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feeling a bit overwhelmed and lost
In September 2023 I found out by chance that I had apparently been diagnosed with lupus 15-20 years ago. I haven’t been told at any point in this time by a doctor - I found out almost by accident from my GP physio. Since then my current GP has been initially verbally supportive although said they knew
In September 2023 I found out by chance that I had apparently been diagnosed with lupus 15-20 years ago. I haven’t been told at any point in this time by a doctor - I found out almost by accident from my GP physio. Since then my current GP has been initially verbally supportive although said they knew
opalescenthope
in
LUPUS UK
7 months ago
a newby to Lupus
Hello folks, I was only diagnosed with lupus a few days ago, after six months of being told I have stage4 CKD, currently at 21% .Eight years ago I was diagnosed with severe anaemia by my GP, which with retrospect I think was a symptom of Lupus and the cause wasn’t looked into. I don’t have the energy
Hello folks, I was only diagnosed with lupus a few days ago, after six months of being told I have stage4 CKD, currently at 21% .Eight years ago I was diagnosed with severe anaemia by my GP, which with retrospect I think was a symptom of Lupus and the cause wasn’t looked into. I don’t have the energy
C0rnflakes
in
LUPUS UK
7 months ago
Parkinson's Drugs Summary
Found this lecture helpful to know what my options are after the neurologist chose for me. Currently on madopar with entacapone newly added. Feel a little better. Time will tell. https://youtu.be/LJVcrvrFYJs?si=Km9qcU_fC71QRSbz
Found this lecture helpful to know what my options are after the neurologist chose for me. Currently on madopar with entacapone newly added. Feel a little better. Time will tell. https://youtu.be/LJVcrvrFYJs?si=Km9qcU_fC71QRSbz
Thal
in
Cure Parkinson's
4 months ago
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After Pluvicto #6 results
Finished my 6th and final Pluvicto and am now getting lab results. I see that somehow I neglected to put results after #5 -- may have been distracted by doctors freaking out that my kidney function was going down and my calcium shot up. My nuclear medicine doc made a judgement call to give me a full
Finished my 6th and final Pluvicto and am now getting lab results. I see that somehow I neglected to put results after #5 -- may have been distracted by doctors freaking out that my kidney function was going down and my calcium shot up. My nuclear medicine doc made a judgement call to give me a full
Miccoman
in
Advanced Prostate Cancer
4 months ago
Fibro medication and alcahol
Diagnosed a few years ago but decided not to take medication. The only meds I take are for my underactive Thyroid,i also have Ostioarthritis and Scoliosis but finding my pain is gradually feeling worse. What medication would you recommend? I am sociable and enjoy a sociable beer so is there anything
Diagnosed a few years ago but decided not to take medication. The only meds I take are for my underactive Thyroid,i also have Ostioarthritis and Scoliosis but finding my pain is gradually feeling worse. What medication would you recommend? I am sociable and enjoy a sociable beer so is there anything
henrythewasp
in
Fibromyalgia Action UK
7 months ago
Next NoSilverBullet Zoom Webinar on 13 May: Live interview of Dr M Okun on "Practical strategies for living a happier life with Parkinson's"
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7pm London time on Monday, the 13th of May. I will have the pleasure of interviewing Dr Michael Okun on the topic of "Practical strategies for living a happier life with Parkinson's". Dr Okun is a worldwide
I am delighted to announce that our next NoSilverBullet Zoom webinar will be taking place at 7pm London time on Monday, the 13th of May. I will have the pleasure of interviewing Dr Michael Okun on the topic of "Practical strategies for living a happier life with Parkinson's". Dr Okun is a worldwide
Michel0220
in
Cure Parkinson's
4 months ago
Cirosis
I have high liver enzymes. AST 91. Alt 134. Ggt 235. Fibroscan cap 366 and kpa 5.6. What does this mean .
I have high liver enzymes. AST 91. Alt 134. Ggt 235. Fibroscan cap 366 and kpa 5.6. What does this mean .
