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Well it’s 3:30 am here in Georgia USA and have been awake since about 2:30 but I went to sleep around 9:00 so that’s good for me. The ropinorole is still working thank God. Just wanted to update how things are going. I go Wednesday to see dr. Cooper but honestly I’m not very hopeful. I feel like he will
Well it’s 3:30 am here in Georgia USA and have been awake since about 2:30 but I went to sleep around 9:00 so that’s good for me. The ropinorole is still working thank God. Just wanted to update how things are going. I go Wednesday to see dr. Cooper but honestly I’m not very hopeful. I feel like he will
6236
in
Restless Legs Syndrome
8 months ago
bursitis
Happy and healthy New Year everyone. I am down to 1mg of pred and have developed, what my osteopath says, is bursitis . Also arthritis has flared up in my feet. I saw a nurse practitioner who said take painkillers to manage it and that because of the reduction in steroids this has all flared up and
Happy and healthy New Year everyone. I am down to 1mg of pred and have developed, what my osteopath says, is bursitis . Also arthritis has flared up in my feet. I saw a nurse practitioner who said take painkillers to manage it and that because of the reduction in steroids this has all flared up and
Bubble56
in
PMRGCAuk
8 months ago
Choices
Apologies for this seemingly random question but which do members think has the ‘least worst’ effect on T4 - pain or analgesics?
Apologies for this seemingly random question but which do members think has the ‘least worst’ effect on T4 - pain or analgesics?
Calceolaria
in
Thyroid UK
8 months ago
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extremely intense pain due to stage 4 Endrometriosis
Hi, An ambulance has just left our house. Today is the first day of my period and I had to call 999 due to extreme pain that I never experienced before. They gave me strong pain killers and I feel better but I’m still in shock of the intensity of the pain I experienced today! My whole body was in agony
Hi, An ambulance has just left our house. Today is the first day of my period and I had to call 999 due to extreme pain that I never experienced before. They gave me strong pain killers and I feel better but I’m still in shock of the intensity of the pain I experienced today! My whole body was in agony
Bubble-z
in
Endometriosis UK
8 months ago
Doctor dismissal
Hello, i'm after some advice as I know so many other women have been in the same situation I've been to the doctors regarding my periods as I am concerned I have endometriosis or something along those lines and the doctor showed no interest and was really patronising. She ended up prescribing me with
Hello, i'm after some advice as I know so many other women have been in the same situation I've been to the doctors regarding my periods as I am concerned I have endometriosis or something along those lines and the doctor showed no interest and was really patronising. She ended up prescribing me with
GilleyTea97
in
Endometriosis UK
8 months ago
Update - Not Polymyalgia?
Update - First had Polymyalgia 2018 tapered off successfully 2020 CRP10 ESR 26. Diagnosed again July 2023 CRP4 ESR 26. Symptoms completely different (all neck, shoulders, arms) Put back on 20mg steroids. I wasn’t convinced on 2nd diagnosis so GP agreed I should taper off. Began taper, had blood tests
Update - First had Polymyalgia 2018 tapered off successfully 2020 CRP10 ESR 26. Diagnosed again July 2023 CRP4 ESR 26. Symptoms completely different (all neck, shoulders, arms) Put back on 20mg steroids. I wasn’t convinced on 2nd diagnosis so GP agreed I should taper off. Began taper, had blood tests
Purplelamp
in
PMRGCAuk
8 months ago
Pain management
One of the GPs has declined to give me anything stronger than dihydrocodeine which is no longer helping me cope with my pain. I was in excruciating pain the other night the worst it has ever been and dihydrocodeine never helped. I have another appointment with another gp on Monday and I'm scared they
One of the GPs has declined to give me anything stronger than dihydrocodeine which is no longer helping me cope with my pain. I was in excruciating pain the other night the worst it has ever been and dihydrocodeine never helped. I have another appointment with another gp on Monday and I'm scared they
Elephy
in
Endometriosis UK
1 year ago
Painful knee
Hi, I've recently joined this forum. I started doing the couch to 5k in November. Finding it quite hard as rather out of condition but I persevered. I'm on week 5 now, though I have missed a few runs due to Christmas and New year. I've also for that reason stuck to run 1 for the last few times. However
