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Paroxysmal atrial fibrillation
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Current SUPERNOVA Clinical Trial for Reformulated EVUSHELD for preventing COVID-19 infection for immune-impaired individuals
A Phase II sub-study of SUPERNOVA clinical trial (2023) is currently operating to test the efficacy and safety of AZD3152 as a component of a reformulated version of EVUSHELD mAbs prophylaxis for immune-impaired individuals who cannot mount antibody responses to COVID-19 vaccines. Study Understanding
A Phase II sub-study of SUPERNOVA clinical trial (2023) is currently operating to test the efficacy and safety of AZD3152 as a component of a reformulated version of EVUSHELD mAbs prophylaxis for immune-impaired individuals who cannot mount antibody responses to COVID-19 vaccines. Study Understanding
Classicaljazz
in
CLL Support
6 months ago
need some guidance, feeling desperate..
My husband has advanced, Stage IV castration resistant prostate cancer. When he was diagnosed in May 2022 his PSA was 4700, he has widespread bone metastases. He stopped responding to Docetaxel, Pluvicto and is now not responding to Cabazitaxel, his PSA is now over 700. He is feeling good, no pain
My husband has advanced, Stage IV castration resistant prostate cancer. When he was diagnosed in May 2022 his PSA was 4700, he has widespread bone metastases. He stopped responding to Docetaxel, Pluvicto and is now not responding to Cabazitaxel, his PSA is now over 700. He is feeling good, no pain
Kiki27
in
Advanced Prostate Cancer
6 months ago
Taste Issues and finger neuropathy on Xtandi( enzalutamide) ?
In order to participate in a clinical trial (FOR46 at UCSF) I had to switch from Nubeqa (darolutamide) to enzalutamide. Previously on abiraterone. Did really well on both medications. Now 4 months on enzalutamide and my 5th research infusion, I'm experiencing some side effects. Trying to determine
In order to participate in a clinical trial (FOR46 at UCSF) I had to switch from Nubeqa (darolutamide) to enzalutamide. Previously on abiraterone. Did really well on both medications. Now 4 months on enzalutamide and my 5th research infusion, I'm experiencing some side effects. Trying to determine
bandgeek
in
Advanced Prostate Cancer
6 months ago
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AF Initial symptoms but tests unhelpful
My first choice gp suspected
Paroxysmal
atrial
fibrillation
and helpfully ordered ecg, blood tests and X-ray. I have had to see another gp for results which show nothing, yet I still have symptoms. Waiting for a longer- test of heartbeat (not sure the name or how long I’ll wait).
My first choice gp suspected
Paroxysmal
atrial
fibrillation
and helpfully ordered ecg, blood tests and X-ray. I have had to see another gp for results which show nothing, yet I still have symptoms. Waiting for a longer- test of heartbeat (not sure the name or how long I’ll wait).
Fellini
in
AF Association
2 years ago
Randomised clinical trial - prophylactic radiation therapy to asymptomatic bone metastases improved survival
Prophylactic Radiation Therapy Versus Standard of Care for Patients With High-Risk Asymptomatic Bone Metastases: A Multicenter, Randomized Phase II Clinical Trial Authors: Erin F. Gillespie, MD, MPH https://orcid.org/0000-0002-1386-1542 gillespe@mskcc.org, Joanna C. Yang, MD, MPH, Noah J. Mathis, BA
Prophylactic Radiation Therapy Versus Standard of Care for Patients With High-Risk Asymptomatic Bone Metastases: A Multicenter, Randomized Phase II Clinical Trial Authors: Erin F. Gillespie, MD, MPH https://orcid.org/0000-0002-1386-1542 gillespe@mskcc.org, Joanna C. Yang, MD, MPH, Noah J. Mathis, BA
Graham49
in
Advanced Prostate Cancer
6 months ago
Amazing
I just want to say that yesterday was an amazing day. We all have good and bad. My pacemaker was done on the 27th and I have had some good days and not so good. Yesterday I woke up really early and had energy all day. I walked with my dog around our property of almost an acre. A few weeks ago I could
I just want to say that yesterday was an amazing day. We all have good and bad. My pacemaker was done on the 27th and I have had some good days and not so good. Yesterday I woke up really early and had energy all day. I walked with my dog around our property of almost an acre. A few weeks ago I could
DawnTX
in
AF Association
1 year ago
First afib incident since dx 3 years ago
Have been taking Diltiazem 180 mg daily for 3 years without having any tachycardia till now. Days with HR 130-140 bpm. I think that it was caused by the stress due to the severe storm that caused many blowdowns (one on my house) loss of power, internet, and downed phone lines. Lots of worry, shoveling
