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mum update
hey all, I posted last week about mum requiring a biopsy re. 8cm lump to right ovary with surrounding. They discussed her again at mdt last week and the interventional radiology department decided it was too risky and she was referred for surgery. She met with her new consultant this morning as has
hey all, I posted last week about mum requiring a biopsy re. 8cm lump to right ovary with surrounding. They discussed her again at mdt last week and the interventional radiology department decided it was too risky and she was referred for surgery. She met with her new consultant this morning as has
Kerri1402
in
My Ovacome
11 months ago
GABA & Taurine
Is anyone aware of effects of using GABA to relax and Taurine to get into the gym? I’m on Pluvicto and having a hard time with fatigue and also restlessness in bed. Thanks!
Is anyone aware of effects of using GABA to relax and Taurine to get into the gym? I’m on Pluvicto and having a hard time with fatigue and also restlessness in bed. Thanks!
Arel8
in
Advanced Prostate Cancer
11 months ago
leaking eyes please help
my eyes leak down my face constantly I don’t know which medication is causing it. I was wondering if this happens to anybody else I’ve metastatic breast cancer bone only. I’m on faslodex and Verzenio and Xgeva. Help.
my eyes leak down my face constantly I don’t know which medication is causing it. I was wondering if this happens to anybody else I’ve metastatic breast cancer bone only. I’m on faslodex and Verzenio and Xgeva. Help.
Ycats277
in
SHARE Metastatic Breast Cancer
1 year ago
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Cervix
I had my second pet scan it shows a mass on my cervix. I had a hysterectomy. 20 years ago. So with the MBC and now this I am a little concerned. Going to a OBGYN go a test. Hopefully maybe scar tissue probably not since it was not there in the first pet scan. Praying. Has anyone else had this issue?
I had my second pet scan it shows a mass on my cervix. I had a hysterectomy. 20 years ago. So with the MBC and now this I am a little concerned. Going to a OBGYN go a test. Hopefully maybe scar tissue probably not since it was not there in the first pet scan. Praying. Has anyone else had this issue?
Gentelforce
in
SHARE Metastatic Breast Cancer
1 year ago
Headaches post Gamma knife surgery
6 weeks of headaches on the side of the tumour and they’ve been getting worse. I’m due to see the original ENT consultant on Wednesday next week but and ideas why now? It’s over 12 months since the Gamma knife and possibly due to Eustachian tube disfunction. The pain is sometimes sharp and intense
6 weeks of headaches on the side of the tumour and they’ve been getting worse. I’m due to see the original ENT consultant on Wednesday next week but and ideas why now? It’s over 12 months since the Gamma knife and possibly due to Eustachian tube disfunction. The pain is sometimes sharp and intense
GGourmet
in
Acoustic Neuroma Support
1 year ago
HIP XRAYS- Will they effect my recovery or effect my Prostate Cancer-I am now 7 months post IMRT Treatment and healing fine.
Docs want me to take hip xrays ... I am healing well 7 months post IMRT 20 TX now . no major Urinary and rectal issues. Worried that hip xrays may effect my recovery. I know it's not much radiation but I am doing so well...dont want to "POKE THE BEAR"... Thanks JWS All thoughts welcome!!! 62 20
Docs want me to take hip xrays ... I am healing well 7 months post IMRT 20 TX now . no major Urinary and rectal issues. Worried that hip xrays may effect my recovery. I know it's not much radiation but I am doing so well...dont want to "POKE THE BEAR"... Thanks JWS All thoughts welcome!!! 62 20
JWS13
in
Prostate Cancer Network
1 year ago
Update on Nuclear Scan and where I am at now.
First: thank you all for the kind support I have received since - Much appreciated. To the Nuclear Scan ordered by my GP for suspect spread from bladder cancer to the bones. I got a call from my GP surgery today telling me Dr wanted to let me know, NO bone cancer found. Thant's one worry gone.
First: thank you all for the kind support I have received since - Much appreciated. To the Nuclear Scan ordered by my GP for suspect spread from bladder cancer to the bones. I got a call from my GP surgery today telling me Dr wanted to let me know, NO bone cancer found. Thant's one worry gone.
