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Pernicious anaemia
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4th time lucky: an interesting appointment
This might not make a lot of sense to anyone who didn't see my last post about angular cheilitis, but if you are interested, have a look (photo attached). After three cancellations, I finally got to see my Oral medicine consultant. At first, I saw a junior that I'd never met before - and felt that
This might not make a lot of sense to anyone who didn't see my last post about angular cheilitis, but if you are interested, have a look (photo attached). After three cancellations, I finally got to see my Oral medicine consultant. At first, I saw a junior that I'd never met before - and felt that
Cherylclaire
Forum Support
in
Pernicious Anaemia Society
1 year ago
PCV 20 Guidelines ? Get 20 if you already had 13 and 23 - or not ?
One pharmacist in Florida refused to give PCV 20 "because guidelines say that if you had other previous pneumo vaccinations you do not need PCV 20 !" I got PCV 13 in 2015 and PCV 23 in 2005. My understanding of the literature is that PCV20 is now "updated" and everybody should get it who may get it
One pharmacist in Florida refused to give PCV 20 "because guidelines say that if you had other previous pneumo vaccinations you do not need PCV 20 !" I got PCV 13 in 2015 and PCV 23 in 2005. My understanding of the literature is that PCV20 is now "updated" and everybody should get it who may get it
janvog
in
CLL Support
1 year ago
Any recent experiences of AIHA developing in progressive CLL - particularly in those treated with or awaiting Venetoclax treatment?
Hi all. Well, 2nd line treatment day one came yesterday, and I dutifully scrubbed up and turned up at the hospital for 0830 to start my planned Venetoclax ramp up. I was somewhat apprehensive tbh, partly because of side effects, partly because of having to hang around haem/onc waiting room for 6 hrs
Hi all. Well, 2nd line treatment day one came yesterday, and I dutifully scrubbed up and turned up at the hospital for 0830 to start my planned Venetoclax ramp up. I was somewhat apprehensive tbh, partly because of side effects, partly because of having to hang around haem/onc waiting room for 6 hrs
jibs60
in
CLL Support
1 year ago
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Positive GP experience!
I had my first meeting with my GP following private consultation and initiation of B12 SI treatment 8 weeks ago. He accepted what was said in the letter the private consultant wrote, and agreed to follow up ferritin and folate blood tests. I advised I would have a follow up consult and I would forward
I had my first meeting with my GP following private consultation and initiation of B12 SI treatment 8 weeks ago. He accepted what was said in the letter the private consultant wrote, and agreed to follow up ferritin and folate blood tests. I advised I would have a follow up consult and I would forward
Beccy_123
in
Pernicious Anaemia Society
1 year ago
Can you ‘feel’ your spleen?
I’ve been feeling pressure, not particularly pain, under my ribs on the left for a while. I’ve mentioned this to haematology but no reaction from them. I can feel it most when I’m sat or laid down. Is this relatively normal? I had an iron infusion last as very anaemic, which hasn’t made any difference
I’ve been feeling pressure, not particularly pain, under my ribs on the left for a while. I’ve mentioned this to haematology but no reaction from them. I can feel it most when I’m sat or laid down. Is this relatively normal? I had an iron infusion last as very anaemic, which hasn’t made any difference
lizzziep
in
MPN Voice
1 year ago
between a rock and a hard place.
I’m supposed to get my platelets down,according to my MPN specialist, below 400 before my hip surgery on 12/21. So had to take hydrea daily instead of 4x a week. Got first bloods today after upping dose. Platelets at 531 from 572 two weeks ago but MCV and MCH at top of range. 100 and 33. They’ve taken
I’m supposed to get my platelets down,according to my MPN specialist, below 400 before my hip surgery on 12/21. So had to take hydrea daily instead of 4x a week. Got first bloods today after upping dose. Platelets at 531 from 572 two weeks ago but MCV and MCH at top of range. 100 and 33. They’ve taken
Pounds11
in
MPN Voice
1 year ago
constant battles for B12
anaemia
and need my B12 injection regularly in order to even function.
anaemia
and need my B12 injection regularly in order to even function.
