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Paroxysmal atrial fibrillation
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Information on clinical trial of large doses of B12?
Someone wrote on this site about a clinical trial of B12 being given in large doses and that it was promising. I can not find the post nor can I find a report from the study. If someone happens to be able to point me toward it that would be appreciated.
Someone wrote on this site about a clinical trial of B12 being given in large doses and that it was promising. I can not find the post nor can I find a report from the study. If someone happens to be able to point me toward it that would be appreciated.
WIZARD6787
in
Pernicious Anaemia Society
1 year ago
Post Partial Thyroidectomy Symptoms
Hi all! I had a partial thyroidectomy back in July as I had a benign cyst on the left side and I’ve been feeling worse and worse as of late. Terrible brain fog, tiredness, losing my hair, gaining weight, mood swings, awful skin problems, puffiness in my hands, fingers and eyes and horrific lower back
Hi all! I had a partial thyroidectomy back in July as I had a benign cyst on the left side and I’ve been feeling worse and worse as of late. Terrible brain fog, tiredness, losing my hair, gaining weight, mood swings, awful skin problems, puffiness in my hands, fingers and eyes and horrific lower back
NiaJayne
in
Thyroid UK
1 year ago
Ectopics and Digestive Difficulties
I have been dealing with diarrhea recently which I think is being causing by a Turmeric/Curcumin supplement I started taking. My ectopic heartbeats, probably mostly Premature Atrial Contractions (PACs), have started to flare up again. So I stopped taking the Turmeric/Curcumin supplement. Two years ago
I have been dealing with diarrhea recently which I think is being causing by a Turmeric/Curcumin supplement I started taking. My ectopic heartbeats, probably mostly Premature Atrial Contractions (PACs), have started to flare up again. So I stopped taking the Turmeric/Curcumin supplement. Two years ago
mcpacs
in
Atrial Fibrillation Support
2 years ago
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clinical trial RBN-2397-19-001
Any thoughts on RBN 2397 an oral PARP7 inhibitor? Husband is out of options so considering this trial. Thank you for your input.
Any thoughts on RBN 2397 an oral PARP7 inhibitor? Husband is out of options so considering this trial. Thank you for your input.
Cynthgob
in
Advanced Prostate Cancer
1 year ago
BAT in Argentina
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9934967/ Results A total of 21 asymptomatic patients with mCRPC were included. There was a median of two lines before BAT, with nine patients (42.8%) receiving three or more lines, and 13 patients (61.9%) receiving chemotherapy previously. Previous lines
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9934967/ Results A total of 21 asymptomatic patients with mCRPC were included. There was a median of two lines before BAT, with nine patients (42.8%) receiving three or more lines, and 13 patients (61.9%) receiving chemotherapy previously. Previous lines
pjoshea13
in
Fight Prostate Cancer
1 year ago
A shared story of SCA3
Bill Moore & his daughter Jessica Oberlin, two members of NAF, recently shared their stories of living with SCA3 as part of a feature for the Critical Path to Therapeutics for the Ataxias (CPTA). The CPTA aims to optimize clinical trials for inherited Ataxias. Impact stories like theirs can help researchers
Bill Moore & his daughter Jessica Oberlin, two members of NAF, recently shared their stories of living with SCA3 as part of a feature for the Critical Path to Therapeutics for the Ataxias (CPTA). The CPTA aims to optimize clinical trials for inherited Ataxias. Impact stories like theirs can help researchers
wobblybee
in
Ataxia UK
1 year ago
Supporting Children Suffering from Narcolepsy
This week, we hear from FACES of Narcolepsy founder Erin Carey's - this is a truly inspiring story of love, support and fearless devotion. -------- I created FACES of Narcolepsy in 2017 when I joined forces with four other moms from across the U.S. to fill a need in the pediatric narcolepsy community
This week, we hear from FACES of Narcolepsy founder Erin Carey's - this is a truly inspiring story of love, support and fearless devotion. -------- I created FACES of Narcolepsy in 2017 when I joined forces with four other moms from across the U.S. to fill a need in the pediatric narcolepsy community
SaskiaHU
HealthUnlocked
in
HealthUnlocked Blog
1 year ago
Cyclist and Runner Exercising with Persistent Atrial Fibrillation - also considering an ablation
Hi – I originally posted the following (or at least a similar version) through the BHF link but didn’t get many replies. I would really like to hear from anyone who is a keen cyclist and/or runner who has developed persistent atrial fibrillation (AF) and either decided to live with it rather than try
Hi – I originally posted the following (or at least a similar version) through the BHF link but didn’t get many replies. I would really like to hear from anyone who is a keen cyclist and/or runner who has developed persistent atrial fibrillation (AF) and either decided to live with it rather than try
FindingCaradoc
in
Atrial Fibrillation Support
2 years ago
KEYNOTE-B96 Clinical trial
Hello, ladies. Is anyone on the KEYNOTE-B96? It's weekly Taxol plus Avastin plus Pembrolizumab/Placebo for platinum-resistant recurrent ovarian cancer.
