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Pink cheek, ref Rapid Access for hearing loss
Hi everybody hope you are all doing well. I've NOT been diagnosed but briefly this is where I am now and wonder if anybody had similar without it being AN. Tinnitus and pulsatile tinnitus 24/7 for past 14 months or so, random vertigo. Headaches left temple and to rear of ear like the lower skull area
Hi everybody hope you are all doing well. I've NOT been diagnosed but briefly this is where I am now and wonder if anybody had similar without it being AN. Tinnitus and pulsatile tinnitus 24/7 for past 14 months or so, random vertigo. Headaches left temple and to rear of ear like the lower skull area
hollyrain
in
Acoustic Neuroma Support
5 months ago
Finally finished prednisolone.
Hi all, after just over 7.5 years I've finally managed to stop pred. It's been a very long and slow reduction with the inevitable hiccups along the way. I ended up on 0.5mg every 2 days and finished last week, with no ill effects that I'm aware of. The last PMR symptoms I had were in 2020. What I'd like
Hi all, after just over 7.5 years I've finally managed to stop pred. It's been a very long and slow reduction with the inevitable hiccups along the way. I ended up on 0.5mg every 2 days and finished last week, with no ill effects that I'm aware of. The last PMR symptoms I had were in 2020. What I'd like
Amstel
in
PMRGCAuk
5 months ago
Moving to MTX after 9 years of prednisolone?
I would appreciate the expertise of the forum on my situation. I was diagnosed with PMR 9 years ago and have been on prednisolone since then. With a few flares, I’ve never been able to taper to below 4mg, usually taking between 5 - 7.5mg. The last year has been very stressful (bereavements, sepsis
I would appreciate the expertise of the forum on my situation. I was diagnosed with PMR 9 years ago and have been on prednisolone since then. With a few flares, I’ve never been able to taper to below 4mg, usually taking between 5 - 7.5mg. The last year has been very stressful (bereavements, sepsis
SQQQ
in
PMRGCAuk
5 months ago
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PMR remission maybe
I am happy to be finishing off the
prednisone
. 😊I can't say how much this site has meant to me. Thank you to the PRO 's and for the resources available here. [i]
Thank you for all that you do!!
[/i]
I am happy to be finishing off the
prednisone
. 😊I can't say how much this site has meant to me. Thank you to the PRO 's and for the resources available here. [i]
Thank you for all that you do!!
[/i]
Mewy
in
PMRGCAuk
1 year ago
And ,now another type of pain........
Being diagnosed with PMR in about 2006 and using varying amounts of prednisolone ever since, my legacy is Adrenal Insuffiency plus the usual things like bruising, skin rips of easy etc...... But now some new type of pain.......... Last year my rheumy said you no longer have PMR, and wanted some tests
Being diagnosed with PMR in about 2006 and using varying amounts of prednisolone ever since, my legacy is Adrenal Insuffiency plus the usual things like bruising, skin rips of easy etc...... But now some new type of pain.......... Last year my rheumy said you no longer have PMR, and wanted some tests
billydownunder
in
PMRGCAuk
5 months ago
Phase II 2020-0200 Clinical Trial
Aside from the trial combination of meds, I still continue on Lupron and
Prednisone
. Thanks in advance for any replies or feedback.
Aside from the trial combination of meds, I still continue on Lupron and
Prednisone
. Thanks in advance for any replies or feedback.
