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11 months on.
Hiya,I was in a coma in jan-march for mixed overdose, CLABSI, cellulitis, gangrene to left thigh, sepsis, multi organ failure, end stage renal failure/on diyalsis, ventilation associated pneumonia and the list goes on. I came out of the hospital on 5th may with a walking frame and still 0 ability to
Hiya,I was in a coma in jan-march for mixed overdose, CLABSI, cellulitis, gangrene to left thigh, sepsis, multi organ failure, end stage renal failure/on diyalsis, ventilation associated pneumonia and the list goes on. I came out of the hospital on 5th may with a walking frame and still 0 ability to
Jjones210519
in
ICUsteps
6 months ago
What would be your Low Dose Naltrexone (LDN) dosing recommendation for long Covid and Mast Cell Activation?
What would be your Low Dose Naltrexone (LDN) dosing recommendation for long Covid and Mast Cell Activation? Answered by Sebastian Denison, RPh https://youtu.be/w5RLJy34ArU
What would be your Low Dose Naltrexone (LDN) dosing recommendation for long Covid and Mast Cell Activation? Answered by Sebastian Denison, RPh https://youtu.be/w5RLJy34ArU
Shewulf
Administrator
in
LDN Research Trust
4 months ago
Raised Blood Pressure after Covid
Not sure if this is the right Forum to post this on but I wondered if anyone who has high blood pressure and has had Covid has found that their blood pressure readings have risen since having it. I had an appointment with my Cardiologist this morning and showed him my readings over the last month orso
Not sure if this is the right Forum to post this on but I wondered if anyone who has high blood pressure and has had Covid has found that their blood pressure readings have risen since having it. I had an appointment with my Cardiologist this morning and showed him my readings over the last month orso
Jomaur
in
Atrial Fibrillation Support
4 months ago
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Mildly Burning After Withdrawing From Neupro
Hi All, As I have posted before, recently I withdrew from Neupro with the help of Buprenorphine. It has been 6 weeks now without any dopamine agonist and my experience has been overwhelmingly positive. Unfortunately, issues have come up recently that I thought someone might be able shine some light
Hi All, As I have posted before, recently I withdrew from Neupro with the help of Buprenorphine. It has been 6 weeks now without any dopamine agonist and my experience has been overwhelmingly positive. Unfortunately, issues have come up recently that I thought someone might be able shine some light
RiversW
in
Restless Legs Syndrome
2 months ago
Finally, we may have found the smoking gun.
We had been able to put it aside, and the hospital agreed they had made a mistake when they said Margaret had Cirrhosis. And was, in fact, NASH with Grade 1 fibrosis. Still, NASH was a surprise, as Magaret was a nondrinker, not obese, and had no health conditions that would even be considered for
We had been able to put it aside, and the hospital agreed they had made a mistake when they said Margaret had Cirrhosis. And was, in fact, NASH with Grade 1 fibrosis. Still, NASH was a surprise, as Magaret was a nondrinker, not obese, and had no health conditions that would even be considered for
ceward204
in
British Liver Trust
4 months ago
Buprenorphine transition from patch to tablets
Hey Everyone With the help of a 20 mg 7 day Buprenorphine patch, I have been free of any dopamine agonist for almost 3 months. But as we all know, the patch does not last 7 days, 5 if you are lucky. Consequently, I change it every 5 days and have had pretty good results. Initially, I would have moderate
Hey Everyone With the help of a 20 mg 7 day Buprenorphine patch, I have been free of any dopamine agonist for almost 3 months. But as we all know, the patch does not last 7 days, 5 if you are lucky. Consequently, I change it every 5 days and have had pretty good results. Initially, I would have moderate
RiversW
in
Restless Legs Syndrome
2 months ago
still not 100%
I don’t have a fever and my throat only hurts when I first wake up. Then it goes away. I have so much post nasal drip so I think that’s what’s making it hurt. I was out of work for two days due to my colonoscopy, and tomorrow is looking like it’ll be a snow day due to a huge storm. I am going to try
I don’t have a fever and my throat only hurts when I first wake up. Then it goes away. I have so much post nasal drip so I think that’s what’s making it hurt. I was out of work for two days due to my colonoscopy, and tomorrow is looking like it’ll be a snow day due to a huge storm. I am going to try
Daisy425
in
Anxiety and Depression Support
4 months ago
Covid Vaccines - Can you still book them?
