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Pelizaeus–Merzbacher disease
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New and looking for some advice
Hello. I am trying to find some information for a family member. He took a break last August and left his job as long dustance HGV1 driver. 6 months later, went back to old job, lasted a week and his boss said, you're not well, sort your health issue out. So in March I took him to A&E and what we
Hello. I am trying to find some information for a family member. He took a break last August and left his job as long dustance HGV1 driver. 6 months later, went back to old job, lasted a week and his boss said, you're not well, sort your health issue out. So in March I took him to A&E and what we
Painterlass
in
British Liver Trust
4 months ago
Random liver discomfort
Curious if anyone experiences random liver area discomfort. Not pain, just a tender discomfort. Last usually 7 or so hours, then its good. Causes? PBC since 2020ish Urso 3x a day. 250 Osteoporosis TanGram =)
Curious if anyone experiences random liver area discomfort. Not pain, just a tender discomfort. Last usually 7 or so hours, then its good. Causes? PBC since 2020ish Urso 3x a day. 250 Osteoporosis TanGram =)
TanGram
in
PBC Foundation
4 months ago
Renal stenosis
Hi. I started Hydreasin two years ago one capsule a day. Last year it was found I had obstruction of ureteroreanal junction. out of the blue. I suffered much pain and in two days I am having surgery. I read somewhere that Hydroxy does that. Any idea about it? I am thinking of changing to Besremi as
Hi. I started Hydreasin two years ago one capsule a day. Last year it was found I had obstruction of ureteroreanal junction. out of the blue. I suffered much pain and in two days I am having surgery. I read somewhere that Hydroxy does that. Any idea about it? I am thinking of changing to Besremi as
Kelly2
in
MPN Voice
4 months ago
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PSA back up after radiation
After 4 .5 weeks of radiation PSA dropped from 6.6 to 3.46 but on 6/3 went up to 5.88. I have MO appt 6/11 and he has previously indicated that docetaxel could be the next step. Following last PSA increase switched from Zytiga to Xtandi. I am guessing that a PET scan is in order and maybe SBRT prior
After 4 .5 weeks of radiation PSA dropped from 6.6 to 3.46 but on 6/3 went up to 5.88. I have MO appt 6/11 and he has previously indicated that docetaxel could be the next step. Following last PSA increase switched from Zytiga to Xtandi. I am guessing that a PET scan is in order and maybe SBRT prior
alperk
in
Advanced Prostate Cancer
4 months ago
Provenge immunotherapy
After 5.5 years on Lupron (no Zytiga, Xtandi, Daro, etc.), my PSA hit its highest points ever (1.92), although I'm still not 2 points above my lowest reading of 0.5 (only one of those). I'm metastatic and was at diagnosis, so still have prostate. I've been researching Provenge a bit, and understand that
After 5.5 years on Lupron (no Zytiga, Xtandi, Daro, etc.), my PSA hit its highest points ever (1.92), although I'm still not 2 points above my lowest reading of 0.5 (only one of those). I'm metastatic and was at diagnosis, so still have prostate. I've been researching Provenge a bit, and understand that
dhccpa
in
Advanced Prostate Cancer
4 months ago
I'm so scared....could someone please help?
Hi. I'm so glad I stumbled on this site and I'm hoping that someone could be kind enough to reach out to me? I'm so very, very scared, and it's all my own fault. I have suffered from an anxiety disorder for 15 - 20 years and used wine to cope....and lots of it. I was diagnosed with compensated cirrhosis
Hi. I'm so glad I stumbled on this site and I'm hoping that someone could be kind enough to reach out to me? I'm so very, very scared, and it's all my own fault. I have suffered from an anxiety disorder for 15 - 20 years and used wine to cope....and lots of it. I was diagnosed with compensated cirrhosis
puddy68
in
British Liver Trust
4 months ago
Anyone here with Cushings Disease or Cyclical Cushings?
