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Paroxysmal atrial fibrillation
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Newby wondering what medicine to take for sickness and diarrhoea?
Hello everyone 🤗, this is my first proper post after dipping in and out to read your chats which I have found invaluable to settle my nerves somewhat after being diagnosed with Afib. However, I’m suffering with sickness and diarrhoea and am aware that while on the afib drugs you have to be careful what
Hello everyone 🤗, this is my first proper post after dipping in and out to read your chats which I have found invaluable to settle my nerves somewhat after being diagnosed with Afib. However, I’m suffering with sickness and diarrhoea and am aware that while on the afib drugs you have to be careful what
Ailsablue
in
AF Association
2 years ago
Afib Wearables, capturing data for your EP and a helpful tool.
Thought I would give an update as to my personal study of my AF. For those that have not been following my posts, I consciously decided not to take medications for my AF so I could study the beast by trying alternatives to medications. One of my earliest thoughts was to set up a citizen science website
Thought I would give an update as to my personal study of my AF. For those that have not been following my posts, I consciously decided not to take medications for my AF so I could study the beast by trying alternatives to medications. One of my earliest thoughts was to set up a citizen science website
OzRob
in
Atrial Fibrillation Support
2 years ago
Aching feet at night
I’ve been taking Carvedilol for 9 months after AFIB . Had Cardioversion and Ablation but still have occasional AFIB. Now experiencing pain in my feet at night. Had anyone had the same issues and found relief?
I’ve been taking Carvedilol for 9 months after AFIB . Had Cardioversion and Ablation but still have occasional AFIB. Now experiencing pain in my feet at night. Had anyone had the same issues and found relief?
1Golf
in
AF Association
2 years ago
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AF and now coronary artery disease at 47. I recently had a CT angiogram and the results aren’t great. Back to being scared and worried.
So I first came on this forum with my Afib diagnosis and was terrified and depressed about the diagnosis and medications. I had good news from my echocardiogram as I had no damage at all. The last hurdle was a CT angiogram sadly I’ve not made it so well past this hurdle. I’m absolutely gutted to be honest
So I first came on this forum with my Afib diagnosis and was terrified and depressed about the diagnosis and medications. I had good news from my echocardiogram as I had no damage at all. The last hurdle was a CT angiogram sadly I’ve not made it so well past this hurdle. I’m absolutely gutted to be honest
Dadtoalad23
in
AF Association
2 years ago
ANY ADVICE
Hi everyone I have been AF free for nearly a year now. I have been taking 75 mg flecainide morning and night half of 125mg Bisoprolol in the morning, Apixaban and 20 mg Tamoxifen. Everything has been great. However in the past week I wake up every morning and my lips are stinging and cracked and
Hi everyone I have been AF free for nearly a year now. I have been taking 75 mg flecainide morning and night half of 125mg Bisoprolol in the morning, Apixaban and 20 mg Tamoxifen. Everything has been great. However in the past week I wake up every morning and my lips are stinging and cracked and
SilverliningsForNow
in
AF Association
2 years ago
STEP ONE OF MY THIRD CLINICAL TRIAL huCAR-T19 IL-18
With the ink barely dry on my clinical trial consent forms, it was back up to Penn Medicine for my blood collection. First stop was the radiology dept to have a neck catheter installed, I decided against the arm extraction method, as it limits your mobility during the procedure. Cath installation complete
With the ink barely dry on my clinical trial consent forms, it was back up to Penn Medicine for my blood collection. First stop was the radiology dept to have a neck catheter installed, I decided against the arm extraction method, as it limits your mobility during the procedure. Cath installation complete
steve5441
in
CLL Support
1 year ago
PIP advice please
hi all some of you know my story but I’ve had PAF for 29 years about 8 times in that period. I went back in AF in August and went on regime of Flecainide, Metropolol and Apixiban. Decided to do Cardioversion end of September after being on drugs for a month. Went off all drugs after a few weeks told
hi all some of you know my story but I’ve had PAF for 29 years about 8 times in that period. I went back in AF in August and went on regime of Flecainide, Metropolol and Apixiban. Decided to do Cardioversion end of September after being on drugs for a month. Went off all drugs after a few weeks told
OzJames
in
Atrial Fibrillation Support
2 years ago
Mini Oven Recommendations
I love to cook. It has always been my favourite hobby and relaxation. However, I struggle with chopping and slicing these days ..... Food processor has helped no end on this front. But my biggest problem is getting things out of the wall oven and while HM is fantastic at lifting heavy things for me
