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Prednisone
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Addissons disease
Good afternoon. I was diagnosed with Adison's disease in 2022. Prescribed Prednisolone 5 mg. Now I take hydrocortisone tablets 20 mg per day. Fludrocortisone 0.1 mg. Once a year there is an Adrinal crisis, I end up in intensive care... Constant weakness, no vitality, I sleep a lot... I am only 43
Good afternoon. I was diagnosed with Adison's disease in 2022. Prescribed Prednisolone 5 mg. Now I take hydrocortisone tablets 20 mg per day. Fludrocortisone 0.1 mg. Once a year there is an Adrinal crisis, I end up in intensive care... Constant weakness, no vitality, I sleep a lot... I am only 43
Mariupol
in
PMRGCAuk
3 months ago
Addissons disease
Good afternoon. I was diagnosed with Adison's disease in 2022. Prescribed Prednisolone 5 mg. Now I take hydrocortisone tablets 20 mg per day. Fludrocortisone 0.1 mg. Once a year there is an Adrinal crisis, I end up in intensive care... Constant weakness, no vitality, I sleep a lot... I am only 43
Good afternoon. I was diagnosed with Adison's disease in 2022. Prescribed Prednisolone 5 mg. Now I take hydrocortisone tablets 20 mg per day. Fludrocortisone 0.1 mg. Once a year there is an Adrinal crisis, I end up in intensive care... Constant weakness, no vitality, I sleep a lot... I am only 43
Mariupol
in
PMRGCAuk
3 months ago
Hydroxychloroquine toxic retinopathy
Hi. I have had Lupus for 22 years and been on Hydroxychloroquine 400mg daily since then plus 2mg Prednisolone. Recent eye tests have shown that the Hydroxy is affecting the retina. I was warned at the outset, that it can affect eyes, but it still a bit of a shock. Opthamology Consultant says I must
Hi. I have had Lupus for 22 years and been on Hydroxychloroquine 400mg daily since then plus 2mg Prednisolone. Recent eye tests have shown that the Hydroxy is affecting the retina. I was warned at the outset, that it can affect eyes, but it still a bit of a shock. Opthamology Consultant says I must
Juniperm
in
LUPUS UK
3 months ago
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Steroid rash
I've been taking Prednisolone for a year and have developed a red itchy steroid rash on my face. Can it be managed naturally without running off to the surgery. I use make up when I go anywhere but I wonder if that irritates it further. I am reducing my Pred. but I'm on 9mg still.
I've been taking Prednisolone for a year and have developed a red itchy steroid rash on my face. Can it be managed naturally without running off to the surgery. I use make up when I go anywhere but I wonder if that irritates it further. I am reducing my Pred. but I'm on 9mg still.
BinnieBoo
in
PMRGCAuk
3 months ago
PMR & Stage II Polycystic Kidneys
PCP determined PMR based on my “tinman stiffness” and bloodwork showing crazy inflammation levels in late January, and started me on 20 mg of
prednisone
. An ultrasound and xray turned up polycystic kidneys with a too-large to pass stones.
PCP determined PMR based on my “tinman stiffness” and bloodwork showing crazy inflammation levels in late January, and started me on 20 mg of
prednisone
. An ultrasound and xray turned up polycystic kidneys with a too-large to pass stones.
Eleanor0123
in
PMRGCAuk
1 year ago
Prednisone
I am taking Methotrexate 10mg, once a week
Prednisone
daily, Dufloxetine daily 60mg, and 700mg Naproxen daily.
I am taking Methotrexate 10mg, once a week
Prednisone
daily, Dufloxetine daily 60mg, and 700mg Naproxen daily.
cross2
in
NRAS
1 year ago
My Music, Your Music, Our Music
Hello Again, I have only written once before ( my introduction ) where I confessed to being a tapering Idiot for speeding up the reduction way too fast. I blamed my inner 18 year old boy and his ridiculous optimism and devil may care attitude. I am a little bit like Billy Connelly as I wander off
Hello Again, I have only written once before ( my introduction ) where I confessed to being a tapering Idiot for speeding up the reduction way too fast. I blamed my inner 18 year old boy and his ridiculous optimism and devil may care attitude. I am a little bit like Billy Connelly as I wander off
Willpower1945
in
PMRGCAuk
3 months ago
Polymyalgia Rheumatica
I developed PMR in January 2015 and still struggling can’t get lower than 4.5mg
Prednisone
. Consequently I had to retire sooner than I wanted to. I have more bad days that good so difficult planning things as if I’m having a total fatigue day I just cannot muster up any enthusiasm or energy.
