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Lupus flare
Hi has anyone experience a lupus flare which was tiggered by a suspected infection? Ended up in hospital but they couldnt detect where the infection / virus was dispite full blood tests, urine tests as well as blood and urine culuture tests. Pretty scary.Thanks
Hi has anyone experience a lupus flare which was tiggered by a suspected infection? Ended up in hospital but they couldnt detect where the infection / virus was dispite full blood tests, urine tests as well as blood and urine culuture tests. Pretty scary.Thanks
Flows
in
LUPUS UK
2 months ago
Abbreviations
Please can somebody tell me what CABG is? Not everyone is clued up with these acronyms and not would be helpful if it could be explained please.đ
Please can somebody tell me what CABG is? Not everyone is clued up with these acronyms and not would be helpful if it could be explained please.đ
Dunandjam
in
British Heart Foundation
9 months ago
sulfasalazine side effects
Hi. I am on sulfasalazine for mixed connective tissue disease (similar to rheumatoid arthritis and lupus), which I started taking again after many years of my disease being in remission. I was initially on sulfasalazine 10 years ago and it is a horrid medication. Was, and am again, terribly dizzy
Hi. I am on sulfasalazine for mixed connective tissue disease (similar to rheumatoid arthritis and lupus), which I started taking again after many years of my disease being in remission. I was initially on sulfasalazine 10 years ago and it is a horrid medication. Was, and am again, terribly dizzy
girldoc
in
NRAS
2 months ago
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PSMA pet scan negative
My PSA was 0.1 on july 17th and 0.3 on Oct 16th. PSMA scan was done on Nov 7th but was negative. Am I safe to assume there must be some prostate cancer cell present that are not showing up on the scan? I am meeting with my MO at Dana Farber next week Any suggestions moving forward? I appreciate the
My PSA was 0.1 on july 17th and 0.3 on Oct 16th. PSMA scan was done on Nov 7th but was negative. Am I safe to assume there must be some prostate cancer cell present that are not showing up on the scan? I am meeting with my MO at Dana Farber next week Any suggestions moving forward? I appreciate the
Rfs1975
in
Advanced Prostate Cancer
6 months ago
New here đ€
Hi everyone, Iâm looking for any information about bloods and Thyroid please. I was diagnosed in 2017 with chronic pain, chronic fatigue and osteoarthritis. I have tried all pain medications the NHS has, and nothing touches the pain. I have had horrendous pain in my feet, left one for over a year,
Hi everyone, Iâm looking for any information about bloods and Thyroid please. I was diagnosed in 2017 with chronic pain, chronic fatigue and osteoarthritis. I have tried all pain medications the NHS has, and nothing touches the pain. I have had horrendous pain in my feet, left one for over a year,
Pammygtf
in
Thyroid UK
2 months ago
updated journey
Iâm getting so frustrated with this underactive thyroid. My only symptom before I was diagnosed again was unexplained weight gain. I had put on half a stone but hadnât changed any habits. After starting on levothyroxine I put on another 2 stone. This may have been made worse due to all my joints seizing
Iâm getting so frustrated with this underactive thyroid. My only symptom before I was diagnosed again was unexplained weight gain. I had put on half a stone but hadnât changed any habits. After starting on levothyroxine I put on another 2 stone. This may have been made worse due to all my joints seizing
ScriptMaz
in
Thyroid UK
2 months ago
worried
hi I was diagnosed with nafld in November and told to lose weight I was about 2 stone overweight I have now hit healthy weight but my liver is showing still problems in the bloods so I have now been referred for autoimmune screening and mri scan also my urine is very dark have anyone gone through this
hi I was diagnosed with nafld in November and told to lose weight I was about 2 stone overweight I have now hit healthy weight but my liver is showing still problems in the bloods so I have now been referred for autoimmune screening and mri scan also my urine is very dark have anyone gone through this
Candycru
in
British Liver Trust
2 months ago
Behcets + Personal Independence Payment (UK)
I have relatively mild behcets syndrome (frequent mouth ulcers, joint swelling are the main symptoms but there have been periods where i have been unable to walk) Has anyone UK based living with the disease been able to claim
Personal Independence Payment? I'm quite tired of having to pay for my
I have relatively mild behcets syndrome (frequent mouth ulcers, joint swelling are the main symptoms but there have been periods where i have been unable to walk) Has anyone UK based living with the disease been able to claim
Personal Independence Payment? I'm quite tired of having to pay for my
jaquarius
in
Behçet's UK
6 months ago
GCA-Lyme Disease Connection?