Ern007
in
Lung Conditions Community Forum
1 year ago
Night time nausea
I am a little confused what is going on with my husband.He's got ARBD, acute kidney disease and ARLD. He has started being very sick late at night and this morning I noticed traces of blood in his sick bowl. He says he's not in any pain, but I am concerned as this is a new symptom. He refused to contact
I am a little confused what is going on with my husband.He's got ARBD, acute kidney disease and ARLD. He has started being very sick late at night and this morning I noticed traces of blood in his sick bowl. He says he's not in any pain, but I am concerned as this is a new symptom. He refused to contact
Diamondbabe
in
British Liver Trust
1 year ago
CA125 plus MRI = trouble (despite contrary advice)
Hi All, this is from the Uk - good old NHS! My positivity is slipping! No, I WILL keep a PMA😌 I’m off on holiday soon 😁 but…. The story so far is too long - briefly, 4th line finished end of May. Just got blood results and CA125 has jumped from 23 to 293! Now, the midpoint CT scan showed partial
Hi All, this is from the Uk - good old NHS! My positivity is slipping! No, I WILL keep a PMA😌 I’m off on holiday soon 😁 but…. The story so far is too long - briefly, 4th line finished end of May. Just got blood results and CA125 has jumped from 23 to 293! Now, the midpoint CT scan showed partial
Irisisme
in
My Ovacome
1 year ago
liver lesions outcome post MDT meeting scared
I am facing a post MDT consultant meeting tomorrow in general surgery after ultrasound found 2 liver lesions but that snd CT scan didn’t give clear info so had an MRI, which they will have had. Consultant seeing is a heptologist. Am very scared of outcome - am assuming cancer as have some symptoms. Wondering
I am facing a post MDT consultant meeting tomorrow in general surgery after ultrasound found 2 liver lesions but that snd CT scan didn’t give clear info so had an MRI, which they will have had. Consultant seeing is a heptologist. Am very scared of outcome - am assuming cancer as have some symptoms. Wondering
Hidden
in
British Liver Trust
1 year ago
Bone scan results
Hi Everyone! Git the results of my bone scan and all I kept reading was, increased uptake. My other tests last week showed I have 2.1 cm leision on my kidney right side and my left a few small lesions. In January the leision was 1,.3. I don’t see my dr until the 19th and am a little worried. Has my
Hi Everyone! Git the results of my bone scan and all I kept reading was, increased uptake. My other tests last week showed I have 2.1 cm leision on my kidney right side and my left a few small lesions. In January the leision was 1,.3. I don’t see my dr until the 19th and am a little worried. Has my
Sharon0122
in
SHARE Metastatic Breast Cancer
1 year ago
Large right lobe upper lobe mass
Hello, I was wondering if anyone had as the post says, a large right lobe upper lobe mass? This is what they have just found with my mum. She’s had quite a bit of weight loss and has a scan tomorrow and possible report from this Friday to see exactly what it is but they are assuming lung cancer. I just
Hello, I was wondering if anyone had as the post says, a large right lobe upper lobe mass? This is what they have just found with my mum. She’s had quite a bit of weight loss and has a scan tomorrow and possible report from this Friday to see exactly what it is but they are assuming lung cancer. I just
HollyT7
in
The Roy Castle Lung Cancer Foundation
1 year ago
Switching Drs
In July, I was notified by my oncology clinic that my oncologist was on an emergency leave of absence with his return undetermined. 😢 I was absolutely devastated, not only because there was no information that could be given on his status, but also for the void it left not knowing where to proceed
In July, I was notified by my oncology clinic that my oncologist was on an emergency leave of absence with his return undetermined. 😢 I was absolutely devastated, not only because there was no information that could be given on his status, but also for the void it left not knowing where to proceed
K-itty
in
MPN Voice
1 year ago
Prostate Cancer (stage IV) identified in January and Small Cell Carcinoma (Neuro endocrine) in liver in August. Any suggestions?