Curryblue
in
British Liver Trust
4 months ago
How Long To Discontinue 5-ARIs and/or Select Supplements to "Unmask" PSA?
Disregarding the discussion as whether to temporarily discontinue or not discontinue in fht efirst place... Purportedly some substances may "mask" PSA. I believe the general rule of thumb is on 5-ARIs like Avodart (Dutasteride) you are supposed to double the PSA reading to get the "real" PSA? In addition
Disregarding the discussion as whether to temporarily discontinue or not discontinue in fht efirst place... Purportedly some substances may "mask" PSA. I believe the general rule of thumb is on 5-ARIs like Avodart (Dutasteride) you are supposed to double the PSA reading to get the "real" PSA? In addition
jazj
in
Advanced Prostate Cancer
4 months ago
Chronic Liver Disease Post Transplant
Hi, I had a liver transplant in October 2017 and apart from a little set back right at the beginning, meaning I was in Addenbrookes for 5 weeks, I have been really well. I haven’t even had Covid! However a couple of months ago, I had a CT scan which showed that I have chronic liver disease. To say
Hi, I had a liver transplant in October 2017 and apart from a little set back right at the beginning, meaning I was in Addenbrookes for 5 weeks, I have been really well. I haven’t even had Covid! However a couple of months ago, I had a CT scan which showed that I have chronic liver disease. To say
Dawnejoy
in
British Liver Trust
4 months ago
Autoimmune Diseases
Saw this news article today and found it interesting. https://www.ctvnews.ca/health/lupus-and-other-autoimmune-diseases-strike-far-more-women-than-men-now-there-s-a-clue-why-1.6751469 Really found this part interesting. “Scientists have long thought it takes a combination of genetic susceptibility
Saw this news article today and found it interesting. https://www.ctvnews.ca/health/lupus-and-other-autoimmune-diseases-strike-far-more-women-than-men-now-there-s-a-clue-why-1.6751469 Really found this part interesting. “Scientists have long thought it takes a combination of genetic susceptibility
Swift20
in
Pernicious Anaemia Society
7 months ago
some suggestions - PCa websites?
Hey all: As I’ve mentioned before, I’m doing a comic about this experience. I want to have a short section at the end with websites that are good for learning about prostate cancer. I have room for a few more, and am looking for suggestions. Not an exhaustive list, but hoping for a useful list: Thanks
Hey all: As I’ve mentioned before, I’m doing a comic about this experience. I want to have a short section at the end with websites that are good for learning about prostate cancer. I have room for a few more, and am looking for suggestions. Not an exhaustive list, but hoping for a useful list: Thanks
Jpburns
in
Advanced Prostate Cancer
4 months ago
unexplained chest pain and shortness of breath .
had a problem with chest pain and breathless ness did all the checks and could find out where it came from. Wondered if this was another by product of rheumatoid arthritis?
had a problem with chest pain and breathless ness did all the checks and could find out where it came from. Wondered if this was another by product of rheumatoid arthritis?
Susiequest
in
NRAS
4 months ago
Article: Why autoimmune disease is more common in women
I thought people might be interested in this article from Nature about why autoimmune diseases are more common in women: https://www.nature.com/articles/d41586-024-00267-6 "A new explanation for the discrepancy has emerged: a molecular coating typically found on half of a woman’s X chromosomes — but
I thought people might be interested in this article from Nature about why autoimmune diseases are more common in women: https://www.nature.com/articles/d41586-024-00267-6 "A new explanation for the discrepancy has emerged: a molecular coating typically found on half of a woman’s X chromosomes — but
cyberbarn
in
NRAS
7 months ago
nose bleed
was rushed to hospital 2weeks ago for pneumonia. Was discharged after a week. Wasn’t home 24 hrs. And out of the blue my nose started bleeding. It hasn’t stopped. Has this happened to anyone else and what did the doctors do to stop it?
was rushed to hospital 2weeks ago for pneumonia. Was discharged after a week. Wasn’t home 24 hrs. And out of the blue my nose started bleeding. It hasn’t stopped. Has this happened to anyone else and what did the doctors do to stop it?
