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Paroxysmal atrial fibrillation
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Now Undetectable PSA on BAT Regimen
Happy to share my latest progress report. Note that I am mHSPC, lymph nodes only to pelvis and abdomen. I have been on long-cycle modified BAT for 2.5 years now. 3 months of very high testosterone (400mg T-cypionate every 2 weeks), then one month of ADT using Orgovyx. My PSA has continued to decline
Happy to share my latest progress report. Note that I am mHSPC, lymph nodes only to pelvis and abdomen. I have been on long-cycle modified BAT for 2.5 years now. 3 months of very high testosterone (400mg T-cypionate every 2 weeks), then one month of ADT using Orgovyx. My PSA has continued to decline
MateoBeach
in
Advanced Prostate Cancer
1 year ago
Finally Undetectable PSA on BAT
Happy to share my latest progress report. Note that I am mHSPC, lymph nodes only to pelvis and abdomen. I have been on long-cycle modified BAT for 2.5 years now. 3 months of very high testosterone (400mg T-cypionate every 2 weeks), then one month of ADT using Orgovyx. My PSA has continued to decline
Happy to share my latest progress report. Note that I am mHSPC, lymph nodes only to pelvis and abdomen. I have been on long-cycle modified BAT for 2.5 years now. 3 months of very high testosterone (400mg T-cypionate every 2 weeks), then one month of ADT using Orgovyx. My PSA has continued to decline
MateoBeach
in
Fight Prostate Cancer
1 year ago
Look after yourself!
Hi everyone, as you will know from previous posts, my hubby has decompensated liver and is still drinking, with an "If I die, I die" attitude. So today saw me at the GP for myself (felt a bit self indulgent tbh) and I've got low haemoglobin, low vitamin levels, possibly due to Covid a couple of months
Hi everyone, as you will know from previous posts, my hubby has decompensated liver and is still drinking, with an "If I die, I die" attitude. So today saw me at the GP for myself (felt a bit self indulgent tbh) and I've got low haemoglobin, low vitamin levels, possibly due to Covid a couple of months
MrsWorried
in
British Liver Trust
2 years ago
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Exercise and Afib
I'm sure you all already know this but I discovered this recently. My cardiologist sent me to cardiac rehab because I have afib and some wall weakening in the heart. The idea is to strengthen the heart muscle to be able to handle any arrhythmia that may come my way. I always thought that talk
I'm sure you all already know this but I discovered this recently. My cardiologist sent me to cardiac rehab because I have afib and some wall weakening in the heart. The idea is to strengthen the heart muscle to be able to handle any arrhythmia that may come my way. I always thought that talk
Elsie1955
in
Atrial Fibrillation Support
2 years ago
Some HOPE for faster drug treatment approvals with "AI" (artificial intelligence)
"Developing life-saving medicine takes a lot of time, money and testing. But one company's artificial intelligence-driven technology provides a way to slash all three while saving the lives of more humans and animals." "VeriSIM Life has developed[i]
"digital twins" of various human body types
"Developing life-saving medicine takes a lot of time, money and testing. But one company's artificial intelligence-driven technology provides a way to slash all three while saving the lives of more humans and animals." "VeriSIM Life has developed[i]
"digital twins" of various human body types
PDWarrior1900
in
Cure Parkinson's
1 year ago
artistry 7 clinical trial
I will begin the artistry 7 trial in the next few weeks. Standard chemo has stopped working after. 4 reoccurrences , 7 different chemo/combos . Last Scan still showed progression but as low volume of disease. I only qualify for this one trial . Has anyone been on it and had success or what to expect
I will begin the artistry 7 trial in the next few weeks. Standard chemo has stopped working after. 4 reoccurrences , 7 different chemo/combos . Last Scan still showed progression but as low volume of disease. I only qualify for this one trial . Has anyone been on it and had success or what to expect
Lovetodiscodance57
in
My Ovacome
1 year ago
clinical trial recommendations please
Good morning lovely ladies, I have just become platinum resistant and am meeting my onc later this morning to discuss scan results and possibly look at clinical trials. Does anyone know of a current trial for high grade serous plat. resistant? I have looked on line but it would be good to hear from
Good morning lovely ladies, I have just become platinum resistant and am meeting my onc later this morning to discuss scan results and possibly look at clinical trials. Does anyone know of a current trial for high grade serous plat. resistant? I have looked on line but it would be good to hear from
Riverflo
in
My Ovacome
1 year ago
Do you or a member of your family have or been diagnosed with AF?
