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Help with test results
I am feeling a bit better, not so spaced out, no depression or dizziness. I stopped HRT in July. However, I do still get tired, have weight problems, have a swollen scalloped tongue, high cholesterol, goitre, tinnitus, joint stiffness. I am on 100mg Levothyroxine. I take B complex, B1, selenium
I am feeling a bit better, not so spaced out, no depression or dizziness. I stopped HRT in July. However, I do still get tired, have weight problems, have a swollen scalloped tongue, high cholesterol, goitre, tinnitus, joint stiffness. I am on 100mg Levothyroxine. I take B complex, B1, selenium
sunbee
in
Thyroid UK
6 months ago
UPDATE: Dad's Surgery on Broken Ankle Bone and Resulting PSYCHOSIS. QUESTION: How do you deal with Episodes of Hallucinations & Delusions?
Update- ON OUR FATHER WHO RECENTLY BROKE HIS ANKLE WHILE GARDENING, AND THEN UNDERWENT A SUDDEN, UNPLANNED SURGERY ON THE ANKLE , ONLY TO BE FOLLOWED BY THE ONSET OF PSYCHOSIS ALMOST IMMEDIATELY AFTER: BRIEF HISTORY: My dad is 78yo and was diagnosed with Parkinson's in 2010 but likely has had PD close
Update- ON OUR FATHER WHO RECENTLY BROKE HIS ANKLE WHILE GARDENING, AND THEN UNDERWENT A SUDDEN, UNPLANNED SURGERY ON THE ANKLE , ONLY TO BE FOLLOWED BY THE ONSET OF PSYCHOSIS ALMOST IMMEDIATELY AFTER: BRIEF HISTORY: My dad is 78yo and was diagnosed with Parkinson's in 2010 but likely has had PD close
rsacdoolittle
in
Cure Parkinson's
6 months ago
Stopping Lupron
Today I’ve had my next medical check. PSA still undetectable after RT IMRT/VMAT to prostate bed and pelvic floor accompanied by 24 months of Lupron. This was my third regimen after DXed in 11/2017, for more details pls refer to my bio. I will now stop Lupron, let’s see what the future will bring.
Today I’ve had my next medical check. PSA still undetectable after RT IMRT/VMAT to prostate bed and pelvic floor accompanied by 24 months of Lupron. This was my third regimen after DXed in 11/2017, for more details pls refer to my bio. I will now stop Lupron, let’s see what the future will bring.
Nusch
in
Advanced Prostate Cancer
4 months ago
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Do low PSA-producing cells still rely on testosterone to grow?
Am curious to know what the folks here know about this question. If higher PSA cells are driven to near extinction by ADT, and if only low-PSA producing cells survive, are the latter still dependent on testosterone for survival? If not, what do they depend on to grow?
Am curious to know what the folks here know about this question. If higher PSA cells are driven to near extinction by ADT, and if only low-PSA producing cells survive, are the latter still dependent on testosterone for survival? If not, what do they depend on to grow?
novatimo
in
Advanced Prostate Cancer
6 months ago
Hip Replacement and RA
Hi Everyone, I am 4 weeks, 3 days post op after a hip replacement. Whilst I'm doing great and getting out for daily walks ect, my non-operative leg is swollen from my knee to the ankle. Both knees are painful and I have difficulty bending them. I expectexpected this from the operated leg, however not
Hi Everyone, I am 4 weeks, 3 days post op after a hip replacement. Whilst I'm doing great and getting out for daily walks ect, my non-operative leg is swollen from my knee to the ankle. Both knees are painful and I have difficulty bending them. I expectexpected this from the operated leg, however not
Angie2212
in
NRAS
9 months ago
Are there any free resources?
I go to therapy and really like my therapist but its expensive. Inpay $240/session so i can only afford one session a month. However, i need more. Are there any free therapy or group therapy available for social anxiety, suicidal thoughts, to talk about difficulty in marriage etc?
I go to therapy and really like my therapist but its expensive. Inpay $240/session so i can only afford one session a month. However, i need more. Are there any free therapy or group therapy available for social anxiety, suicidal thoughts, to talk about difficulty in marriage etc?
