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Article about strange symptoms of B12 deficiency
Neurological Consequences of B12 Deficiency PAS news item https://
pernicious
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anaemia
-society.org/
pernicious
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anaemia
-society/neurological-consequences-
pernicious
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anaemia
/ PAS article about SACD, sub acute combined degeneration of the spinal cord https://
pernicious
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anaemia
-society.org/articles/sub-acute-combined-degeneration-spinal-cord-leaflet
Neurological Consequences of B12 Deficiency PAS news item https://
pernicious
-
anaemia
-society.org/
pernicious
-
anaemia
-society/neurological-consequences-
pernicious
-
anaemia
/ PAS article about SACD, sub acute combined degeneration of the spinal cord https://
pernicious
-
anaemia
-society.org/articles/sub-acute-combined-degeneration-spinal-cord-leaflet
Sleepybunny
in
Pernicious Anaemia Society
3 years ago
ENT
I depair. Got my first ever ENT appointment. By telephone I explained can't use a landline so on mobile speaker phone as part of the problem . Sets of tinnitus of varying degrees abd head pains. He was irritated and rushed He just said; Symptoms? I asked if he had any background. B12 problems He
I depair. Got my first ever ENT appointment. By telephone I explained can't use a landline so on mobile speaker phone as part of the problem . Sets of tinnitus of varying degrees abd head pains. He was irritated and rushed He just said; Symptoms? I asked if he had any background. B12 problems He
Nackapan
in
Pernicious Anaemia Society
2 years ago
Needle size and dosage
Hi everyone, thanks so much for support and advice. It's been invaluable and given me the confidence to purchase vit b12. Could someone tell me which needles to use for intramuscular injections. Thank you
Hi everyone, thanks so much for support and advice. It's been invaluable and given me the confidence to purchase vit b12. Could someone tell me which needles to use for intramuscular injections. Thank you
Mrsmr
in
Pernicious Anaemia Society
2 years ago
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Dipyridamole update
I have been on 100mg x2, one at about 4pm and one closer to 8pm. It is recommended to take Dipyridamole on an empty stomach. This is still lower than the effective dosage in the study and I intend to increase it. I have cut pregabalin from 300mg to 150mg. My goal is to cut it again when the 150mg
I have been on 100mg x2, one at about 4pm and one closer to 8pm. It is recommended to take Dipyridamole on an empty stomach. This is still lower than the effective dosage in the study and I intend to increase it. I have cut pregabalin from 300mg to 150mg. My goal is to cut it again when the 150mg
WideBody
in
Restless Legs Syndrome
2 years ago
Guidelines regarding getting your booster if you’ve had your third primary vaccine
I had my third primary vaccine in October, but because the system didn’t cope with such things, it was entered as a booster, with a note identifying it as a primary. With this latest announcement, does anyone know what we should be doing to get our boosters? As I had to chase my GP surgery to get the
I had my third primary vaccine in October, but because the system didn’t cope with such things, it was entered as a booster, with a note identifying it as a primary. With this latest announcement, does anyone know what we should be doing to get our boosters? As I had to chase my GP surgery to get the
Angel_doll
in
PMRGCAuk
2 years ago
Pfizer booster and CEFUROXIME (AS AXETIL) allergy
Hi Has anyone had the Pfizer vaccine with an allergies to penicillin and CEFUROXIME (AS AXETIL). I had astra zeneca for my first 2 doses but I'm going for my booster tomorrow and it will be Pfizer so I'm really nervous
Hi Has anyone had the Pfizer vaccine with an allergies to penicillin and CEFUROXIME (AS AXETIL). I had astra zeneca for my first 2 doses but I'm going for my booster tomorrow and it will be Pfizer so I'm really nervous
Alw75
in
Asthma Community Forum
2 years ago
Iron decreased after supplementation?!
After finding my ferritin levels were low as part of a full iron panel from Thriva in October (and on advice from my GP once she found out I am vegetarian), I started supplementing with liquid iron (15mg per day). After re-testing my iron panel 5 weeks later several of the results have got quite a bit
After finding my ferritin levels were low as part of a full iron panel from Thriva in October (and on advice from my GP once she found out I am vegetarian), I started supplementing with liquid iron (15mg per day). After re-testing my iron panel 5 weeks later several of the results have got quite a bit
StellaTed
in
Thyroid UK
2 years ago
New , looking for advice and a friend.
