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delayed reconstruction
I had a subdural haemorrhage in may 2023 removing most of the right side of my scull even encroached my forehead that’s some 10 months ago now. I was supposed to receive reconstructive surgery and have titanium implant to protect the sensitive area where my skin is my only protection to my brain. That
I had a subdural haemorrhage in may 2023 removing most of the right side of my scull even encroached my forehead that’s some 10 months ago now. I was supposed to receive reconstructive surgery and have titanium implant to protect the sensitive area where my skin is my only protection to my brain. That
Jodieb73
in
Headway
8 months ago
accidental overdose of thyroxine
I’m on 100 mcg thyroxine and the kart prescription they only had 25 mcg so I was taking 4 tablets a day and then the recent prescription was 100 mcg. I’ve just realised today that I’ve been taking 4 100 mcg a day I think for 4 days from how many are gone. In a bit of a panic. I’ve rang 111 and they called
I’m on 100 mcg thyroxine and the kart prescription they only had 25 mcg so I was taking 4 tablets a day and then the recent prescription was 100 mcg. I’ve just realised today that I’ve been taking 4 100 mcg a day I think for 4 days from how many are gone. In a bit of a panic. I’ve rang 111 and they called
Tjqui00
in
Thyroid UK
8 months ago
Raynaud's in dark skinned patients
Hi all! My mum has secondary Raynaud's, like triggered by heart meds that unfortunately, she has to take. Diagnosis came very late as she didn't get the white-blue-red which they were expecting. Straight to white under the nails and fingertips, it then progressed straight from that to black dots which
Hi all! My mum has secondary Raynaud's, like triggered by heart meds that unfortunately, she has to take. Diagnosis came very late as she didn't get the white-blue-red which they were expecting. Straight to white under the nails and fingertips, it then progressed straight from that to black dots which
CarerEdi
in
Scleroderma & Raynaud's UK (SRUK)
4 months ago
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RA and lymphoedema
Hi, just wondering if anyone has secondary lymphoedema and rheumatoid arthritis and if so what RA medication you are on, I am waiting to find out what medication I can be prescribed as I am currently having a flare up, I have had RA for over 35 years and been on various medications but the last ones
Hi, just wondering if anyone has secondary lymphoedema and rheumatoid arthritis and if so what RA medication you are on, I am waiting to find out what medication I can be prescribed as I am currently having a flare up, I have had RA for over 35 years and been on various medications but the last ones
Keb22
in
NRAS
5 months ago
Returning to Warfarin after 4 months on Edoxaban ...... part 2
I posted on here my original comments on this subject. Hopefully, this update, will be of interest. I made the decision to quit Edoxaban on 6 April. I didn't /couldn't be bothered to make contact with my GP, whenever I phone up for a chat I'm asked to make an appointment which usually is about 10 days
I posted on here my original comments on this subject. Hopefully, this update, will be of interest. I made the decision to quit Edoxaban on 6 April. I didn't /couldn't be bothered to make contact with my GP, whenever I phone up for a chat I'm asked to make an appointment which usually is about 10 days
BenHall1
in
Atrial Fibrillation Support
4 months ago
TSH Level
hiya( again 😏) Got a call from the receptionist on Wednesday my TSH level is 5 and I have been advised to stop my Carbimazole 5mg immediately, she was unable to offer any other advise other than I’m to continue having my bloods every 4 weeks . Am I correct does the level of 5 now bring me into the
hiya( again 😏) Got a call from the receptionist on Wednesday my TSH level is 5 and I have been advised to stop my Carbimazole 5mg immediately, she was unable to offer any other advise other than I’m to continue having my bloods every 4 weeks . Am I correct does the level of 5 now bring me into the
Forumjunkie
in
Thyroid UK
5 months ago
1 Year out Radiation treatment
2018, Gleason 9, family history, RP surgery. Not clear margin. PSA undetectable three years, then back knocking at the door, (.17 PSA rise 2022). BCR! PSMA scan clear. 35 IMRT Radiation treatments to surgery prostate bed, 6 months on Lupron. See my wonderful Radiation Onocolgist on Monday, Dr. Hung,
2018, Gleason 9, family history, RP surgery. Not clear margin. PSA undetectable three years, then back knocking at the door, (.17 PSA rise 2022). BCR! PSMA scan clear. 35 IMRT Radiation treatments to surgery prostate bed, 6 months on Lupron. See my wonderful Radiation Onocolgist on Monday, Dr. Hung,
rickyfish56
in
Advanced Prostate Cancer
8 months ago
panicking!
