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Update, small cell
Hi everyone, It's been a while since I posted but check in time to time. I'm not really sure of the purpose of this update is except we don't have a lot of family so I'm hoping writing it down will help. Please be sensitive as I'm struggling. I really can't hear about should of dones. My husband was
Hi everyone, It's been a while since I posted but check in time to time. I'm not really sure of the purpose of this update is except we don't have a lot of family so I'm hoping writing it down will help. Please be sensitive as I'm struggling. I really can't hear about should of dones. My husband was
Fdccs
in
Advanced Prostate Cancer
3 months ago
spider nevi?
Hello I have recently been pregnant and I am now breastfeeding my third child. I used to drink too much alcohol but I don't anymore. For some time now I have had a rash, in the face mostly. is it a spider nevi? can't see a central point but small veins. am of course worried that my past sins may have
Hello I have recently been pregnant and I am now breastfeeding my third child. I used to drink too much alcohol but I don't anymore. For some time now I have had a rash, in the face mostly. is it a spider nevi? can't see a central point but small veins. am of course worried that my past sins may have
Spider2
in
British Liver Trust
3 months ago
pale stool after yellow diarrhea
I’ve been high anxiety googling why pale stool for a couple days now following bout of yellowish diarrhea. anyone had this symptom? going to quit alcohol for good (I’ve gone years at times other 10 months, others a few…) baffling why I put myself through this worry and multiple times now. After a few
I’ve been high anxiety googling why pale stool for a couple days now following bout of yellowish diarrhea. anyone had this symptom? going to quit alcohol for good (I’ve gone years at times other 10 months, others a few…) baffling why I put myself through this worry and multiple times now. After a few
Mtseagirl
in
British Liver Trust
3 months ago
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refusing treatment how fast do people decline?
hubby has ARLD he was on the transplant list but took himself off due to PTSD. He is not drunk alcohol for two years since he was first hospitalised with decompensated liver he has no acides or varies for the last 18 months. he has had HE the whole time and is treated for this. he was doing okay. He
hubby has ARLD he was on the transplant list but took himself off due to PTSD. He is not drunk alcohol for two years since he was first hospitalised with decompensated liver he has no acides or varies for the last 18 months. he has had HE the whole time and is treated for this. he was doing okay. He
Bluescarf123
in
British Liver Trust
3 months ago
not PA, next steps
Hi all. I am now SI EOD and have had my iron infusion which is great. I’ve had my autoimmune blood tests back which show I don’t have an autoimmune disease or Pernicious Anaemia (results attached). I’ve been advised that means I have a gut issue which is blocking absorption, I’m keen to get this looked
Hi all. I am now SI EOD and have had my iron infusion which is great. I’ve had my autoimmune blood tests back which show I don’t have an autoimmune disease or Pernicious Anaemia (results attached). I’ve been advised that means I have a gut issue which is blocking absorption, I’m keen to get this looked
AJackson21
in
Pernicious Anaemia Society
6 months ago
I don't have a magic wand
I'm venting here.I havnt been diagnosed but suffer from other autoimmune and am waiting a lupus retest panel on Friday this week. I have positive speckled result but not titrated so an incomplete blood result. I have hashimoto, fibro, pernicious anemia and scalp psoriasis. However, had severe muscle
I'm venting here.I havnt been diagnosed but suffer from other autoimmune and am waiting a lupus retest panel on Friday this week. I have positive speckled result but not titrated so an incomplete blood result. I have hashimoto, fibro, pernicious anemia and scalp psoriasis. However, had severe muscle
Peppermints
in
LUPUS UK
6 months ago
In vivo/vitro: Dickkopf-1 (DKK1) drives growth and metastases in castration-resistant prostate cancer
...does "kopf" mean head? because I could switch to call my cancer dickkopf in that case! Anyway, thanks to CRISPR we have discovered another pathway...they have discovered another pathway! https://communities.springernature.com/posts/dickkopf-1-dkk1-drives-growth-and-metastases-in-castration-resistant-prostate-cancer
...does "kopf" mean head? because I could switch to call my cancer dickkopf in that case! Anyway, thanks to CRISPR we have discovered another pathway...they have discovered another pathway! https://communities.springernature.com/posts/dickkopf-1-dkk1-drives-growth-and-metastases-in-castration-resistant-prostate-cancer
Maxone73
in
Advanced Prostate Cancer
3 months ago
Can I take malaria tablets?
