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I’m Coco & today Joolsg suggested I post re upcoming NHS Iron Infusion
For sure I’m a complex case, even more so cause it’s infant onset, progressively debilitating & now am 70 and under
Palliative
Care
considered clinically extremely vulnerable. So am totally not expecting to encounter anyone exactly like me, let alone to find an ‘answer to everything’
For sure I’m a complex case, even more so cause it’s infant onset, progressively debilitating & now am 70 and under
Palliative
Care
considered clinically extremely vulnerable. So am totally not expecting to encounter anyone exactly like me, let alone to find an ‘answer to everything’
Barnclown
in
Restless Legs Syndrome
4 months ago
QoL: "The berries remain, though the leaves are gone."
I shall discuss it with my
palliative
care
nurse when I see her on Friday, and in the meantime be taking sublingual painkillers (Abstral) to help me cope with it. I see no point in waiting for pain to develop and then trying to play catch-up as it keeps ahead of my painkillers.
I shall discuss it with my
palliative
care
nurse when I see her on Friday, and in the meantime be taking sublingual painkillers (Abstral) to help me cope with it. I see no point in waiting for pain to develop and then trying to play catch-up as it keeps ahead of my painkillers.
BrentW
in
Advanced Prostate Cancer
7 months ago
Yes to trial.
I had to call the
palliative
care
nurse yesterday to ask what the hell is going on. He said I have been on Ibrance and Anastrozole for so long, now my body has nothing to help it fight. I’ve jsut been lying in bed or on the couch for the last fe days.
I had to call the
palliative
care
nurse yesterday to ask what the hell is going on. He said I have been on Ibrance and Anastrozole for so long, now my body has nothing to help it fight. I’ve jsut been lying in bed or on the couch for the last fe days.
Timtam56
in
SHARE Metastatic Breast Cancer
8 months ago
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what is this exactly. ?
(Surgery was done 5 weeks ago to fit the rod) I am in
palliative
care
right now with Kaiser (they are great) who are considering a drain to see if that reduces the swelling or maybe now a one time only radiation. Again Kaiser are not clear on what to expect.erupt wise.
(Surgery was done 5 weeks ago to fit the rod) I am in
palliative
care
right now with Kaiser (they are great) who are considering a drain to see if that reduces the swelling or maybe now a one time only radiation. Again Kaiser are not clear on what to expect.erupt wise.
db1966
in
Advanced Prostate Cancer
9 months ago
Off Topic Friday: Jessie's Woodland Walk VIII
I have been asked to prepare two things for our
palliative
care
team: A 'with sympathy' card based on Welsh scenery, and a page for a website showing my development (both technical and emotional) as somebody being aided by the team.
I have been asked to prepare two things for our
palliative
care
team: A 'with sympathy' card based on Welsh scenery, and a page for a website showing my development (both technical and emotional) as somebody being aided by the team.
BrentW
in
Care Community
8 months ago
First line of treatment
She is also referring me to
palliative
care
because I have lots of pain from the cancer, my left hand and under my armpit. I can't use my left arm and hand. I feel relieved to finally get cancer care. I do have upcoming appointments, one for CT scan since my last one was August 2nd.
She is also referring me to
palliative
care
because I have lots of pain from the cancer, my left hand and under my armpit. I can't use my left arm and hand. I feel relieved to finally get cancer care. I do have upcoming appointments, one for CT scan since my last one was August 2nd.
monkeygirl62
in
SHARE Metastatic Breast Cancer
8 months ago
QoL: Jessie's Woodland Walk VIII
I have been asked to prepare two things for our
palliative
care
team: A 'with sympathy' card based on Welsh scenery, and a page for a website showing my development (both technical and emotional) as somebody being aided by the team.
I have been asked to prepare two things for our
palliative
care
team: A 'with sympathy' card based on Welsh scenery, and a page for a website showing my development (both technical and emotional) as somebody being aided by the team.
BrentW
in
Advanced Prostate Cancer
8 months ago
Surviving cancer: some options for you to consider
I’m reading that immunotherapy has helped in
palliative
care
and after surgery, but don’t know of no one, who has had this prior to surgery, do you?
I’m reading that immunotherapy has helped in
palliative
care
and after surgery, but don’t know of no one, who has had this prior to surgery, do you?
Artiquety
in
Oesophageal & Gastric Cancer
3 months ago
📢 Don't Miss Out on Our Workshop This Saturday! 📢
🔹 Demystifying
Palliative
Care
. 🔹 Opening up to End-of-Life Conversations. 🎙 Stellar Panelists Sharing the Stage: * Dr. Daneng Li * Oncology Nurse Ryne Wilson * Dr. Arpan Patel Register here: https://www.crowdcast.io/c/truth-liver-cancer-tough-conversations
🔹 Demystifying
Palliative
Care
. 🔹 Opening up to End-of-Life Conversations. 🎙 Stellar Panelists Sharing the Stage: * Dr. Daneng Li * Oncology Nurse Ryne Wilson * Dr. Arpan Patel Register here: https://www.crowdcast.io/c/truth-liver-cancer-tough-conversations
MichelleL_BlueFaery
Editor
in
Blue Faery Liver Cancer
10 months ago
Confusing news from oncologist
The last time his PSA went up, his scans showed nothing and the cancer was indeed spreading I worry that the same thing is happening and it’s getting dismissed again we are all so confused and have one side of
palliative
care
doctors speaking to us about end of life and the MO saying that his cancer
The last time his PSA went up, his scans showed nothing and the cancer was indeed spreading I worry that the same thing is happening and it’s getting dismissed again we are all so confused and have one side of
palliative
care
doctors speaking to us about end of life and the MO saying that his cancer
StayingSTRNG
in
Advanced Prostate Cancer
7 months ago
CDK12 gene mutation
The oncologist and
palliative
care
nurse prescribed morphine and dilaudid to help reduce the pain. These pain meds are helping although he can still feel pain and gets breakthrough pain. Ct scan, MRI, bone scan all show something in the mandible so a PSMA PET was also done.
