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Post AN surgery - runny nose & eye
Hi all.. I’m 11 weeks post surgery, which was 12 hours long.. recovery has been good, I’m more it less back to normal aside from some balance issues, which I’m having vestibular physio for. I wondered if anyone else has had a runny eye & nose (on the AN side) when eating or drinking? This only started
Hi all.. I’m 11 weeks post surgery, which was 12 hours long.. recovery has been good, I’m more it less back to normal aside from some balance issues, which I’m having vestibular physio for. I wondered if anyone else has had a runny eye & nose (on the AN side) when eating or drinking? This only started
Gardener21
in
Acoustic Neuroma Support
3 years ago
Weekly Chat July 12th – 18th: What have you learnt?
Greetings! This week’s chat is being hosted by yours truly! The lens is cracked on my phone camera so I struggled a bit to find a suitable photo to add. Since I didn’t get round to posting pictures of my COGH t-shirt, I thought that might be suitable. I’ve recently been sore around my torso; thankfully
Greetings! This week’s chat is being hosted by yours truly! The lens is cracked on my phone camera so I struggled a bit to find a suitable photo to add. Since I didn’t get round to posting pictures of my COGH t-shirt, I thought that might be suitable. I’ve recently been sore around my torso; thankfully
SkiMonday
Ultramarathon
in
Fun Beyond 10K & Race Support
3 years ago
Need to take the plunge with SI, can't keep waiting for progress! But should I try to get any particular bloods first?
Me, again. Thanks to all who have been so helpful. I have decided that I need to find my big girl pants, take the plunge and just start SI to see if it does help the things going on that I think must be down to inadequately treated B12, and that the GP thinks can't be bc my levels were high when tested
Me, again. Thanks to all who have been so helpful. I have decided that I need to find my big girl pants, take the plunge and just start SI to see if it does help the things going on that I think must be down to inadequately treated B12, and that the GP thinks can't be bc my levels were high when tested
eclilley
in
Pernicious Anaemia Society
3 years ago
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Physio for endo
Has anyone here had experience of getting physio to help manage their endo symptoms? Did it help/hinder? Any tips of finding the right physio? I'm at that "early stage if diagnosis so looking at ALL THE THINGS to try to make it better!" stage 🧐
Has anyone here had experience of getting physio to help manage their endo symptoms? Did it help/hinder? Any tips of finding the right physio? I'm at that "early stage if diagnosis so looking at ALL THE THINGS to try to make it better!" stage 🧐
BikeRiderGirl
in
Endometriosis UK
3 years ago
Post concussion and dizziness / hard to explain eye issues....
Hi I'm wondering if there is any advice / similar experience here. I hit my head 9 months ago -Oct. Seemed to be improving around April time, no big symptoms. Realised I had been at home most of this time too. Last few weeks I've been doing more, although not a huge amount. Discovering that I seem to
Hi I'm wondering if there is any advice / similar experience here. I hit my head 9 months ago -Oct. Seemed to be improving around April time, no big symptoms. Realised I had been at home most of this time too. Last few weeks I've been doing more, although not a huge amount. Discovering that I seem to
silverbirc
in
Headway
3 years ago
I’m very interested in holistic health choices for myositis.