Hi all I’m new here but I would like to see if anyone could give me advice or any guidance with polycynthia Vera , my red cell are high so is my hemoglobin and also haematocrit sorry if spelling is wrong I’m just upset , so I think pv is on the cards with the doc and also he said thromboysotosis (sticky
Hi all I’m new here but I would like to see if anyone could give me advice or any guidance with polycynthia Vera , my red cell are high so is my hemoglobin and also haematocrit sorry if spelling is wrong I’m just upset , so I think pv is on the cards with the doc and also he said thromboysotosis (sticky
Hometeam2016
in
MPN Voice
2 years ago
Can anyone help me with hair loss?
The picture is from a hair wash this morning. It comes out in little clumps each time I rinse my hair. I have hypothyroidism and had my thyroid out 8 years ago. I take thyroxine 150mcg and have blood tests every 6 months to check my levels. I've been given ferrous sulphate 200mg and take this every day
The picture is from a hair wash this morning. It comes out in little clumps each time I rinse my hair. I have hypothyroidism and had my thyroid out 8 years ago. I take thyroxine 150mcg and have blood tests every 6 months to check my levels. I've been given ferrous sulphate 200mg and take this every day
Smv95
in
Thyroid UK
2 years ago
Eye twitching is back. Why?
I have continued to take every other day injections with hydroxocobalamin for the past month. Unfortunately I ran out of hydroxocobalamin so I switched to cyanocobalamin. But some of my symptoms have returned including the eye twitch. Do you think this is dependent on the b12?
I have continued to take every other day injections with hydroxocobalamin for the past month. Unfortunately I ran out of hydroxocobalamin so I switched to cyanocobalamin. But some of my symptoms have returned including the eye twitch. Do you think this is dependent on the b12?
Zeffy90
in
Pernicious Anaemia Society
3 years ago
B12 stores in your liver
Can anyone advise or send me to research papers or pertinent information on what b12 levels are stored in the liver of people with
pernicious
anaemia
? An average adults body is supposed to require 2.4mcg of b12 daily, where does the excess go from a 1000mcg b12 injection? Hoping you can help.
Can anyone advise or send me to research papers or pertinent information on what b12 levels are stored in the liver of people with
pernicious
anaemia
? An average adults body is supposed to require 2.4mcg of b12 daily, where does the excess go from a 1000mcg b12 injection? Hoping you can help.
Babydoll123
in
Pernicious Anaemia Society
3 years ago
Some advice 🙏
https://medichecks.com/products/complete-
pernicious
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anaemia
-check-blood-test BiochemistryCRP CRP 0.67 <5.0 mg/L Ferritin H 404.0 30 - 400 ug/L Thyroid Function TSH 1.62 0.27 - 4.20 mU/L New range &unit Free T4 16.4 12.0 - 22.0 pmol/L Free T3 4.32 3.1 - 6.8 pmol/L New range Immunology Anti-Thyroidperoxidase
https://medichecks.com/products/complete-
pernicious
-
anaemia
-check-blood-test BiochemistryCRP CRP 0.67 <5.0 mg/L Ferritin H 404.0 30 - 400 ug/L Thyroid Function TSH 1.62 0.27 - 4.20 mU/L New range &unit Free T4 16.4 12.0 - 22.0 pmol/L Free T3 4.32 3.1 - 6.8 pmol/L New range Immunology Anti-Thyroidperoxidase
MarkieD
in
Pernicious Anaemia Society
3 years ago
How long does the "depot" last of a B12 injection?
The hydroxocobalamin injections I have seen all say "DEPOT". Does this mean an intramuscular injection of B12 forms a sort of "nodule" which dissipates slowly over a long period. Perhaps days? Could it be as long as weeks? I had the idea that B12 was rapidly absorbed by the flow of blood in the muscle
The hydroxocobalamin injections I have seen all say "DEPOT". Does this mean an intramuscular injection of B12 forms a sort of "nodule" which dissipates slowly over a long period. Perhaps days? Could it be as long as weeks? I had the idea that B12 was rapidly absorbed by the flow of blood in the muscle
Cetus
in
Pernicious Anaemia Society
3 years ago
Is it possible to be deficient in nutrients, even if nutrient levels in your blood are optimal?