Hi, My husband was diagnosed over 10 years ago with Prostate cancer with PSA 18 and Gleeson 4+3. He was never offered prostatectomy as they said there was a small metastases on the pelvis. So he had 2 weeks of radiation on his hip, and was then treated with 6 monthly injections of Decapeptyl, which
Hi, My husband was diagnosed over 10 years ago with Prostate cancer with PSA 18 and Gleeson 4+3. He was never offered prostatectomy as they said there was a small metastases on the pelvis. So he had 2 weeks of radiation on his hip, and was then treated with 6 monthly injections of Decapeptyl, which
Hidden
in
Advanced Prostate Cancer
8 months ago
PSA test at a different lab
I will be spending the winter in Florida. I have always had my PSA tested in Boston at the same medical facility for the last 7 years. In a perfect world I would travel back to Boston for a few day. Any feedback would be appreciated Thanks
I will be spending the winter in Florida. I have always had my PSA tested in Boston at the same medical facility for the last 7 years. In a perfect world I would travel back to Boston for a few day. Any feedback would be appreciated Thanks
Rfs1975
in
Advanced Prostate Cancer
8 months ago
PSA test at a different lab
I will be spending the winter in Florida. I have always had my PSA tested in Boston at the same medical facility for the last 7 years. In a perfect world I would travel back to Boston for a few day. Any feedback would be appreciated Thanks
I will be spending the winter in Florida. I have always had my PSA tested in Boston at the same medical facility for the last 7 years. In a perfect world I would travel back to Boston for a few day. Any feedback would be appreciated Thanks
Rfs1975
in
Advanced Prostate Cancer
8 months ago
potential DILI - advice?
hi everyone, I’m 29F, at the end of April I was hospitalised for e-coli, given anti biotics and PPI’s through my IV line for 3 days, then continued on oral anti biotics with PPI’s for 5 days My symptoms continued and my ALT/AST are at 952/370 and continuing to rise still today, I feel awful, nauseous
hi everyone, I’m 29F, at the end of April I was hospitalised for e-coli, given anti biotics and PPI’s through my IV line for 3 days, then continued on oral anti biotics with PPI’s for 5 days My symptoms continued and my ALT/AST are at 952/370 and continuing to rise still today, I feel awful, nauseous
eljd
in
British Liver Trust
2 months ago
A puzzle
Helllo everyone. I came across an interesting publication from the Cleveland Clinic with the title, Is it Lupus or Fibromyalgia? It will not paste. The author is Blumenthal, MD of Rheumatology at CC. With this you can easily find it with a google. I came across it as I was looking at my new lab scores
Helllo everyone. I came across an interesting publication from the Cleveland Clinic with the title, Is it Lupus or Fibromyalgia? It will not paste. The author is Blumenthal, MD of Rheumatology at CC. With this you can easily find it with a google. I came across it as I was looking at my new lab scores
MrsMarigold
in
LUPUS UK
5 months ago
Next step..
Gleason 9, s/practice RP. PSA UP to 0.2 8 months later. PSMA showed 4 hot spots all in pelvis. Started on zytiga and lupron same time as radiation started. PSA has remained < 0.04 for 17 months now. Considering the aggressive nature of my cancer, should I insist on a scan even when PSA <0.04 or
Gleason 9, s/practice RP. PSA UP to 0.2 8 months later. PSMA showed 4 hot spots all in pelvis. Started on zytiga and lupron same time as radiation started. PSA has remained < 0.04 for 17 months now. Considering the aggressive nature of my cancer, should I insist on a scan even when PSA <0.04 or
rfgh20
in
Advanced Prostate Cancer
8 months ago
Hello again
I posted a little while ago, that I had been diagnosed with cirrhosis just over a year ago as a progression of NAFLD that I was unaware of. I had been waiting results of DEXA scan which did show thinning of bones and an US which showed no abnormalities. (The cirrhosis had been diagnosed from a Fibroscan
I posted a little while ago, that I had been diagnosed with cirrhosis just over a year ago as a progression of NAFLD that I was unaware of. I had been waiting results of DEXA scan which did show thinning of bones and an US which showed no abnormalities. (The cirrhosis had been diagnosed from a Fibroscan
0range5520
in
British Liver Trust
8 months ago
Tests show fatty liver but I seem to have Terry's Nails?