I have autoimmune hepatitis cirrhosis and take azathioprine. I am going to Indonesia in June. Is it possible for me to take malaria tablets with my condition? MS
I have autoimmune hepatitis cirrhosis and take azathioprine. I am going to Indonesia in June. Is it possible for me to take malaria tablets with my condition? MS
Silky1
in
British Liver Trust
6 months ago
Can I take malaria tablets?
I have autoimmune hepatitis cirrhosis and take azathioprine. I am going to Indonesia in June. Is it possible for me to take malaria tablets with my condition? MS
I have autoimmune hepatitis cirrhosis and take azathioprine. I am going to Indonesia in June. Is it possible for me to take malaria tablets with my condition? MS
Silky1
in
British Liver Trust
6 months ago
Next step
Just finished up with chemo. Went from 139 psa @ dx to 1.66. I didn't make it to the non detectable team. Not sure what to think as many here with higher psa's have gone down lower. I'm currently still on Orgovyx and Nubeqa. Should I ask for more rounds of chemo as I've done 6 ? Will my PSA possibly
Just finished up with chemo. Went from 139 psa @ dx to 1.66. I didn't make it to the non detectable team. Not sure what to think as many here with higher psa's have gone down lower. I'm currently still on Orgovyx and Nubeqa. Should I ask for more rounds of chemo as I've done 6 ? Will my PSA possibly
APK3
in
Advanced Prostate Cancer
3 months ago
Found a Reliable Place to Buy Enzalutamide Prostate Cancer Medication at Low Price
I found a trustworthy place to purchase Enzalutamide, a medication for prostate cancer, at a fair price. I bought it from Oddway International, an Indian pharmaceutical distributor. They were really helpful and answered all my questions patiently. The medicine arrived on time and at a price I could afford
I found a trustworthy place to purchase Enzalutamide, a medication for prostate cancer, at a fair price. I bought it from Oddway International, an Indian pharmaceutical distributor. They were really helpful and answered all my questions patiently. The medicine arrived on time and at a price I could afford
davidjroberts
in
Fight Prostate Cancer
3 months ago
High temperature
Hi everyone,I am a bit lost about what is happening and doctors do not seem to give clear answers. My mum has been on Dialysis for a few years and suddenly recently she started having a high temperature after dialysis which disappears the day after but comes back after another dialysis again. She has
Hi everyone,I am a bit lost about what is happening and doctors do not seem to give clear answers. My mum has been on Dialysis for a few years and suddenly recently she started having a high temperature after dialysis which disappears the day after but comes back after another dialysis again. She has
OggieSh
in
Kidney Dialysis
3 months ago
Abdominal burning pain
Do people suffer with burning pain, a bit like IBS pain, but more constant and burning anywhere across the abdomen. I am still awaiting tests to confirm PA, but I know I have a very high pH, so almost no stomach acid, which is obviously causing the pain. I eat a varied diet, not much in the way of processed
Do people suffer with burning pain, a bit like IBS pain, but more constant and burning anywhere across the abdomen. I am still awaiting tests to confirm PA, but I know I have a very high pH, so almost no stomach acid, which is obviously causing the pain. I eat a varied diet, not much in the way of processed
Chickens44
in
Pernicious Anaemia Society
3 months ago
My up and down PSA levels.
On this journey I have had an up and down PSA level. My first indication was of 107 . With various drugs and 25 sessions of radiation,PSA was down to .075. That was November 23.December 23...PSA 18 Consultant told me my prostate had metastasize in to my lung. PSA rose to 117...started chemo March 23.