Register TODAY for our 'Living with … AF'? Please register for our next 'online' patient educational series - Living with ... AF? Atrial Fibrillation is the most common arrhythmia, affecting many individuals around the world, if you would like to find out more about the latest developments in the
Register TODAY for our 'Living with … AF'? Please register for our next 'online' patient educational series - Living with ... AF? Atrial Fibrillation is the most common arrhythmia, affecting many individuals around the world, if you would like to find out more about the latest developments in the
TracyAdmin
ArrhythmiaAlliance
in
Arrhythmia Alliance
2 years ago
Do you or a member of your family been diagnosed with AF?
Register TODAY for our 'Living with … AF'? Please register for our next 'online' patient educational series -
Living with ... AF?
Atrial Fibrillation is the most common arrhythmia, affecting many individuals around the world, if you would like to find out more about the latest developments
Register TODAY for our 'Living with … AF'? Please register for our next 'online' patient educational series -
Living with ... AF?
Atrial Fibrillation is the most common arrhythmia, affecting many individuals around the world, if you would like to find out more about the latest developments
TracyAdmin
Partner
in
AF Association
2 years ago
PBCer with sudden Fatigue/Exhaustion
I am a 59 yo female in the US, stage 1-2 PBC. I was diagnosed in 2006 after invests. Into my horrible bout of heartburn. I’m in pretty good health and taking Urso. I’ve done clinical trials and tried additional meds thru the years as well, in doing so I was found to have Gilbert’s? syndrome where
I am a 59 yo female in the US, stage 1-2 PBC. I was diagnosed in 2006 after invests. Into my horrible bout of heartburn. I’m in pretty good health and taking Urso. I’ve done clinical trials and tried additional meds thru the years as well, in doing so I was found to have Gilbert’s? syndrome where
Joycie193
in
PBC Foundation
1 year ago
Phase 1 trial testing CAR T-cell therapy GC012F in SLE
Gracell Biotechnologies announced the launch of a Phase 1 clinical trial in China testing GC012F, its experimental dual FastCAR T-cell therapy, for hard-to-treat systemic lupus erythematosus (SLE). The investigator-initiated trial (NCT05846347), underway at The First Affiliated Hospital of the Zhejiang
Gracell Biotechnologies announced the launch of a Phase 1 clinical trial in China testing GC012F, its experimental dual FastCAR T-cell therapy, for hard-to-treat systemic lupus erythematosus (SLE). The investigator-initiated trial (NCT05846347), underway at The First Affiliated Hospital of the Zhejiang
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Dr. John Seymour on IgHV Mutational Status
IgHV is one of the biomarkers used to predict prognosis and how an individual with CLL/SLL will respond to different treatment options. Watch our interview with Dr. John Seymour to learn more about how recent clinical trials have changed our understanding of IgHV. https://youtu.be/354hNsHsSlc
IgHV is one of the biomarkers used to predict prognosis and how an individual with CLL/SLL will respond to different treatment options. Watch our interview with Dr. John Seymour to learn more about how recent clinical trials have changed our understanding of IgHV. https://youtu.be/354hNsHsSlc
Edalv
in
CLL Support
1 year ago
Taking part in Watchman trial to establish if it’s safe to come off anti-coagulants like Apixaban
Good afternoon everyone. On Thursday I am scheduled to go for a procedure to have a Watchman device fitted inside my heart at John Radcliffe Hospital here in Oxford under supervision of the Cardiac Research Team. I volunteered to do this as part of a world wide trial covering 3000 patients to assess
Good afternoon everyone. On Thursday I am scheduled to go for a procedure to have a Watchman device fitted inside my heart at John Radcliffe Hospital here in Oxford under supervision of the Cardiac Research Team. I volunteered to do this as part of a world wide trial covering 3000 patients to assess
JefferyW
in
Atrial Fibrillation Support
2 years ago
Grateful for any Feedback on PVI Ablation Please
Hi, My background is:- Developed Atrial Fibrillation in November 2021 (persistent from day 1). Had a cardioversion in February 2022, which lasted about 7 weeks and then back into persistent AF, looking back I carried on as normal after the cardioversion and perhaps I should have been more careful.
