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Help me! behcet syndrome with tuberculosis
Hello, I have had Behcet's disease for 10 years, which does not respond to treatment, and after treatment with infliximab and mycophenolate mofetil, I have perianal fistula, skin abscesses, severe heartburn, cystitis, prostatitis, night sweats, inguinal lymphadenopathy, and weight loss. ... I have become
Hello, I have had Behcet's disease for 10 years, which does not respond to treatment, and after treatment with infliximab and mycophenolate mofetil, I have perianal fistula, skin abscesses, severe heartburn, cystitis, prostatitis, night sweats, inguinal lymphadenopathy, and weight loss. ... I have become
Hulusi
in
Behçet's UK
6 months ago
Fibro newbie👋
Im only 25 and ive been referred to the chronic
pain
management
team, im just wondering what to expect? Ive been on all sorts of pain meds over the years, but nothing has ever touched the sides.
Im only 25 and ive been referred to the chronic
pain
management
team, im just wondering what to expect? Ive been on all sorts of pain meds over the years, but nothing has ever touched the sides.
Cx3271718
in
My Fibro Community
11 months ago
Stopping Kevzara
I have had to stop my Sarilumab jabs, yet again, because my white cells have dropped again. I have been off the drug for over three weeks now and have heard nothing since my last blood test. I expected to feel gradually worse without it but I don't. I still have the pain and take my painkillers, but
I have had to stop my Sarilumab jabs, yet again, because my white cells have dropped again. I have been off the drug for over three weeks now and have heard nothing since my last blood test. I expected to feel gradually worse without it but I don't. I still have the pain and take my painkillers, but
tazman3
in
NRAS
6 months ago
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fibro
Hi everyone, I’ve just been officially diagnosed with fibromyalgia even though my symptoms started 10 years ago. I’ve spent so much money on trying to get rid of pain especially in the shoulders and middle of the back but doctors just handed out painkillers, I then suffered different side effects with
Hi everyone, I’ve just been officially diagnosed with fibromyalgia even though my symptoms started 10 years ago. I’ve spent so much money on trying to get rid of pain especially in the shoulders and middle of the back but doctors just handed out painkillers, I then suffered different side effects with
Labradoodlelove
in
Fibromyalgia Action UK
6 months ago
Diverticulitis
I am 75 years old. On Thursday morning I awoke with terrible abdominal pain and diarrhoea followed by heavy blood loss. I was very frightened. I went to A and E where I was looked after really well. They gave me painkillers and X-rays and a CT scan. I had diverticulitis and inflammation of sigmoid colon
I am 75 years old. On Thursday morning I awoke with terrible abdominal pain and diarrhoea followed by heavy blood loss. I was very frightened. I went to A and E where I was looked after really well. They gave me painkillers and X-rays and a CT scan. I had diverticulitis and inflammation of sigmoid colon
France21
in
Bowel Disease Support
6 months ago
7 days post and home.
Hi the next installment, I got admitted as planned and the operation went well, the surgeon had to change from keyhole to open surgery as something wasn't quite right so it took a bit longer than expected about 4hrs 30. Woke up in HDU feeling like a double decker bus had run over and to be honest I am
Hi the next installment, I got admitted as planned and the operation went well, the surgeon had to change from keyhole to open surgery as something wasn't quite right so it took a bit longer than expected about 4hrs 30. Woke up in HDU feeling like a double decker bus had run over and to be honest I am
Thanksnhs
in
British Heart Foundation
6 months ago
Pain relief medication
Hi there, I had a stent fitted in LAD in 2021. Have a mild to moderate aortic leaky valve. I also have two slipped discs in lower back. For the most part, I have no pain or restricted movement. Every now and again, I’m in excruciating pain with my back for a few days, then all goes back to normal
Hi there, I had a stent fitted in LAD in 2021. Have a mild to moderate aortic leaky valve. I also have two slipped discs in lower back. For the most part, I have no pain or restricted movement. Every now and again, I’m in excruciating pain with my back for a few days, then all goes back to normal
simplysal
in
British Heart Foundation
6 months ago
Any tips for recovery please
Had 2/3 of my right lung removed beginning of January for yet unknown lung cancer (Will see consultant for pathology this week) I coped alone with recovery but was do able. 2 Weeks ago after visiting A&E and a CT scan, I was found to have Pulmonary Embolisms in both lungs and Pneumonia in surgery lung
Had 2/3 of my right lung removed beginning of January for yet unknown lung cancer (Will see consultant for pathology this week) I coped alone with recovery but was do able. 2 Weeks ago after visiting A&E and a CT scan, I was found to have Pulmonary Embolisms in both lungs and Pneumonia in surgery lung
xinte60
in
The Roy Castle Lung Cancer Foundation
6 months ago
Hospital stay: expecting too much?