Hi all, My wife is a long-time Lyme Disease sufferer, and has recently had a consultation with a biologist/pathologist. This person takes a blood sample and then looks at it under the microscope while the patient is present -- and then comments on what has been seen. My wife had the classic signs
Hi all, My wife is a long-time Lyme Disease sufferer, and has recently had a consultation with a biologist/pathologist. This person takes a blood sample and then looks at it under the microscope while the patient is present -- and then comments on what has been seen. My wife had the classic signs
montebello
in
PMRGCAuk
6 months ago
Link between Vitamin B12 Deficiency and MS
A recent study, conducted by researchers from Sanford Burnham Prebys, in collaboration with others, and published in the December 2023 issue of Cell Reports, sheds more light on the subject, revealing a molecular link between vitamin B12 deficiency and multiple sclerosis. The researchers suggest the
A recent study, conducted by researchers from Sanford Burnham Prebys, in collaboration with others, and published in the December 2023 issue of Cell Reports, sheds more light on the subject, revealing a molecular link between vitamin B12 deficiency and multiple sclerosis. The researchers suggest the
BettysMom
in
My MSAA Community
2 months ago
Pelvic Muscle Spasms
Ive been just diagnosed and my VJ is constantly throbbing. Using suppositories and AZO products but I dont know how to relax these muscles. Anyone else? HELP it HURTS
Ive been just diagnosed and my VJ is constantly throbbing. Using suppositories and AZO products but I dont know how to relax these muscles. Anyone else? HELP it HURTS
QueenVic1952
in
Pelvic Pain Support Network
1 year ago
Thyroid Antibodies
Just read a post from Thyroid UK about antibodies. The raised TPO connection seems clear, but then It says âThe next group is the TG Ab. These levels rise as well as the TPO Ab levels in autoimmune thyroiditis, but to a lesser degree...â I donât understand what this is sayingâŠdoes it mean that BOTH
Just read a post from Thyroid UK about antibodies. The raised TPO connection seems clear, but then It says âThe next group is the TG Ab. These levels rise as well as the TPO Ab levels in autoimmune thyroiditis, but to a lesser degree...â I donât understand what this is sayingâŠdoes it mean that BOTH
JoJoloveschocolate
in
Thyroid UK
2 months ago
LUPUS UK is delighted to announce their new CEO will be Caroline Olshewsky
After a rigorous and careful selection process, involving a panel of Trustees and the staff at the National Office in Romford, Caroline Olshewsky will start her new position on Monday 18th March 2024. Caroline will take the reins from Paul Howard who has been CEO since March 2020 and has been with the
After a rigorous and careful selection process, involving a panel of Trustees and the staff at the National Office in Romford, Caroline Olshewsky will start her new position on Monday 18th March 2024. Caroline will take the reins from Paul Howard who has been CEO since March 2020 and has been with the
Paul_Howard
LUPUS UK
in
LUPUS UK
2 months ago
PSA Rising Dx 06/2022 PSA 864.42 to 01/2023 <0.06 now no longer undetectable, I wonât see DR until next month, What will the Dr do?