Hey all, Having an MRI in 2 weeks time for my pituitary. I am unable to be on thyroid replacement I used to be on, raising doses seem to increase my cortisol further. Any helpful info would be amazing! Thanks x
Hey all, Having an MRI in 2 weeks time for my pituitary. I am unable to be on thyroid replacement I used to be on, raising doses seem to increase my cortisol further. Any helpful info would be amazing! Thanks x
Incoguto
in
Thyroid UK
4 months ago
High ELF score
Hi there, I’m Liz and this is my first post. I have recently had an ELF score of 9.9. My GP didn’t request this test - I requested it myself because I just wanted to know if my liver was in good condition and healthy. I have had an ELF test In the past which was raised but not unduly so and over the
Hi there, I’m Liz and this is my first post. I have recently had an ELF score of 9.9. My GP didn’t request this test - I requested it myself because I just wanted to know if my liver was in good condition and healthy. I have had an ELF test In the past which was raised but not unduly so and over the
Nellieblue
in
British Liver Trust
4 months ago
Stage 1 Compensated Cirrhosis
Hi This is my first post since being diagnosed with the above condition. I have now stopped drinking. I am confused with the staging element. I would be grateful for clarification in layman terms. I am awaiting an MRI of my liver and heart. I have also recently been diagnosed with dilated cardiomyopathy
Hi This is my first post since being diagnosed with the above condition. I have now stopped drinking. I am confused with the staging element. I would be grateful for clarification in layman terms. I am awaiting an MRI of my liver and heart. I have also recently been diagnosed with dilated cardiomyopathy
Vindhot-65
in
British Liver Trust
4 months ago
Dienogest
Hi all, My 17 year old daughter has just had her follow up post op appointment following a laparoscopy which she had last October. She has confirmed Endometriosis and all the surface (that they could see) Endo was removed. Unfortunately her pain has not improved and she says it's the same as before the
Hi all, My 17 year old daughter has just had her follow up post op appointment following a laparoscopy which she had last October. She has confirmed Endometriosis and all the surface (that they could see) Endo was removed. Unfortunately her pain has not improved and she says it's the same as before the
Welshpearl
in
Endometriosis UK
4 months ago
Terminal ileitis
My colonoscopy found mild inflammation in the TI area which they said looked like Terminal Ileitis. Biopsies were taken but they came back normal. I haven't discussed the results with my consultant yet as I had to give in a stool sample to check the calprotectin level first. It looks like it isn't Crohn's
My colonoscopy found mild inflammation in the TI area which they said looked like Terminal Ileitis. Biopsies were taken but they came back normal. I haven't discussed the results with my consultant yet as I had to give in a stool sample to check the calprotectin level first. It looks like it isn't Crohn's
Sunita77
in
Crohn's and Colitis Support
4 months ago
Pluvicto
My dad had his 1st pluvicto injection beginning of May He had his PSA taken 3 weeks later. It went from 16 to 23. I’m hoping this isn’t an indicator that this will fail too. He has been dealing with prostate cancer for 20+ years -prostate removed - watching till number doubled - maybe 5 years
My dad had his 1st pluvicto injection beginning of May He had his PSA taken 3 weeks later. It went from 16 to 23. I’m hoping this isn’t an indicator that this will fail too. He has been dealing with prostate cancer for 20+ years -prostate removed - watching till number doubled - maybe 5 years
Jshaw916
in
Advanced Prostate Cancer
4 months ago
Advancing Prostate Cancer Care: Treatment Approaches to Precision Medicine, Biomarker Innovations, and Equitable Access -ASCO - May 23, 2024
While not a lot of specific focus on PCa (Like at the GU ASCO Meeting earlier this year), this full-access section from their Educational Book released at this week's ASCO Annual Meeting in Chicago may be of interest to those here who want to understand the oncology community's current view on precision
While not a lot of specific focus on PCa (Like at the GU ASCO Meeting earlier this year), this full-access section from their Educational Book released at this week's ASCO Annual Meeting in Chicago may be of interest to those here who want to understand the oncology community's current view on precision
cujoe
in
Fight Prostate Cancer
