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Radiotherapy
I’ve just finished a 3 week course of Radiotherapy and I feel dreadful. I’ve been very sick and it feels like flu. I’m very tired and sleeping a lot. Complete loss of appetite. I didn’t find chemotherapy as bad as this. Has anyone else had this experience ?
I’ve just finished a 3 week course of Radiotherapy and I feel dreadful. I’ve been very sick and it feels like flu. I’m very tired and sleeping a lot. Complete loss of appetite. I didn’t find chemotherapy as bad as this. Has anyone else had this experience ?
Hota
in
My Ovacome
4 months ago
musician - hearing loss after surgery
Hi, I am a 49 year old musician and I was diagnosed with an Acoustic Neuroma in December 2023 and had to have surgery a few weeks later due to the size of the tumour and how ill I was. Since then I have been in recovery trying to get back all my functions (balance, stamina etc). Unfortunately the tumour
Hi, I am a 49 year old musician and I was diagnosed with an Acoustic Neuroma in December 2023 and had to have surgery a few weeks later due to the size of the tumour and how ill I was. Since then I have been in recovery trying to get back all my functions (balance, stamina etc). Unfortunately the tumour
domforr
in
Acoustic Neuroma Support
4 months ago
Moved from Abi to Nubeqa and saw a PSA increase
I recently switched from Abiraterone/Prednisone to Nubeqa because of the high blood pressure that I had with Abi requiring additional BP meds. I was previously .058 a month ago when I switched and .109 today, almost double in a month. Any one with experience with this switch?
I recently switched from Abiraterone/Prednisone to Nubeqa because of the high blood pressure that I had with Abi requiring additional BP meds. I was previously .058 a month ago when I switched and .109 today, almost double in a month. Any one with experience with this switch?
Steel67
in
Advanced Prostate Cancer
7 months ago
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2ND Opinion by Radiologist
I recently had mpMRI and PSMA/PET scans that indicate I have cancer in the Seminal Vesicles and Lymph Nodes. I want to have the slides sent to a radiologist for a 2nd opinion. Can anyone recommend a good radiologist that can complete this task.
I recently had mpMRI and PSMA/PET scans that indicate I have cancer in the Seminal Vesicles and Lymph Nodes. I want to have the slides sent to a radiologist for a 2nd opinion. Can anyone recommend a good radiologist that can complete this task.
Jimbo47
in
Advanced Prostate Cancer
4 months ago
Slowly Rising PSA - Getting Nervous
It seems in the last 4 months it has been rising more. Doctors are waiting until in gets to the standard 0.2 before starting radiation. I do understand why they need to wait as the PSA isn't high enough yet for the risk/reward of treatment. 03/17/2023 0.029 04/22/2023 0.032 08/23/2023 0.046 12/07/2023
It seems in the last 4 months it has been rising more. Doctors are waiting until in gets to the standard 0.2 before starting radiation. I do understand why they need to wait as the PSA isn't high enough yet for the risk/reward of treatment. 03/17/2023 0.029 04/22/2023 0.032 08/23/2023 0.046 12/07/2023
raisin123
in
Advanced Prostate Cancer
7 months ago
? Cover required for endometrial biopsy
I have been on prednisolone for over 2 years now and still on 10mg. I have a hysteroscopy and endometrial biopsy planned tomorrow and although this is only a minor procedure with no general anaesthetic or sedation, I’m just wondering whether I will need any extra steroid cover? Does anyone have any knowledge
I have been on prednisolone for over 2 years now and still on 10mg. I have a hysteroscopy and endometrial biopsy planned tomorrow and although this is only a minor procedure with no general anaesthetic or sedation, I’m just wondering whether I will need any extra steroid cover? Does anyone have any knowledge
PPop
in
PMRGCAuk
7 months ago
6 years now and PSA <0.01 is it time for a vacation?
Hello, after chemotherapy, STRT of the prostate, I have been taking Eligard hormone therapy for 6 years now and PSA <0.01 is it time for a vacation?
Hello, after chemotherapy, STRT of the prostate, I have been taking Eligard hormone therapy for 6 years now and PSA <0.01 is it time for a vacation?
Vasili
in
Advanced Prostate Cancer
7 months ago
Enhancing my urinating experience?