LadyBothwell
in
Pernicious Anaemia Society
2 years ago
Liver pain, elevated liver enzymes and ultrasound
Hello everyone. My boyfriend has been complaining of pain under his lower right rib. Pain was not severe just on and off. He got his blood test done and results showed elevated liver enzymes. He was booked for an ultrasound. We are waiting for the results but really scared. He is 39 and healthy overall
Hello everyone. My boyfriend has been complaining of pain under his lower right rib. Pain was not severe just on and off. He got his blood test done and results showed elevated liver enzymes. He was booked for an ultrasound. We are waiting for the results but really scared. He is 39 and healthy overall
Iamsarah
in
British Liver Trust
1 year ago
bloods walloped by severe gastrointestinal infection, anyone?
Hi lovelies, I was hospitalised for severe infection last week, which with antibiotics is now better. But my white blood cell count has plummeted to the point hospital has put me under lockdown, and went even lower after 3 filgrastim injections although haematology say sometimes their effect is delayed
Hi lovelies, I was hospitalised for severe infection last week, which with antibiotics is now better. But my white blood cell count has plummeted to the point hospital has put me under lockdown, and went even lower after 3 filgrastim injections although haematology say sometimes their effect is delayed
Trickysite
in
My Ovacome
1 year ago
help please, migraine meds
does anyone know if migraleve is contra-indicated with T3? I know I'm OK with T4 but: paracetamol, codeine phosphate & buclizine hydrochloride, anyone? @helvella ? sorry to tag just can't find info
does anyone know if migraleve is contra-indicated with T3? I know I'm OK with T4 but: paracetamol, codeine phosphate & buclizine hydrochloride, anyone? @helvella ? sorry to tag just can't find info
turquoisea7
in
Thyroid UK
1 year ago
which comes first? Chicken or egg
hi first time post on this group, so bit of history diagnosed with
pernicious
anaemia
in 2006 after years of going gp tiredness etc.
hi first time post on this group, so bit of history diagnosed with
pernicious
anaemia
in 2006 after years of going gp tiredness etc.
shortytlc
in
British Liver Trust
2 years ago
Low serum folate = folic acid supplement?
Hello, My youngest daughter (she's 21) has recently been diagnosed with hypothyroidism. She's been started on 50 mg Levothyroxine Her other low result was: Serum folate 2.2 (2.8-20 ug/L) For this she's been prescribed folic acid - 5mg daily I'm a little surprised that it's folic acid especially after
Hello, My youngest daughter (she's 21) has recently been diagnosed with hypothyroidism. She's been started on 50 mg Levothyroxine Her other low result was: Serum folate 2.2 (2.8-20 ug/L) For this she's been prescribed folic acid - 5mg daily I'm a little surprised that it's folic acid especially after
RexandBoone
in
Thyroid UK
1 year ago
chemo tablets capox
hi I’m have treatment for reacurring cancer ..with infusion every 21 days of xelox..then capecitabine tablets..180 mg In the morning and same again at night ..I started treatment Monday and felt ill most of the time ..dexmethasone stopped yesterday and slept quite well but after tablets this morning
hi I’m have treatment for reacurring cancer ..with infusion every 21 days of xelox..then capecitabine tablets..180 mg In the morning and same again at night ..I started treatment Monday and felt ill most of the time ..dexmethasone stopped yesterday and slept quite well but after tablets this morning
telford-hiker
in
Oesophageal & Gastric Cancer
1 year ago
Medichecks ferritin range 30-650 ug/L
I have been having trouble for years with low ferritin, despite eating black pudding 3 times a week and taking ferrous fumarate. This last week got full thyroid blood tests back and thought ‘oh good , ferritin had gone up a bit to a decent 77’, but no, the range had been changed to a huge 30-650 ug/L
