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Experiences with
Palliative-care
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Mum with CBD
My mum got diagnosed with CBD in 2017 we were told in January 2020 she had 4 weeks left to live and was moved into a
care
home for
palliative
care
. Thankfully she is still with us. Hasn't eaten and been bed bound now for 4 years. She survives on 6-7 ensures a day.
My mum got diagnosed with CBD in 2017 we were told in January 2020 she had 4 weeks left to live and was moved into a
care
home for
palliative
care
. Thankfully she is still with us. Hasn't eaten and been bed bound now for 4 years. She survives on 6-7 ensures a day.
Bobbiejo21
in
PSP Association
8 months ago
Hello - I’m struggling
He’s been discharged with NO
palliative
care
or advice on transplants etc. it’s like a losing battle. He’s seen one gastro doctor since his discharge in August and he didn’t give much help to be honest, just said he’d refer him to a specialist in Leeds.
He’s been discharged with NO
palliative
care
or advice on transplants etc. it’s like a losing battle. He’s seen one gastro doctor since his discharge in August and he didn’t give much help to be honest, just said he’d refer him to a specialist in Leeds.
MrsAlien
in
British Liver Trust
6 months ago
I’m Coco & today Joolsg suggested I post re upcoming NHS Iron Infusion
For sure I’m a complex case, even more so cause it’s infant onset, progressively debilitating & now am 70 and under
Palliative
Care
considered clinically extremely vulnerable. So am totally not expecting to encounter anyone exactly like me, let alone to find an ‘answer to everything’
For sure I’m a complex case, even more so cause it’s infant onset, progressively debilitating & now am 70 and under
Palliative
Care
considered clinically extremely vulnerable. So am totally not expecting to encounter anyone exactly like me, let alone to find an ‘answer to everything’
Barnclown
in
Restless Legs Syndrome
1 month ago
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Update on mum
Food was the only pleasure she had left and now that too is being taken I asked about hospice involvement and
palliative
care
but the hospice don’t have the staff for visits to care homes is what I’ve been told The staff are doing all they can, they are moving her to an airflow mattress this afternoon
Food was the only pleasure she had left and now that too is being taken I asked about hospice involvement and
palliative
care
but the hospice don’t have the staff for visits to care homes is what I’ve been told The staff are doing all they can, they are moving her to an airflow mattress this afternoon
Walking18
in
PSP Association
7 months ago
recommendations needed for a pressure relief cushion
I have access to a
palliative
care
consultant,who is very supportive. Also ,the invaluable interstitial nurse helpline. So,I decided that it’s not too bad after all. I’m m counting my blessings. Hopefully everyone is doing ok.
I have access to a
palliative
care
consultant,who is very supportive. Also ,the invaluable interstitial nurse helpline. So,I decided that it’s not too bad after all. I’m m counting my blessings. Hopefully everyone is doing ok.
Oshgosh
in
Lung Conditions Community Forum
7 months ago
after radium 223
He doesn’t feel he should be under
palliative
care
at this point? Any advice/recommendations? Thanks in advance. Jo
He doesn’t feel he should be under
palliative
care
at this point? Any advice/recommendations? Thanks in advance. Jo
Jojoberries
in
Advanced Prostate Cancer
10 months ago
Surviving cancer: some options for you to consider
I’m reading that immunotherapy has helped in
palliative
care
and after surgery, but don’t know of no one, who has had this prior to surgery, do you?
I’m reading that immunotherapy has helped in
palliative
care
and after surgery, but don’t know of no one, who has had this prior to surgery, do you?
Artiquety
in
Oesophageal & Gastric Cancer
13 days ago
Secretions & Weak Throat Muscles
They said
palliative
care
are coming to speak with me and my mum - not because she is getting put on end of life care but in case something was to happen there is a plan in place. Sounds odd to me - has anyone had this whilst they were in icu?
They said
palliative
care
are coming to speak with me and my mum - not because she is getting put on end of life care but in case something was to happen there is a plan in place. Sounds odd to me - has anyone had this whilst they were in icu?
Westbeginners1
in
ICUsteps
8 months ago
Asking for best guess info
He's now receiving
palliative
care
and just had his first comprehensive bloodwork since the MO's on June 30. At that time his PSA registered at 6.92. Today's results are 40.28 and I've been compmaring his Aug. and Sept. Basic Metabolic Panels as well.
He's now receiving
palliative
care
and just had his first comprehensive bloodwork since the MO's on June 30. At that time his PSA registered at 6.92. Today's results are 40.28 and I've been compmaring his Aug. and Sept. Basic Metabolic Panels as well.
Shamrock46
in
Advanced Prostate Cancer
7 months ago
palliative care
My mum Frances is now having
palliative
care
for CBD. She is cognitive but very little swallow and so very little strength left to dress/walk etc. sadly no speech. Is there really nothing more than a highly calorics yoghurt available for her to eat? it’s so so sad watching this cruel disease .
