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Taste Issues and finger neuropathy on Xtandi( enzalutamide) ?
In order to participate in a clinical trial (FOR46 at UCSF) I had to switch from Nubeqa (darolutamide) to enzalutamide. Previously on abiraterone. Did really well on both medications. Now 4 months on enzalutamide and my 5th research infusion, I'm experiencing some side effects. Trying to determine
In order to participate in a clinical trial (FOR46 at UCSF) I had to switch from Nubeqa (darolutamide) to enzalutamide. Previously on abiraterone. Did really well on both medications. Now 4 months on enzalutamide and my 5th research infusion, I'm experiencing some side effects. Trying to determine
bandgeek
in
Advanced Prostate Cancer
7 months ago
Help with dosing ov Armour thyroid
Hello everyone, Currently on 112.5 mcg of Levo , split into two doses , and no thyroid, I am switching to Armour thyroid . I am apprehensive about dosages to start with, as I react very strongly to drugs. For example, taking Levo in one dose instead two, gives me headaches and migraine-like visual
Hello everyone, Currently on 112.5 mcg of Levo , split into two doses , and no thyroid, I am switching to Armour thyroid . I am apprehensive about dosages to start with, as I react very strongly to drugs. For example, taking Levo in one dose instead two, gives me headaches and migraine-like visual
Britpol
in
Thyroid UK
7 months ago
my cancer comic…
I’m a graphic designer who has done autobiographical comics for around 16 years, mostly about medical stuff (detached retina, thyroid surgery, a bad fall, gallbladder surgery…). Late last year I was diagnosed with prostate cancer. Just my prostate and some pelvic lymph nodes at this point, and awaiting
I’m a graphic designer who has done autobiographical comics for around 16 years, mostly about medical stuff (detached retina, thyroid surgery, a bad fall, gallbladder surgery…). Late last year I was diagnosed with prostate cancer. Just my prostate and some pelvic lymph nodes at this point, and awaiting
Jpburns
in
Advanced Prostate Cancer
7 months ago
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Tall Cell Aggressive Papillary Thyroid Cancer
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now
Portugal-2
in
Thyroid UK
7 months ago
Tall Cell Agressive Papillary Thyroid Cancer
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now have
Interested in speaking with other Tall Cell Papillary Thyroid Cancer adults diagnosed in late that have both the BRAF V 600 and TERT gene. I have had a total thyroidechtomy 2/3 para thyroid out 85 nodes removed. RAI 150. Daily radiation for 8 weeks with one day a week chemo, 6 proton therapy. Now have
Portugal-2
in
Thyroid Cancer Support
7 months ago
Update and advice needed x
Thank you all for your lovely comments. CT scan result shows a small area on the outside of the bowel which needs further investigation. Really shocked to hear this! After the procedure had been told cancer removed. Has anybody had a similar experience? Oncologist unable to say if it’s ovarian/bowel
Thank you all for your lovely comments. CT scan result shows a small area on the outside of the bowel which needs further investigation. Really shocked to hear this! After the procedure had been told cancer removed. Has anybody had a similar experience? Oncologist unable to say if it’s ovarian/bowel
ORGM
in
My Ovacome
7 months ago
Bladder Cancer, biopsy and operation.
I all happened so quickly,next week pre-op discussion and operation on Friday. I would like to receive response from people who have had urinary bladder biopsy operation. Thanka a lot in advance.
I all happened so quickly,next week pre-op discussion and operation on Friday. I would like to receive response from people who have had urinary bladder biopsy operation. Thanka a lot in advance.
sandybrown
in
Lung Conditions Community Forum
7 months ago
constipation!!!