Hi, My background is:- Developed Atrial Fibrillation in November 2021 (persistent from day 1). Had a cardioversion in February 2022, which lasted about 7 weeks and then back into persistent AF, looking back I carried on as normal after the cardioversion and perhaps I should have been more careful.
Hidden
in
AF Association
2 years ago
Please share your experiences with Provenge. What’s it like getting the injections and what are your results?
I’m stage four on Orgovyx and recently went castrate resistant with three small bone mets on my upper spine so we added Zytiga. I started the Eclipse clinical trial three weeks ago with PSA of 3.3 and am authorized for up to four treatments. My plan is to start Provenge after the trial is over. What
I’m stage four on Orgovyx and recently went castrate resistant with three small bone mets on my upper spine so we added Zytiga. I started the Eclipse clinical trial three weeks ago with PSA of 3.3 and am authorized for up to four treatments. My plan is to start Provenge after the trial is over. What
SViking
in
Advanced Prostate Cancer
1 year ago
Have any Vagal Afibbers tried exercising before bed?
As I have Vagal Afib I can switch it off early on in an episode with a Valsalva maneuver. A few nights ago I could not stop the Afib as it did not wake me immediately, so I could not stop it the usual way. I had read that some people exercise during Afib, so rather than pop another Flecainide pill I
As I have Vagal Afib I can switch it off early on in an episode with a Valsalva maneuver. A few nights ago I could not stop the Afib as it did not wake me immediately, so I could not stop it the usual way. I had read that some people exercise during Afib, so rather than pop another Flecainide pill I
OzRob
in
AF Association
2 years ago
Rusfertide...
I haven't come across any dialog about this drug on this website. It popped up on my many searches for additional info about treatment for Polycythemia Vera. It is currently in phase 2 of a clinical trial at Stanford University and so far, results with patients have been good. It sounds like
I haven't come across any dialog about this drug on this website. It popped up on my many searches for additional info about treatment for Polycythemia Vera. It is currently in phase 2 of a clinical trial at Stanford University and so far, results with patients have been good. It sounds like
K-itty
in
MPN Voice
1 year ago
Celebrating International Clinical Trials Day.
This is just a heads-up if anyone is interested. Tomorrow (19th May) There is an event taking place in the atrium of the QE Hospital, Birmingham Celebrating International Clinical Trials Day. I shall be there talking about people becoming involved in Clinical Research as a PPIE members (Patient and
This is just a heads-up if anyone is interested. Tomorrow (19th May) There is an event taking place in the atrium of the QE Hospital, Birmingham Celebrating International Clinical Trials Day. I shall be there talking about people becoming involved in Clinical Research as a PPIE members (Patient and
Richard-Allen
in
British Liver Trust
1 year ago
Melatonin
Had a great night... took 200mg Gabapentin,( from a high of 600 mg. 4 days ago) 10 mg. Melatonin and Reduced Requip to .75 mg from 1 mg. I hadnt mentioned i am following the low glutamine diet as well. It is so rare to feel good . My heart goes out to thise suffering. I think the melatonin is
Had a great night... took 200mg Gabapentin,( from a high of 600 mg. 4 days ago) 10 mg. Melatonin and Reduced Requip to .75 mg from 1 mg. I hadnt mentioned i am following the low glutamine diet as well. It is so rare to feel good . My heart goes out to thise suffering. I think the melatonin is
Truthsword
in
Restless Legs Syndrome
2 years ago
Estetrol for bone density? What estrogen test so I need, anything specific?
Found this interesting article on estetrol and wondering if anyone out there has taken this form of estrogen? I see a lot of posts relating to estradiol patches but the E4 estrogen form appears to be much better at least on first look. The clinical trials were done in the Netherlands so it may be something
Found this interesting article on estetrol and wondering if anyone out there has taken this form of estrogen? I see a lot of posts relating to estradiol patches but the E4 estrogen form appears to be much better at least on first look. The clinical trials were done in the Netherlands so it may be something
watertender
in
Advanced Prostate Cancer
1 year ago
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