I developed PMR in January 2015 and still struggling can’t get lower than 4.5mg
Prednisone
. Consequently I had to retire sooner than I wanted to. I have more bad days that good so difficult planning things as if I’m having a total fatigue day I just cannot muster up any enthusiasm or energy.
Hunstonhun
in
PMRGCAuk
1 year ago
Is it PMR?
Hi. Diagnosed with PMR several years ago and had flare ups along the way. GP trying to reduce prednisolone dosage again, currently about to go down to 8mg. which isn't touching the pain. However I'm now wondering if in fact I have fibromyalgia. I've been doing some research on Dr Google and have just
Hi. Diagnosed with PMR several years ago and had flare ups along the way. GP trying to reduce prednisolone dosage again, currently about to go down to 8mg. which isn't touching the pain. However I'm now wondering if in fact I have fibromyalgia. I've been doing some research on Dr Google and have just
Everett19
in
PMRGCAuk
3 months ago
Methotrexate Update
I was prescribed MTX a year ago, about 18months into my PMR journey, I reluctantly followed my Rheumatologist’s instructions and in October reported back to him with details of nausea, 3 days a week of pain, inertia and depression and a
prednisone
journey of 1mg reduction per month.
I was prescribed MTX a year ago, about 18months into my PMR journey, I reluctantly followed my Rheumatologist’s instructions and in October reported back to him with details of nausea, 3 days a week of pain, inertia and depression and a
prednisone
journey of 1mg reduction per month.
suelm
in
PMRGCAuk
1 year ago
Polymyalgia and Fibromyalgia
I have been taking prednisolone for a long time for polymyalgia and GCA. The rheumatologist has decided to take me off prednisolone ( slowly reducing) and putting me on to methotrexate, as she said that prednisolone can affect my bones.Since I stopped taking prednisolone I have been getting all the symptoms
I have been taking prednisolone for a long time for polymyalgia and GCA. The rheumatologist has decided to take me off prednisolone ( slowly reducing) and putting me on to methotrexate, as she said that prednisolone can affect my bones.Since I stopped taking prednisolone I have been getting all the symptoms
Chrismag
in
PMRGCAuk
3 months ago
Fatigue !
Diagnosed with PMR in 2021, struggled like everyone and have now completely come off Prednisolone. I’m still getting days with hip and neck and shoulder pain but the worst is the fatigue. Some days I’m fine but mostly feel exhausted. Since stopping Pred my sleep isn’t good. Is it ok to have the occasional
Diagnosed with PMR in 2021, struggled like everyone and have now completely come off Prednisolone. I’m still getting days with hip and neck and shoulder pain but the worst is the fatigue. Some days I’m fine but mostly feel exhausted. Since stopping Pred my sleep isn’t good. Is it ok to have the occasional
Blackberrybush
in
PMRGCAuk
3 months ago
Norovirus - does having PMR increase my risk?
I am currently on 5.5 mg prednisolone. The Care Home where I work part time has an outbreak of Norovirus with a lot of the residents and staff being infected, am I more at risk because of my PMR and steroid dependency?
I am currently on 5.5 mg prednisolone. The Care Home where I work part time has an outbreak of Norovirus with a lot of the residents and staff being infected, am I more at risk because of my PMR and steroid dependency?
