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therapeutic plasma exchange TPE
Hi, We saw a new functional medicine doctor who has recommended TPE - Therapeutic
Plasma
Exchange
. Wondering if anyone has tried this route or has any opinions on it. It's very expensive but is something we are considering trying for my husband with Parkinsons. Thoughts? Thank you.
Hi, We saw a new functional medicine doctor who has recommended TPE - Therapeutic
Plasma
Exchange
. Wondering if anyone has tried this route or has any opinions on it. It's very expensive but is something we are considering trying for my husband with Parkinsons. Thoughts? Thank you.
LearningAllICan
in
Cure Parkinson's
3 months ago
Leg Strength Change
I appreciate that this phenomenon may have nothing to do with the
plasma
exchange
or change of diet, and simply be a coincidence. I thought it was worth sharing this as I’m 100% sure it’s not imagined. The change was not gradual, but overnight each time!
I appreciate that this phenomenon may have nothing to do with the
plasma
exchange
or change of diet, and simply be a coincidence. I thought it was worth sharing this as I’m 100% sure it’s not imagined. The change was not gradual, but overnight each time!
Ostap
in
Ataxia UK
6 months ago
Transverse Myelitis
Was given complete
plasma
exchange
and spent two weeks in in tensive care and 4 further weeks in hospital This was followed by rehabilitation home after 6 months when I was finally able to come home with lots of adaptations.
Was given complete
plasma
exchange
and spent two weeks in in tensive care and 4 further weeks in hospital This was followed by rehabilitation home after 6 months when I was finally able to come home with lots of adaptations.
LittleSteve
in
LUPUS UK
1 month ago
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anti NMDA encephalitis
He had the steroids, the
plasma
exchange
but it was the Rituximab that finally got it sorted. I’m just looking to connect with anyone that has suffered with it or their families?! We don’t have a big support network and appointments with professionals, surprisingly, seem so few and far between.
He had the steroids, the
plasma
exchange
but it was the Rituximab that finally got it sorted. I’m just looking to connect with anyone that has suffered with it or their families?! We don’t have a big support network and appointments with professionals, surprisingly, seem so few and far between.
AntiNMDAWarriorWife
in
Headway
7 months ago
Therapeutic Plasma Exchange
There is a related science that has quite a history, and with some decent looking results -
Therapeutic
Exchange
.
There is a related science that has quite a history, and with some decent looking results -
Therapeutic
Exchange
.
monkeybus
in
AMN EASIER
11 months ago
Brain shrinking
He has had steroids, IVIG,
plasma
exchange
and rituximab and hes been deteriorating since the day he was diagnosed. Doctors have now said his brain is shrinking but I have not heard this from anyone else with encephalitis. Has anyone else experienced brain shrinkage??
He has had steroids, IVIG,
plasma
exchange
and rituximab and hes been deteriorating since the day he was diagnosed. Doctors have now said his brain is shrinking but I have not heard this from anyone else with encephalitis. Has anyone else experienced brain shrinkage??
Kw55
in
Encephalitis International
1 year ago
Functional autoantibodies, a new paradigm in autoimmunity?
Furthermore, treatment strategies for “functional autoantibody diseases”, such as for GPCR-AAB removal (therapeutic
plasma
exchange
, immunoadsorption) and in vivo GPCR-AAB attack (intravenous IgG treatment, B-cell depletion, GPCR-AAB in vivo binding and neutralization) are critically reflected with respect
Furthermore, treatment strategies for “functional autoantibody diseases”, such as for GPCR-AAB removal (therapeutic
plasma
exchange
, immunoadsorption) and in vivo GPCR-AAB attack (intravenous IgG treatment, B-cell depletion, GPCR-AAB in vivo binding and neutralization) are critically reflected with respect
humanbean
in
Thyroid UK
1 year ago
Encephalitis of unknown origin and currently no diagnosis!
Doctors have thrown everything to cover a viral and autoimmune and effectively run out of treatment. currently we have not real response at the moment and there are two areas of swelling in the brain that have not shifted with any treatments steroids and then
Plasma
exchange
.