Hi all, something that has slipped my mind but it’s been 6 months since I had my last Covid Vaccine. Are the Immune Deficient still eligible? If so how do we do it, is it via 119, or do we go to a walk in or are we referred (I hope not GPs hopeless) the online service doesn't allow bookings any more
Hi all, something that has slipped my mind but it’s been 6 months since I had my last Covid Vaccine. Are the Immune Deficient still eligible? If so how do we do it, is it via 119, or do we go to a walk in or are we referred (I hope not GPs hopeless) the online service doesn't allow bookings any more
Investigator1
in
Vasculitis UK
4 months ago
Mask Wearing
It is the same here in Australia. You don’t have to stay home with Covid. I think it’s very unfair and irresponsible. I wear a mask in supermarkets, doctors, pharmacies. I don’t go to crowded places anymore- such as concerts etc. I missed out on Paul McCartney when he was out here. Would loved to have
It is the same here in Australia. You don’t have to stay home with Covid. I think it’s very unfair and irresponsible. I wear a mask in supermarkets, doctors, pharmacies. I don’t go to crowded places anymore- such as concerts etc. I missed out on Paul McCartney when he was out here. Would loved to have
Doggo2
in
NRAS
4 months ago
Bechets support pip
Hi I was wondering if anybody is on pip or had won there win appeal.I have severe problems with my mobility I keep getting flare up in my legs and feet they swell up and cause Me inflammation and I find it difficult to do anything as they hurt. And I cannot bare pain or do anything everything is a struggle
Hi I was wondering if anybody is on pip or had won there win appeal.I have severe problems with my mobility I keep getting flare up in my legs and feet they swell up and cause Me inflammation and I find it difficult to do anything as they hurt. And I cannot bare pain or do anything everything is a struggle
Tibz
in
Behçet's UK
2 months ago
Covid restless leg
ever since I was diagnosed with Covid 13 days ago I have been in extreme pain and restless leg so bad that I can’t sleep I can’t walk nothing helps I’m in constant pain I haven’t even been able to see my child cause I’m so miserable doctors have ran ever test n everything comes back normal they have
ever since I was diagnosed with Covid 13 days ago I have been in extreme pain and restless leg so bad that I can’t sleep I can’t walk nothing helps I’m in constant pain I haven’t even been able to see my child cause I’m so miserable doctors have ran ever test n everything comes back normal they have
Ciciskinner
in
Restless Legs Syndrome
4 months ago
Stopped Methotrexate being screened for Adalimumab
So after being on Methotrexate (injections) for 2 years since diagnosis and feeling dreadful on it (swollen fingers, nausea, constant headaches, depression) I last injected on 18th December 2023. Needless to say my RA is raging in every joint now! Just had a steroid injection and being screened for
So after being on Methotrexate (injections) for 2 years since diagnosis and feeling dreadful on it (swollen fingers, nausea, constant headaches, depression) I last injected on 18th December 2023. Needless to say my RA is raging in every joint now! Just had a steroid injection and being screened for
Amandaazz
in
NRAS
5 months ago
scared
I slept for about 4 hours. My throat doesn’t hurt anymore but I still don’t feel amazing. I took my temp and it’s 99.1 which is causing a lot of anxiety. I did sleep under blankets and I am still under a few blankets, so maybe that’s why my temp is elevated. I’m just really anxious I hate feeling this
I slept for about 4 hours. My throat doesn’t hurt anymore but I still don’t feel amazing. I took my temp and it’s 99.1 which is causing a lot of anxiety. I did sleep under blankets and I am still under a few blankets, so maybe that’s why my temp is elevated. I’m just really anxious I hate feeling this
Daisy425
in
Anxiety and Depression Support
4 months ago
covid and Thyroid tests
I have just tested positive for Covid. I am waiting for a Blue Horizon TFT kit. Can anyone advise how long I should wait before taking blood? Thanks
I have just tested positive for Covid. I am waiting for a Blue Horizon TFT kit. Can anyone advise how long I should wait before taking blood? Thanks
WeetabixSnacker
in
Thyroid UK
4 months ago
Some encouragement. If you’re looking for that.