Mfaepink1973
in
PMRGCAuk
3 months ago
flare up
I have had a flare of symptoms over past few days. I have had PMR for nine years and have seldom been below 5 mg of prednisolone. I have increased to 10 yesterday and today, how many days can I do this and be able to go back to 5 safely. I am going on a 10 day holiday on Wednesday so I want to feel
I have had a flare of symptoms over past few days. I have had PMR for nine years and have seldom been below 5 mg of prednisolone. I have increased to 10 yesterday and today, how many days can I do this and be able to go back to 5 safely. I am going on a 10 day holiday on Wednesday so I want to feel
Jeanlindenburn
in
PMRGCAuk
3 months ago
Covid and injections
I suffered from Covid over Christmas from the 16th to the 30th December. Up 'til now I have had all the injections on offer. I read Dorset Lady's post that we are going to be offered another injection in the spring. It has left me wondering whether I will need this or not in the circumstances. I
I suffered from Covid over Christmas from the 16th to the 30th December. Up 'til now I have had all the injections on offer. I read Dorset Lady's post that we are going to be offered another injection in the spring. It has left me wondering whether I will need this or not in the circumstances. I
prunus
in
PMRGCAuk
3 months ago
Flare but wasn't
Hello :) I have been on Prednisolone since 2013 for GCA/PMR I was down to 9mg and I had what I thought was a flare spoke to gp via phone and he said I could up to 15mg for 1 week then 12mg for 1 week then 10mg for 1 week then back to 9mg as my hands are now back to normal I would like to get back to
Hello :) I have been on Prednisolone since 2013 for GCA/PMR I was down to 9mg and I had what I thought was a flare spoke to gp via phone and he said I could up to 15mg for 1 week then 12mg for 1 week then 10mg for 1 week then back to 9mg as my hands are now back to normal I would like to get back to
suszannah
in
PMRGCAuk
3 months ago
Back again
I had only been off of
Prednisone
for 8 months. My inflammation markers are rising even though I went back on 40 mg
Prednisone
. Next week I will start Actemra. Just curious, did anyone else have a re-occurrence of GCA and PMR? How did it go? Thanks for your feedback.
I had only been off of
Prednisone
for 8 months. My inflammation markers are rising even though I went back on 40 mg
Prednisone
. Next week I will start Actemra. Just curious, did anyone else have a re-occurrence of GCA and PMR? How did it go? Thanks for your feedback.
Tj2017
in
PMRGCAuk
8 months ago
Lercandipine 20mg and AFib
I was started on 10mg Lercandipine in the mornings by my Cardiologist about a year ago. I also take 15mg Bisoprol, 2.5mg Indapamide and 40 mg Olmesartan together with 60mg Edoxaban in the morning and 8mg Doxazosin at night. A week ago he changed my Lercandipine dosage to 20mg and to take it in the evening
I was started on 10mg Lercandipine in the mornings by my Cardiologist about a year ago. I also take 15mg Bisoprol, 2.5mg Indapamide and 40 mg Olmesartan together with 60mg Edoxaban in the morning and 8mg Doxazosin at night. A week ago he changed my Lercandipine dosage to 20mg and to take it in the evening
Jomaur
in
Atrial Fibrillation Support
3 months ago
Best time to take Prednisone
I heard PMRPro write that there is a best time to take the
prednisone
to help the adrenals wake up. I am at 4.5 mg now and taking it at 4 am has made all the difference --- no more headaches during tapering. But I am very interested in helping my adrenals wake up. Thank you all in advance.
I heard PMRPro write that there is a best time to take the
prednisone
to help the adrenals wake up. I am at 4.5 mg now and taking it at 4 am has made all the difference --- no more headaches during tapering. But I am very interested in helping my adrenals wake up. Thank you all in advance.
Chiqui1950
in
PMRGCAuk
1 year ago
Headaches!
Hi everyone.....I'm started my PMR journey middle of January so have only been on Prednisolone for 6 weeks... I started on 20mg and now on 10mg I did up dosage for 2 weeks so was taking 12mg because I felt poorly... But my question is I've had a headache almost constantly for weeks....is it the press
Hi everyone.....I'm started my PMR journey middle of January so have only been on Prednisolone for 6 weeks... I started on 20mg and now on 10mg I did up dosage for 2 weeks so was taking 12mg because I felt poorly... But my question is I've had a headache almost constantly for weeks....is it the press
Tescohednesford
in
PMRGCAuk
3 months ago
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