Hello, ladies. Is anyone on the KEYNOTE-B96? It's weekly Taxol plus Avastin plus Pembrolizumab/Placebo for platinum-resistant recurrent ovarian cancer.
Vilinew
in
My Ovacome
1 year ago
ORION -4
Wondering has anybody out there being offered the chance to do the clinical trial for a new drug called Inclisiran. It may be the answer to lower LDL cholesterol. I have been offered the chance and took up the offer anything to help.?
Wondering has anybody out there being offered the chance to do the clinical trial for a new drug called Inclisiran. It may be the answer to lower LDL cholesterol. I have been offered the chance and took up the offer anything to help.?
Sizzlerman
in
British Heart Foundation
1 year ago
Atrial fibrillation diagnosis
Hello all! thyroid levels appear to be coming down for Graves and symptoms subsiding!! Then yesterday felt really unwell high heart rate for 12 hours of Atrial fibrillation Could this be caused by Graves? Thanks in advance for any input. Just when you think life is getting better!!
Hello all! thyroid levels appear to be coming down for Graves and symptoms subsiding!! Then yesterday felt really unwell high heart rate for 12 hours of Atrial fibrillation Could this be caused by Graves? Thanks in advance for any input. Just when you think life is getting better!!
Michellear
in
Thyroid UK
2 years ago
Interesting
Clinical Review of ropeginterferon alfa-2b Suggests Amended Dosing Schedule May Support Improved Clinical Outcomes in Polycythemia Vera Review of studies published in Frontiers in Oncology highlights dosing considerations that may help more patients achieve earlier complete hematological response
Clinical Review of ropeginterferon alfa-2b Suggests Amended Dosing Schedule May Support Improved Clinical Outcomes in Polycythemia Vera Review of studies published in Frontiers in Oncology highlights dosing considerations that may help more patients achieve earlier complete hematological response
wateron
in
MPN Voice
1 year ago
Better measures of disease severity needed in lupus, study says
Experts urge change in ways of assessing clinical trial outcomes by Marisa Wexler, MS | February 16, 2023
New measures are needed to assess disease severity in lupus in clinical trials, a study highlights.
One important goal in developing such measures is to include patient-reported outcomes
Experts urge change in ways of assessing clinical trial outcomes by Marisa Wexler, MS | February 16, 2023
New measures are needed to assess disease severity in lupus in clinical trials, a study highlights.
One important goal in developing such measures is to include patient-reported outcomes
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
1 year ago
Are there any clinical trials currently using mRNA technologies to fight PC?
Still in the fight 13 years out using SBRT for tumors and Lupron and Xtandi for system wide control currently. Just wondering if there are any trials out there using mRNA technologies to harness the human immune system in the fight. Seems like a logical next step.