Doctors have thrown everything to cover a viral and autoimmune and effectively run out of treatment. currently we have not real response at the moment and there are two areas of swelling in the brain that have not shifted with any treatments steroids and then
Plasma
exchange
.
Hidden
in
Encephalitis International
1 year ago
Radiation Proctitis looking for advise please.
I am a 62 year old woman and had pelvic external beam radiotherapy for five weeks ending in March 2023. Since then I have had bowel problems, a bit of urinary incontinence, lymphedema and tingling like sensations in my legs. Bleeding from my anus became worse in December. I have since had a colonoscopy
I am a 62 year old woman and had pelvic external beam radiotherapy for five weeks ending in March 2023. Since then I have had bowel problems, a bit of urinary incontinence, lymphedema and tingling like sensations in my legs. Bleeding from my anus became worse in December. I have since had a colonoscopy
Bettys-rose
in
Pelvic Radiation Disease Association
8 months ago
Catastrophic APS
They have tried
plasma
exchange
, high dose steriods to no avail. Im still on Warfarin. Has anybody found a way to get it back under control?
They have tried
plasma
exchange
, high dose steriods to no avail. Im still on Warfarin. Has anybody found a way to get it back under control?
Lind8
in
Hughes Syndrome APS Forum
2 years ago
A comeback is possible
I spent many weeks in an induced coma and as I recovered, I wasn’t able to speak, wasn’t able to eat, attacked nurses and doctors, had scores of the most vivid dreams (that I still remember) and only really became anything approaching ‘normal’ until I’d had a five day
plasma
exchange
treatment.
I spent many weeks in an induced coma and as I recovered, I wasn’t able to speak, wasn’t able to eat, attacked nurses and doctors, had scores of the most vivid dreams (that I still remember) and only really became anything approaching ‘normal’ until I’d had a five day
plasma
exchange
treatment.
The_Bass
in
Encephalitis International
2 years ago
Plasmapheresis / Therapeutic Plasma Exchange, TPE
TPE, with blood withdrawn and reinserted without the plasma, has in a small clinical single-arm trial indicated remarkable benefits in markers of various kinds including DNA damage, cellular senescence and immunity (T-cells, B-cells, NK cells). Downside appears limited. It remains to be seen if the
TPE, with blood withdrawn and reinserted without the plasma, has in a small clinical single-arm trial indicated remarkable benefits in markers of various kinds including DNA damage, cellular senescence and immunity (T-cells, B-cells, NK cells). Downside appears limited. It remains to be seen if the
Purple-Bike
in
Advanced Prostate Cancer
2 years ago
ANCA MPO and Systemic sclerosis positive - Suddenly ESR 93
Hello, ANCA MPO and Systemic sclerosis positive - No response to methotrexate/steroids Rituxan infusions June 2022- 6 months later, no response - Repeat Rituxan infusions December December Labs: ANCA and Scl-70 positive; IgM <25 ESR 93 markedly elevated - ESR Labs: 07/22 through 09/01/22 - "
Hello, ANCA MPO and Systemic sclerosis positive - No response to methotrexate/steroids Rituxan infusions June 2022- 6 months later, no response - Repeat Rituxan infusions December December Labs: ANCA and Scl-70 positive; IgM <25 ESR 93 markedly elevated - ESR Labs: 07/22 through 09/01/22 - "
irishponies
in
Vasculitis UK
2 years ago
prednisalone dose
I was started on these steroids when I was diagnosed with Myasthenia Gravis nine years ago. After a couple of months on doses up to 30mg. My symptoms went away and I was taken off all medication, big mistake. A few months later the MG came back with a vengeance and I was hospitalised for 10 weeks. The
I was started on these steroids when I was diagnosed with Myasthenia Gravis nine years ago. After a couple of months on doses up to 30mg. My symptoms went away and I was taken off all medication, big mistake. A few months later the MG came back with a vengeance and I was hospitalised for 10 weeks. The
Diyfan
in
PMRGCAuk
2 years ago
Pain after intercourse
