Experiences with

Plasma Exchange

hi my name is Ellen my husband was diagnosed encephalitis in October he’s 74 it’s like his life was taken away from him in seconds that morning he had mri scans lumber puncher and plasma exchange was hasn’t worked he can’t walk or sit up in bed or even get out of bed it’s taken his mobility way he’s

Hi, We saw a new functional medicine doctor who has recommended TPE - Therapeutic Plasma Exchange. Wondering if anyone has tried this route or has any opinions on it. It's very expensive but is something we are considering trying for my husband with Parkinsons. Thoughts? Thank you.

Was given complete plasma exchange and spent two weeks in in tensive care and 4 further weeks in hospital This was followed by rehabilitation home after 6 months when I was finally able to come home with lots of adaptations.

I appreciate that this phenomenon may have nothing to do with the plasma exchange or change of diet, and simply be a coincidence. I thought it was worth sharing this as I’m 100% sure it’s not imagined. The change was not gradual, but overnight each time!

He had the steroids, the plasma exchange but it was the Rituximab that finally got it sorted. I’m just looking to connect with anyone that has suffered with it or their families?! We don’t have a big support network and appointments with professionals, surprisingly, seem so few and far between.

There is a related science that has quite a history, and with some decent looking results - Therapeutic Exchange.

I am a 62 year old woman and had pelvic external beam radiotherapy for five weeks ending in March 2023. Since then I have had bowel problems, a bit of urinary incontinence, lymphedema and tingling like sensations in my legs. Bleeding from my anus became worse in December. I have since had a colonoscopy

He has had steroids, IVIG, plasma exchange and rituximab and hes been deteriorating since the day he was diagnosed. Doctors have now said his brain is shrinking but I have not heard this from anyone else with encephalitis. Has anyone else experienced brain shrinkage??

Furthermore, treatment strategies for “functional autoantibody diseases”, such as for GPCR-AAB removal (therapeutic plasma exchange, immunoadsorption) and in vivo GPCR-AAB attack (intravenous IgG treatment, B-cell depletion, GPCR-AAB in vivo binding and neutralization) are critically reflected with respect

Doctors have thrown everything to cover a viral and autoimmune and effectively run out of treatment. currently we have not real response at the moment and there are two areas of swelling in the brain that have not shifted with any treatments steroids and then Plasma exchange.

They have tried plasma exchange, high dose steriods to no avail. Im still on Warfarin. Has anybody found a way to get it back under control?

I spent many weeks in an induced coma and as I recovered, I wasn’t able to speak, wasn’t able to eat, attacked nurses and doctors, had scores of the most vivid dreams (that I still remember) and only really became anything approaching ‘normal’ until I’d had a five day plasma exchange treatment.

Hello, ANCA MPO and Systemic sclerosis positive - No response to methotrexate/steroids  Rituxan infusions June 2022- 6 months later, no response - Repeat Rituxan infusions December December Labs:  ANCA and Scl-70 positive; IgM <25  ESR 93 markedly elevated - ESR Labs: 07/22 through 09/01/22 - "

TPE, with blood withdrawn and reinserted without the plasma, has in a small clinical single-arm trial indicated remarkable benefits in markers of various kinds including DNA damage, cellular senescence and immunity (T-cells, B-cells, NK cells). Downside appears limited. It remains to be seen if the

I was started on these steroids when I was diagnosed with Myasthenia Gravis nine years ago. After a couple of months on doses up to 30mg. My symptoms went away and I was taken off all medication, big mistake. A few months later the MG came back with a vengeance and I was hospitalised for 10 weeks. The

First I would like to thank all the people in this community for providing excellent advice and encouragement. I had radiation and Lupron in 2020, and my PSA has been good. Unfortunately, in February 2022, I had to be hospitalized due to bleeding in my colon. After receiving a couple of units of blood

Has anyone here tried this for scleroderma or know anyone who has? I've seen a fair bit of talk about this and read some studies to do with this on the internet on various websites but I thought i'd ask on another scleroderma related forum.... I'm trying to get this treatment and want to talk to

Autoimmune and Paraneoplastic Movement Disorders https://pubmed.ncbi.nlm.nih.gov/29406902/ [i]Movement[/i] disorders are common in patients with autoimmune disorders - affecting the central (brain) and peripheral (body) nervous system. They may be seen in autoimmune disorders triggered by an infectious

I was rushed to the hospital where I underwent a procedure called plasmapheresis, also known as plasma exchange (PLEX), that is used to treat MS and other demyelinating diseases, such as NMO.

[u]Has anyone been diagnosed with Ocular Myasthenia Gravis which may have been a misdiagnosis[/u]? Husband diagnosed with seronegative OMG in 2008 age 38 years. Symptoms of double vision ( Diplopia) and ptosis only over the years. [u]TREATMENT OVER THE YEARS[/u] Mestinon- unsuccessful Immuran