Have been taking Diltiazem 180 mg daily for 3 years without having any tachycardia till now. Days with HR 130-140 bpm. I think that it was caused by the stress due to the severe storm that caused many blowdowns (one on my house) loss of power, internet, and downed phone lines. Lots of worry, shoveling
Bikedennis
in
AF Association
1 year ago
My Home ECG reading? AF or Ectopics
As you may know from my recent posts Ive been having aweful time past 5 days with ectopics and palpitations. Ive been recording them and the photo attached is the typical of what Im having every minute of the day. I think overnight I went into sinus rhythm - I found a 2mg of Diazepam from years ago
As you may know from my recent posts Ive been having aweful time past 5 days with ectopics and palpitations. Ive been recording them and the photo attached is the typical of what Im having every minute of the day. I think overnight I went into sinus rhythm - I found a 2mg of Diazepam from years ago
wendy6
in
AF Association
1 year ago
Acalabrutinib and Skin Cancers
I began taking Acalabrutinib three years ago as a participant in a clinical trial. I have enjoyed excellent success. However, recently I began breaking out in skin cancer lesions on various parts of the body. Particularly on my legs, ankles and feet. I have been prone to sun damaged skin converting
I began taking Acalabrutinib three years ago as a participant in a clinical trial. I have enjoyed excellent success. However, recently I began breaking out in skin cancer lesions on various parts of the body. Particularly on my legs, ankles and feet. I have been prone to sun damaged skin converting
spanish36
in
CLL Support
6 months ago
My Research into thyroid tissue growing back after TT🤔
I had full TT in 2019 due to graves thyrotoxicosis, as some members will know I had a US scan performed in 2022 for a Parathyroid adenoma, the surgeon noted a nodule of 6/7 on the left side, but nothing else.I went on to have the F18 pet scan to determine what the nodule was, but a mass of (14x7x21)
I had full TT in 2019 due to graves thyrotoxicosis, as some members will know I had a US scan performed in 2022 for a Parathyroid adenoma, the surgeon noted a nodule of 6/7 on the left side, but nothing else.I went on to have the F18 pet scan to determine what the nodule was, but a mass of (14x7x21)
birkie
in
Thyroid UK
6 months ago
Whatever happened to the pill in the pocket?
I have had paroxysmal AF for 10 years. When it happens I never know what to do, especially as I live alone. If it goes on for more than about 12 hours I seek help from 111, they send the paramedics who do an ECG and confirm the problem, but by the time I get to A&E it stops! I have asked for advice on
I have had paroxysmal AF for 10 years. When it happens I never know what to do, especially as I live alone. If it goes on for more than about 12 hours I seek help from 111, they send the paramedics who do an ECG and confirm the problem, but by the time I get to A&E it stops! I have asked for advice on
Singingforever
in
Atrial Fibrillation Support
1 year ago
Amitriptyline - ATLANTIS clinical trial
Can anyone explain to me why money has been spent on a clinical trial for amitriptyline in relation to IBS, when this has been prescribed for IBS and specifically IBS pain for years already?: https://www.theibsnetwork.org/blog/irritable-bowel-syndrome-relieved-by-low-dose-amitriptyline/ When investigating
Can anyone explain to me why money has been spent on a clinical trial for amitriptyline in relation to IBS, when this has been prescribed for IBS and specifically IBS pain for years already?: https://www.theibsnetwork.org/blog/irritable-bowel-syndrome-relieved-by-low-dose-amitriptyline/ When investigating
xjrs
in
IBS Network
6 months ago
post partum thyroiditis
Long story short(ish)- in October I had a baby, in December I was diagnosed with post partum thyroiditis with an over active thyroid(tsh <0.01) then levelled out a few weeks later before going underactive (tsh 11) around March time. My symptoms came as the results went out of range so even though they
Long story short(ish)- in October I had a baby, in December I was diagnosed with post partum thyroiditis with an over active thyroid(tsh <0.01) then levelled out a few weeks later before going underactive (tsh 11) around March time. My symptoms came as the results went out of range so even though they
Courtney96
in
Thyroid UK
1 year ago
Post Ablation AFib episodes .. frustrating