First I would like to thank all the people in this community for providing excellent advice and encouragement. I had radiation and Lupron in 2020, and my PSA has been good. Unfortunately, in February 2022, I had to be hospitalized due to bleeding in my colon. After receiving a couple of units of blood
First I would like to thank all the people in this community for providing excellent advice and encouragement. I had radiation and Lupron in 2020, and my PSA has been good. Unfortunately, in February 2022, I had to be hospitalized due to bleeding in my colon. After receiving a couple of units of blood
paladin7
in
Prostate Cancer Network
2 years ago
Scleroderma and plasmapheresis / plasma exchange
Has anyone here tried this for scleroderma or know anyone who has? I've seen a fair bit of talk about this and read some studies to do with this on the internet on various websites but I thought i'd ask on another scleroderma related forum.... I'm trying to get this treatment and want to talk to
Has anyone here tried this for scleroderma or know anyone who has? I've seen a fair bit of talk about this and read some studies to do with this on the internet on various websites but I thought i'd ask on another scleroderma related forum.... I'm trying to get this treatment and want to talk to
Wanderinglost22
in
Scleroderma & Raynaud's UK (SRUK)
2 years ago
People of HU - Neuromyelitis Optica: Ashlee's story
I was rushed to the hospital where I underwent a procedure called plasmapheresis, also known as
plasma
exchange
(PLEX), that is used to treat MS and other demyelinating diseases, such as NMO.
I was rushed to the hospital where I underwent a procedure called plasmapheresis, also known as
plasma
exchange
(PLEX), that is used to treat MS and other demyelinating diseases, such as NMO.
SaskiaHU
HealthUnlocked
in
HealthUnlocked Blog
2 years ago
Is your Parkinson's diagnosis really idiopathic? Or is there an underlying cancer/autoimmune disorder?
Autoimmune and Paraneoplastic Movement Disorders https://pubmed.ncbi.nlm.nih.gov/29406902/ [i]Movement[/i] disorders are common in patients with autoimmune disorders - affecting the central (brain) and peripheral (body) nervous system. They may be seen in autoimmune disorders triggered by an infectious
Autoimmune and Paraneoplastic Movement Disorders https://pubmed.ncbi.nlm.nih.gov/29406902/ [i]Movement[/i] disorders are common in patients with autoimmune disorders - affecting the central (brain) and peripheral (body) nervous system. They may be seen in autoimmune disorders triggered by an infectious
SilentEchoes
in
Cure Parkinson's
2 years ago
Ocular Myasthenia Gravis or Congenital Myasthenic Syndrome
[u]
Has anyone been diagnosed with Ocular Myasthenia Gravis which may have been a misdiagnosis
[/u]? Husband diagnosed with seronegative OMG in 2008 age 38 years. Symptoms of double vision ( Diplopia) and ptosis only over the years. [u]TREATMENT OVER THE YEARS[/u] Mestinon- unsuccessful Immuran
[u]
Has anyone been diagnosed with Ocular Myasthenia Gravis which may have been a misdiagnosis
[/u]? Husband diagnosed with seronegative OMG in 2008 age 38 years. Symptoms of double vision ( Diplopia) and ptosis only over the years. [u]TREATMENT OVER THE YEARS[/u] Mestinon- unsuccessful Immuran
Jen2803
in
Myasthenia Gravis Association
2 years ago
Two PerPLEXing Cases of Hashimoto’s Encephalopathy Unresponsive to Steroid and Intravenous Immunoglobulin Therapy
Many questions arise from this paper. Why did these two patients have such an awful time when we see so many others with seemingly worse test results doing far better? Would plasmapheresis help others - even some who don't actually have Hashimoto’s encephalopathy (so far as we can tell)? What
Many questions arise from this paper. Why did these two patients have such an awful time when we see so many others with seemingly worse test results doing far better? Would plasmapheresis help others - even some who don't actually have Hashimoto’s encephalopathy (so far as we can tell)? What
helvella
Thyroid UK
in
Thyroid UK
2 years ago
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