4 months ago
Lft test confusion
Hi, Not my test but my brothers for family court.He's passed all his hair tests and blood tests. He's had issues with drink but has slowed down to mainly binge drinking for the last few years. He last had spirits 3 weeks before the tests were taken, his cdt came back within range at 1.4 however his lft
Hi, Not my test but my brothers for family court.He's passed all his hair tests and blood tests. He's had issues with drink but has slowed down to mainly binge drinking for the last few years. He last had spirits 3 weeks before the tests were taken, his cdt came back within range at 1.4 however his lft
Dolly101010
in
British Liver Trust
4 months ago
Annovis Bio Inc. (NYSE: ANVS) Schedules Investor Webcast
For those of you who might be interested... MALVERN, Pa. June 5, 2024 -- Annovis Bio Inc. (NYSE: ANVS) (“Annovis” or the “Company”), a late-stage clinical drug platform company pioneering transformative therapies for neurodegenerative disorders such as Alzheimer’s Disease (AD) and Parkinson’s Disease
For those of you who might be interested... MALVERN, Pa. June 5, 2024 -- Annovis Bio Inc. (NYSE: ANVS) (“Annovis” or the “Company”), a late-stage clinical drug platform company pioneering transformative therapies for neurodegenerative disorders such as Alzheimer’s Disease (AD) and Parkinson’s Disease
Canddy
in
Cure Parkinson's
4 months ago
PSA rockets up to 344
Hello - I received quite shocking news during my visit to the Mayo Clinic last week. My PSA has jumped to 344 from a low of 3.6 last November, when I completed chemo with cabazitaxel. PSA did start to rise quite soon, into double digits, but this is by far my highest PSA ever. Dr. Kwon recommended
Hello - I received quite shocking news during my visit to the Mayo Clinic last week. My PSA has jumped to 344 from a low of 3.6 last November, when I completed chemo with cabazitaxel. PSA did start to rise quite soon, into double digits, but this is by far my highest PSA ever. Dr. Kwon recommended
Arcticfox44
in
Advanced Prostate Cancer
4 months ago
Feeling a bit depressed again with these results......
Just had some bloods done this morning, feeling exhausted this week, no energy, falling asleep all the time despite being on steroids for adrenal insufficiency, feeling a bit nauseous, headachey all week. It seems like all that's changed in 6 months is that my cortisol is lower, my TSH is higher (was
Just had some bloods done this morning, feeling exhausted this week, no energy, falling asleep all the time despite being on steroids for adrenal insufficiency, feeling a bit nauseous, headachey all week. It seems like all that's changed in 6 months is that my cortisol is lower, my TSH is higher (was
Lucy___
in
Thyroid UK
4 months ago
Kishan's 6 month Androgen Annihilation Therapy Study for metastatic PCa
https://x.com/prostatecell/status/1770206641813696808?s=46 https://bit.ly/43rr68x seems to be a promising tactic for oligometastatic PCa, that combines SBRT with an ADT mix . The Abstract starts off by noting that with metastatic hormone sensitive PCa, recurrence almost always happens within six months
https://x.com/prostatecell/status/1770206641813696808?s=46 https://bit.ly/43rr68x seems to be a promising tactic for oligometastatic PCa, that combines SBRT with an ADT mix . The Abstract starts off by noting that with metastatic hormone sensitive PCa, recurrence almost always happens within six months
Xavier10
in
Advanced Prostate Cancer
4 months ago
liver function tests
sorry ignore my last post Can someone explain why my bilirubin went from 41 to 48 in one month and should I be worried. Pic from previous post is not clear
sorry ignore my last post Can someone explain why my bilirubin went from 41 to 48 in one month and should I be worried. Pic from previous post is not clear
Meanies
in
British Liver Trust
4 months ago
Indapamide & Potassium
Hi guys, i had a blood test on Monday to as doctor wanted to test U&Es. Was born with one kidney & have high blood pressure Serum sodium level 135 mmol/L [133.0 - 146.0] Serum potassium level 3.5 mmol/L [3.5 - 5.3] Serum urea level 3.2 mmol/L [2.5 - 7.8] Serum creatinine level 74 umol/L [45.0 - 84.0
Hi guys, i had a blood test on Monday to as doctor wanted to test U&Es. Was born with one kidney & have high blood pressure Serum sodium level 135 mmol/L [133.0 - 146.0] Serum potassium level 3.5 mmol/L [3.5 - 5.3] Serum urea level 3.2 mmol/L [2.5 - 7.8] Serum creatinine level 74 umol/L [45.0 - 84.0
yewotc23
in
Early CKD Support
4 months ago
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