AsterixSocialanxiety
in
Anxiety and Depression Support
11 months ago
Hormone Replacement Therapy (HRT)
I just recently read some interesting studies that suggest HRT could help us PD people with our symptoms? I know for some HRT is controversial. And maybe I am at the point of desperation, but should I just be asking my GP for an HRT patch? Have any of you had any experience with HRT. Is one delivery
I just recently read some interesting studies that suggest HRT could help us PD people with our symptoms? I know for some HRT is controversial. And maybe I am at the point of desperation, but should I just be asking my GP for an HRT patch? Have any of you had any experience with HRT. Is one delivery
PalmSprings
in
Cure Parkinson's
6 months ago
EMBARK Study: ADT vs Enzalutamide +/- ADT
Results of the EMBARK study was published this week (10/19/23) in NEJM. It compared high risk BCR PCa treated in 3 groups: Lupron ADT alone. Enzalutamide plus ADT. And Enzalutamide monotherapy. 5 year follow up for metastasis free survival. Results below. Interesting that Enza monotherapy (No ADT) was
Results of the EMBARK study was published this week (10/19/23) in NEJM. It compared high risk BCR PCa treated in 3 groups: Lupron ADT alone. Enzalutamide plus ADT. And Enzalutamide monotherapy. 5 year follow up for metastasis free survival. Results below. Interesting that Enza monotherapy (No ADT) was
MateoBeach
in
Advanced Prostate Cancer
6 months ago
EMBARK Study: Enzalutamide +/- ADT
Results of the EMBARK study was published this week (10/19/23) in NEJM. It compared high risk BCR PCa treated in 3 groups: Lupron ADT alone. Enzalutamide plus ADT. And Enzalutamide monotherapy. 5 year follow up for metastasis free survival. Results below. Interesting that Enza monotherapy (No ADT) was
Results of the EMBARK study was published this week (10/19/23) in NEJM. It compared high risk BCR PCa treated in 3 groups: Lupron ADT alone. Enzalutamide plus ADT. And Enzalutamide monotherapy. 5 year follow up for metastasis free survival. Results below. Interesting that Enza monotherapy (No ADT) was
MateoBeach
in
Fight Prostate Cancer
6 months ago
help with charity/grant
does anyone know any other grants/charities that could help with an iPad for my son? His broke and now it is absolute chaos as he relies so heavily on it day to day for meltdowns communication ect and I’m not currently in the financial position to afford one, thanks
does anyone know any other grants/charities that could help with an iPad for my son? His broke and now it is absolute chaos as he relies so heavily on it day to day for meltdowns communication ect and I’m not currently in the financial position to afford one, thanks
Buddysgreatadventure
in
Mencap
9 months ago
Rheumatoid, Peri-Menopause, HRT
I am 54 and have had RA for 34 years. I am at the end stage of perimenopause, and close to transitioning to Menopause. The RA feels worse. My joints are so achy even my muscles hurt at times. Anyone suggestions from experienced ladies. Does HRT help? My current medication list is Humira 40 by weekly
I am 54 and have had RA for 34 years. I am at the end stage of perimenopause, and close to transitioning to Menopause. The RA feels worse. My joints are so achy even my muscles hurt at times. Anyone suggestions from experienced ladies. Does HRT help? My current medication list is Humira 40 by weekly
ragurl
in
NRAS
7 months ago
Would I be on thin ice if I tried adaptive ADT this soon?
After 6 weeks on Lupron and 9 days on abiraterone, my PSA was .1, and my testosterone was <1. This is within the criteria being used to start people on adaptive in this MCSPC Moffitt study with Jingsong Yang - (he says I can just follow the protocol without being in the study)https://pubmed.ncbi.nlm.nih.gov
After 6 weeks on Lupron and 9 days on abiraterone, my PSA was .1, and my testosterone was <1. This is within the criteria being used to start people on adaptive in this MCSPC Moffitt study with Jingsong Yang - (he says I can just follow the protocol without being in the study)https://pubmed.ncbi.nlm.nih.gov
jackwfrench
in
Advanced Prostate Cancer
7 months ago
Sleep while taking Xtandi and Adt
Hello everyone, I am sure that this has been discussed on here before, I was unable to find any post to answer my question . I am taking Xtandi ( aprox 16 months) Lupron, I had chemo. My latest PSA was less then <0.01. It has been there for over a year now. ( See my profile for my journey.) My
Hello everyone, I am sure that this has been discussed on here before, I was unable to find any post to answer my question . I am taking Xtandi ( aprox 16 months) Lupron, I had chemo. My latest PSA was less then <0.01. It has been there for over a year now. ( See my profile for my journey.) My
JD-guy
in
Advanced Prostate Cancer
7 months ago
HRT & Anxiety
