Lymphedema a year post 28 IMRTs and Q... - Advanced Prostate...

Advanced Prostate Cancer

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Lymphedema a year post 28 IMRTs and QoLin for the Weekend

dockam profile image
21 Replies

youtu.be/IukHtBnxgM8?si=ItG...

Pitting edema

photos.app.goo.gl/ecD8vdbjc...

Maybe it was my Bday 28 miles😜, Nah exercise helps with fluid flow. I have compression calf sleeves that I wear thru the day and off at night. And Yes I'm still hiking 😁 did 6.2 Sat am

Got this coming from a recommendation from my Pt with BRCa amazon.com/dp/B07GL2DP8F?ps...

Probs lymph nodes damaged in pelvic area and lymph not able to get on up

youtu.be/x-7beHS-UXo?si=9-w...

Not CHF Congestive Heart Failure in which the heart isn't strong enough to propel the fluids in legs and it pools there

Had a PCT hiker from South Africa who broke her upper L bicuspid in 1/2 front to back. I numbed, removed the section, smoothened the remaining tooth, gave her an Rx for Pen VK to have with her just in case. She's heading to the Sierras and said it'll be about 6 months total! Yikes

youtube.com/watch?v=4v-JkFu...

pcta.org/discover-the-trail/

youtu.be/jvDFoF9sfQA?si=654...

I went to see Janet Jackson at the Forum in Inglewood last Sat, Nelly opened for her and he's still got it!

Janet did 2 hrs 20 mins: singing and dancing 39 songs and she rocked the House!! Not bad for a Lady in her mid 50s😆

setlist.fm/setlist/janet-ja...

photos.app.goo.gl/DLE9zTyvC...

She didn't sing this tho youtu.be/AtoyLKHmy1c?si=0mG...

Did a 4 miler in Veterans Park in Manhattan Beach and gorged afterwards with dumplings, curry pizza, and lime chicken Fettucine. Had leftovers for lunch YUM YUM

Mahalo for all the Support

Much Aloha and Love to y'all

QoL on

Hike on

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dockam profile image
dockam
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21 Replies
dockam profile image
dockam

These have worked well, an MD on FB from NYC😆 said to use baby powder to facilitate on/off

Calf Compression sleeves
allie2020 profile image
allie2020

When I saw the song, "Runaway" by Janet I thought maybe it was her version of Del Shannon's song. This song was the absolute favorite of a late great friend.

youtube.com/watch?v=0S13mP_...

dockam profile image
dockam in reply to allie2020

Awww, sorry about that and Hope that your Friend passed with Family/Friends present and that it wasn't traumatic 🙏

Rest in Peace

youtu.be/NRtvqT_wMeY?si=KmK...

QoL on

MouseAddams profile image
MouseAddams

did you look into using compression pump boots at night with the massage program?

youtu.be/9EcjWd-O4jI?si=d10...

feeling retro 🐭

youtu.be/etviGf1uWlg?si=Ntw...

dockam profile image
dockam in reply to MouseAddams

Love those songs

Wanna pump up the Kam cuz the Groove is in the 💙

youtu.be/ZaI2IlHwmgQ?si=a-0...

QoL on

Pump it
Timmer1967 profile image
Timmer1967

I have the same issue, also with my left leg. I am wearing a compression sock now in fact. I just bought one that goes all the way up to the top of my thigh, so full length. At night I elevate my leg on several pillows. This all seems to help but the issue doesn't appear to be going away. I have an appointment for a lymphedema consult at Mayo clinic on July 9th. If I find out anything useful I will pass it along.

dockam profile image
dockam in reply to Timmer1967

I just used that inflatable compressor last night and this am and so far it seems to be working, adjustable pressure - I set it on the highest and :

youtu.be/4dOsbsuhYGQ?si=RKn...