Hello anyone I have got this constant gnawing ,scratching ,pinching ETC going on in my bum and for 3/4 months really bad constipation frightened to poop in case I "UNBLOCK" myself to the nasty stuff I just can't control I looked it up on DR GOOGLE and it came up with Proctalgia Fugax/ Levator Syndromeas
Hello anyone I have got this constant gnawing ,scratching ,pinching ETC going on in my bum and for 3/4 months really bad constipation frightened to poop in case I "UNBLOCK" myself to the nasty stuff I just can't control I looked it up on DR GOOGLE and it came up with Proctalgia Fugax/ Levator Syndromeas
bungi1961
in
Bowel Disease Support
7 months ago
Abdominal and decending aorta aneurysms
Back in June 2023 I had a PET Scan. The results were negative, no matastisim, no other findings except divertculosis which I have had for years.Early January 2024, I had another PET Scan. No matastisism was found but, this time they found an abdominal Aorta Aneurysm 3.5 cm and an the makings of a decending
Back in June 2023 I had a PET Scan. The results were negative, no matastisim, no other findings except divertculosis which I have had for years.Early January 2024, I had another PET Scan. No matastisism was found but, this time they found an abdominal Aorta Aneurysm 3.5 cm and an the makings of a decending
woppaginny
in
Advanced Prostate Cancer
7 months ago
Leo 2327
Hi to all the ladies on this journey I am 3c ovarian cancer since May 2022 had 8 lots of chemo and debulking surgery and stoma then been on avastin for over a year last one next Friday and also take olaparib I am NED at the moment but I am suffering realy bad with hot sweats and tiredness is anyone else
Hi to all the ladies on this journey I am 3c ovarian cancer since May 2022 had 8 lots of chemo and debulking surgery and stoma then been on avastin for over a year last one next Friday and also take olaparib I am NED at the moment but I am suffering realy bad with hot sweats and tiredness is anyone else
Leo2327
in
My Ovacome
7 months ago
The Big C
Hello friends: After 3 and 1/2 years of GCA and prednisone, I think I’m pretty much free. I’m down to 1 mg every other day. As providence has dictated, I was just diagnosed with triple negative breast cancer, which is an aggressive and unforgiving cancer. My question regards my current Immune state
Hello friends: After 3 and 1/2 years of GCA and prednisone, I think I’m pretty much free. I’m down to 1 mg every other day. As providence has dictated, I was just diagnosed with triple negative breast cancer, which is an aggressive and unforgiving cancer. My question regards my current Immune state
Snerd
in
PMRGCAuk
7 months ago
A clearer picture
I saw the surgeon yesterday. The biopsy confirmed my breast cancer diagnosis. I had to push for information as the pathology results are incomplete.So now I know I have a stage 2 invasive carcinoma, hormone positive. Cancer type to follow. I've been referred for an MRI. I'll have a follow up to discuss
I saw the surgeon yesterday. The biopsy confirmed my breast cancer diagnosis. I had to push for information as the pathology results are incomplete.So now I know I have a stage 2 invasive carcinoma, hormone positive. Cancer type to follow. I've been referred for an MRI. I'll have a follow up to discuss
LindaLittleBear
in
My Breast Cancer Community
7 months ago
Ct showed tumor but not on colonoscopy
Hello all. So my father, who is in his late mkd60s, was having digestive symptoms- pain and trouble passing stool. After seeing his doctor several times he ended up in the er where a ct scan was done. The ct scan showed a large (6 cm) ill defined mass at the junction of the descending and sigmoid colon
Hello all. So my father, who is in his late mkd60s, was having digestive symptoms- pain and trouble passing stool. After seeing his doctor several times he ended up in the er where a ct scan was done. The ct scan showed a large (6 cm) ill defined mass at the junction of the descending and sigmoid colon
Dr105
in
Colon Cancer Connected
7 months ago
Ground glass nodules
I am very concerned about being told I have a ground glass nodule. I am to have a follow-up CT scan in a year I have read very confusing information and I am wondering if anyone has any experience with such nodules.