I have been having trouble for years with low ferritin, despite eating black pudding 3 times a week and taking ferrous fumarate. This last week got full thyroid blood tests back and thought ‘oh good , ferritin had gone up a bit to a decent 77’, but no, the range had been changed to a huge 30-650 ug/L
Judithdalston
in
Thyroid UK
1 year ago
Iron Levels with CLL
Ive been having issues with low iron and as a result I'm on/off iron supplements. I also started taking acalabrutinib in May. I see a local doctor who didn't seem too concerned and I also see a doc in Cincinnati that says low iron is not normal with CLL/acalabrutinib, so he wants me to have an upper
Ive been having issues with low iron and as a result I'm on/off iron supplements. I also started taking acalabrutinib in May. I see a local doctor who didn't seem too concerned and I also see a doc in Cincinnati that says low iron is not normal with CLL/acalabrutinib, so he wants me to have an upper
susq9948
in
CLL Support
1 year ago
Low Ferritin and iron supplements & Iron Panel interpretation
Further to my post of 24.10.22 Endo increased my Levo to 75 mcg daily and advised TSH to aim for 0.5-2.5, when I mentioned low ferritin she looked at the blood test and said everything is within range? Said my symptoms of brain fog, swimmy head, heaviness and tinitis are unlikely related to thyroid
Further to my post of 24.10.22 Endo increased my Levo to 75 mcg daily and advised TSH to aim for 0.5-2.5, when I mentioned low ferritin she looked at the blood test and said everything is within range? Said my symptoms of brain fog, swimmy head, heaviness and tinitis are unlikely related to thyroid
Watamu
in
Thyroid UK
1 year ago
Hydroxocobalamin injection frequency
Hi, I've messed up and forgotten to book my B12 Jab (8 weekly) and now they can't do it until three weeks after my due date. I will be on my knees by then! (Why i never twig at around 6 weeks I don't know as i get symptoms from at least then :dizzy: ). Anyway, I have found a private means of getting
Hi, I've messed up and forgotten to book my B12 Jab (8 weekly) and now they can't do it until three weeks after my due date. I will be on my knees by then! (Why i never twig at around 6 weeks I don't know as i get symptoms from at least then :dizzy: ). Anyway, I have found a private means of getting
Lettie_WP
in
Pernicious Anaemia Society
1 year ago
Low iron levels
Been on treatment for ET for some time now and I take 500mg HU and 1x4 of angralide..platelets around 350 to 480 . My haemoglobin levels are low and felt tired for several weeks .. I stressed this at my last meeting with the haemotology dept . Luckily they called me in and upshot is I'm anaemic and
Been on treatment for ET for some time now and I take 500mg HU and 1x4 of angralide..platelets around 350 to 480 . My haemoglobin levels are low and felt tired for several weeks .. I stressed this at my last meeting with the haemotology dept . Luckily they called me in and upshot is I'm anaemic and
heathermc
in
MPN Voice
1 year ago
Low B12 raised CRP - new to this
hi all. I was recently diagnosed with B12 deficiency (level of 67), and am about to have my last of 5 loading doses today. I can’t say I’ve felt too much of an improvement and still have brain fog, dizziness and tingling in my hands and feet amongst other things. Will this improve as the b12 gets to
hi all. I was recently diagnosed with B12 deficiency (level of 67), and am about to have my last of 5 loading doses today. I can’t say I’ve felt too much of an improvement and still have brain fog, dizziness and tingling in my hands and feet amongst other things. Will this improve as the b12 gets to
Sparkleprincess
in
Pernicious Anaemia Society
1 year ago
SUPPORT THE PERNICIOUS ANAEMIA SOCIETY AT NO COST TO YOURSELF !
If buying from Amazon , use Amazon smile.U.K. and choose The
pernicious
Anaemia
Society as your charity . Amazon will then donate to the PAS . “ Every little helps “
If buying from Amazon , use Amazon smile.U.K. and choose The
pernicious
Anaemia
Society as your charity . Amazon will then donate to the PAS . “ Every little helps “
wedgewood
in
Pernicious Anaemia Society
2 years ago
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