Hi, I've recently joined this forum. I started doing the couch to 5k in November. Finding it quite hard as rather out of condition but I persevered. I'm on week 5 now, though I have missed a few runs due to Christmas and New year. I've also for that reason stuck to run 1 for the last few times. However
marigold60
in
Couch to 5K
8 months ago
struggling 6 weeks after diagnosis
hi I recently posted with a bit of background after PMR diagnosis in November 15mg pred almost removed all symptoms of stiffness and body pains Have had recurrent dull headaches throughout , I put down to side effects of pred and tried to eat better and drink more fluids blood tests after 3 weeks
hi I recently posted with a bit of background after PMR diagnosis in November 15mg pred almost removed all symptoms of stiffness and body pains Have had recurrent dull headaches throughout , I put down to side effects of pred and tried to eat better and drink more fluids blood tests after 3 weeks
Emilydarby
in
PMRGCAuk
8 months ago
Hip & abdomen problems with endometriosis
I got diagnosed with endometriosis in February 2023 but I've been on a crutch since 2022 with severe hip/abdomen pain that goes across my back and down my leg on the right side. I've been seeing my GP since February 2022 and even after my laparoscopy and diagnosis of endo in Feb 2023 I've not had much
I got diagnosed with endometriosis in February 2023 but I've been on a crutch since 2022 with severe hip/abdomen pain that goes across my back and down my leg on the right side. I've been seeing my GP since February 2022 and even after my laparoscopy and diagnosis of endo in Feb 2023 I've not had much
orchid007
in
Endometriosis UK
8 months ago
Unexpected endometriosis
Has anyone got any advice for me please? I've just been in for a laproscopy to remove what they told me was a simple cyst on my ovary, only to find out they couldn't remove it because they found endometriosis so they have referred me to a specialist surgeon and are sending me for an MRI.The surgeon said
Has anyone got any advice for me please? I've just been in for a laproscopy to remove what they told me was a simple cyst on my ovary, only to find out they couldn't remove it because they found endometriosis so they have referred me to a specialist surgeon and are sending me for an MRI.The surgeon said
Madanza
in
Endometriosis UK
8 months ago
anticoagulants-or not..
I have read a number of articles which I think say that the protocol for when to add to the CHaDs s score for prescribing anticoagulants with AF was based on patients who were very obviously symptomatic whereas many newer patients have fewer symptoms and discover AF through smart watches / other devices
I have read a number of articles which I think say that the protocol for when to add to the CHaDs s score for prescribing anticoagulants with AF was based on patients who were very obviously symptomatic whereas many newer patients have fewer symptoms and discover AF through smart watches / other devices
OldJane
in
Atrial Fibrillation Support
8 months ago
How long for Leflunomide to work?
Hi, Just wondering other people’s experience with Leflunomide as in how long it started to work (if it worked).. I finally came off MTX about 10 weeks ago as could no longer tolerate the side effects.. was severely affecting my mental health.. I had a gap of about 6 weeks with no medication, and symptoms
Hi, Just wondering other people’s experience with Leflunomide as in how long it started to work (if it worked).. I finally came off MTX about 10 weeks ago as could no longer tolerate the side effects.. was severely affecting my mental health.. I had a gap of about 6 weeks with no medication, and symptoms
Sapphire1701
in
NRAS
8 months ago
Prednisolone!
I take Pred, Methotrexate 25mg a week, Hydroxychloroquine @400mg a day, and 2700mg of Gabapentin a day. My weight has skyrocketed. I am the heaviest I have ever been in my life, and it's all down to how much junk food, chocolate and crisps I am eating. As I am also suffering from Trigeminal nerve pain
I take Pred, Methotrexate 25mg a week, Hydroxychloroquine @400mg a day, and 2700mg of Gabapentin a day. My weight has skyrocketed. I am the heaviest I have ever been in my life, and it's all down to how much junk food, chocolate and crisps I am eating. As I am also suffering from Trigeminal nerve pain
StateOfPlay
in
NRAS
8 months ago
Advice needed please!
