Search
Search
About
Log in
Join
Experiences with
Palliative-care
Posts
Communities
41 public communities
MyDirectives: Make your medical wishes known!
65 members
MyDirectives is the first completely digital emergency, critical and advance care planning service that is secure, easy to understand, and free to consumers to use. Apple iPhone users can also download MyDirectives MOBILE for free in the Apple App Store. MyDirectives and MyDirectives MOBILE are services offered by ADVault, Inc., a privately owned U.S. corporation dedicated to ensuring that emergency first responders, doctors, nurses and caregivers always have access to the most important voice in healthcare - yours. MyDirectives helps consumers record their medical treatment wishes, preferences regarding palliative and hospice care, organ donation, and autopsy, and other critical personal information both on the device, and in the format, that is most convenient and comfortable for them. We then work with healthcare providers and payers, to make the directives available.
Care Community
5,863 members
The Care Community is a place for all carers to discuss health and caring for loved ones, particularly in later life. Talking about the challenges you face as a carer for an older person can be hard, but sometimes, there’s nothing more helpful than talking with others who are in the same boat. Our community is one where we can all have the conversations we need to, sharing our experiences and supporting each other.
Leukaemia CARE
1,272 members
This community brings together patients, carers, advocates and health professionals to share knowledge, experience and guidance to aid each other to cope with a blood cancer diagnosis. Leukaemia Care are committed to making sure that patients, their loved ones and their friends have the right information, support and advice at the point of diagnosis and beyond. Leukaemia Care supports this community with a range of support services to patients and their carers including: a Nurse-led helpline, nurse advisers available every weekday to answer you questions, nationwide support groups, patient and carer conferences, one-to-one Buddy Support, an extensive website, blood cancer information in PDF and booklets, campaigning and advocacy.
Reedyford Health Care
18 members
Reedyford Health Care is a community dedicated to providing reliable information and support to its members
Bereavement Care & Share
865 members
The purpose of this Community is to care, share and support members who have been bereaved and suffering grief. A place of refuge to chat to others in a similar situation and share your distress. Ultimately, a place to find support and offer others support too.
Talk ED (eating disorders)
3,546 members
Talk ED (previously ABC) is a national UK eating disorders organisation with over 25 years of experience. We provide on-going care, emotional support and practical guidance for anyone affected by eating disorders. We support and care for those struggling personally and resource and equip parents, families, friends and professionals.
HealthWeb Navigator
225 members
The goal of this community is to help patients to find the best resources about the health care. At HealthWeb Navigator, we evaluate healthcare websites, allowing users to see which resources provide consumer-friendly and up-to-date information. Health care has become complicated. Many patients are spending more of their own money to cover medical costs and less time receiving the care they need. Consumers are turning to the internet for diagnosis and learning more about health conditions. Major challenges include understanding medical costs and conditions, finding the right doctor or hospital, and accessing the latest research.
Sharing patient stories - Picker Institute Europe
89 members
The Picker Institute Europe put patients first always. We believe that the only way to improve the quality of care available is to ask YOU, the patient, what you want, need and expect from your treatment. We are committed to measuring, understanding and sharing your feedback so that it can then be used to improve health & social care services and experiences. To contribute to this important conversation, join our community and share your experiences with us!
South West Wales Neurological Alliance
282 members
We are community that supports individuals, groups and organisations that represent Neurological Conditions and those associated with their care; in Neath Port Talbot, Swansea and Bridgend, Wales.
Making Space
895 members
We are a UK charity providing quality care and support to people with a wide variety of needs including those with physical and/or mental health conditions, learning disabilities and dementia.
DC Action
28 members
We are a peer support group for people and families affected by telomeropathies and dyskeratosis congenita (DC). DC Action aims to improve diagnosis, treatment and health services. DC is rare but other telomeropathies may be more common and can be confused with other conditions. Specialist care is essential but can be difficult to find. Please share your experiences. We are a small group so it's really important that our voices are heard to help improve access to specialist care and treatment. Post about diagnosis, treatment, access to health services, share problems, ask questions and offer solutions. Polls and questionnaires will help us to lobby for better NHS services.
Atrial Fibrillation Support
31,039 members
AF Association supports individuals affected by, or involved in the care of atrial fibrillation (AF). We are an international charity providing support through various means, including a helpline and comprehensive resources written by experts in the field and endorsed by the Department of Health.
1
2
...
4
Next page