hI am looking for advice am struggling at the moment with side effects from HRT patches, am only on oestrogen as have no womb. Headaches, nausea and more recent anxiety, am only on a low dose and been on for nearly 4weks. I feel am going crazy, every patch change my arms and hands feel really
hI am looking for advice am struggling at the moment with side effects from HRT patches, am only on oestrogen as have no womb. Headaches, nausea and more recent anxiety, am only on a low dose and been on for nearly 4weks. I feel am going crazy, every patch change my arms and hands feel really
Bassem1979
in
Menopause and Perimenopause Support
7 months ago
1 Year out Radiation treatment
2018, Gleason 9, family history, RP surgery. Not clear margin. PSA undetectable three years, then back knocking at the door, (.17 PSA rise 2022). BCR! PSMA scan clear. 35 IMRT Radiation treatments to surgery prostate bed, 6 months on Lupron. See my wonderful Radiation Onocolgist on Monday, Dr. Hung,
2018, Gleason 9, family history, RP surgery. Not clear margin. PSA undetectable three years, then back knocking at the door, (.17 PSA rise 2022). BCR! PSMA scan clear. 35 IMRT Radiation treatments to surgery prostate bed, 6 months on Lupron. See my wonderful Radiation Onocolgist on Monday, Dr. Hung,
rickyfish56
in
Advanced Prostate Cancer
4 months ago
Thunking of getting an orchiectomy insted od radiation
Has anyone had an orchiectomy and if so how were your side effects and how is your life after the Big O.I'm scheduled to start Full Pelvic Radiation in 6 weeks but fear the long term side effects. I asked if anyone here had FPR and if so what were their side effects and life like since then. Thanks for
Has anyone had an orchiectomy and if so how were your side effects and how is your life after the Big O.I'm scheduled to start Full Pelvic Radiation in 6 weeks but fear the long term side effects. I asked if anyone here had FPR and if so what were their side effects and life like since then. Thanks for
woppaginny
in
Advanced Prostate Cancer
7 months ago
Reporting results from Eclipse Trial
Prior to beginning trial last June I had just gone castrate resistant and PSA was at 3.3. A few weeks after the last of four injections PSA settled in at .25 so there was still something left. However PSA now has quickly shot up to .75 And since I stopped Orgovyx and Zytiga, Testosterone is going up
Prior to beginning trial last June I had just gone castrate resistant and PSA was at 3.3. A few weeks after the last of four injections PSA settled in at .25 so there was still something left. However PSA now has quickly shot up to .75 And since I stopped Orgovyx and Zytiga, Testosterone is going up
SViking
in
Advanced Prostate Cancer
7 months ago
not diagnosed yet but need pain tips
Hi can anyone give me any tips on dealing with pain please? I’m on a years waiting list now with a gyno to check for endo and ando. I may be going on to HRT soon for the peri menopause. I’ve tried different pain killers, exercise, meditation and mint tea. Nothing works. The pain is only 5 days
Hi can anyone give me any tips on dealing with pain please? I’m on a years waiting list now with a gyno to check for endo and ando. I may be going on to HRT soon for the peri menopause. I’ve tried different pain killers, exercise, meditation and mint tea. Nothing works. The pain is only 5 days
Citrusheights79
in
Endometriosis UK
7 months ago
HOrmone Replacement Therepy
I have wondered for a while whether men also lose hormones as they age and whether patches would be beneficial. I am a complete layman, so may be talking rubbish . I read on one post that Parkinsons can give people hot flushes, so this got me thinking. Have there been any studies please?
I have wondered for a while whether men also lose hormones as they age and whether patches would be beneficial. I am a complete layman, so may be talking rubbish . I read on one post that Parkinsons can give people hot flushes, so this got me thinking. Have there been any studies please?
Jo692
in
Cure Parkinson's
7 months ago
Post-prostatectomy cancer status + treatment
Where we are in the story so far ... * 46 yo, diagnosed with prostate cancer April 2023 * MRIs were negative, ultimately diagnosed via biopsy * Gleason 3+4, last PSA 6.3, 6 cores with 3+3, 2 cores were 3+4 * PSMA PET Scan prior to surgery was clean * Had RALP procedure on September 26, 3 weeks ago
Where we are in the story so far ... * 46 yo, diagnosed with prostate cancer April 2023 * MRIs were negative, ultimately diagnosed via biopsy * Gleason 3+4, last PSA 6.3, 6 cores with 3+3, 2 cores were 3+4 * PSMA PET Scan prior to surgery was clean * Had RALP procedure on September 26, 3 weeks ago
MakeItRainbows
in
Prostate Cancer Network
7 months ago
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