Guys, Several weeks ago I started experiencing slow and weak urine stream for first time since diagnosis almost 6 years ago. This, coupled with rise in PSA, triggered my oncologist to order both MRI and PSMA scan. Would appear things are progressing and got referrals to radiation oncologist and urologist
Guys, Several weeks ago I started experiencing slow and weak urine stream for first time since diagnosis almost 6 years ago. This, coupled with rise in PSA, triggered my oncologist to order both MRI and PSMA scan. Would appear things are progressing and got referrals to radiation oncologist and urologist
3putt
in
Advanced Prostate Cancer
7 months ago
bleeding 3 years after total hysterectomy
Hello guys , has anyone experienced this at all ? I had total hysterectomy in 2021 out my cervix and uterus taken out . The two ovaries were left because it was stuck to bladder and would cause more complications since bladder specialist wasn’t in the room . I was put on triptorelin on and off till last
Hello guys , has anyone experienced this at all ? I had total hysterectomy in 2021 out my cervix and uterus taken out . The two ovaries were left because it was stuck to bladder and would cause more complications since bladder specialist wasn’t in the room . I was put on triptorelin on and off till last
Fela1113
in
Endometriosis UK
4 months ago
Saxon clinical trial
Hello all, I was recently enrolled in the Saxon clinical trial combining Xofigo with SBRT. Is anyone else in that trial? Diagnosed with prostate Cancer July 2014, Gleason 7 (4+3) in 6 of 12 . After Radiation treatments my PSA was undetectable until July 2019. It rose to 3.9 in January 2020
Hello all, I was recently enrolled in the Saxon clinical trial combining Xofigo with SBRT. Is anyone else in that trial? Diagnosed with prostate Cancer July 2014, Gleason 7 (4+3) in 6 of 12 . After Radiation treatments my PSA was undetectable until July 2019. It rose to 3.9 in January 2020
58Willys
in
Advanced Prostate Cancer
4 months ago
Does having CLL really make you 3 times more likely to get (another) cancer, and does CLL treatment add to the risk? - Part 1
1. The risk of developing a Secondary Primary Malignancy
"[i]The higher risk of SPM associated with CLL has been recognized for many years, well prior to the modern therapy era. Manosow and Weinerman in 1975 demonstrated a three-fold increase of SPM and an eight-fold increase of SC in CLL[/i]
1. The risk of developing a Secondary Primary Malignancy
"[i]The higher risk of SPM associated with CLL has been recognized for many years, well prior to the modern therapy era. Manosow and Weinerman in 1975 demonstrated a three-fold increase of SPM and an eight-fold increase of SC in CLL[/i]
bennevisplace
in
CLL Support
4 months ago
When to do certain blood tests and why.
Just coming up on my 6 month anniversary of radiation and my 2 months prior to radiation and 4 months post Lupron while on radiation. So I have been off Lupron for 2 months. I had my annual physical yesterday and my GP had ordered complete blood panel with thyroid and PSA. There were no issues with blood
Just coming up on my 6 month anniversary of radiation and my 2 months prior to radiation and 4 months post Lupron while on radiation. So I have been off Lupron for 2 months. I had my annual physical yesterday and my GP had ordered complete blood panel with thyroid and PSA. There were no issues with blood
Mgtd
in
Advanced Prostate Cancer
7 months ago
Upcoming TTALC Workshop 3/23/24
Did you know? Clinical trials provide new treatment options, especially if existing treatments have not worked. You may also receive more attentive care in a clinical trial study because it requires close observation and follow-up from a team of doctors. Join our live interactive workshop to learn more
Did you know? Clinical trials provide new treatment options, especially if existing treatments have not worked. You may also receive more attentive care in a clinical trial study because it requires close observation and follow-up from a team of doctors. Join our live interactive workshop to learn more
AllysonBlueFaery
Community Ambassador
in
Blue Faery Liver Cancer
4 months ago
NGS Test/Next-Generation Sequencing Important to have done.
