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worst fears seem to be coming true.
Dear friends, I posted on here in March 2021 asking your advice as to whether I should even start on Teriparatide worrying about rebound fractures afterwards because I was told there was no other drug that I could safely take. The 2 years on Teriparatide ( Forsteo) passed far too quickly but interrupted
Dear friends, I posted on here in March 2021 asking your advice as to whether I should even start on Teriparatide worrying about rebound fractures afterwards because I was told there was no other drug that I could safely take. The 2 years on Teriparatide ( Forsteo) passed far too quickly but interrupted
Angelicspirit
in
Bone Health and Osteoporosis UK
5 months ago
IS THIS A PATTERN???? Thoughts and helpful ideas to guide a path
Diagnosed Gleason 9 advanced, PSA 19, mets in pelvis(maybe more???)Had 6 x chemo ,5 X radio to prostate, ADT through out.PSA was down to 0.08 at one point.1 MARCH23 0.29 25 MAY23 0.08 NOV23 0.12 05 DEC23 0.25 12 FEB24 0.44 started feeling bouts of unreasonable tiredness, think maybe active cancer???
Diagnosed Gleason 9 advanced, PSA 19, mets in pelvis(maybe more???)Had 6 x chemo ,5 X radio to prostate, ADT through out.PSA was down to 0.08 at one point.1 MARCH23 0.29 25 MAY23 0.08 NOV23 0.12 05 DEC23 0.25 12 FEB24 0.44 started feeling bouts of unreasonable tiredness, think maybe active cancer???
Mrtroxely
in
Advanced Prostate Cancer
5 months ago
Hip Pain
Hi, I am 21 years old and have been suffering with Endometriosis for 10 years now (although I was diagnosed in 2021). I have been on Prostap injections and Tibolone HRT since July 2021 as previous to this I was wheelchair bound on 3 occasions due to the severity of the pain and nothing else worked. Prostap
Hi, I am 21 years old and have been suffering with Endometriosis for 10 years now (although I was diagnosed in 2021). I have been on Prostap injections and Tibolone HRT since July 2021 as previous to this I was wheelchair bound on 3 occasions due to the severity of the pain and nothing else worked. Prostap
Football3018
in
Endometriosis UK
5 months ago
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Thyroid dosage for elderly Mom
Hi there, We live in Portland, Oregon, but have followed Health unlocked uk for awhile. My question on behalf of My almost 87 y/o Mom...(whom has had a heck of a last year health wise). I just rec'd back a note thru her my chart regarding her thyroid dosage.. just a little back story.. had iodine ablation
Hi there, We live in Portland, Oregon, but have followed Health unlocked uk for awhile. My question on behalf of My almost 87 y/o Mom...(whom has had a heck of a last year health wise). I just rec'd back a note thru her my chart regarding her thyroid dosage.. just a little back story.. had iodine ablation
duffythedoodle
in
Thyroid UK
5 months ago
Is there seasonality to testosterone levels?
My ADT treatments (Lupron/Abiraterone/Prednisone) ended on May 02 2023 at which point both my PSA and Testosterone were flat lined. Here are the results of the four times I have been tested since the end of the ADT. * Aug 18 2023: PSA is 0.09, Testosterone is 3.3 nmol/l (95.2 ng/dL), Testosterone
My ADT treatments (Lupron/Abiraterone/Prednisone) ended on May 02 2023 at which point both my PSA and Testosterone were flat lined. Here are the results of the four times I have been tested since the end of the ADT. * Aug 18 2023: PSA is 0.09, Testosterone is 3.3 nmol/l (95.2 ng/dL), Testosterone
Mascouche
in
Advanced Prostate Cancer
5 months ago
Thoughts on using AI for ADT decisions
I found the following article in the NEJM to be interesting. You may want to review it for future reference to help someone in the future making decisions about their cancer treatment or incorporating AI in your research. Just a side note my grandkids are being exposed to this type of research methodically
