Experiences with

Plasma Exchange

He was in stage 4 kidney disease.He was given a plasma exchange and started on Rituximab. Due to insurance the second infusion was delayed and it was a month before he got the second infusion. I’m wondering if this is why it failed to work?

hi my name is Ellen my husband was diagnosed encephalitis in October he’s 74 it’s like his life was taken away from him in seconds that morning he had mri scans lumber puncher and plasma exchange was hasn’t worked he can’t walk or sit up in bed or even get out of bed it’s taken his mobility way he’s

Hi, We saw a new functional medicine doctor who has recommended TPE - Therapeutic Plasma Exchange. Wondering if anyone has tried this route or has any opinions on it. It's very expensive but is something we are considering trying for my husband with Parkinsons. Thoughts? Thank you.

A Battle Unfolding in Silence – The Hallucinations and Other Lives While I was unconscious, my body endured plasma exchange therapy and IV hydrocortisone in an attempt to halt the immune system’s attack on my brain. I remained in a coma for just under two months, trapped in a void of silence.

Was given complete plasma exchange and spent two weeks in in tensive care and 4 further weeks in hospital This was followed by rehabilitation home after 6 months when I was finally able to come home with lots of adaptations.

I appreciate that this phenomenon may have nothing to do with the plasma exchange or change of diet, and simply be a coincidence. I thought it was worth sharing this as I’m 100% sure it’s not imagined. The change was not gradual, but overnight each time!

He had the steroids, the plasma exchange but it was the Rituximab that finally got it sorted. I’m just looking to connect with anyone that has suffered with it or their families?! We don’t have a big support network and appointments with professionals, surprisingly, seem so few and far between.

There is a related science that has quite a history, and with some decent looking results - Therapeutic Exchange.

I am going to have Argon Plasma coagulation (APC) with application of Purastat . I have been told I may have to have it a few times. I wondered if anybody has any information/experience of this? I also have frequent bowel movements that really affect my quality of life.

Furthermore, treatment strategies for “functional autoantibody diseases”, such as for GPCR-AAB removal (therapeutic plasma exchange, immunoadsorption) and in vivo GPCR-AAB attack (intravenous IgG treatment, B-cell depletion, GPCR-AAB in vivo binding and neutralization) are critically reflected with respect

He has had steroids, IVIG, plasma exchange and rituximab and hes been deteriorating since the day he was diagnosed. Doctors have now said his brain is shrinking but I have not heard this from anyone else with encephalitis. Has anyone else experienced brain shrinkage??

Doctors have thrown everything to cover a viral and autoimmune and effectively run out of treatment. currently we have not real response at the moment and there are two areas of swelling in the brain that have not shifted with any treatments steroids and then Plasma exchange.

They have tried plasma exchange, high dose steriods to no avail. Im still on Warfarin. Has anybody found a way to get it back under control?

I spent many weeks in an induced coma and as I recovered, I wasn’t able to speak, wasn’t able to eat, attacked nurses and doctors, had scores of the most vivid dreams (that I still remember) and only really became anything approaching ‘normal’ until I’d had a five day plasma exchange treatment.

Hello, ANCA MPO and Systemic sclerosis positive - No response to methotrexate/steroids  Rituxan infusions June 2022- 6 months later, no response - Repeat Rituxan infusions December December Labs:  ANCA and Scl-70 positive; IgM <25  ESR 93 markedly elevated - ESR Labs: 07/22 through 09/01/22 - "

Old plasma dilution reduces human biological age: a clinical study 24 August 2022 https://link.springer.com/article/10.1007/s11357-022-00645-w

After receiving a couple of units of blood, I underwent argon plasma coagulation. The bleeding has decreased and I am optimistic about that condition. There is another problem that I hope someone can suggest a cause, and maybe a treatment.

The docs started me on Azathiaprene and gradually upped the prednisalone to 80mgs and gave me several plasma exchanges. I did get temporary relief but I still could not swallow.

Has anyone here tried this for scleroderma or know anyone who has? I've seen a fair bit of talk about this and read some studies to do with this on the internet on various websites but I thought i'd ask on another scleroderma related forum.... I'm trying to get this treatment and want to talk to

Autoimmune and Paraneoplastic Movement Disorders https://pubmed.ncbi.nlm.nih.gov/29406902/ [i]Movement[/i] disorders are common in patients with autoimmune disorders - affecting the central (brain) and peripheral (body) nervous system. They may be seen in autoimmune disorders triggered by an infectious