I was given
pain
relief pretty quickly and then a
pain
management
person came to speak with me. The morphine and paracetamol was increased and this helped. I stayed for 3 days and treatment was fine.
I was given
pain
relief pretty quickly and then a
pain
management
person came to speak with me. The morphine and paracetamol was increased and this helped. I stayed for 3 days and treatment was fine.
IlovePorridge
in
PMRGCAuk
4 months ago
Mother in pain
My 88 year old mother has severe osteoporosis and kyphosis. She has episodes of severe back pain under her shoulders, which I am assuming is due to vertebral fractures of the spine. She uses a heating pad, over the counter pain medicine, and Tylenol with codeine when she cannot tolerate the pain anymore
My 88 year old mother has severe osteoporosis and kyphosis. She has episodes of severe back pain under her shoulders, which I am assuming is due to vertebral fractures of the spine. She uses a heating pad, over the counter pain medicine, and Tylenol with codeine when she cannot tolerate the pain anymore
WreckemTech
in
Osteoporosis Support
6 months ago
Endo, Crohn’s and Surgery
Hi, anyone in any kind of similar situation? I have Crohn’s Disease and have had three surgeries about 15 years ago. During IVF I was told I had endometriomas on my left ovary. These have been a nightmare for years now. Every specialist says they would usually remove these surgically but due to my
Hi, anyone in any kind of similar situation? I have Crohn’s Disease and have had three surgeries about 15 years ago. During IVF I was told I had endometriomas on my left ovary. These have been a nightmare for years now. Every specialist says they would usually remove these surgically but due to my
Westwoodendo
in
Endometriosis UK
6 months ago
When shall I start 10K ??
I take (under the guidance of a dietitian) 1 probiotic, 2 digestive enzymes, 2 L-glutamine, Vitamin C, D and zinc, Evening Primrose oil (all these mentioned are natural) and 30mg Amitriptyline (for IBS
pain
management
) - all these tablets are mainly to control my IBS.
I take (under the guidance of a dietitian) 1 probiotic, 2 digestive enzymes, 2 L-glutamine, Vitamin C, D and zinc, Evening Primrose oil (all these mentioned are natural) and 30mg Amitriptyline (for IBS
pain
management
) - all these tablets are mainly to control my IBS.
adnewg73
in
Bridge to 10K
6 months ago
My story
Given the start of my Seropositive RA in 2005. I had bad experiences with most of the traditional RA meds prescribed. I never really understood why doctors only seemed to give medication which would suppress the immune system. Generally I felt this approach was making me feel much worse. So for many
Given the start of my Seropositive RA in 2005. I had bad experiences with most of the traditional RA meds prescribed. I never really understood why doctors only seemed to give medication which would suppress the immune system. Generally I felt this approach was making me feel much worse. So for many
BEF12
in
British Heart Foundation
6 months ago
Burning sensation- anyone else?
