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Reintroduce myself for new members
Hello everyone! Let me introduce myself. My name is Donna Boll. I have been given the wonderful opportunity from The PBC Foundation to facilitate your online support group, Health Unlocked. For the last 6 years I have facilitated an amazing online PBC support group for The American Liver Foundation
Hello everyone! Let me introduce myself. My name is Donna Boll. I have been given the wonderful opportunity from The PBC Foundation to facilitate your online support group, Health Unlocked. For the last 6 years I have facilitated an amazing online PBC support group for The American Liver Foundation
DonnaBoll
Administrator
in
PBC Foundation
7 months ago
Is coping with arrhythmia... "strong" or "weak"?
I posted the following in a different thread, edited a little for this post to make more sense. I felt some might not have read it there and might be interested in replying. I wonder what others' views are on "being strong" when faced with illness, well - arrhythmias in our case (for some daily, maybe
I posted the following in a different thread, edited a little for this post to make more sense. I felt some might not have read it there and might be interested in replying. I wonder what others' views are on "being strong" when faced with illness, well - arrhythmias in our case (for some daily, maybe
Ppiman
in
Atrial Fibrillation Support
4 months ago
Symptoms after cardioversion
It's nearly two weeks since I had a successful cardioversion after being in permanent AF following an ablation ten weeks ago. I'm on 5m bisprolol and 200mg amiodarone daily. I'm feeling much better for being in NSR and able to do a lot more (I was very symptomatic in AF). I do still get slightly breathless
It's nearly two weeks since I had a successful cardioversion after being in permanent AF following an ablation ten weeks ago. I'm on 5m bisprolol and 200mg amiodarone daily. I'm feeling much better for being in NSR and able to do a lot more (I was very symptomatic in AF). I do still get slightly breathless
JoDogBlue
in
Atrial Fibrillation Support
4 months ago
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Road blocks
Hi all,I thought I'd update you all. I went into hospital in the 20/02 to have my second last chemo before the BMT. Upon admission, I had a fever. After 4 days of fevers and a rash from head to toe, the doctors elected to postpone the BMT. So now the search is on to find out what drugs didn't agree
Hi all,I thought I'd update you all. I went into hospital in the 20/02 to have my second last chemo before the BMT. Upon admission, I had a fever. After 4 days of fevers and a rash from head to toe, the doctors elected to postpone the BMT. So now the search is on to find out what drugs didn't agree
Sagiegirl
in
MPN Voice
7 months ago
Result of CT angiogram
Heard back from the rapid access chest pain clinic and they confirmed I have a mild to moderate blockage of my coronary arteries. They requested my doctor prescribe amlopidine and aspirin - so more medication! I'm not sure about the aspirin as I've had a stomach ulcer in the past and also bleed very
Heard back from the rapid access chest pain clinic and they confirmed I have a mild to moderate blockage of my coronary arteries. They requested my doctor prescribe amlopidine and aspirin - so more medication! I'm not sure about the aspirin as I've had a stomach ulcer in the past and also bleed very
Roxdale
in
Lung Conditions Community Forum
4 months ago
T3 trying to find someone to give me a T3 trial.
have a underactive thyroid low T3 symptoms Free T3 is very low at last blood test end of November trying to find a Dr in the Nottingham area who would prescribe T3 on a trial basis. So far no luck. Can you please private message me due to site guidelines. Willing to go private. Thanks
have a underactive thyroid low T3 symptoms Free T3 is very low at last blood test end of November trying to find a Dr in the Nottingham area who would prescribe T3 on a trial basis. So far no luck. Can you please private message me due to site guidelines. Willing to go private. Thanks
elwins
in
Thyroid UK
9 months ago
Possible urinary biomarkers of lupus nephritis identified in study
Possible urinary biomarkers of lupus nephritis identified in study Biomarkers could aid in monitoring and allow for faster intervention Scientists have identified a number of proteins in the urine with high diagnostic accuracy for identifying kidney involvement in people with systemic lupus erythematosus
Possible urinary biomarkers of lupus nephritis identified in study Biomarkers could aid in monitoring and allow for faster intervention Scientists have identified a number of proteins in the urine with high diagnostic accuracy for identifying kidney involvement in people with systemic lupus erythematosus
lupus-support1
Administrator
in
LUpus Patients Understanding and Support
8 months ago
PSA doubled in last 30 days after 4 months stable since Provenge. What's next?