In January, my dad was diagnosed with Prostate Cancer (Acinar Adenocarcinoma Prostate) stage 4, with PSA of 687. PCa had reached bones but not other major organs. He was put on Abiraterone and Degarelix. In August, PSA test showed that PSA had dropped to 2.7 and there was decrease in size and PSMA avidity
In January, my dad was diagnosed with Prostate Cancer (Acinar Adenocarcinoma Prostate) stage 4, with PSA of 687. PCa had reached bones but not other major organs. He was put on Abiraterone and Degarelix. In August, PSA test showed that PSA had dropped to 2.7 and there was decrease in size and PSMA avidity
RindaMan
in
Advanced Prostate Cancer
1 year ago
new symptoms
hello I have been on Letrozol and Kisqali for six months and Zometa every 3 months for Mets in different bones throughout my body and lungs , now just stared coughing up blood like a blood clot first, I’m on a bloody thinner as well as a preventative for blood clots my doctor said, pain in my back and
hello I have been on Letrozol and Kisqali for six months and Zometa every 3 months for Mets in different bones throughout my body and lungs , now just stared coughing up blood like a blood clot first, I’m on a bloody thinner as well as a preventative for blood clots my doctor said, pain in my back and
MyDogs2
in
SHARE Metastatic Breast Cancer
1 year ago
Advice please
Hi there, my mum was diagnosed with HGSOC stage 4 in October 21. She had debulking surgery followed by 6 rounds of carbo/taxol. She recovered well and continued with Avastin infusions every 3 weeks until May this year when her CA125 started to gradually rise. Her CT scan at this time showed NED and they
Hi there, my mum was diagnosed with HGSOC stage 4 in October 21. She had debulking surgery followed by 6 rounds of carbo/taxol. She recovered well and continued with Avastin infusions every 3 weeks until May this year when her CA125 started to gradually rise. Her CT scan at this time showed NED and they
Pitchperfec
in
My Ovacome
1 year ago
Açai powder
Açai Has anyone taken Açai powder for a supplement I have PV and take 90 micrograms of peg interferon a week and a blood thinner . It's know has the Açai berry but is technically a drupe not a berry . It suppose to be really good for blood cancers ? I just wanted to know before I start using
Açai Has anyone taken Açai powder for a supplement I have PV and take 90 micrograms of peg interferon a week and a blood thinner . It's know has the Açai berry but is technically a drupe not a berry . It suppose to be really good for blood cancers ? I just wanted to know before I start using
Blonde25
in
MPN Voice
1 year ago
TBill
Hey guys. Glad to find this group. 81 years old- Diagnosed 7 years ago with a Gleason 9 The Onc's finally scared me into having a radical but I refused to let them take my nerves. They told me I would be gone in 5 yrs. In retrospect wish I hadn't had the radical. Info and options were very hard to come
Hey guys. Glad to find this group. 81 years old- Diagnosed 7 years ago with a Gleason 9 The Onc's finally scared me into having a radical but I refused to let them take my nerves. They told me I would be gone in 5 yrs. In retrospect wish I hadn't had the radical. Info and options were very hard to come
TBill
in
Advanced Prostate Cancer
1 year ago
has anyone had a lumpectomy with MBC?
Hi all- I love this site and the camaraderie that you all give me. Always feel less alone when I read your posts. And have learned so much! I was diagnosed in May 2020 , HER2 positive stage 4 found Mets in lymph nodes and trachea area. Treatment has worked great, Ibramce and exemastane (way better
Hi all- I love this site and the camaraderie that you all give me. Always feel less alone when I read your posts. And have learned so much! I was diagnosed in May 2020 , HER2 positive stage 4 found Mets in lymph nodes and trachea area. Treatment has worked great, Ibramce and exemastane (way better
Georgelila
in
SHARE Metastatic Breast Cancer
1 year ago
Inherited aggressive pc
Dad diagnosed mid 60s after emergency admittance as he couldn't piss, had prostate removed and radiotherapy, presumably to pelvic area etc. but not sure, he died 15 yrs later with advanced pc. Brother had psa of 10 at age 59 and dre revealed some abnormality, biopsy revealed pc and he had 20 sessions
Dad diagnosed mid 60s after emergency admittance as he couldn't piss, had prostate removed and radiotherapy, presumably to pelvic area etc. but not sure, he died 15 yrs later with advanced pc. Brother had psa of 10 at age 59 and dre revealed some abnormality, biopsy revealed pc and he had 20 sessions
pd63
in
Prostate Cancer Network
1 year ago
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