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Kidney Transplant Waitlist
I met one patient at dialysis clinic couple years ago. I saw him did quick treatment just couple months then disappear. I asked tech where was he. Tech said that guy got the kidneys. He was judge in downtown. He had premium health ins. That was lied that you have to wait 7 to 10 years on waiting list
I met one patient at dialysis clinic couple years ago. I saw him did quick treatment just couple months then disappear. I asked tech where was he. Tech said that guy got the kidneys. He was judge in downtown. He had premium health ins. That was lied that you have to wait 7 to 10 years on waiting list
Jumbo1
in
Kidney Disease
3 years ago
Pleased to report the lump has left the building...đź‘Ťđź‘Ť
Following a month or so of anxiety over my neck lump and the implications re lung transplant etc.. i am delighted to report the offending item is no longer and as a few of you kind souls suggested it was probably a cyst . Anyway, starting the Nintedinab soon as i opted for this over the Pirfenidone for
Following a month or so of anxiety over my neck lump and the implications re lung transplant etc.. i am delighted to report the offending item is no longer and as a few of you kind souls suggested it was probably a cyst . Anyway, starting the Nintedinab soon as i opted for this over the Pirfenidone for
Mrbojangles
in
Lung Conditions Community Forum
3 years ago
Research- Transplant Protection Clothing- Feedback Welcome
Hi Everyone, hope you're all keeping well. I wanted to ask of your opinions to see if this idea I have is worth pursuing as a product. It is essentially seeing if this is something to investigate further. My backstory is that I had a kidney transplant at 17. Upon recovery I was interested in playing
Hi Everyone, hope you're all keeping well. I wanted to ask of your opinions to see if this idea I have is worth pursuing as a product. It is essentially seeing if this is something to investigate further. My backstory is that I had a kidney transplant at 17. Upon recovery I was interested in playing
Leggy1927
in
Kidney Transplant
3 years ago
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Has anyone else had experience of antibiotics specifically Co-amoxiclav raising platelets?
Has anyone else had experience of antibiotics specifically Co-amoxiclav raising platelets? I've been through a Bone Marrow Transplant to treat leukemia (2015) and one of the side effects is I am susceptible to ITP, it doesn't persist like most people's rather it occurs roughly every 2 years with no
Has anyone else had experience of antibiotics specifically Co-amoxiclav raising platelets? I've been through a Bone Marrow Transplant to treat leukemia (2015) and one of the side effects is I am susceptible to ITP, it doesn't persist like most people's rather it occurs roughly every 2 years with no
Yamaha1871
in
ITP Support Association
3 years ago
Kidney Disease Solution
For us CKD is a family affair. Out of nine children, five of us have this disease. Of those five one has had a kidney transplant and one is on dialysis. I am currently at stage 3 and I’m trying really hard to halt the progression and avoid being hooked onto a machine. To that end I bought a detailed
For us CKD is a family affair. Out of nine children, five of us have this disease. Of those five one has had a kidney transplant and one is on dialysis. I am currently at stage 3 and I’m trying really hard to halt the progression and avoid being hooked onto a machine. To that end I bought a detailed
ishymal
in
Kidney Disease
3 years ago
Another HSCT question….
There are report that young people who have cll, who have done hematopoietic stem cell transplantation (HSCT) as treatment and have completely recover, have you guys heard of this? Thank you
There are report that young people who have cll, who have done hematopoietic stem cell transplantation (HSCT) as treatment and have completely recover, have you guys heard of this? Thank you
krikri1989ho
in
CLL Support
3 years ago
NHS Organ Donation - Erin’s story
I saw this story over on the “Children’s Liver Disease Foundation” site this morning and thought it might be nice to share. If anything this should be a message of hope for all those suffering from anxiety and worrying about their liver condition. Ten-year-old Erin has just celebrated her tenth transplant
I saw this story over on the “Children’s Liver Disease Foundation” site this morning and thought it might be nice to share. If anything this should be a message of hope for all those suffering from anxiety and worrying about their liver condition. Ten-year-old Erin has just celebrated her tenth transplant
Richard-Allen
in
British Liver Trust
3 years ago
Let’s compare notes re: Covid vaccine
Hi all, just wanted to compare notes regarding the Covid vaccine. I’ve seen a lot of discussions but in addition to the need for advocating, I’m curious what you are being told from your transplant teams. I asked a million questions in my appointment today and feel hopeless leaving with no answers.