Update: PSA remained roughly 1.7 to 1.8 for last 4 months after Provenge but yesterday's 30-day PSA test revealed a jump to 3.190 so something is growing quick. I have been off of all ADT since finishing fourth LU-177 injection five months ago and one SBRT treatment 4 months ago. After LU-177, PSA
Update: PSA remained roughly 1.7 to 1.8 for last 4 months after Provenge but yesterday's 30-day PSA test revealed a jump to 3.190 so something is growing quick. I have been off of all ADT since finishing fourth LU-177 injection five months ago and one SBRT treatment 4 months ago. After LU-177, PSA
SViking
in
Advanced Prostate Cancer
7 months ago
Lymphedema a year post 28 IMRTs and QoLin for the Weekend
https://youtu.be/IukHtBnxgM8?si=ItGOthQ2Xtjf1pne Pitting edema https://photos.app.goo.gl/ecD8vdbjctXYFfgT8 Maybe it was my Bday 28 milesš, Nah exercise helps with fluid flow. I have compression calf sleeves that I wear thru the day and off at night. And Yes I'm still hiking š did 6.2 Sat am Got
https://youtu.be/IukHtBnxgM8?si=ItGOthQ2Xtjf1pne Pitting edema https://photos.app.goo.gl/ecD8vdbjctXYFfgT8 Maybe it was my Bday 28 milesš, Nah exercise helps with fluid flow. I have compression calf sleeves that I wear thru the day and off at night. And Yes I'm still hiking š did 6.2 Sat am Got
dockam
in
Advanced Prostate Cancer
4 months ago
Clinical Trial PT 112 ?
Iām writing for my husband who is French (Iām English : we live in France ) Heās 65 and was diagnosed in March 2022 - already metastatic : PSA 36 (previous test 18months before was normal ) Mets in spine and pelvis also liver . Enantone 3 monthly injections and Zytiga to start with. PSA went down
Iām writing for my husband who is French (Iām English : we live in France ) Heās 65 and was diagnosed in March 2022 - already metastatic : PSA 36 (previous test 18months before was normal ) Mets in spine and pelvis also liver . Enantone 3 monthly injections and Zytiga to start with. PSA went down
Hidden
in
Advanced Prostate Cancer
7 months ago
Dr. "Snuffy" Myers daughter talks about the day she heard about her Dad's diagnosis
https://youtu.be/k0vmB-fgxQc Click here to subscribe: https://www.youtube.com/c/malecare?sub_confirmation=1 Jessie Myers, daughter of prostate cancer legend Dr. "Snuffy" Myers, talks about the day she heard about her Dad's diagnosis and how she and her family came to terms with death and prostate
https://youtu.be/k0vmB-fgxQc Click here to subscribe: https://www.youtube.com/c/malecare?sub_confirmation=1 Jessie Myers, daughter of prostate cancer legend Dr. "Snuffy" Myers, talks about the day she heard about her Dad's diagnosis and how she and her family came to terms with death and prostate
Darryl
Partner
in
Advanced Prostate Cancer
7 months ago
Is it PSA recurrence or not...
My friend had a radical prostatectomy a year ago. Since then his monthly PSA results were stable, at 0.006 3 months ago his PSA went from 0.006 to 0.012, then the next month to 0.029. His MO wanted to see the third month's results in order to consider salvage radiation therapy. Luckily, third month's
My friend had a radical prostatectomy a year ago. Since then his monthly PSA results were stable, at 0.006 3 months ago his PSA went from 0.006 to 0.012, then the next month to 0.029. His MO wanted to see the third month's results in order to consider salvage radiation therapy. Luckily, third month's
traveller64
in
Advanced Prostate Cancer
7 months ago
PSA vs Testosterone Nadir for CRPC and Non-CRPC
This plot from Safriadi (2022) compares the mean values of PSA nadir versus Testosterone Nadir comparing Non-Castrate Resistant PC (Non-CRPC) to Castrate-Resistant PC (CRPC) men. For Non-CRPC men, the range of T-nadir was 2.5-49 ng/dL (mean = 21) and range for PSA nadir was 0.02-9 ng/mL (mean=2). For
This plot from Safriadi (2022) compares the mean values of PSA nadir versus Testosterone Nadir comparing Non-Castrate Resistant PC (Non-CRPC) to Castrate-Resistant PC (CRPC) men. For Non-CRPC men, the range of T-nadir was 2.5-49 ng/dL (mean = 21) and range for PSA nadir was 0.02-9 ng/mL (mean=2). For
janebob99
in
Advanced Prostate Cancer
7 months ago
Mortality Probability after first PSA rise vs non-castrate testosterone levels (low vs Normal)
Here's a plot from Atkins (2018) that shows the Percent risk of Prostate Cancer-specific Mortality versus time following a first PSA failure, for two different non-castrate testosterone levels (Low-T and Normal-T). The low testosterone levels are: median = 162, range = 120-236 ng/dL. Normal T is 400
Here's a plot from Atkins (2018) that shows the Percent risk of Prostate Cancer-specific Mortality versus time following a first PSA failure, for two different non-castrate testosterone levels (Low-T and Normal-T). The low testosterone levels are: median = 162, range = 120-236 ng/dL. Normal T is 400
janebob99
in
Advanced Prostate Cancer
7 months ago
Can anyone help me please.....