I found the following article in the NEJM to be interesting. You may want to review it for future reference to help someone in the future making decisions about their cancer treatment or incorporating AI in your research. Just a side note my grandkids are being exposed to this type of research methodically
Mgtd
in
Advanced Prostate Cancer
5 months ago
2nd FET protocol for 4th embryo transfer
Hi all, I’m looking for some advice on FET protocols. I’ve had 2 fresh rounds of IVF treatment and one frozen. The first cycle of IVF resulted in two embryos. We transferred one embryo, which resulted in a BFN. For our frozen round we also got a BFN. For our next fresh round our consultant suggested
Hi all, I’m looking for some advice on FET protocols. I’ve had 2 fresh rounds of IVF treatment and one frozen. The first cycle of IVF resulted in two embryos. We transferred one embryo, which resulted in a BFN. For our frozen round we also got a BFN. For our next fresh round our consultant suggested
Naturewalks
in
Fertility Network UK
5 months ago
High risk and ADT duration since PSMA
What’s my fellow travellers thoughts / input re ADT duration for localised G9 having had moderately hypofractionated RT without pelvic RT based on the likelihood of no spread with negative PSMA/CT (misses 1 in 5 LN spread as opposed to old CT 1 in 2) Therefore are the older 5/10 year studues
What’s my fellow travellers thoughts / input re ADT duration for localised G9 having had moderately hypofractionated RT without pelvic RT based on the likelihood of no spread with negative PSMA/CT (misses 1 in 5 LN spread as opposed to old CT 1 in 2) Therefore are the older 5/10 year studues
SimMartin
in
Advanced Prostate Cancer
5 months ago
Pirtobrutinib triple trial Cycle 7 update
Hi, ya'll! I'm now finishing up Cycle 8 of: [i]
Time-limited Triplet Combination of Pirtobrutinib, Venetoclax, and Obinutuzumab for Patients With Treatment-naïve Chronic Lymphocytic Leukemia (CLL) or Richter Transformation (RT)
[/i] at M.D. Anderson in Houston, TX. https://clinicaltrials.gov
Hi, ya'll! I'm now finishing up Cycle 8 of: [i]
Time-limited Triplet Combination of Pirtobrutinib, Venetoclax, and Obinutuzumab for Patients With Treatment-naïve Chronic Lymphocytic Leukemia (CLL) or Richter Transformation (RT)
[/i] at M.D. Anderson in Houston, TX. https://clinicaltrials.gov
SeymourB
in
CLL Support
10 months ago
PSMA PET Looks Good But PSA Rising
Hello, I am hoping someone can help us understand what we might be missing prior to meeting with MO this week. My husband was diagnosed with metastatic prostate cancer with mets to pelvic lymph node and a few spots in bones in early January 2022 at 56 years old. He was successfully treated with Triplet
Hello, I am hoping someone can help us understand what we might be missing prior to meeting with MO this week. My husband was diagnosed with metastatic prostate cancer with mets to pelvic lymph node and a few spots in bones in early January 2022 at 56 years old. He was successfully treated with Triplet
FaithOverFear104
in
Advanced Prostate Cancer
5 months ago
Exercise intolerant
I've been experiencing heavy sweating while exercising and total exhaustion the next day. I felt this why before I was diagnosed ten years ago with low thyroid. I had to stop any form of exercise. I am on HRT too and last year had the same symptoms. My HRT gel was increased and this sorted out the problem
I've been experiencing heavy sweating while exercising and total exhaustion the next day. I felt this why before I was diagnosed ten years ago with low thyroid. I had to stop any form of exercise. I am on HRT too and last year had the same symptoms. My HRT gel was increased and this sorted out the problem
Braveheart77
in
Thyroid UK
5 months ago
Cyberknife+IMRT combination treatment for High Risk PCa, that has spread to the seminal vesicle.