Hi all, I am 51 years old and have suffered from Endo for the past 7 years approx and had an op to remove some about 4 years ago. This seemed to help for a while but it came back as I believe is often the case. I have been on the mini pill since the op and the condition has been almost manageable and
Hi all, I am 51 years old and have suffered from Endo for the past 7 years approx and had an op to remove some about 4 years ago. This seemed to help for a while but it came back as I believe is often the case. I have been on the mini pill since the op and the condition has been almost manageable and
Husky777
in
Endometriosis UK
8 months ago
Hashimotos, low TSH, normal t4, Feeling so ill
I have had Hashimotos for 25 years, GP advised that is hypothyroidism, and have been on T4 levothyroxine replacement for 25 years. Before that I was ok for 2 years Before that I had raging Graves hyperthyroidism for 2 years ( they gave me 200% recommend dose of carbimazole my resting heart rate went
I have had Hashimotos for 25 years, GP advised that is hypothyroidism, and have been on T4 levothyroxine replacement for 25 years. Before that I was ok for 2 years Before that I had raging Graves hyperthyroidism for 2 years ( they gave me 200% recommend dose of carbimazole my resting heart rate went
Brn2BWild
in
Thyroid UK
8 months ago
My doctor won't acknowledge PMR without inflammation markers in blood tests.
Repeated visits to doctor blood tests MRI now he won't refer me to rheumatologist says we must focus on
pain
management
. I begged him for prednisone, he flatly refuses. I had twenty five tablets in my cabinet of 5mg have taken them for five days.
Repeated visits to doctor blood tests MRI now he won't refer me to rheumatologist says we must focus on
pain
management
. I begged him for prednisone, he flatly refuses. I had twenty five tablets in my cabinet of 5mg have taken them for five days.
Yogikay
in
PMRGCAuk
1 year ago
Why do I always ache
Does anybody else have constant body aches? I posted about rib pain recently but if the pains not in my ribs it’s my chest or I ache all around the top of my arms into my chest area. It’s daily now & the pain gets worse as the day goes on. Someone on here recently suggested it might be costochondritis
Does anybody else have constant body aches? I posted about rib pain recently but if the pains not in my ribs it’s my chest or I ache all around the top of my arms into my chest area. It’s daily now & the pain gets worse as the day goes on. Someone on here recently suggested it might be costochondritis
Gilly61
in
Pain Concern
8 months ago
Respiratory Therapy Student
Hi All, I have been a member of the forum for 8ish years. I have bronchiectasis and had a LLL (left lower lobe) resection in 2019. I am 48 years old. The past 3 years I have been studying to become a Respiratory Therapist (RT). In the US, RTs work in hospitals managing critical care patients on ventilators
Hi All, I have been a member of the forum for 8ish years. I have bronchiectasis and had a LLL (left lower lobe) resection in 2019. I am 48 years old. The past 3 years I have been studying to become a Respiratory Therapist (RT). In the US, RTs work in hospitals managing critical care patients on ventilators
Schmu
in
Lung Conditions Community Forum
11 months ago
Diagnosis of Pudendal Neuralgia - 43, Female, Asia
I am also seeing a pelvic floor physio who has given me some exercises to help with the
pain
. Recently I saw a psychiatrist since a
pain
management
specialist had a different diagnosis of pelvic floor
pain
and not PN and wanted to rule out anxiety and depression.
I am also seeing a pelvic floor physio who has given me some exercises to help with the
pain
. Recently I saw a psychiatrist since a
pain
management
specialist had a different diagnosis of pelvic floor
pain
and not PN and wanted to rule out anxiety and depression.
Moonsorrow
in
Pelvic Pain Support Network
9 months ago
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