Hello friends. I just wanted to make sure that if you are able to have this testing done, it is really important for your health and treatments that are given for your TYPE of BC. I was dx in 2016 and MBC in 2019. Ibrance and Fasoldex lated aobut 2 years. I was and still am ER/PR + and HER2low, but
Hello friends. I just wanted to make sure that if you are able to have this testing done, it is really important for your health and treatments that are given for your TYPE of BC. I was dx in 2016 and MBC in 2019. Ibrance and Fasoldex lated aobut 2 years. I was and still am ER/PR + and HER2low, but
Hopeful4Cure
in
SHARE Metastatic Breast Cancer
4 months ago
New blood test to detect neuroendocrine PCa
Summary: Researchers have developed a blood test that can reliably detect neuroendocrine prostate cancer and differentiate it from castration-resistant prostate cancer-adenocarcinoma (CRPC-adeno). https://www.sciencedaily.com/releases/2024/01/240110120221.htm
Summary: Researchers have developed a blood test that can reliably detect neuroendocrine prostate cancer and differentiate it from castration-resistant prostate cancer-adenocarcinoma (CRPC-adeno). https://www.sciencedaily.com/releases/2024/01/240110120221.htm
HikerWife
in
Advanced Prostate Cancer
6 months ago
INSURANCE DENIED - STAGE 4 BREAST CANCER
HI everyone, my mother is diagnosed with stage 4 breast cancer and doctor to give phesgo ( pertuzumab and transtuzumab) but insurance people told its a immunotheraphy so they wont apporve, but my oncologist told its a targeted therapy not immuno. my insurance is new india insurance under tpa being mediassist.Did
HI everyone, my mother is diagnosed with stage 4 breast cancer and doctor to give phesgo ( pertuzumab and transtuzumab) but insurance people told its a immunotheraphy so they wont apporve, but my oncologist told its a targeted therapy not immuno. my insurance is new india insurance under tpa being mediassist.Did
Srikalakm
in
Breast Cancer India
4 months ago
Has anyone been taking Verzenio for more than 2 years?
I was diagnosed with ILC stage 3, HER2 negative, ER positive, PR positive in November 2020. I had a mastectomy, chemo and radiatin and my scans showed no further evidence of cancer. I have been on anastrazole and in May 2021 I was started on Verzenio. They said it is only approved to be used for 2
I was diagnosed with ILC stage 3, HER2 negative, ER positive, PR positive in November 2020. I had a mastectomy, chemo and radiatin and my scans showed no further evidence of cancer. I have been on anastrazole and in May 2021 I was started on Verzenio. They said it is only approved to be used for 2
alwayslearningmore
in
SHARE Metastatic Breast Cancer
4 months ago
Need Help Interpreting My PSMA/PET SCAN
About a month ago I posted the results of my Prostate MRI and got some very good advice through this forum. The Prostate MRI report recommended that I get a PSMA PET/CT. I had the Pet Scan done at City of Hope and received the results today. The ONCOLOGIC AND POTENTIALLY ONCOLOGIC FINDINGS are as follows
About a month ago I posted the results of my Prostate MRI and got some very good advice through this forum. The Prostate MRI report recommended that I get a PSMA PET/CT. I had the Pet Scan done at City of Hope and received the results today. The ONCOLOGIC AND POTENTIALLY ONCOLOGIC FINDINGS are as follows
Jimbo47
in
Advanced Prostate Cancer
4 months ago
Hi! I'm new and excited to meet others and learn about your journey
Good afternoon. I'm new to the group. I already posted an item, but thought I should introduce myself. I was diagnosed with Stage 1 breast cancer in 2010. Had a mastectomy. Went on tamoxifen for 2 years, then quit because it made me feel miserable. No chemo. In 2022, I was once again diagnosed
Good afternoon. I'm new to the group. I already posted an item, but thought I should introduce myself. I was diagnosed with Stage 1 breast cancer in 2010. Had a mastectomy. Went on tamoxifen for 2 years, then quit because it made me feel miserable. No chemo. In 2022, I was once again diagnosed
Sueforshare
in
SHARE Metastatic Breast Cancer
4 months ago
Docs who prescribe mebendazole and metformin
HI! I am currently taking letrozole for metastatic breast cancer. I am also doing the COC protocol, but only with mebendazole and metformin. Just curious, are any of you getting mebendazole or metformin from any other docs than COC? Thanks! Sue
HI! I am currently taking letrozole for metastatic breast cancer. I am also doing the COC protocol, but only with mebendazole and metformin. Just curious, are any of you getting mebendazole or metformin from any other docs than COC? Thanks! Sue
Sueforshare
in
SHARE Metastatic Breast Cancer
4 months ago
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