Read your bio and Congrats on being Undetectable!!!!👍💙

QoL on Bruddah

Kaliber profile image
Kaliber in reply to dockam

Gosh buddy, you look’in swell. I do that now and then but I pee so much, kinda no fluid's left in me …. this is why I kinda like that. I have sorta the inverse of that, much of my feet and legs looks swollen in places but it’s hard like semi rigor. No feeling down there ( up to my hips ) for several years now too. Numb … those pneumatic compression devices seem the way to go if they aren’t too uncomfortable. Just a layman’s perspective buddy.

Love ya buddy

❤️❤️❤️

dockam profile image
dockam in reply to Kaliber

It refilled with fluid after I took the pumper off.

Yikes about no feeling down there😭

youtu.be/J3aUAiLU0TI?si=NI2...

Love ya Kal

QoL on Bruudah 💙💙💙

This am after compression
Kaliber profile image
Kaliber in reply to dockam

Yea the numbness is a combo of mostly ADT neuropathy , combined with some diabetic neuropathy …. Supposedly. But diabetic neuropathy is supposed to have the pins and needles nerve effect and I don’t have that. Prolly all ADT type.

Are you taking something like HTZ to dump those extra fluids ? That’s what I use.

❤️❤️❤️

dockam profile image
dockam in reply to Kaliber

Oh crap about the neuropathy 😢I'm on an ADT vay kay until PSA rises enough, MO said he's cool, give my body a break for maybe a few months or longer - maybe IMRTs killed a sh*t ton of PCa 🤔

No diuretic, I pee enough with coffee and night beers. Gon see how I do with a long hike on Sat - I'm prepping for a thing in September, will post when I'm definitely gon do it

💙💙💙

Compress me baby
Kaliber profile image
Kaliber

roger that buddy. You know what’s best for you.

Looking forward to your new exploits.

❤️❤️❤️

dockam profile image
dockam in reply to Kaliber

A pit stop in the office to pee, drink a beer and get Hemp/Menthol onto L hammy. 2 more miles to go 😜 I am wearing thigh length compression shots. My kidney function tests were fine, now hands are swollen, probs cuz they hang down, I don't walk with hands up like a T Rex 😁

💙💙💙

Yikes!!!
Kaliber profile image
Kaliber in reply to dockam

Yea mannnn …. they can’t find anything so it’s Ok then ….. right ??? NOT !!!!! Seriously dooode, maybe you need a second option from a specialist …. Just say’s. Swelling up like a water ballon doesn’t look good on you and is “ never “ a good thing, esp on an active athletic guy like you. You might beOK with it, but it looks like it needs a little more attention to me. Just say’in. If that was happening to my Humpty Dumpty body, I’d be waiting for my heart attack. Your particulars are quite different but still.

love ya buddy

❤️❤️❤️

dockam profile image
dockam in reply to Kaliber

Calf is better, did the compressor after the hike😁

Calf pic
dockam profile image
dockam in reply to Kaliber

Hand swelling down too Luv ya Kal

💙💙💙

Hand job😂
j-o-h-n profile image
j-o-h-n

Next, tell a woman you have a swollen foot down below. When she asks you to show it to her, show her your penis..... If she says "hey that's not a foot"... tell her "why quibble about a few inches".

Good Luck, Good Health and Good Humor.

j-o-h-n

dockam profile image
dockam in reply to j-o-h-n

More like a cocktail wiener😜

Kaliber profile image
Kaliber in reply to j-o-h-n

lol

😂😂😂

timotur profile image
timotur

Hey Doc, I had ankle swelling on ADT and found it helped if I didn’t drink morning coffee and sit at my desk in the mornings. Standing up early part of the day and drinking water seemed to help.

Keep up the running walking though, it helps immensely. BTW, I ran the Laguna Hills Memorial 10K, very hilly course, placed 2nd in the 65’s couple weeks ago. Cheers!

dockam profile image
dockam in reply to timotur

Oh Awesome Brother, excellent job running and placing 2nd in you age group 💙. Been off Lupron and Abiraterone for a few months, will restart when PSA rises. Probs the IMRTs last year that damaged pelvic lymph nodes

Ain't gonna stop my hikes😁

QoL on

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