Daytym
in
British Liver Trust
4 months ago
Some new science on why women are more prone to autoimmune disease
This is an interesting read that suggests the preponderance of systemic autoimmune conditions in women is linked to incomplete X chromosome inactivation. Sadly, it doesnt have any immediate practical implications for us lot, but may be a pointer for the future. https://www.nature.com/articles/d41586
This is an interesting read that suggests the preponderance of systemic autoimmune conditions in women is linked to incomplete X chromosome inactivation. Sadly, it doesnt have any immediate practical implications for us lot, but may be a pointer for the future. https://www.nature.com/articles/d41586
whisperit
in
LUPUS UK
7 months ago
Jean Jackson
I have had bronchiectasis from 3 years old due to whooping cough. I am now 74. I have also had Rheumatoid Arthritis for 14 years. Rheumatoid Arthritis is getting worse ( 2 emergency hospital admissions in the last 6 months) Consultant advises changing to biological medication but it is dependant on
I have had bronchiectasis from 3 years old due to whooping cough. I am now 74. I have also had Rheumatoid Arthritis for 14 years. Rheumatoid Arthritis is getting worse ( 2 emergency hospital admissions in the last 6 months) Consultant advises changing to biological medication but it is dependant on
jeanjack
in
Lung Conditions Community Forum
7 months ago
1st transplant done in trial of Parkinson’s cell therapy ANPD001
This experimental therapy for Parkinson’s uses a type of stem cell called an induced pluripotent stem cell, or iPSC, which is able to generate nearly any type of cell in the body — including dopamine-producing neurons. Its manufacturing is a three-step process. https://parkinsonsnewstoday.com/news
This experimental therapy for Parkinson’s uses a type of stem cell called an induced pluripotent stem cell, or iPSC, which is able to generate nearly any type of cell in the body — including dopamine-producing neurons. Its manufacturing is a three-step process. https://parkinsonsnewstoday.com/news
Farooqji
in
Cure Parkinson's
4 months ago
When were you going to mention I had early CKD? Oh I see, stage II isn’t anything to worry my little head about 😠
As my profile name implies, I have spent 20+ years in the healthcare industry. It took longer than I’d like to admit to awakening to how broken, corrupted and frankly dangerous this “Healthcare Industrial Complex” is. I recently had my annual exam with a PCP that I have always had great respect for
As my profile name implies, I have spent 20+ years in the healthcare industry. It took longer than I’d like to admit to awakening to how broken, corrupted and frankly dangerous this “Healthcare Industrial Complex” is. I recently had my annual exam with a PCP that I have always had great respect for
DisillusionedRN
in
Early CKD Support
4 months ago
Can anyone please offer advice?
My son is 17. Has Coeliac disease. Tired, dizzy, joint pain are main symptoms and has missed nearly a month of school due to feeling so bad. My brother has underactive thyroid and on meds. I have sub clinical hypothyroidism and have raised thyroglobulin antibodies (501). In 2019 my son had Tsh over
My son is 17. Has Coeliac disease. Tired, dizzy, joint pain are main symptoms and has missed nearly a month of school due to feeling so bad. My brother has underactive thyroid and on meds. I have sub clinical hypothyroidism and have raised thyroglobulin antibodies (501). In 2019 my son had Tsh over
anniemac81
in
Thyroid UK
7 months ago
fell kt/v again going to do EXTRANEAL bags question about that
Had my visit with kidney doctor today . I fell second kt/v for second time fail by .3 points . He concern that my urine has drop so sudden . The green bags I was doing gave me severe cramps in my legs and hands. I actuality fell cause cramps were so bad my legs gave out hit m head on dialysis machine
Had my visit with kidney doctor today . I fell second kt/v for second time fail by .3 points . He concern that my urine has drop so sudden . The green bags I was doing gave me severe cramps in my legs and hands. I actuality fell cause cramps were so bad my legs gave out hit m head on dialysis machine
Beachgirl32
in
Kidney Dialysis
4 months ago
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