I love to cook. It has always been my favourite hobby and relaxation. However, I struggle with chopping and slicing these days ..... Food processor has helped no end on this front. But my biggest problem is getting things out of the wall oven and while HM is fantastic at lifting heavy things for me
LhasaMomma
in
Fibromyalgia Action UK
2 years ago
VIKTORIA-1 CLINICAL TRIAL
Happy Friday, everyone!! It’s a beautiful day to be alive!!! Has anyone here been offered this trial? I’ve been on letrozole, Ibrance and Xgeva for a year and it appears it’s not doing its job any longer. I will know more after scans next week. If not, are you on a clinical trial? I’m feeling like
Happy Friday, everyone!! It’s a beautiful day to be alive!!! Has anyone here been offered this trial? I’ve been on letrozole, Ibrance and Xgeva for a year and it appears it’s not doing its job any longer. I will know more after scans next week. If not, are you on a clinical trial? I’m feeling like
CTGirl1962
in
SHARE Metastatic Breast Cancer
1 year ago
Severe bruising
I have been taking Acalabrutinib in a clinical trial for three years achieving excellent results. A few days back I tripped over uneven paving while enjoying my daily walk. I hit the concrete hard. Fortunately no broken bones. By that evening a nasty bruise had appeared on my right side and abdomen.
I have been taking Acalabrutinib in a clinical trial for three years achieving excellent results. A few days back I tripped over uneven paving while enjoying my daily walk. I hit the concrete hard. Fortunately no broken bones. By that evening a nasty bruise had appeared on my right side and abdomen.
spanish36
in
CLL Support
1 year ago
Shingrix may be available on Australia's National Immunisation Program for those with CLL from 1 November 2023
The Pharmaceutical Benefits Advisory Committee has recommended that Shingrix be included on Australia's National Immunisation Program for some Australians later this year. An announcement by the Victorian Government indicates that Shingrix might be available from the start of November for particular
The Pharmaceutical Benefits Advisory Committee has recommended that Shingrix be included on Australia's National Immunisation Program for some Australians later this year. An announcement by the Victorian Government indicates that Shingrix might be available from the start of November for particular
CLLerinOz
Administrator
in
CLL Support
1 year ago
Ectopic Beats and Afib recurrence
Hi All, I am now more than 6 months out of the ablation and the 3 months follow up was okay. I am on bisoprolol. Lately, I started feeling many ectopics and as of last 3-4 days they seem to be with me all the time. Two weeks ago, I went to an ER following a sleepless night of anxiety (ECG no Afib and
Hi All, I am now more than 6 months out of the ablation and the 3 months follow up was okay. I am on bisoprolol. Lately, I started feeling many ectopics and as of last 3-4 days they seem to be with me all the time. Two weeks ago, I went to an ER following a sleepless night of anxiety (ECG no Afib and
Lonelytraveller
in
AF Association
2 years ago
Cost of PSMA scan in US
So I was surprised recently about the cost of my PSMA scan here in the US. $3456 I was used to costs in the $16,000 range for Choline scan. Paid $2650 or so for the UCLA clinical trial back in 2017. I checked and also found a place in Vancouver BC that would treat scan US patients for about 3400 Canadian
So I was surprised recently about the cost of my PSMA scan here in the US. $3456 I was used to costs in the $16,000 range for Choline scan. Paid $2650 or so for the UCLA clinical trial back in 2017. I checked and also found a place in Vancouver BC that would treat scan US patients for about 3400 Canadian
TJGuy
in
Advanced Prostate Cancer
1 year ago
CAR-T Trial Update #3
Hello friends, I had planned on updating everyone much sooner, but life got in the way a bit. Last I wrote, I had received my T-cells back on June 5, 2023. The first few days were totally uneventful. I was walking the halls a lot, staying active, reading, and getting dressed in regular clothing every
Hello friends, I had planned on updating everyone much sooner, but life got in the way a bit. Last I wrote, I had received my T-cells back on June 5, 2023. The first few days were totally uneventful. I was walking the halls a lot, staying active, reading, and getting dressed in regular clothing every
nvp815
in
CLL Support
1 year ago
Update on Annovis Buntanetap
Update from Annovis We are excited to announce two significant advances in our progress in developing a novel therapy for Parksinon’s, Alzheimer’s, and other neurodegenerative diseases. Annovis Files a Groundbreaking Composition of Matter Patent Annovis Bio has developed a new crystalline form of
Update from Annovis We are excited to announce two significant advances in our progress in developing a novel therapy for Parksinon’s, Alzheimer’s, and other neurodegenerative diseases. Annovis Files a Groundbreaking Composition of Matter Patent Annovis Bio has developed a new crystalline form of
Imaparky
in
Cure Parkinson's
1 year ago
You tube video on Atrial fibrillation , very long but answers so many questions.