I am 27F, currently 7 months pregnant. I currently weigh 209 but have lost 45lbs over the past year and a half. I was a big drinker in college and after but have greatly cut back and obviously stopped during this pregnancy and my first one. I went to my doctor a couple years ago with RUQ pain and had
I am 27F, currently 7 months pregnant. I currently weigh 209 but have lost 45lbs over the past year and a half. I was a big drinker in college and after but have greatly cut back and obviously stopped during this pregnancy and my first one. I went to my doctor a couple years ago with RUQ pain and had
Panicprofessional
in
British Liver Trust
8 months ago
Tuesday's 'Tip'
I've decided to incorporate some of Dr. Jones's wisdom into our Tuesday's 'Tips' These are all from his book [u][i]The Definitive Guide for Patients Who Have Primary Biliary Cholangitis.[/i][/u] This an amazing source of information on PBC from a world leading expert. I strongly encourage everyone
I've decided to incorporate some of Dr. Jones's wisdom into our Tuesday's 'Tips' These are all from his book [u][i]The Definitive Guide for Patients Who Have Primary Biliary Cholangitis.[/i][/u] This an amazing source of information on PBC from a world leading expert. I strongly encourage everyone
DonnaBoll
Administrator
in
PBC Foundation
2 months ago
Hope neuro is right
Hope neurologist is right or I'm done.Well the neurologist said it is not restless legs but nerve damage. He flatly refused to give me subutex without scientific proof, I told him that I did , He has taken me off temgesic as well and informed the other drs looking after me not to put me on it again..
Hope neurologist is right or I'm done.Well the neurologist said it is not restless legs but nerve damage. He flatly refused to give me subutex without scientific proof, I told him that I did , He has taken me off temgesic as well and informed the other drs looking after me not to put me on it again..
Hidden
in
Neuropathy Support
1 year ago
PSA Rising and MRI Negative
My husband PSA has been rising after Prostatectomy. A recent PET Scan showed cancer cells in the Prostate bed, but the MRI didn't pick-up any disease. The Oncologist is checking labs, and will start my husband on HT.Question for the group. Why would PET scan pick-up cancer cells, and not the MRI?
My husband PSA has been rising after Prostatectomy. A recent PET Scan showed cancer cells in the Prostate bed, but the MRI didn't pick-up any disease. The Oncologist is checking labs, and will start my husband on HT.Question for the group. Why would PET scan pick-up cancer cells, and not the MRI?
Inquisitive_one
in
Advanced Prostate Cancer
8 months ago
Hope neuro is right
Hope neurologist is right or I'm done.Well the neurologist said it is not restless legs but nerve damage. He flatly refused to give me subutex without scientific proof, I told him that I did , He has taken me off temgesic as well and informed the other drs looking after me not to put me on it again..
Hope neurologist is right or I'm done.Well the neurologist said it is not restless legs but nerve damage. He flatly refused to give me subutex without scientific proof, I told him that I did , He has taken me off temgesic as well and informed the other drs looking after me not to put me on it again..
Hidden
in
Neuropathy Support
1 year ago
Hope neuro is right
Hope neurologist is right or I'm done.Well the neurologist said it is not restless legs but nerve damage. He flatly refused to give me subutex without scientific proof, I told him that I did and to ring your dr also, he said he is not looking at someone's sob letter. He has taken me off temgesic as well
Hope neurologist is right or I'm done.Well the neurologist said it is not restless legs but nerve damage. He flatly refused to give me subutex without scientific proof, I told him that I did and to ring your dr also, he said he is not looking at someone's sob letter. He has taken me off temgesic as well
Hidden
in
Restless Legs Syndrome
1 year ago
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