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Ground glass nodules

janno profile image
21 Replies

I am very concerned about being told I have a ground glass nodule. I am to have a follow-up CT scan in a year I have read very confusing information and I am wondering if anyone has any experience with such nodules.

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janno
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21 Replies
Bevvy profile image
Bevvy

I haven’t had a nodule but my understanding is that many nodules are nothing, whilst some are to do with a previous or current infection. I do understand though the panic that it might be something more sinister. Certainly I would leap to that conclusion! However the fact they are waiting a year to redo scan and not suggesting a biopsy suggests to me that they aren’t concerned.

janno profile image
janno in reply toBevvy

Thank you Bevvy. You have just made me feel less anxious.

Alberta56 profile image
Alberta56

Phone the Asthmalung Helpline and ask them to clarify the information.

teddyd profile image
teddyd

I also have nodules in my lungs. After they showed up on a Ct scan I was told I would get a follow up Ct scan, I think it was 6 months after they were identified ( might have been longer) Because there has been no change in size etc I was told it was caused by previous infections and was nothing to worry about .

janno profile image
janno in reply toteddyd

Thank you for your reply. It definitely helps me feel more positive.

katieoxo60 profile image
katieoxo60

Hello janno , sorry for delay in reply had a crash on my computer this morning due to power cut. When I had ground glass appearance in lungs they said infection possibly , but I had to be Xrayed in three months and spent 2 years visiting chest clinic . That was around 16 years ago I still have the same in my lung plus a few more oddities. I use three inhalers . But its presumed it was not the big C . Its very stressful when things are not clear but if you don't have to be scanned for a year I think things must be OK and not need any treatment. My freind had lung scarring from infection but she lived into her nineties so I hope that gives you faith that some things can be dealt with with help . I hear that some people have nodules removed but I have never heard of ground glass nodules before . But ground glass appearance can mean infection I believe. I had a full batch of tests for cancer due to the appearance but no definate diagnosis was ever clinically reached . It was put down to scarring from past infection and still remains . Every best wish .

janno profile image
janno in reply tokatieoxo60

Katie

Thank you for your reply. It is very helpful and encouraging.

jackdup profile image
jackdup

I have the same and have been having follow-up CT scans for the last three years. The doctor feels it is from past infections and possible inflammation. I am scheduled for another CT scan at the end of March.

janno profile image
janno in reply tojackdup

Thanks, I appreciate your reply as well as the replies from others. It helps to know what the causes can be.

janno profile image
janno in reply tojackdup

Since I had a cold/cough prior to the CT scan this could also have been the reason. I did not get a detailed explanation from my Dr., other than she was not concerned and to have a followup. I know I need to ask more questions of my doctors.

jackdup profile image
jackdup in reply tojanno

It never hurts to ask more questions or to get a clarification when you are unsure. Doctors often take some things for granted as they are familiar with them but sometimes don’t realize not everyone is.

Pachira profile image
Pachira

I believe ground glass is inflammation. The nodules are compacted sputum so if your pulmonologist has recommended airway clearance, you will benefit immensely. I have been diagnosed with asthma, Bronchiectasis, NTM (Mac) and cavitary nodules. I’m using a nebulizer to inhale abuterol and 3% hypertonic saline. I’ve also started taking NAC to hopefully help thin the mucus and he has me inhale a powder fluticasone propionate with salmeterol 2X per day. I’m 74 with stage 4 breast cancer so I don’t think the big 3 antibiotics will be a choice for me. Are you short of breath? From what I’ve read it seems that treatment on the NHS is more challenging than here in the US bu there’s lots of sites to help. The Mayo Clinic is very good but of course you’d really be best to start with your pulmonologist. Good luck Chris

janno profile image
janno in reply toPachira

I only get short of breath on occasion if I walk in the cold (mild asthma) and I do use an inhaler. I have been taking NAC for years and have no mucus. I thank you for your reply and wish you all the best. Janno

Badbessie profile image
Badbessie

As others have stated nodules are normally a result of infection and can have little clinical significance. I am just wondering if you have had COVID as Ground-Glass Opacities are more prevalent following COVID than other infections. However GGOs can be indicative of other disease processes and the standard follow up is three years to look for changes. Obviously you are worried (like many on this forum when first diagnosed) but more than likely it is benign. The good thing is that even if it does change/grow anything sinister would have been caught very early which improves your prognosis vastly.

janno profile image
janno in reply toBadbessie

Thank you Badbessie. I have never had Covid but do have mild asthma. In retrospect, perhaps I should have mentioned that when I first posted my concern, but it rarely causes me any problems. My follow-up is in a year, not three, so it is my thought that the Dr. is taking that into consideration.

Badbessie profile image
Badbessie in reply tojanno

Sorry I may not have made myself clear. Normally this problem is followed up for 3 years. Some people have six monthly or yearly consultations for three years to monitor any progression or if it remains the same.

janno profile image
janno in reply toBadbessie

Thanks, I should have realized that is what you meant. I was not thinking clearly. All the best.

50shadesofgrey profile image
50shadesofgrey

I haven’t been explained my results but on my letter it says there is subtle ground glass opacity on a mosaic pattern suggesting obstructive small airways disease. Not sure if that helps x

janno profile image
janno in reply to50shadesofgrey

Thanks for your reply. Every reply helps.

dotw1 profile image
dotw1

Ground glass appearance in the lungs could be a sign of pulmonary fibrosis. Search actionpf.org/information -support for more information

janno profile image
janno

Thank you, I will look at the article.

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