I’m currently dealing with a diagnosis of myositis.(Diagnosed September 2019) My medical team have prescribed numerous medications for eighteen months. However the improvement in my health and general well being has been minimal. I’m currently doing physio therapy a few times a week but my lower abdomen
I’m currently dealing with a diagnosis of myositis.(Diagnosed September 2019) My medical team have prescribed numerous medications for eighteen months. However the improvement in my health and general well being has been minimal. I’m currently doing physio therapy a few times a week but my lower abdomen
GaryMH
in
Myositis UK
3 years ago
Face to face appointment with rheumatology nurse today....I stamped my painful feet (metaphorically speaking)
Evening Peeps 🙂 Well, what day! Lots of 😭lots of speaking my mind and lots of demands - I'd had enough! I saw my rheumatology clinical nurse who I usually see nowadays - she's lovely. She asked me how I was....that was it - I just burst into floods of tears 😭😭I'm always wobbly when anyone asks
Evening Peeps 🙂 Well, what day! Lots of 😭lots of speaking my mind and lots of demands - I'd had enough! I saw my rheumatology clinical nurse who I usually see nowadays - she's lovely. She asked me how I was....that was it - I just burst into floods of tears 😭😭I'm always wobbly when anyone asks
Moomin8
in
NRAS
3 years ago
Acupuncture
Morning I have just got back from seeing a physio She gave me acupuncture for my painful hip just wondering if anyone’s memory seem worse afterwards, couldn’t remember my PIN number for credit card, put the wrong key in the door opened the wrong cupboard for a coffee cup Good job I am not going out My
Morning I have just got back from seeing a physio She gave me acupuncture for my painful hip just wondering if anyone’s memory seem worse afterwards, couldn’t remember my PIN number for credit card, put the wrong key in the door opened the wrong cupboard for a coffee cup Good job I am not going out My
daisyd
in
Hughes Syndrome APS Forum
3 years ago
Confusion in recovery phase
Hi, my dad is now in a neuro rehab facility, after being in hospital with severe covid. Because of his brain injury, covid caused encephalitis and spasticity to his legs and we’re praying they can get him walking again. What I’m concerned about at the moment is, he’s still very confused and his memory
Hi, my dad is now in a neuro rehab facility, after being in hospital with severe covid. Because of his brain injury, covid caused encephalitis and spasticity to his legs and we’re praying they can get him walking again. What I’m concerned about at the moment is, he’s still very confused and his memory
Miltch
in
Headway
3 years ago
Arthritis or hyper mobility?
Hi, I’m new to this and to be honest I’m not even sure if I’m in the right place but here goes. A little bit of background, I used to do a lot of judo when I was in my early 20’s and I used to work in a shop, lugging in deliveries etc. Did this for a lot of years and then got a second job in a Post
Hi, I’m new to this and to be honest I’m not even sure if I’m in the right place but here goes. A little bit of background, I used to do a lot of judo when I was in my early 20’s and I used to work in a shop, lugging in deliveries etc. Did this for a lot of years and then got a second job in a Post
JustLauraT1985
in
Arthritis Action
3 years ago
see if you can make sense of it or what can i do
to start with have i got it fibro i am all over the show with my feelings i know i have osteo of knees but the rest is a real downer 1feet pain 2r/shoulder started hurting cant lift it sometimes 3 fatigue sitting here wanting to do something also a killer just to get out of chair can be major
to start with have i got it fibro i am all over the show with my feelings i know i have osteo of knees but the rest is a real downer 1feet pain 2r/shoulder started hurting cant lift it sometimes 3 fatigue sitting here wanting to do something also a killer just to get out of chair can be major
pauluk60
in
Fibromyalgia Action UK
3 years ago
Not every breathing symptom is asthma!