I had my Ablation about 3 1/2 months ago. I did not have any AFib recurrence that I'm aware of during the blanking period and was taking a beta blocker, a rhythm med, and anticoagulant. Was a bit rougher blanking than expected with early fever, regular headaches and low energy etc but no AFib! Hooray
I had my Ablation about 3 1/2 months ago. I did not have any AFib recurrence that I'm aware of during the blanking period and was taking a beta blocker, a rhythm med, and anticoagulant. Was a bit rougher blanking than expected with early fever, regular headaches and low energy etc but no AFib! Hooray
Banquo
in
Atrial Fibrillation Support
1 year ago
High-Dose Vitamin B1 / Thiamine and Fat Soluble Benfotiamine Form
I am reposting a reply to the Vitamin B1 thread as I noticed a search on HealthUnlocked for Benfotiamine doesn't list the thread for Vitamin B1 and the information I posted doesn't fit in one reply. I'm not giving medical advice but I know a lot of people here are open to trying things and watch if
I am reposting a reply to the Vitamin B1 thread as I noticed a search on HealthUnlocked for Benfotiamine doesn't list the thread for Vitamin B1 and the information I posted doesn't fit in one reply. I'm not giving medical advice but I know a lot of people here are open to trying things and watch if
jazj
in
Advanced Prostate Cancer
6 months ago
SRBT and EXTEND trial
Does anybody have the full text of EXTEND trial results from June 2023? (my payment attempt is rejected and the tips on how to get a study without cost doesn´t work) https://pubmed.ncbi.nlm.nih.gov/37022702/ Addition of Metastasis-Directed Therapy to Intermittent Hormone Therapy for Oligometastatic
Does anybody have the full text of EXTEND trial results from June 2023? (my payment attempt is rejected and the tips on how to get a study without cost doesn´t work) https://pubmed.ncbi.nlm.nih.gov/37022702/ Addition of Metastasis-Directed Therapy to Intermittent Hormone Therapy for Oligometastatic
Purple-Bike
in
Advanced Prostate Cancer
6 months ago
New Malecare AI Assisted PCa Search
For users of the $20 per month ChatGPT account Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator
For users of the $20 per month ChatGPT account Malecare is the world's first patient advocacy organization to develop and publish GPT's in Open AI's Chat GPT (app) Marketplace! Indeed, we have five apps published! Here they are: Clinical Trial Navigator -- https://chat.openai.com/g/g-rl6cvjdon-clinical-trial-navigator
dmt1121
in
Advanced Prostate Cancer
6 months ago
Experiences and Research on Managing PV with Autophagy, Intermittent Fasting, and Vegan Diet
Hello everyone, I am reaching out to the community for insights and personal experiences regarding the management of Polycythemia Vera (PV), particularly in relation to autophagy, intermittent fasting, and vegan diets. [u]
Autophagy and PV
[/u]: Has anyone with PV experimented with or has
Hello everyone, I am reaching out to the community for insights and personal experiences regarding the management of Polycythemia Vera (PV), particularly in relation to autophagy, intermittent fasting, and vegan diets. [u]
Autophagy and PV
[/u]: Has anyone with PV experimented with or has
skakulec2
in
MPN Voice
6 months ago
Does your school have access to a defibrillator?
Arrhythmia Alliance supports and recognises the vital role an AED can play in saving lives and launched their ‘Defibs in School’ program: https://heartrhythmalliance.org/aa/uk/programs/defibs-save-lives/defibs-save-lives-campaigns/defibs-in-schools If you, or a loved one would like support or advice
Arrhythmia Alliance supports and recognises the vital role an AED can play in saving lives and launched their ‘Defibs in School’ program: https://heartrhythmalliance.org/aa/uk/programs/defibs-save-lives/defibs-save-lives-campaigns/defibs-in-schools If you, or a loved one would like support or advice
TracyAdmin
ArrhythmiaAlliance
in
Arrhythmia Alliance
1 year ago
Does your school have access to a defibrillator?
Arrhythmia Alliance supports and recognises the vital role an AED can play in saving lives and launched their ‘Defibs in School’ program: https://heartrhythmalliance.org/aa/uk/programs/defibs-save-lives/defibs-save-lives-campaigns/defibs-in-schools If you, or a loved one would like support or advice
Arrhythmia Alliance supports and recognises the vital role an AED can play in saving lives and launched their ‘Defibs in School’ program: https://heartrhythmalliance.org/aa/uk/programs/defibs-save-lives/defibs-save-lives-campaigns/defibs-in-schools If you, or a loved one would like support or advice
TracyAdmin
Partner
in
Arrhythmia Alliance Heart Failure
1 year ago
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