On this journey I have had an up and down PSA level. My first indication was of 107 . With various drugs and 25 sessions of radiation,PSA was down to .075. That was November 23.December 23...PSA 18 Consultant told me my prostate had metastasize in to my lung. PSA rose to 117...started chemo March 23.
PDH2024
in
Advanced Prostate Cancer
3 months ago
Dialysis or transplantation
Hallo everyone. I want to start form little story. According to my nephrologist I have CKD because of genetical legacy. And it seems to be true. My sister had a similar diagnosis. In her's 23 she went to PD. It was in middle 2000's, local dialysis treatment was not so developed as now. She needed
Hallo everyone. I want to start form little story. According to my nephrologist I have CKD because of genetical legacy. And it seems to be true. My sister had a similar diagnosis. In her's 23 she went to PD. It was in middle 2000's, local dialysis treatment was not so developed as now. She needed
TomMilds
in
Kidney Dialysis
3 months ago
Reiki
does anyone know if Reiki works on liver disease , especially for cirrhosis which I’ve been diagnosed with 😩? I have read Reiki does but was hoping to get it clarified. Does Crohn’s affect the liver too?? Thank you all.
does anyone know if Reiki works on liver disease , especially for cirrhosis which I’ve been diagnosed with 😩? I have read Reiki does but was hoping to get it clarified. Does Crohn’s affect the liver too?? Thank you all.
Maggie153
in
British Liver Trust
3 months ago
PAF … ? Further echo
Hi all, I’ve been quiet on the group for a while now as after my horrible introduction to rapid AF 18 months ago prompting a couple of stays in CCU things have settled on meds. The cardiologist has discharged me back to the Gp , apart from ectopics & odd thumps/ bumps I am well on adizem & flecanide
Hi all, I’ve been quiet on the group for a while now as after my horrible introduction to rapid AF 18 months ago prompting a couple of stays in CCU things have settled on meds. The cardiologist has discharged me back to the Gp , apart from ectopics & odd thumps/ bumps I am well on adizem & flecanide
Sniggetts
in
Atrial Fibrillation Support
2 months ago
hypertension stage 2 plus enlarged heart - is this linked to underactive thyroid? Help appreciated please
I’ve been on levothyroxine since about 2005. Back up to 125 mg per day after 9 months on 100mg. Tsh was 6.9 and t4 16 when last tested in December . Although I asked for t3 to be tested no results. im waiting for an echocardiogram in March to look at my heart as its enlarged. I’m taking spirometer
I’ve been on levothyroxine since about 2005. Back up to 125 mg per day after 9 months on 100mg. Tsh was 6.9 and t4 16 when last tested in December . Although I asked for t3 to be tested no results. im waiting for an echocardiogram in March to look at my heart as its enlarged. I’m taking spirometer
Mumsie22
in
Thyroid UK
6 months ago
Low Carb or even Keto why is not recommended with low thyroid - can I control prediabetes with diet ?
Help please wise, kind people. I am autoimmune underactive and gluten intolerant but also pre diabetic. As thyroid stabilising and generally fine, I am now trying to sort the Pre diabetes and take it off the back burner. I have been reading around this on and off for ages and never got out of the
Help please wise, kind people. I am autoimmune underactive and gluten intolerant but also pre diabetic. As thyroid stabilising and generally fine, I am now trying to sort the Pre diabetes and take it off the back burner. I have been reading around this on and off for ages and never got out of the
Sleepman
in
Thyroid UK
6 months ago
Getting head around what to expect
I like to have facts. In times of stress I think Facts are our friend. Better to be prepared, mentally, physically, financially, with support systems, etc.. so looking for any insights as to what I should expect and prepare my husband, myself and my kids/family for in the weeks and months, years ahead
I like to have facts. In times of stress I think Facts are our friend. Better to be prepared, mentally, physically, financially, with support systems, etc.. so looking for any insights as to what I should expect and prepare my husband, myself and my kids/family for in the weeks and months, years ahead
Melzer2169
in
Advanced Prostate Cancer
3 months ago
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