Has anyone done a cyberknife-imrt combination radiation treatment for prostate cancer? My PCa has spread to the Seminal Vesicle. So, instead of a planned 5 session cyberknife treatment to the prostate only ( when the PCa was thought to be confined to the prostate), my doc is putting me on 3 cyberknife
Has anyone done a cyberknife-imrt combination radiation treatment for prostate cancer? My PCa has spread to the Seminal Vesicle. So, instead of a planned 5 session cyberknife treatment to the prostate only ( when the PCa was thought to be confined to the prostate), my doc is putting me on 3 cyberknife
Sushupthi
in
Advanced Prostate Cancer
1 month ago
why docs don’t want to prescribe opioids for RLS….😔
With all the recent total panic by docs on not prescribing opioids, I thought I would just attach Andy Berkowski’s excellent piece on why we are often being refused opioids now and almost certainly in the future at least for sometime. You may well have read this article before Kakally Andy Berkowski
With all the recent total panic by docs on not prescribing opioids, I thought I would just attach Andy Berkowski’s excellent piece on why we are often being refused opioids now and almost certainly in the future at least for sometime. You may well have read this article before Kakally Andy Berkowski
Kakally
in
Restless Legs Syndrome
10 months ago
Slow colonic transit
I have been diagnosed with slow colonic transit after having all the usual bowel investigations. I have been suffering suffering from chronic constipation for several years. I have been taking Prucalopride for almost a month but unfortunately it has made no difference. My consultant has recommended
I have been diagnosed with slow colonic transit after having all the usual bowel investigations. I have been suffering suffering from chronic constipation for several years. I have been taking Prucalopride for almost a month but unfortunately it has made no difference. My consultant has recommended
Riccar24
in
IBS Network
10 months ago
Thyroid issues
Hi I haven't been on here awhile due to ill health I have osteoporosis in my spine and I broke my back last year in 4 places, I'm still recovering and started treatment. Since November after a bout on steroids due to poor asthma my body has been in a go fast , palpitations,lost weight, tremors, shakes
Hi I haven't been on here awhile due to ill health I have osteoporosis in my spine and I broke my back last year in 4 places, I'm still recovering and started treatment. Since November after a bout on steroids due to poor asthma my body has been in a go fast , palpitations,lost weight, tremors, shakes
Geordieclaire12573
in
Thyroid UK
5 months ago
need advice
Hello, Having B12 defiency my GP has been prescribing me oral B12 which got my levels to normal but hasn’t changed my symptoms. She then prescribed blood tests for parietal cell antibodies and intrinsic factor antibodies. Both were negative. She says therefore I only need B12 orally and not injections
Hello, Having B12 defiency my GP has been prescribing me oral B12 which got my levels to normal but hasn’t changed my symptoms. She then prescribed blood tests for parietal cell antibodies and intrinsic factor antibodies. Both were negative. She says therefore I only need B12 orally and not injections
Tiredycake
in
Pernicious Anaemia Society
5 months ago
Unexpected early end to ADT
I have been on Orgovyx for 14 months. Intended to complete 18 months and then stop. When I re-applied to the Orgovyx Patient Assistance Program for the 2024 year, I provided my 2022 tax return. The reviewer would not accept it and asked for my 2023 tax return, which, being self employed, will not be
I have been on Orgovyx for 14 months. Intended to complete 18 months and then stop. When I re-applied to the Orgovyx Patient Assistance Program for the 2024 year, I provided my 2022 tax return. The reviewer would not accept it and asked for my 2023 tax return, which, being self employed, will not be
Prostateless2020
in
Prostate Cancer Network
5 months ago
De-escellation of ADT with modern RT treatment
A bit of rethinking of the standard of care for intermediate and high-risk PCa cases - of long-term ADT adjunctive and after high-dose radiation treatment. By Mark Storey Radiation Oncologist https://open.substack.com/pub/protons101/p/high-risk-prostate-cancer?r=1mt4ed&utm_campaign=post&utm_medium=
A bit of rethinking of the standard of care for intermediate and high-risk PCa cases - of long-term ADT adjunctive and after high-dose radiation treatment. By Mark Storey Radiation Oncologist https://open.substack.com/pub/protons101/p/high-risk-prostate-cancer?r=1mt4ed&utm_campaign=post&utm_medium=
Don_1213
in
Prostate Cancer Network
5 months ago
Pelvic Pain and spotting 9+ years post hysterectomy
Hi my mum had a full hysterectomy following a diagnosis of Stage 1C clear cell OC. 6 months of Chemo followed this. Since treatment and op she has been suffering with what has been described as chronic pelvic pain ever since. She had been told she cannot go on HRT as her cancer was Clear Cell. She
Hi my mum had a full hysterectomy following a diagnosis of Stage 1C clear cell OC. 6 months of Chemo followed this. Since treatment and op she has been suffering with what has been described as chronic pelvic pain ever since. She had been told she cannot go on HRT as her cancer was Clear Cell. She
Livkatt90
in
OvaCare
5 months ago
Can we trust AI analysis?
Like many of you I was faced with two major decisions when I was diagnosed with Intermediate high risk prostate cancer. Surgery vs Radiation and ADT short term vs long term. In short I chose radiation and short term ADT - 2 months prior to radiation and 4 months post. In addition I chose to have my
Like many of you I was faced with two major decisions when I was diagnosed with Intermediate high risk prostate cancer. Surgery vs Radiation and ADT short term vs long term. In short I chose radiation and short term ADT - 2 months prior to radiation and 4 months post. In addition I chose to have my
Mgtd
in
Prostate Cancer Network
5 months ago
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