Z06505hp
in
Advanced Prostate Cancer
1 year ago
Robstevens
I've been on prednisolone for 10 years. Can't get off it. Even with nucala injections every 4 weeks. I had churg Strauss syndrome. And still on 11 drugs to get by. Every day. Including heart drugs. But still can't get PIP. Even though I would probably die before someone with a bit of arthritis who
I've been on prednisolone for 10 years. Can't get off it. Even with nucala injections every 4 weeks. I had churg Strauss syndrome. And still on 11 drugs to get by. Every day. Including heart drugs. But still can't get PIP. Even though I would probably die before someone with a bit of arthritis who
Guccibee
in
Vasculitis UK
5 months ago
Criteria to treat CLL
Good morning, My Haematologist has again recommended I start treatment for CLL. Yet, I know that I've read on here that there are set criteria for doing so. His reasoning is that the treatment has a immune suppressive effect. I'm on 4mg prednisolone and the aim is to taper to nothing. I'm on the steroids
Good morning, My Haematologist has again recommended I start treatment for CLL. Yet, I know that I've read on here that there are set criteria for doing so. His reasoning is that the treatment has a immune suppressive effect. I'm on 4mg prednisolone and the aim is to taper to nothing. I'm on the steroids
Ange324
in
CLL Support
5 months ago
One thing after another.
I got covid April 2nd and it seemed rather mild.After testing negative I developed a bad cough.Iam a non smoker but my x-rays showed pneumonia and copd.Could this be due to
prednisone
,?
I got covid April 2nd and it seemed rather mild.After testing negative I developed a bad cough.Iam a non smoker but my x-rays showed pneumonia and copd.Could this be due to
prednisone
,?
Hunter134
in
PMRGCAuk
1 year ago
Prednisolone without food
Have always taken my Prednisolone at breakfast with porridge or Greek yoghurt . Refuse to take a PPI. Am due for surgery in a few weeks time and not to eat after midnight. Am only on 4.5 mg Pred at present. Will it hurt this once to take it with no food? I cant see a way around it.
Have always taken my Prednisolone at breakfast with porridge or Greek yoghurt . Refuse to take a PPI. Am due for surgery in a few weeks time and not to eat after midnight. Am only on 4.5 mg Pred at present. Will it hurt this once to take it with no food? I cant see a way around it.
jaycee444
in
PMRGCAuk
5 months ago
Prednisolone 2.5mg Gastro-resistant tablets
Just picked up my prescription for my pred and for the first time in six years my GP has prescribed Prednisolone Gastro-resistant 2.5mg tablets instead of my normal Prednisolone 2.5mg. I presume these are the coated ones I have heard people mention in the past, but as I already take Lansoprazole 15mg
Just picked up my prescription for my pred and for the first time in six years my GP has prescribed Prednisolone Gastro-resistant 2.5mg tablets instead of my normal Prednisolone 2.5mg. I presume these are the coated ones I have heard people mention in the past, but as I already take Lansoprazole 15mg
Purplegloss
in
PMRGCAuk
5 months ago
5/25 update on Zytiga failed
To review, after 19 months on Lupron, Zytiga,
prednisone
, PSA increased on 1/23 to 0.253, then 0.309 on 2/21. Plarify scan showed only one active site in hip which was radiated. 4/4 PSA dropped to 0.24 which indicated the lesion was knocked out and I would be hormone sensitive and stay on Zytiga.
To review, after 19 months on Lupron, Zytiga,
prednisone
, PSA increased on 1/23 to 0.253, then 0.309 on 2/21. Plarify scan showed only one active site in hip which was radiated. 4/4 PSA dropped to 0.24 which indicated the lesion was knocked out and I would be hormone sensitive and stay on Zytiga.
alperk
in
Advanced Prostate Cancer
1 year ago
Back again
I had only been off of
Prednisone
for 8 months. My inflammation markers are rising even though I went back on 40 mg
Prednisone
. Next week I will start Actemra. Just curious, did anyone else have a re-occurrence of GCA and PMR? How did it go? Thanks for your feedback.
I had only been off of
Prednisone
for 8 months. My inflammation markers are rising even though I went back on 40 mg
Prednisone
. Next week I will start Actemra. Just curious, did anyone else have a re-occurrence of GCA and PMR? How did it go? Thanks for your feedback.