Tentatively posting this because it’s perhaps controversial on an asthma forum - but it is also really important. It’s often assumed that any breathing symptom is asthma - those who have asthma assume it’s that because they have asthma therefore it must be that; those who don’t have asthma assume they
Tentatively posting this because it’s perhaps controversial on an asthma forum - but it is also really important. It’s often assumed that any breathing symptom is asthma - those who have asthma assume it’s that because they have asthma therefore it must be that; those who don’t have asthma assume they
twinkly29
in
Asthma Community Forum
3 years ago
Advice needed
Hi, after suffering for years in pain and being told it was skeletal by doctors and being told to do physio I looked into more options for my pain and asked to be referred to a Gyno. I had a consultation with a Gyno and they confirmed my suspicions also for endometriosis. I was referred for surgery and
Hi, after suffering for years in pain and being told it was skeletal by doctors and being told to do physio I looked into more options for my pain and asked to be referred to a Gyno. I had a consultation with a Gyno and they confirmed my suspicions also for endometriosis. I was referred for surgery and
Hidden
in
Endometriosis UK
3 years ago
Hopefully, should be sorted soon
Took a tumble six weeks ago and have been dealing with the fallout on and off since then. The latest flare up was last Tuesday when I tried some faster intervals and my ribs felt really sore afterwards. Wasn't sure If it was anything serious or not so checked it out with my GP but the conclusion was
Took a tumble six weeks ago and have been dealing with the fallout on and off since then. The latest flare up was last Tuesday when I tried some faster intervals and my ribs felt really sore afterwards. Wasn't sure If it was anything serious or not so checked it out with my GP but the conclusion was
SkiMonday
Ultramarathon
in
Fun Beyond 10K & Race Support
3 years ago
Newly diagnosed fibro warrior
Hi everyone. I'm 39. Mother of 3, and suffered undiagnosed for I would say 2 years. Now diagnosed with fibromyalgia and hypermobility syndrome. Live in Middlesbrough. I can cope most days with the pain but for me it's the chronic fatigue that makes my life so hard. Also the dizziness, and breathlessness
Hi everyone. I'm 39. Mother of 3, and suffered undiagnosed for I would say 2 years. Now diagnosed with fibromyalgia and hypermobility syndrome. Live in Middlesbrough. I can cope most days with the pain but for me it's the chronic fatigue that makes my life so hard. Also the dizziness, and breathlessness
ALISONJ82
in
Fibromyalgia Action UK
3 years ago
Update on dosage/diet having seen Rheumatologist
Hi everyone, saw my rheumy again last night and told him I had increased back up to 12.5mg because of the pain when I dropped to 10mg. He agreed that it was the right thing to do but was very careful to point out that it takes 7-10 days for your body to adjust to the new dose and not to jump too quickly
Hi everyone, saw my rheumy again last night and told him I had increased back up to 12.5mg because of the pain when I dropped to 10mg. He agreed that it was the right thing to do but was very careful to point out that it takes 7-10 days for your body to adjust to the new dose and not to jump too quickly
Sufferinginsilence
in
PMRGCAuk
3 years ago
Walker for better balance 2
I would like to update all - I spoke with my consultant and GP and they have given me referral for physio to advise me on what walker to buy. Let's see what they say. I will keep you all posted
I would like to update all - I spoke with my consultant and GP and they have given me referral for physio to advise me on what walker to buy. Let's see what they say. I will keep you all posted
Amynah
in
Ataxia UK
3 years ago
Please sign this petition
Today, on National ICU Rehabilitation Day, ICUsteps have launched a rehabilitation campaign #RehabIsCritical Campaign partners: Intensive care society , FICM, Chartered Soc of
Physiotherapy
, British psychological society, Royal College of Speech and language therapists, Royal College of Occupational
Today, on National ICU Rehabilitation Day, ICUsteps have launched a rehabilitation campaign #RehabIsCritical Campaign partners: Intensive care society , FICM, Chartered Soc of
Physiotherapy
, British psychological society, Royal College of Speech and language therapists, Royal College of Occupational
Rhyl1
Administrator
in
ICUsteps
3 years ago
Gutted…
I got about half way through then thought I sprained my ankle whilst running in a weird position because I had a blister on my heel. Turns out The blister was a red herring and I actually had a clean fracture through my fibula. Mind you, I walked around for 6 weeks thinking “Thats really sore. Better
I got about half way through then thought I sprained my ankle whilst running in a weird position because I had a blister on my heel. Turns out The blister was a red herring and I actually had a clean fracture through my fibula. Mind you, I walked around for 6 weeks thinking “Thats really sore. Better
Move-Mama
in
Couch to 5K
3 years ago
Respiratory Physio therapy
For the last 18 months I’ve been paying a physio, who comes to my home twice per week, does good job and clears my lungs completely each time. I feel better. I know respiratory physio is listed in NHS aims for adults with PCD, does anyone actually get it, and does it depend where we live. Im 86 next
For the last 18 months I’ve been paying a physio, who comes to my home twice per week, does good job and clears my lungs completely each time. I feel better. I know respiratory physio is listed in NHS aims for adults with PCD, does anyone actually get it, and does it depend where we live. Im 86 next
Morrison10
in
PCD Family Support Group (UK)
3 years ago
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