I am very concerned about being told I have a ground glass nodule. I am to have a follow-up CT scan in a year I have read very confusing information and I am wondering if anyone has any experience with such nodules.
janno
in
Lung Conditions Community Forum
7 months ago
Not feeling that great on Armour Thyroid
Hi ...I started taking Armour Thyroid a few months back and these are my latest blood test results. I haven't been feeling that great on it as yet. My dry cracked heels getting worse, falling asleep very early evening etc. After this blood test I started to add a little Levothyroxine daily (around 20mcg
Hi ...I started taking Armour Thyroid a few months back and these are my latest blood test results. I haven't been feeling that great on it as yet. My dry cracked heels getting worse, falling asleep very early evening etc. After this blood test I started to add a little Levothyroxine daily (around 20mcg
Turquoisenona
in
Thyroid UK
7 months ago
Intermediate favorable vs. unfavorable Gleason 7 acc.to 2 doctors + CLEAN PSMA, do we need third opinion +where? (Green Bay/Milwaukee areas)
Hello all~ I am writing as spokesperson and chief researcher for my husband, Steve. He is 75 and was dx'ed w/prostate cancer on 11/27 by his urologist after some months following a bad UTI and subsequent catheterization to "rest his bladder" by initial NP (whom we saw upon referral but subsequently
Hello all~ I am writing as spokesperson and chief researcher for my husband, Steve. He is 75 and was dx'ed w/prostate cancer on 11/27 by his urologist after some months following a bad UTI and subsequent catheterization to "rest his bladder" by initial NP (whom we saw upon referral but subsequently
AliceinW57
in
Prostate Cancer Network
7 months ago
2nd recurrence
hi ladies. As you know I am going through my second recurrence. My team have not been able to biopsy my offending lymph node as it is to dangerous to biopsy. So the have started me on another course of 6 rounds of Pacitaxol/Carboplatin. I’ve been told that my cancer is slightly more difficult to treat
hi ladies. As you know I am going through my second recurrence. My team have not been able to biopsy my offending lymph node as it is to dangerous to biopsy. So the have started me on another course of 6 rounds of Pacitaxol/Carboplatin. I’ve been told that my cancer is slightly more difficult to treat
Hota
in
My Ovacome
7 months ago
Biopsy wait times
Hi all, my dad was diagnosed with lung cancer last week and understandably we are all devastated. He has not been well since Oct. X-ray in Dec and CT scan on 3rd Jan. He now has to go for a biopsy and the GP informed him the appointment could take up to 4 weeks. He called the appointment line today and
Hi all, my dad was diagnosed with lung cancer last week and understandably we are all devastated. He has not been well since Oct. X-ray in Dec and CT scan on 3rd Jan. He now has to go for a biopsy and the GP informed him the appointment could take up to 4 weeks. He called the appointment line today and
Vhunter60
in
The Roy Castle Lung Cancer Foundation
7 months ago
Verzenio Monotherapy
I'm wondering if anyone on here is on Verzenio monotherapy. That is just Verzenio,not in combo with anything. I take 200mg twice daily. I began this just over a month ago and wondering if anyone has been on this protocol and seen it help. To give a background. I was diagnosed first 27 years ago. Stage
I'm wondering if anyone on here is on Verzenio monotherapy. That is just Verzenio,not in combo with anything. I take 200mg twice daily. I began this just over a month ago and wondering if anyone has been on this protocol and seen it help. To give a background. I was diagnosed first 27 years ago. Stage
caw517
in
SHARE Metastatic Breast Cancer
7 months ago
Mother and Daughter diagnosis
Hi. My mom and and i have both been recently diagnosed with breast cancer. It has been a whirlwind since our diagnosis, both different types, both different treatments, but both the same fears and anxieties. Has anyone else experienced this type of situation? I have started chemo treatments, having
Hi. My mom and and i have both been recently diagnosed with breast cancer. It has been a whirlwind since our diagnosis, both different types, both different treatments, but both the same fears and anxieties. Has anyone else experienced this type of situation? I have started chemo treatments, having
ilovemydutchieboy
in
My Breast Cancer Community
7 months ago
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