Diagnosed 07/01/2022 PSA 942.40 Gleason 8 ductal without large cribform gland / Gleason 9 4+5 after Davinci RP w/ LNR cT3b CN0 cM1b Gleason 8/9 Stage 4 Grade 5 : 4+5=9 Low Volume High Grade ypT3a YPT3a 3 lytic lesions resolved to 1 mild avid lesion Biopsy 15 samples 4 adenocarcinoma
Diagnosed 07/01/2022 PSA 942.40 Gleason 8 ductal without large cribform gland / Gleason 9 4+5 after Davinci RP w/ LNR cT3b CN0 cM1b Gleason 8/9 Stage 4 Grade 5 : 4+5=9 Low Volume High Grade ypT3a YPT3a 3 lytic lesions resolved to 1 mild avid lesion Biopsy 15 samples 4 adenocarcinoma
Shorehousejam
in
Advanced Prostate Cancer
6 months ago
facial rash
hi there, I have just had a positive ana result and suspected lupus so I am being referred to a rheumatologist. I have a slight red rash on both cheeks but nothing on my nose. Can a lupus facial rash be just mildly on both cheeks and not on your nose? thanks in advance for any replies? Pinkyerin
hi there, I have just had a positive ana result and suspected lupus so I am being referred to a rheumatologist. I have a slight red rash on both cheeks but nothing on my nose. Can a lupus facial rash be just mildly on both cheeks and not on your nose? thanks in advance for any replies? Pinkyerin
Pinkyerin
in
LUPUS UK
2 months ago
Eltroxin Mercury Pharma
Hello I have been struggling with underactive thyroid and recently diagnosed with Benign nodules and had to come off 50mcg levothyroxine as it caused hoarse voice, goiter to swell etc. My recent lab results were TSH 5.79 and T4 10.8. I still am struggling with my thyroid swelling up. I have been for
Hello I have been struggling with underactive thyroid and recently diagnosed with Benign nodules and had to come off 50mcg levothyroxine as it caused hoarse voice, goiter to swell etc. My recent lab results were TSH 5.79 and T4 10.8. I still am struggling with my thyroid swelling up. I have been for
Chesterblue
in
Thyroid UK
2 months ago
Have you experience of Chemotherapy and underactive thyroid?
I have recently completed chemo following surgery for a bowel tumour. I was wondering if anyone has experience of chemotherapy and underactive thyroid? I have continued to take 75 T4 and 20 T3. Itâs difficult to know if the fatigue / sleep problems are to do with the thyroid or chemo. many thanks.
I have recently completed chemo following surgery for a bowel tumour. I was wondering if anyone has experience of chemotherapy and underactive thyroid? I have continued to take 75 T4 and 20 T3. Itâs difficult to know if the fatigue / sleep problems are to do with the thyroid or chemo. many thanks.
Mantras131
in
Thyroid UK
2 months ago
Clarity Pharmaceuticals achieves recruitment target for phase II SAR-Bombesin prostate cancer trial
https://themarketherald.com.au/clarity-pharmaceuticals-achieves-recruitment-target-for-phase-ii-sar-bombesin-prostate-cancer-trial-2023-11-07/ for cancer expressing low PSA levels
https://themarketherald.com.au/clarity-pharmaceuticals-achieves-recruitment-target-for-phase-ii-sar-bombesin-prostate-cancer-trial-2023-11-07/ for cancer expressing low PSA levels
Maxone73
in
Advanced Prostate Cancer
6 months ago
GENERALLY! Is there a correct sleeping position, right recovery position, left recovery position, back, high back support, v pillow, etc?
On an ordinary mattress, sleeping on one side, especially if overweight [now slightlyđ], night after night, could it cause damage to internal organs, liver, stomach, heart, lungs etc. I have had back surgery [25 years ago], broken [fragile] clavicle right shoulder, broken skull, broken rib cage structure
On an ordinary mattress, sleeping on one side, especially if overweight [now slightlyđ], night after night, could it cause damage to internal organs, liver, stomach, heart, lungs etc. I have had back surgery [25 years ago], broken [fragile] clavicle right shoulder, broken skull, broken rib cage structure
Adlon57
in
Healthy Evidence
6 months ago
Thinking of taking an ADT vacation
Hi, just got my latest PSA result yesterday...it was 0.07 ug/l down from 0.14 ug/l one month ago. I'm almost at the 6 month mark of my ADT journey. Six months ago, my PSA was 14.9 ug/l. I'm thinking of taking a break from the ADT because of the side effects. Is it too risky? Would the PSA start
Hi, just got my latest PSA result yesterday...it was 0.07 ug/l down from 0.14 ug/l one month ago. I'm almost at the 6 month mark of my ADT journey. Six months ago, my PSA was 14.9 ug/l. I'm thinking of taking a break from the ADT because of the side effects. Is it too risky? Would the PSA start
John347
in
Advanced Prostate Cancer
6 months ago
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