Hi, can anyone help me with these test results please.I have Graves disease, Anemia, pernicious anemia, vitamin D deficiency and various other ailments, but I have been in remission from my graves for at least 5 years. I have been symptomatic a few times but it seems to correct itself, however my hubby
Hi, can anyone help me with these test results please.I have Graves disease, Anemia, pernicious anemia, vitamin D deficiency and various other ailments, but I have been in remission from my graves for at least 5 years. I have been symptomatic a few times but it seems to correct itself, however my hubby
Loza73
in
Thyroid UK
7 months ago
First PSA after RARP
My dad had RARP on Jan 19,2024. Gleason 8(4+4) PSA 12, clean PSMA pet scan before surgery. Path report had no LN SVI or EPE but PNI and 50 percent prostate involvement. PSA today 6 weeks post surgery came out to .09. What should we do next? Age 73. Tall_Allen Please advice. Thanks a lot for your help
My dad had RARP on Jan 19,2024. Gleason 8(4+4) PSA 12, clean PSMA pet scan before surgery. Path report had no LN SVI or EPE but PNI and 50 percent prostate involvement. PSA today 6 weeks post surgery came out to .09. What should we do next? Age 73. Tall_Allen Please advice. Thanks a lot for your help
Pca2024
in
Advanced Prostate Cancer
7 months ago
PSA reduction after Estrogen Patch Therapy
Here's a revised plot of PSA reduction due to castration from Estrogen Patch therapy. The previous version had the wrong time scale. That has been corrected in this version. The total time is 3 months, after which the PSA and testosterone both flatten out versus time. I've also added the reference
Here's a revised plot of PSA reduction due to castration from Estrogen Patch therapy. The previous version had the wrong time scale. That has been corrected in this version. The total time is 3 months, after which the PSA and testosterone both flatten out versus time. I've also added the reference
janebob99
in
Advanced Prostate Cancer
7 months ago
Sodium Lauryl Sulphate&Iron
Hi, anybody found out if ferrous fumerate can be got without sodium lauryl sulphate. I need the iron badly but suffer because of the SLS.
Hi, anybody found out if ferrous fumerate can be got without sodium lauryl sulphate. I need the iron badly but suffer because of the SLS.
Mattie2022
in
Thyroid UK
4 months ago
Dad's PSA risen from 0.01 to 0.05 in 2 months, 2 years post SRT. Any chance that there is no further progression?
PSA has risen 3 times in a row. I understand the figure is still low, but is this a definite indication that it will progress, or is there a chance that PSA can stabilize or fluctuate and not progress further? Things have been difficult in the family, I am hoping for a miracle that he had a curative
PSA has risen 3 times in a row. I understand the figure is still low, but is this a definite indication that it will progress, or is there a chance that PSA can stabilize or fluctuate and not progress further? Things have been difficult in the family, I am hoping for a miracle that he had a curative
MsBoBo
in
Advanced Prostate Cancer
7 months ago
Discoid Lupus
Hello Everyone, I have been suffering with discoid lupus for 5 years now. i have had some pretty nasty flare ups since being diagnosed. One flare up resulted in having to spend 2 weeks in hospital. I recently had another flare upā¦ After nearly 12 months in remissionā¦ And I started to get bald patches
Hello Everyone, I have been suffering with discoid lupus for 5 years now. i have had some pretty nasty flare ups since being diagnosed. One flare up resulted in having to spend 2 weeks in hospital. I recently had another flare upā¦ After nearly 12 months in remissionā¦ And I started to get bald patches
Beryl2485
in
LUPUS UK
9 months ago
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