My mum Frances is now having
palliative
care
for CBD. She is cognitive but very little swallow and so very little strength left to dress/walk etc. sadly no speech. Is there really nothing more than a highly calorics yoghurt available for her to eat? it’s so so sad watching this cruel disease .
Lalamccoy
in
PSP Association
7 months ago
Palliative care
Mum's GP has recently suggested involving the
palliative
care
team for her heart failure. She was very upset and declined. It would be really useful to learn about other people's experiences of
palliative
care
so we can understand the potential benefits.
Mum's GP has recently suggested involving the
palliative
care
team for her heart failure. She was very upset and declined. It would be really useful to learn about other people's experiences of
palliative
care
so we can understand the potential benefits.
Joluu
in
British Heart Foundation
1 year ago
Lost in France
I think he needs
palliative
care
but our doctor says he's not entitled. My question is: is there anyone in a similar position who lives in France and can they offer guidance? I'm a bit lost.
I think he needs
palliative
care
but our doctor says he's not entitled. My question is: is there anyone in a similar position who lives in France and can they offer guidance? I'm a bit lost.
Leosta
in
PSP Association
9 months ago
CHC Funding - Upcoming assessment hits and tips please
We have
Palliative
care
involved as well so not sure if I should tap into this group. Thank you all in advance
We have
Palliative
care
involved as well so not sure if I should tap into this group. Thank you all in advance
Khalissi
in
PSP Association
9 months ago
caelyx in platinumResistance
She has been handed straight to
palliative
care
. She looks well and feels well at this time I am struggling to understand no more treatment after frontline only no maintenance nothing has anyone had just caelyx with a good response? What were the side effects? Thank you
She has been handed straight to
palliative
care
. She looks well and feels well at this time I am struggling to understand no more treatment after frontline only no maintenance nothing has anyone had just caelyx with a good response? What were the side effects? Thank you
Lolathestaffie
in
My Ovacome
10 months ago
I don’t understand
care
how does anyone know when this needs to be spoken about , there are many other symptoms but too many to put here right now as it’s my first post, does it sound like my husband is progressing fast?
care
how does anyone know when this needs to be spoken about , there are many other symptoms but too many to put here right now as it’s my first post, does it sound like my husband is progressing fast?
DeeMilo25
in
Multiple System Atrophy Trust
8 months ago
Liquid biopsy
Saw O on Monday and he talked about biopsy and also ‘ more sensibly’ about
palliative
care
. Surely in any treatment decision you have to know the type of cancer in order to select the right drugs??
Saw O on Monday and he talked about biopsy and also ‘ more sensibly’ about
palliative
care
. Surely in any treatment decision you have to know the type of cancer in order to select the right drugs??
Adaughter
in
The Roy Castle Lung Cancer Foundation
11 months ago
Latest appt with new doctor
In the last week I've talked to gastrologist schedulers about getting an appt with the gastrologist recommended by my
palliative
care
NP. Finally got that appt schrduled abouit a month from now, at the hospital for both a gastroscopy and a colonostomy !
In the last week I've talked to gastrologist schedulers about getting an appt with the gastrologist recommended by my
palliative
care
NP. Finally got that appt schrduled abouit a month from now, at the hospital for both a gastroscopy and a colonostomy !
PJBinMI
in
SHARE Metastatic Breast Cancer
10 months ago
PSA suppression
My PSA lows tend to be around 3.3, and it occurs to me that some might think it odd that I don't drive it lower. I think it is very common for men on ADT to draw too much comfort from a significant PSA reduction, if not a near-zero PSA. I have witnessed men misinterpret a dramatic drop in PSA as
My PSA lows tend to be around 3.3, and it occurs to me that some might think it odd that I don't drive it lower. I think it is very common for men on ADT to draw too much comfort from a significant PSA reduction, if not a near-zero PSA. I have witnessed men misinterpret a dramatic drop in PSA as
pca2004
in
Fight Prostate Cancer
4 months ago
Pluvicto works but at what cost
I’m on
palliative
care
and don’t really take pain meds since bone pain decreased but can’t get any sleep without benzodiazepines. Almost 10 years optimistically fighting this and maybe hospice care is the next best step.
I’m on
palliative
care
and don’t really take pain meds since bone pain decreased but can’t get any sleep without benzodiazepines. Almost 10 years optimistically fighting this and maybe hospice care is the next best step.
Beach18
in
Advanced Prostate Cancer
10 months ago
Seeking advice re: end-of-life planning with family
I’m getting to the point where I’m going to need hospice support, but whenever I mention the idea of hospice or
palliative
care
, all of their suffering makes me feel guilty and we talk about something else.
I’m getting to the point where I’m going to need hospice support, but whenever I mention the idea of hospice or
palliative
care
, all of their suffering makes me feel guilty and we talk about something else.
Havik
in
Kidney Dialysis
11 months ago
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