Tj2017
in
PMRGCAuk
9 months ago
update on symptoms after holiday
it’s now been 8 days since return from holiday. I’m marginally better but after a shower and breakfast feel fatigued and not well. I did go out for coffee today with husband for an hour and now have aches in arms and legs . I have neck pain / stiffness at times. Had a nap. I’m still on 15 mg prednisolone
it’s now been 8 days since return from holiday. I’m marginally better but after a shower and breakfast feel fatigued and not well. I did go out for coffee today with husband for an hour and now have aches in arms and legs . I have neck pain / stiffness at times. Had a nap. I’m still on 15 mg prednisolone
Sheeplegs
in
PMRGCAuk
5 months ago
Pain behind ear
Last night I started getting an intermittent shooting pain behind my right ear. It’s continued throughout today. I had a GCA diagnosis over 5 years ago along with PMR but am now down to 0.5mg. I know it’s not a normal GCA pain but I’m just a little concerned as I’ve no idea what it is. I’ve just taken
Last night I started getting an intermittent shooting pain behind my right ear. It’s continued throughout today. I had a GCA diagnosis over 5 years ago along with PMR but am now down to 0.5mg. I know it’s not a normal GCA pain but I’m just a little concerned as I’ve no idea what it is. I’ve just taken
Lyndaki
in
PMRGCAuk
5 months ago
acid reflux problem
Hi everyone on this very helpful platform. As previously stated, I have been on prednisolone since September 22, and have very slowly decreased the dose from 15mg to 2mg which I am sticking with for the foreseeable as when I reduced lower the aches and pains started again. My question is has anyone
Hi everyone on this very helpful platform. As previously stated, I have been on prednisolone since September 22, and have very slowly decreased the dose from 15mg to 2mg which I am sticking with for the foreseeable as when I reduced lower the aches and pains started again. My question is has anyone
Guilluame
in
PMRGCAuk
5 months ago
Statins and prednisolone
I have been on prednisolone for nearly two years, starting on 15 mg, now down to 6mg. Previously tapering at 0.5 mg every 6 weeks, more recently tapering at 0.5 mg at 8 week intervals. Now wondering whether to extend that interval further, after having had a bad flare. Following a recent diagnosis
I have been on prednisolone for nearly two years, starting on 15 mg, now down to 6mg. Previously tapering at 0.5 mg every 6 weeks, more recently tapering at 0.5 mg at 8 week intervals. Now wondering whether to extend that interval further, after having had a bad flare. Following a recent diagnosis
waltztherapy
in
PMRGCAuk
5 months ago
Prednisolone and blood thinners
As well as having PMR I also have Atrial Fibrillation. I am currently on 6mg of prednisolone.My GP is reluctant to prescribe a DOAC blood thinner for the Afib, because he says there is a risk of gastric bleeding.I am friendly with two retired GP's who are both of the opinion that this shouldn't be an
As well as having PMR I also have Atrial Fibrillation. I am currently on 6mg of prednisolone.My GP is reluctant to prescribe a DOAC blood thinner for the Afib, because he says there is a risk of gastric bleeding.I am friendly with two retired GP's who are both of the opinion that this shouldn't be an
Seamab
in
PMRGCAuk
5 months ago
Different brands of prednisone
Hi everyone, Is there any reason I should be concerned about different brands of
prednisone
not being made properly or consistently, or acting differently because they were not made the same way? (Generic versions, for example.)
Hi everyone, Is there any reason I should be concerned about different brands of
prednisone
not being made properly or consistently, or acting differently because they were not made the same way? (Generic versions, for example.)
sferios
in
PMRGCAuk
1 year ago
Timing of Dexamethasone
I've been on ADT since 2017 and approximately 3 years ago I switched from
prednisone
to .5mg dexamethasone daily with morning meal. I have been having periods of infrequent lightheadedness. I have been through a series of tests and my pcp cannot determine the source.
I've been on ADT since 2017 and approximately 3 years ago I switched from
prednisone
to .5mg dexamethasone daily with morning meal. I have been having periods of infrequent lightheadedness. I have been through a series of tests and my pcp cannot determine the source.
ctflatlander
in
Advanced Prostate Cancer
1 year ago
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