I really didn't want to watch football & thought I would look something up on YouTube.This video answers so many questions from what causes AFib to Alcohol & caffeine and is only 7 days old.I found it incredible and if you can sit through 1hr 29 it will answer so many questions.I only found about 20
I really didn't want to watch football & thought I would look something up on YouTube.This video answers so many questions from what causes AFib to Alcohol & caffeine and is only 7 days old.I found it incredible and if you can sit through 1hr 29 it will answer so many questions.I only found about 20
kkatz
in
Atrial Fibrillation Support
2 years ago
Hormone video
This may be a useful video from Peter Attia giving a basic explanation of the thyroid, adrenal and sex hormone systems. It is split up into sections.https://m.youtube.com/watch?v=5oxFK6poSXM
This may be a useful video from Peter Attia giving a basic explanation of the thyroid, adrenal and sex hormone systems. It is split up into sections.https://m.youtube.com/watch?v=5oxFK6poSXM
Guineapiggy
in
Thyroid UK
1 year ago
Where to go after Lutetium 177?
Spouse has had a wonderful run on Lu177. Is now about to get his final infusion this week. PSA was dropping fast (down to 185) up until the supply issues struck; he missed one complete cycle which was stuck on the end. Since then, PSA has dropped to around 345 at the 5 week mark following the infusion
Spouse has had a wonderful run on Lu177. Is now about to get his final infusion this week. PSA was dropping fast (down to 185) up until the supply issues struck; he missed one complete cycle which was stuck on the end. Since then, PSA has dropped to around 345 at the 5 week mark following the infusion
Biobro
in
Advanced Prostate Cancer
1 year ago
next treatment Doxil
hello everyone In July 1st 2022 I enrolled in a clinical trial with AZD (Faslodex in pills) and Capivasertib. Unfortunately last PET scan is showing progression on my liver. Options are Everolimus or Abemaciclib and IV chemo: Doxil. My onc strongly recommends Doxil. Obviously I am scared of IV
hello everyone In July 1st 2022 I enrolled in a clinical trial with AZD (Faslodex in pills) and Capivasertib. Unfortunately last PET scan is showing progression on my liver. Options are Everolimus or Abemaciclib and IV chemo: Doxil. My onc strongly recommends Doxil. Obviously I am scared of IV
Lna21
in
SHARE Metastatic Breast Cancer
1 year ago
Running out of road....
... I've got a consultation with my oncologist tomorrow. I've huge respect for him - he's been with me throughout this 'journey' from initial diagnosis 14 yrs ago. But, he tends to follow SOC (although will support me in straying from the path. I'd welcome some suggestions before I talk to him. My situation
... I've got a consultation with my oncologist tomorrow. I've huge respect for him - he's been with me throughout this 'journey' from initial diagnosis 14 yrs ago. But, he tends to follow SOC (although will support me in straying from the path. I'd welcome some suggestions before I talk to him. My situation
CrocodileShoes
in
Advanced Prostate Cancer
1 year ago
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