Bone scan results

[Sharon0122]

Hi Everyone!

Git the results of my bone scan and all I kept reading was, increased uptake. My other tests last week showed I have 2.1 cm leision on my kidney right side and my left a few small lesions. In January the leision was 1,.3. I don’t see my dr until the 19th and am a little worried. Has my Ibrance 100 and anastrozole stopped working? Hug to you all. -Sharon

[Kerryd22]

Are the kidney lesions new? If you had no lesions there on the last scan but you do now then - yes your treatment might need to be changed. I had a new node light up in my abdomen in March but the radiologist suggested a repeat scan in 12 weeks. That was done and the node lesion was half the size and rather than progression I’d had regression in many places. All I’m saying is don’t panic yet!

If the kidney lesions aren’t new but they’ve grown by more than 30% your oncologist could still consider that you’ve progressed. There was a video here that explained progression etc. I’ve forgotten the name of the post but it was in the last month.

[Sharon0122 in reply to Kerryd22]

Thanks for your reply. It seams it has been there since January and I sleep almost 12 hours every night unless I set the alarm clock. Hugs!

[Eliactida1955]

Sorry to hear it’s increasing and is your tumor marker down? Don’t be too quick to stop Ibrance-see what onc says sometimes marker goes up when tumor cells shed. Post what he says -wish you the best-be strong🙏✝️

[Sharon0122 in reply to Eliactida1955]

thanks fir your reply it’s just a worry every day. I just wish the test wasn’t done so far out.hugs!

[Eliactida1955 in reply to Sharon0122]

I know what you mean. Mine are done every 4-5 months sometimes sooner and lab every other month or so. Starting back Stoney’s every three months since I’m recovering from my hip fracture. I missed my July scan trying to get scheduled again at M D Anderson now. Let me know what your onc says. 🌹🤞

[Sharon0122]

my dr was trained at MD Anderson do you think it would do any good to check in at anderson?

[Unicornuniverse in reply to Sharon0122]

do you have a portal for your Oncologist where you can ask this question or call them. I wouldnt wait till the 19th - they will call you same day

[Chamisa in reply to Sharon0122]

I think it’s always a good idea to check with MD Anderson. That’s where I switched my treatment to, and I just feel they are so competent. I’m on Medicare and they accept Medicare.

[Sharon0122]

I do and heard back he said not to worry we’ll talk more at my appt 😕

[Dancertee]

Hi Sharon, I just got my bone scan results... similar to yours.... increased uptake and "progression" of tumors.... My onc is going to take me off Ibrance, but she's waiting to see if she can get me on clinical trial.... if not, she's going to try Piqray.... I know it's easy to say that worrying doesn't help.... but you're not alone.... I truly hope you grasp onto the positivity in your life... focus on that... I hate that my disease is spreading... but I'm trying to squeeze the life out of each day.... every one is a gift... and so are the people in your life who care.... each one is a special blessing.... Hugs to you... dancing on... tanya ❤️💃

[Sharon0122 in reply to Dancertee]

Thanks! It’s hard to be positive when reports like this come in. We’re going to take a trip to Maine next month, gives me something to look forward to. Last year we went to Colorado and the Grand Canyon but the pain was so bad, but it’s the memories that count. Hugs!