Just like thyroid hormones in the blood can be at optimal levels but may not be reaching the cells or may not be absorbed properly by the cells, I wonder if something similar could happen with vitamins and minerals. Vit. D3 65 (25 - 80) Vit. B12 1057 (180 - 914) Folate >20 (4.0 - 19.9) Ferritin 150 (
Just like thyroid hormones in the blood can be at optimal levels but may not be reaching the cells or may not be absorbed properly by the cells, I wonder if something similar could happen with vitamins and minerals. Vit. D3 65 (25 - 80) Vit. B12 1057 (180 - 914) Folate >20 (4.0 - 19.9) Ferritin 150 (
Canu
in
Thyroid UK
3 years ago
Update
Hi All, just a quick update on my anaemia v erythrocytosis carryon! After 3 weeks of iron, I ended up with an HCT over .45, so was told to arrange a venesection which I did. Blood test 3 weeks later confirms HCT down to .37. Back to square one with tiredness, sores in mouth, etc for anaemia but I
Hi All, just a quick update on my anaemia v erythrocytosis carryon! After 3 weeks of iron, I ended up with an HCT over .45, so was told to arrange a venesection which I did. Blood test 3 weeks later confirms HCT down to .37. Back to square one with tiredness, sores in mouth, etc for anaemia but I
Aime
in
MPN Voice
2 years ago
Increasing self doses
After recent diagnosis and poor care from doctors, I am self injecting as I have said in a few previous posts. My plan was once every 2 weeks - boy I was wrong. Symptoms return like a total crash, really bad. I am now on 3 times a week just to keep the symptoms away, bearing in mind it takes 2 days from
After recent diagnosis and poor care from doctors, I am self injecting as I have said in a few previous posts. My plan was once every 2 weeks - boy I was wrong. Symptoms return like a total crash, really bad. I am now on 3 times a week just to keep the symptoms away, bearing in mind it takes 2 days from
Vitali-ep
in
Pernicious Anaemia Society
2 years ago
Latest CBC is in, all good.
I'm happy about my neutrophils and platelets (both went higher) and I feel like I can safely go to have the third vaccine at the end of December (6 mo. after the second one) because the first two did not produce a marked increase in my ALC count. Neither did I have any node enlargement. Now I need to
I'm happy about my neutrophils and platelets (both went higher) and I feel like I can safely go to have the third vaccine at the end of December (6 mo. after the second one) because the first two did not produce a marked increase in my ALC count. Neither did I have any node enlargement. Now I need to
LeoPa
in
CLL Support
2 years ago
New to Pernicious Anaemia - what basic steps to take first?
I'm guessing that pretty much
pernicious
anaemia
, right? Anything I should look into while I nudge the GP into action? I already take a high potency B Complex. Oh - and I was diagnosed with ADHD this year.... now the brain fog seems to make sense though!
I'm guessing that pretty much
pernicious
anaemia
, right? Anything I should look into while I nudge the GP into action? I already take a high potency B Complex. Oh - and I was diagnosed with ADHD this year.... now the brain fog seems to make sense though!
JOG24
in
Pernicious Anaemia Society
3 years ago
Treating autoimmune hemolytic anemia (AIHA)
Does anyone have autoimmune hemolytic anemia (AIHA) along with your chronic lymphocytic leukemia (CLL). I believe it occurs for around 10% of CLL patients. Any experience or knowledge about it would help. My Haptoglobin has gone from 39 in September to 14 this past week. As I understand it, when it
Does anyone have autoimmune hemolytic anemia (AIHA) along with your chronic lymphocytic leukemia (CLL). I believe it occurs for around 10% of CLL patients. Any experience or knowledge about it would help. My Haptoglobin has gone from 39 in September to 14 this past week. As I understand it, when it
SantaZia
in
CLL Support
2 years ago
How long will it take for the B12 jab to work
I had my B12 injection about 4 days ago and feel even worse than before it, B12 deficiency the same as
pernicious
anaemia
? I was also diagnosed with iron deficiency anaemia, together with fibromyalgia I am feeling rubbish. How long will the injection take to work, please?
I had my B12 injection about 4 days ago and feel even worse than before it, B12 deficiency the same as
pernicious
anaemia
? I was also diagnosed with iron deficiency anaemia, together with fibromyalgia I am feeling rubbish. How long will the injection take to work, please?
Pammy7
in
Pernicious Anaemia Society
3 years ago
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