The oncologist and
palliative
care
nurse prescribed morphine and dilaudid to help reduce the pain. These pain meds are helping although he can still feel pain and gets breakthrough pain. Ct scan, MRI, bone scan all show something in the mandible so a PSMA PET was also done.
Decktime
in
Advanced Prostate Cancer
8 months ago
pluvicto?
Andy Taylor from Duran Duran cured after being
palliative
care
? Many people sending me articles about it. Right now approved for castrate resistant pCA?
Andy Taylor from Duran Duran cured after being
palliative
care
? Many people sending me articles about it. Right now approved for castrate resistant pCA?
Nowhereman9
in
Advanced Prostate Cancer
11 months ago
October 14th Workshop The Truth About Liver Cancer: Tough Conversations
This session will focus on empowering patients and their families through Shared Decision Making, navigating the realm of
Palliative
Care
, and fostering meaningful End-of-Life Discussions. Gain valuable insights, practical guidance, and compassionate perspectives in this thought-provoking event.
This session will focus on empowering patients and their families through Shared Decision Making, navigating the realm of
Palliative
Care
, and fostering meaningful End-of-Life Discussions. Gain valuable insights, practical guidance, and compassionate perspectives in this thought-provoking event.
MichelleL_BlueFaery
Editor
in
Blue Faery Liver Cancer
10 months ago
📢 Saturday October 14th Free Live HCC Workshop📢
🔹 Navigating the World of
Palliative
Care
. 🔹 Fostering Honest End-of-Life Conversations. 🎙 Stellar Panelists Include: * Dr. Sarah C. Bauer * Oncology Nurse Ryne Wilson * Dr. Arpan Patel
🔹 Navigating the World of
Palliative
Care
. 🔹 Fostering Honest End-of-Life Conversations. 🎙 Stellar Panelists Include: * Dr. Sarah C. Bauer * Oncology Nurse Ryne Wilson * Dr. Arpan Patel
MichelleL_BlueFaery
Editor
in
Blue Faery Liver Cancer
10 months ago
Oct 14th FREE live workshop!!!
🔹 The Intricacies of
Palliative
Care
. 🔹 Heartfelt Conversations on End-of-Life. 🎙 Esteemed Panelists: * Dr. Sarah C. Bauer * Dr. Daneng Li * Dr. Arpan Patel Register here: https://www.crowdcast.io/c/truth-liver-cancer-tough-conversations
🔹 The Intricacies of
Palliative
Care
. 🔹 Heartfelt Conversations on End-of-Life. 🎙 Esteemed Panelists: * Dr. Sarah C. Bauer * Dr. Daneng Li * Dr. Arpan Patel Register here: https://www.crowdcast.io/c/truth-liver-cancer-tough-conversations
MichelleL_BlueFaery
Editor
in
Blue Faery Liver Cancer
10 months ago
Hello - I’m struggling
He’s been discharged with NO
palliative
care
or advice on transplants etc. it’s like a losing battle. He’s seen one gastro doctor since his discharge in August and he didn’t give much help to be honest, just said he’d refer him to a specialist in Leeds.
He’s been discharged with NO
palliative
care
or advice on transplants etc. it’s like a losing battle. He’s seen one gastro doctor since his discharge in August and he didn’t give much help to be honest, just said he’d refer him to a specialist in Leeds.
MrsAlien
in
British Liver Trust
9 months ago
options after Caelyx
She has also been added to the
palliative
care
community. Anything we should try? And advice? Any miracle drugs? Thankyou
She has also been added to the
palliative
care
community. Anything we should try? And advice? Any miracle drugs? Thankyou
Lookingout
in
My Ovacome
10 months ago
bowel obstruction
hello, my Mum is now in
palliative
care
(12 days) for a total bowel obstruction because of a 6 sigmoid volvulus. At 92 an operation is not possible.
hello, my Mum is now in
palliative
care
(12 days) for a total bowel obstruction because of a 6 sigmoid volvulus. At 92 an operation is not possible.
Anjidav
in
Bowel Disease Support
11 months ago
Update on mum
Food was the only pleasure she had left and now that too is being taken I asked about hospice involvement and
palliative
care
but the hospice don’t have the staff for visits to care homes is what I’ve been told The staff are doing all they can, they are moving her to an airflow mattress this afternoon
Food was the only pleasure she had left and now that too is being taken I asked about hospice involvement and
palliative
care
but the hospice don’t have the staff for visits to care homes is what I’ve been told The staff are doing all they can, they are moving her to an airflow mattress this afternoon
Walking18
in
PSP Association
9 months ago
Mum with CBD
My mum got diagnosed with CBD in 2017 we were told in January 2020 she had 4 weeks left to live and was moved into a
care
home for
palliative
care
. Thankfully she is still with us. Hasn't eaten and been bed bound now for 4 years. She survives on 6-7 ensures a day.
My mum got diagnosed with CBD in 2017 we were told in January 2020 she had 4 weeks left to live and was moved into a
care
home for
palliative
care
. Thankfully she is still with us. Hasn't eaten and been bed bound now for 4 years. She survives on 6-7 ensures a day.
Bobbiejo21
in
PSP Association
11 months ago
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