Hi all, just wanted to compare notes regarding the Covid vaccine. I’ve seen a lot of discussions but in addition to the need for advocating, I’m curious what you are being told from your transplant teams. I asked a million questions in my appointment today and feel hopeless leaving with no answers.
SOct91
in
Kidney Transplant
3 years ago
waiting list for Liver Transplant
Hello I am in waiting list for Liver Transplant anyone have idea how long take my turn for transplant. Thanks any please pray for my health.
Hello I am in waiting list for Liver Transplant anyone have idea how long take my turn for transplant. Thanks any please pray for my health.
Muz-ahmed
in
British Liver Trust
3 years ago
Medicare is being terminated after having kidney transplant 3 years ago
I received a letter from SSA terminating my Medicare benefits. I am not able to work. What do I need to do to get help to pay for my medications?
I received a letter from SSA terminating my Medicare benefits. I am not able to work. What do I need to do to get help to pay for my medications?
Deneace68
in
Kidney Transplant
3 years ago
Husband Update
It seems like so long since I’ve updated, but it’s been only a few months. Husband is doing… ok. We’ve just received news that they've found a donor for his stem cell transplant and is scheduled to be admitted at the end of next month. It’s all become very, very real. The kids and I won’t be able
It seems like so long since I’ve updated, but it’s been only a few months. Husband is doing… ok. We’ve just received news that they've found a donor for his stem cell transplant and is scheduled to be admitted at the end of next month. It’s all become very, very real. The kids and I won’t be able
TM76
in
MPN Voice
3 years ago
My Chronic pancreatitis
Hi all my names Darren, after years if no idea what was happening I got diagnosed around 2013, since then had 2 surgeries and stents put in as my pancreas is covered in cysts spent probably about 50% of last 12 years in hospital and numerous stays in ICU due to pancreatic abdominal sepsis. I was on creon
Hi all my names Darren, after years if no idea what was happening I got diagnosed around 2013, since then had 2 surgeries and stents put in as my pancreas is covered in cysts spent probably about 50% of last 12 years in hospital and numerous stays in ICU due to pancreatic abdominal sepsis. I was on creon
Dazgr
in
EPI & Chronic Pancreatitis Support
3 years ago
Altruistic donor starting my journey
I’m a 58 year old man. I’ve worked as a surgeon most of my adult life. I’m interested in donating one of my kidneys and the small lobe of my liver. I’d like to find someone deserving (any child) who may benefit from this. I’m not a transplant surgeon so I’m a bit new to this. My understanding is
I’m a 58 year old man. I’ve worked as a surgeon most of my adult life. I’m interested in donating one of my kidneys and the small lobe of my liver. I’d like to find someone deserving (any child) who may benefit from this. I’m not a transplant surgeon so I’m a bit new to this. My understanding is
drcuisine
in
Parents of Children with Kidney Disease
3 years ago
Calling all liver transplant recipients
Hello Liver People, I’m new here. Can you help me? I am looking for a supportive liver transplant community, as I approach another life giving anniversary. Giving thanks to my donor daily and all who contributed to saving my life, I am hugely grateful. As my anniversary (liversary) approaches, I yet
Hello Liver People, I’m new here. Can you help me? I am looking for a supportive liver transplant community, as I approach another life giving anniversary. Giving thanks to my donor daily and all who contributed to saving my life, I am hugely grateful. As my anniversary (liversary) approaches, I yet
MayMaj
in
British Liver Trust
3 years ago
Liver transplant anniversary
Hello Liver People, I’m new here. Can you help me? I am looking for a supportive liver transplant community, as I approach another life giving anniversary. Giving thanks to my donor daily and all who contributed to saving my life, I am hugely grateful. As my anniversary (liversary) approaches, I yet
