when my bloods are normal and despite being at F4 cirrhosis my liver is compensated. Thanks.
Hope this isn't a silly question. Can anyone explain why l have low platelets and swollen spleen when my bloods are normal and despite being at F4 cirrhosis my liver is compensated. Thanks.
Rozy64
in
British Liver Trust
4 years ago
New onset of Cirrhosis of the Liver
I have been diagnosed with Cirrhosis of the liver, Fibroscan 14.5Kpa, likely to be NAFLD, Type 2 DM, Autoimmune and viral negative. Child A - UKELD 43. No signs of portal hypertension, last platelets in Nov 126 for OGD. I have lost over a stone in weight and arranged to speak with a nutritionist and
I have been diagnosed with Cirrhosis of the liver, Fibroscan 14.5Kpa, likely to be NAFLD, Type 2 DM, Autoimmune and viral negative. Child A - UKELD 43. No signs of portal hypertension, last platelets in Nov 126 for OGD. I have lost over a stone in weight and arranged to speak with a nutritionist and
Gailio
in
British Liver Trust
4 years ago
3 months post ablation #2
So today is the 3 month anniversary of my second ablation. The first having been done on 10 of July 2020 main update I have had no afib since the procedure!! Yippee!! My personal experience below I took it hugely easy for the two weeks following the ablation I strongly suggest this I read the print
So today is the 3 month anniversary of my second ablation. The first having been done on 10 of July 2020 main update I have had no afib since the procedure!! Yippee!! My personal experience below I took it hugely easy for the two weeks following the ablation I strongly suggest this I read the print
Sfhmgusa
in
AF Association
4 years ago
Fear of exercise?
I had an ablation done on Dec. 22nd. Originally, the procedure was for PVC’s, but they had to take care of a tachycardia issue instead. After wearing a heart monitor for 48 hrs my dr. said things looked good. My PVC’s were showing up 2% of the time he thinks ablating the tachycardia issue helped .
I had an ablation done on Dec. 22nd. Originally, the procedure was for PVC’s, but they had to take care of a tachycardia issue instead. After wearing a heart monitor for 48 hrs my dr. said things looked good. My PVC’s were showing up 2% of the time he thinks ablating the tachycardia issue helped .
Baseball40
in
AF Association
4 years ago
Anybody ever heard anything like this before ?
I have been a poor sleeper all my life mainly due to working shifts amongst other things. About 5 years ago I started to have severe night-time heart palpitations which only happened when I went to bed (as if I already wasn't a poor sleeper) these have made my life miserable. I have had every investigation
I have been a poor sleeper all my life mainly due to working shifts amongst other things. About 5 years ago I started to have severe night-time heart palpitations which only happened when I went to bed (as if I already wasn't a poor sleeper) these have made my life miserable. I have had every investigation
Mgs333
in
Sleep Matters
4 years ago
Bisoprolol: What is your effective dosage?
My daughter had Ventricular Ectopy (PVCs) and borderline of Heart Failure. -Initially they gave her Bisoprolol 2.5mg/day. Her PVCs burden went down from 25% to 12%. -Then they increased the dose to 5mg/day hoping that it'd lower further the number of PVCs. Unfortunately, it swung up to 22% (!). -Back
My daughter had Ventricular Ectopy (PVCs) and borderline of Heart Failure. -Initially they gave her Bisoprolol 2.5mg/day. Her PVCs burden went down from 25% to 12%. -Then they increased the dose to 5mg/day hoping that it'd lower further the number of PVCs. Unfortunately, it swung up to 22% (!). -Back
AnnieKato
in
AF Association
4 years ago
Unhappy with diagnosis
Hello again. Further to my last post, l am really not happy with the way l have been diagnosed. I said before, my liver issue was noticed on an ultrasound scan during a routine spleen check, as it's enlarged and has been for around 2 years as far as l know, together with low platelets. I spoke on phone
Hello again. Further to my last post, l am really not happy with the way l have been diagnosed. I said before, my liver issue was noticed on an ultrasound scan during a routine spleen check, as it's enlarged and has been for around 2 years as far as l know, together with low platelets. I spoke on phone
Rozy64
in
British Liver Trust
4 years ago
I have chronic cirrhosis, I am going to talk to my Gp today about what he thinks can be done. I have lost a load of weight
I have chronic cirrhosis, I am going to talk to my doctor today about what can be done for me, I have lost a load of weight, my nails have gone white, and have constant pain in my lower left side of my back
I have chronic cirrhosis, I am going to talk to my doctor today about what can be done for me, I have lost a load of weight, my nails have gone white, and have constant pain in my lower left side of my back
gordon76
in
British Liver Trust
4 years ago
PVCs and roller-coaster Bisoprolol. Need advice, please
My daughter has 24% of PVCs but NO symptom, so she has to rely on Zio Path to check her PVCs burden. Sep 2019, Bisoprolol 2,5mg/day. PVCs went down to 12%. Nov 2019, they increased to 5mg/day hoping that it'd lower further number of PVCs. Unfortunately, it went up to 22% (!) Dec 2019, back to 2,5mg
My daughter has 24% of PVCs but NO symptom, so she has to rely on Zio Path to check her PVCs burden. Sep 2019, Bisoprolol 2,5mg/day. PVCs went down to 12%. Nov 2019, they increased to 5mg/day hoping that it'd lower further number of PVCs. Unfortunately, it went up to 22% (!) Dec 2019, back to 2,5mg
AnnieKato
in
AF Association
4 years ago
Bisoprolol
Hello Recently I got infected with something( still don’t know what it was) anyway it caused my hr to reach 123 constantly at rest. So I had to be back to the bisoprolol for a month. However, right now that I’m weaning off . I’m experiencing more pvcs ? And pacs . Is this normal for withdrawal? Thank
Hello Recently I got infected with something( still don’t know what it was) anyway it caused my hr to reach 123 constantly at rest. So I had to be back to the bisoprolol for a month. However, right now that I’m weaning off . I’m experiencing more pvcs ? And pacs . Is this normal for withdrawal? Thank
Hidden
in
British Heart Foundation
4 years ago
Enhanced liver fibrosis test
can ELF ( Enhanced liver fibrosis test ) Show accurately the amount of fibrosis / cirrhosis , related to all type of liver disease or it is specific only to NAFLD ?
can ELF ( Enhanced liver fibrosis test ) Show accurately the amount of fibrosis / cirrhosis , related to all type of liver disease or it is specific only to NAFLD ?
Marwan76
in
British Liver Trust
4 years ago
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