Enhancing my urinating experience? - Advanced Prostate...

Advanced Prostate Cancer

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Enhancing my urinating experience?

3putt profile image
18 Replies

Guys,

Several weeks ago I started experiencing slow and weak urine stream for first time since diagnosis almost 6 years ago. This, coupled with rise in PSA, triggered my oncologist to order both MRI and PSMA scan. Would appear things are progressing and got referrals to radiation oncologist and urologist. Met first with urologist who strongly recommends scheduling a TUAP procedure. After taking a deep dive into procedure I have a few questions for my beloved peers:

1) the procedure itself is already causing me sleepless nights. From those who’ve gone down this path I would love to know your opinion on side effects and results.

2) Aside from Flomax , which did nothing for me, has anyone had any success enhancing the flow within doing TURP?

3) Any thoughts on which, radiation or TUAP, should I do first?

As always, thanks a million for your consideration of this request. Till then, best wishes on your continued journey.

Dave

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3putt profile image
3putt
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18 Replies
Brad70 profile image
Brad70

I can’t believe that I am reading a post titled “Enhancing My Urinating Experience” …..PHUCK!!!!!

Yzinger profile image
Yzinger in reply to Brad70

bahaha - a lot of these type of posts lately.

3 Putt - I created a post just earlier this week with lots of good info in it. I can seem to find link now but should be easy to navigate to.

One lingering question though - why does all the damn fluid in out bodies seem to want to come out when sleeping - it seems more so than when awake right?

KocoPr profile image
KocoPr in reply to Yzinger

At night is when your body is detoxing from all the crap it had to put up with during the day.

When i go back on darolutamide after my high T phase of BAT i have very interrupted sleep, until i get back on High T.

3putt profile image
3putt in reply to Brad70

Sorry you’re offended. Trying humor to cover my fear of any medical procedures

Tonyliv profile image
Tonyliv

I’m in the uk and went from peeing a couple of times in a night to half a dozen, and increased daytime frequency. Tamulosin helped a little, but the urologist did a flow rate test, and found it very poor.

After a cystoscopy, he offered me bladder neck incision, to widen it where it meets the urethra. Not fun having a catheter for a day or two but it worked and has restored my QOL.

If you are suffering now, my advice would be to get it done now.

Seasid profile image
Seasid

What was your PSMA pet scan SUVMax value of the prostate?

What is your PSA now?

What is the PIRADS score of your prostate MRI?

Gimmishelter profile image
Gimmishelter

I had a TURP procedure about 9 months ago, and it was the best thing that happened to me. I was getting up 5 or 6 times a night just to dribble half a cup of urine. After the TURP, which cost me 2 days in hospital, the catheter was removed and I went home. Passed a fair amount of blood for about a month, but not too uncomfortable. Now I only get up about twice a night, which is I think normal for my age (72) and I have a stream like a fire hose. My urologist said that he had removed about 50% of my prostate. I am very glad I opted for the procedure.

BanjoPicker profile image
BanjoPicker in reply to Gimmishelter

I had a TURP 4 days ago on my prostate that was radiation treated a year ago. When I finish urinating I am getting several drops of red blood. You mentioned blood for a month. Is this something you were told was normal during recovery? Yes, I pee like a fire hose now.

Nomiskneh profile image
Nomiskneh

My partner had a TURP operation about a year ago. About no side effects. By far better flow of urine. No need for Flomax anymore. No nocturia anymore. But quite a degree of incontinence still remains. All in all he is content with the result of the operation..

pakb profile image
pakb

The TURP significantly helped my husband with flow, urgency and retention issues. No side effects from the procedure.

85745 profile image
85745

I went from say 5 night times down to 3 , 2 on good nights with 3 to 4 hrs good sleep in between flow rate much improved How ? certain herbs and supps, oh and patience giving them a chance, to work. I don't need no cut burn poison so far , but not , but just sayin.

Yzinger profile image
Yzinger in reply to 85745

what herbs and supps?

85745 profile image
85745 in reply to Yzinger

Thanks for asking, Prostatesure sold by Activeherb, Bittermelon,Vitex, Pao Pereira, Andrographis, Zeolite ( detox/ drug carrier agent ), Melatonin ( sleep ). Also started taking DCA ( sodium dichloroacetate ) along with my ongoing Fenben as a treatment protocol. dcaguide.org/dca-for-cancer... . I don't know what single one is helping . As I write last night only 2 night trips 11pm and another at 5am wake up. Just type in anyone along side prostate cancer for info. Vitex ( natural ) reads as an anti androgen - lowers testosterone. Kinda makes ya wonder what may be in the realm of possibilities . Most of all my guidance to gaining knowledge comes through prayer and asking the allmighty to lead the way. Oh I also do cycles of Ivermectin, and plan on taking Laetrile again . Happy trails on doing the research on all said.

3putt profile image
3putt in reply to 85745

Much appreciated

turkeyjoe1 profile image
turkeyjoe1

I had the TURP with excellent results. 1 day in the hospital. 4 days peeing a little blood. Piss like a 20 year old after that. Worked great for me.

3putt profile image
3putt in reply to turkeyjoe1

Looking forward to it. Thanks

SteveTheJ profile image
SteveTheJ

prostate removal helped mine, not saying that's your go-to but it could be a good step

groundhogy profile image
groundhogy

if you are planning for radiation treatment in the future, you need to pee well going in to it because the rad will tighten things up.

Also after radiation, you really shouldn’t be cutting things down there

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