Hello Liver People, I’m new here. Can you help me? I am looking for a supportive liver transplant community, as I approach another life giving anniversary. Giving thanks to my donor daily and all who contributed to saving my life, I am hugely grateful. As my anniversary (liversary) approaches, I yet
MayMaj
in
British Liver Trust
3 years ago
Hbi1c
Hello I've never posted on here before I wonder ifor anyone can give me advice just had hbi1c test it was 5.1 am told ito too high I'm 5 foot eleven and 13 stone 6lbs 67 years old in reasonable health still working in manual job tree surgeon I should add I had a liver transplant 4 years ago and had diabetes
Hello I've never posted on here before I wonder ifor anyone can give me advice just had hbi1c test it was 5.1 am told ito too high I'm 5 foot eleven and 13 stone 6lbs 67 years old in reasonable health still working in manual job tree surgeon I should add I had a liver transplant 4 years ago and had diabetes
Treeclimber62
in
Diabetes & Hypertension Help Society
3 years ago
Liver Transplant Support and Representation in day to day life. Can you help?
Hello Liver People, I’m new here. Can you help me? I am looking for a supportive liver transplant community, as I approach another life giving anniversary. Giving thanks to my donor daily and all who contributed to saving my life, I am hugely grateful. As my anniversary (liversary) approaches, I yet
Hello Liver People, I’m new here. Can you help me? I am looking for a supportive liver transplant community, as I approach another life giving anniversary. Giving thanks to my donor daily and all who contributed to saving my life, I am hugely grateful. As my anniversary (liversary) approaches, I yet
MayMaj
in
British Liver Trust
3 years ago
What a. To. Do. The past. Year. I. Not a clue.
Hi. Not been on here for a good while. I now. 21 months. Post double lung. Transplant. Things have gone very well. Physically. Mentally. Been tough. But I not go into that. I was on herion for. 33 yrs. I. Had to stop to get on. TX list. It nearly killed me. But it had to be done. And that's.
Hi. Not been on here for a good while. I now. 21 months. Post double lung. Transplant. Things have gone very well. Physically. Mentally. Been tough. But I not go into that. I was on herion for. 33 yrs. I. Had to stop to get on. TX list. It nearly killed me. But it had to be done. And that's.
Tricity125
in
Lung Conditions Community Forum
3 years ago
Reflux cholangitis
My daughter was diagnosed with Biliary atresia and had the Kasai producer. At the age 2 she had a liver transplant at Birmingham Children’s hospital. She is now 19 years old and My daughter was well however, the last few years her health has slowly started to deteriorate and she has had abnormal blood
My daughter was diagnosed with Biliary atresia and had the Kasai producer. At the age 2 she had a liver transplant at Birmingham Children’s hospital. She is now 19 years old and My daughter was well however, the last few years her health has slowly started to deteriorate and she has had abnormal blood
Passion123456
in
Children's Liver Disease Foundation
3 years ago
PRE-Habilitation Questions for Transplanted and Transplant Listed People
Hello! Just had a second liver biopsy last week and pathology staged it as F3 PBC/AIH while the liver transplant committee reviewed and agreed I am Stage 4 with cirrhosis. (I've already developed stomach bleeds, AVMs, GR1 Varices and have a portal hypertension measurement of 11. I am starting treatment
Hello! Just had a second liver biopsy last week and pathology staged it as F3 PBC/AIH while the liver transplant committee reviewed and agreed I am Stage 4 with cirrhosis. (I've already developed stomach bleeds, AVMs, GR1 Varices and have a portal hypertension measurement of 11. I am starting treatment
JennerLayne
in
British Liver Trust
3 years ago
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