Hi allI was diagnosed with endometriosis in 2020 (never told stage or anything like that) and scans I've had show probable adenomyosis as well. After my laparoscopy my pains came back fairly quickly and have escalated. About a year ago i started getting pain in the glutes and all down my leg (more on
Hi allI was diagnosed with endometriosis in 2020 (never told stage or anything like that) and scans I've had show probable adenomyosis as well. After my laparoscopy my pains came back fairly quickly and have escalated. About a year ago i started getting pain in the glutes and all down my leg (more on
Redfan
in
Endometriosis UK
6 months ago
Nubeqa and pain medication
I'm starting Nubeqa and from what I read your not suppose to take pain meds like tylenol, aleve, ibebrofin, asprin etc. My question is ... has anyone taking Nubeqa used any pain meds for their pain, if so what kind and did it react with the Nubeqa. I ask alot of questions on here because I need to know
I'm starting Nubeqa and from what I read your not suppose to take pain meds like tylenol, aleve, ibebrofin, asprin etc. My question is ... has anyone taking Nubeqa used any pain meds for their pain, if so what kind and did it react with the Nubeqa. I ask alot of questions on here because I need to know
woppaginny
in
Advanced Prostate Cancer
6 months ago
Lanzaprozole and magnesium deficiency
Hi all, I was diagnosed with GCA in 2018. With the help and support of this group I came through some tough times, and will always be grateful for that. After a very gradual taper, I have now completed 13 months without prednisolone, and, fingers crossed, the GCA is still quiet. I am still having sub-cutaneous
Hi all, I was diagnosed with GCA in 2018. With the help and support of this group I came through some tough times, and will always be grateful for that. After a very gradual taper, I have now completed 13 months without prednisolone, and, fingers crossed, the GCA is still quiet. I am still having sub-cutaneous
Dontwannabesick
in
PMRGCAuk
10 months ago
fibro pain and tiredness
hi, I had a fibro for over a year now, for about 8 months I have been on tramadol for it, slowly increasing dosage to 250mg or sometimes more a day, only one thing that helps me to be more mobile, relaxes my muscles a bit but not always that is the case, sometimes I don’t take tramadol or take less and
hi, I had a fibro for over a year now, for about 8 months I have been on tramadol for it, slowly increasing dosage to 250mg or sometimes more a day, only one thing that helps me to be more mobile, relaxes my muscles a bit but not always that is the case, sometimes I don’t take tramadol or take less and
Hidden
in
Fibromyalgia Action UK
6 months ago
suspected epidural tumour
Hi all! Hope you are all doing well. My dad just got his scans back, and to go along with his rising PSA (over 260 now), the said they suspect he has an epidural tumour. Our MO typically glazes past his scan results as she doesn’t seem them significant, I want to make sure I am right to be worried here
Hi all! Hope you are all doing well. My dad just got his scans back, and to go along with his rising PSA (over 260 now), the said they suspect he has an epidural tumour. Our MO typically glazes past his scan results as she doesn’t seem them significant, I want to make sure I am right to be worried here
StayingSTRNG
in
Advanced Prostate Cancer
6 months ago
Need to see a Doctor
The pain started a couple of months ago thought I was having a heart attack found it hard to even to breathe got checked out at hospital said it was muscular take pain killers. It eventually eased off but was back in a week so went to Doctors had bloods done and an xray of my chest all showed nothing
The pain started a couple of months ago thought I was having a heart attack found it hard to even to breathe got checked out at hospital said it was muscular take pain killers. It eventually eased off but was back in a week so went to Doctors had bloods done and an xray of my chest all showed nothing
Mikstar
in
Fibromyalgia Action UK
6 months ago
good morning everyone, hope you having a good one
Stiffness… I am feed up with myself, I don’t know what to do about it anymore, 😞.. every morning the stiffness kills me and the pain is horrible, every inch of my body is hurting like hell.. I am on Pregabalin 300mg/ day and no help, I even start yoga, Pilates and aqua aerobic exercises, I go 3 times
Stiffness… I am feed up with myself, I don’t know what to do about it anymore, 😞.. every morning the stiffness kills me and the pain is horrible, every inch of my body is hurting like hell.. I am on Pregabalin 300mg/ day and no help, I even start yoga, Pilates and aqua aerobic exercises, I go 3 times
Alice2004
in
Fibromyalgia Action UK
6 months ago
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