disclaimer I will be going into detail so if you might be triggered know that it does end well. I started coming here around 2016. Anxiety had found me and I completely lost it. I let it take over and ended up spiraling for a few years. I would post how I was feeling, as many do and just hope that
disclaimer I will be going into detail so if you might be triggered know that it does end well. I started coming here around 2016. Anxiety had found me and I completely lost it. I let it take over and ended up spiraling for a few years. I would post how I was feeling, as many do and just hope that
Christory77
in
Anxiety Support
4 months ago
Latest COVID-19 guide for immunocompromised blood cancer patients from the International COVID-19 Blood Cancer Coalition (ICBCC)
The latest Patient Impact Statement has been released by the International COVID-19 Blood Cancer Coalition (ICBCC). Titled [i]"Navigating a post-pandemic world: A guide for immunocompromised blood cancer patients"[/i], it aims [i]"to help you navigate and manage the risks arising from the combination
The latest Patient Impact Statement has been released by the International COVID-19 Blood Cancer Coalition (ICBCC). Titled [i]"Navigating a post-pandemic world: A guide for immunocompromised blood cancer patients"[/i], it aims [i]"to help you navigate and manage the risks arising from the combination
CLLerinOz
Administrator
in
CLL Support
4 months ago
arrhythmia and the flu and Covid vaccine
Hi all! I had a physical on Wednesday and since I hadn’t received my flu and Covid vaccine yet this year went ahead and got them. I came home and did a workout and felt fine until evening when fever and chills hit along with some mild sporadic heart arrhythmia. I took it easy the next couple days and
Hi all! I had a physical on Wednesday and since I hadn’t received my flu and Covid vaccine yet this year went ahead and got them. I came home and did a workout and felt fine until evening when fever and chills hit along with some mild sporadic heart arrhythmia. I took it easy the next couple days and
CoCoLuna11
in
CLL Support
4 months ago
Septic Arthritis
Evening all, Has anyone experienced Septic Arthritis due to RA? What were your symptoms? I'm having the worst pain and swelling in my left knee that I've ever had. I had an emergency appt with Rheumatology this morning who drained fluid from my knee and sent off for testing as it was cloudy? They also
Evening all, Has anyone experienced Septic Arthritis due to RA? What were your symptoms? I'm having the worst pain and swelling in my left knee that I've ever had. I had an emergency appt with Rheumatology this morning who drained fluid from my knee and sent off for testing as it was cloudy? They also
Mummyto2x
in
NRAS
5 months ago
Septic Arthritis
Evening all, Has anyone experienced Septic Arthritis due to RA? What were your symptoms? I'm having the worst pain and swelling in my left knee that I've ever had. I had an emergency appt with Rheumatology this morning who drained fluid from my knee and sent off for testing as it was cloudy? They also
Evening all, Has anyone experienced Septic Arthritis due to RA? What were your symptoms? I'm having the worst pain and swelling in my left knee that I've ever had. I had an emergency appt with Rheumatology this morning who drained fluid from my knee and sent off for testing as it was cloudy? They also
Mummyto2x
in
FieryBones - RA Community
5 months ago
who cares for the carer?
Hello lovely people. In July 2023 i found myself needing to go the A and E as i was breathless and my GP sent me there for a chest xray but i ended up calling a ambulance and when they took my HR is was 200 beats a min i was taken straight in to the resuscitation area at the RSCH. I had no chest pains
Hello lovely people. In July 2023 i found myself needing to go the A and E as i was breathless and my GP sent me there for a chest xray but i ended up calling a ambulance and when they took my HR is was 200 beats a min i was taken straight in to the resuscitation area at the RSCH. I had no chest pains
Sindyblue
in
Atrial Fibrillation Support
4 months ago
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