Still in the fight 13 years out using SBRT for tumors and Lupron and Xtandi for system wide control currently. Just wondering if there are any trials out there using mRNA technologies to harness the human immune system in the fight. Seems like a logical next step.
Rocketman1960
in
Advanced Prostate Cancer
1 year ago
What do you wish people knew about pancreatitis? | Rare Disease Day
This #RareDiseaseDay, bring awareness to chronic pancreatitis and inspire others to help find a cure by showing off your purple stripes! Leading up to #RareDiseaseDay, we'll be posting questions on our social media accounts to help others learn about the disease, starting with the question: What do you
This #RareDiseaseDay, bring awareness to chronic pancreatitis and inspire others to help find a cure by showing off your purple stripes! Leading up to #RareDiseaseDay, we'll be posting questions on our social media accounts to help others learn about the disease, starting with the question: What do you
Skye_MC
Administrator
in
Chronic Pancreatitis Support
1 year ago
Professor Kristien Boelaert appointed President-Elect of the British Thyroid Association
It might be of interest that the current President, Professor Simon Pearce (Newcastle), will be replaced sometime soon. [i]
Professor Kristien Boelaert appointed President-Elect of the British Thyroid Association
[/i] [i][/i] [i]A member of the BTA for more than 20 years, Professor Boelaert
It might be of interest that the current President, Professor Simon Pearce (Newcastle), will be replaced sometime soon. [i]
Professor Kristien Boelaert appointed President-Elect of the British Thyroid Association
[/i] [i][/i] [i]A member of the BTA for more than 20 years, Professor Boelaert
helvella
Thyroid UK
in
Thyroid UK
1 year ago
FILSPARI (sparsentan)
Hi All - Sorry if this has already been posted, but below is a copy and paste of an email I received from NephCure. Dear NephCure friends, Today marks an incredibly promising day for the rare kidney disease (RKD) community: the FDA has announced that the drug FILSPARI (sparsentan) has been granted
Hi All - Sorry if this has already been posted, but below is a copy and paste of an email I received from NephCure. Dear NephCure friends, Today marks an incredibly promising day for the rare kidney disease (RKD) community: the FDA has announced that the drug FILSPARI (sparsentan) has been granted
Boulder98
in
Kidney Disease
1 year ago
😞 IT’S BACK
after finally starting to do well following my procedure the end of April I am sad to say a fib is back. I had a wonderful month of breathing and being active and then last Thursday something happened I don’t know a lot. PR 145 and the lowest it has been cents is in the 120s. I kept waiting hoping for
after finally starting to do well following my procedure the end of April I am sad to say a fib is back. I had a wonderful month of breathing and being active and then last Thursday something happened I don’t know a lot. PR 145 and the lowest it has been cents is in the 120s. I kept waiting hoping for
DawnTX
in
AF Association
2 years ago
Beat Prostate Cancer
I was reading some clinical trial data the other day. To summarize, the treatment being tested did not pass muster. It worked marginally better than standard of care but not well enough to change standard of care. The irony of the study concerned overall survival and progression free survival. The control
I was reading some clinical trial data the other day. To summarize, the treatment being tested did not pass muster. It worked marginally better than standard of care but not well enough to change standard of care. The irony of the study concerned overall survival and progression free survival. The control
Todd1963
in
Advanced Prostate Cancer
1 year ago
A PRACTICAL GUIDE TO UNDERSTANDING KAPLAN-MEIER CURVES
If you don't want to get a headache or confused (like me) don't read this post. I read it because I'm a masochist. And the reason I put it here is because I'm a sadist.👹👹 On the topic - most of us who like to read publications and dig deeper (according to our capabilities) constantly encounter data
If you don't want to get a headache or confused (like me) don't read this post. I read it because I'm a masochist. And the reason I put it here is because I'm a sadist.👹👹 On the topic - most of us who like to read publications and dig deeper (according to our capabilities) constantly encounter data
Yalokin
in
CLL Support
2 years ago
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