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Surgery and immuno suppressants
Hi everyone. I am due to have minor surgery on my wrist and have been asked by my surgeon to cease taking mycophenolate for a week before and a week after my operation (I presumed because of possible risk of infection?). I spoke to my rheumatologist about this and she considered it unnecessary to stop
Hi everyone. I am due to have minor surgery on my wrist and have been asked by my surgeon to cease taking mycophenolate for a week before and a week after my operation (I presumed because of possible risk of infection?). I spoke to my rheumatologist about this and she considered it unnecessary to stop
cheeselover342
in
Scleroderma & Raynaud's UK (SRUK)
7 months ago
New to Peginterferon - Any suggestions to help with bowel cramps?
I have only had 2 injections so far and experiencing frequent bowel cramps. I was kinda, expecting this as I do have some bouts of IBS following associated problems from stage 4 endometriosis. This was found and treated 10 years ago, after many years of suffering. As a result, I experience IBS and,
I have only had 2 injections so far and experiencing frequent bowel cramps. I was kinda, expecting this as I do have some bouts of IBS following associated problems from stage 4 endometriosis. This was found and treated 10 years ago, after many years of suffering. As a result, I experience IBS and,
Lyndjs
in
MPN Voice
7 months ago
Hope, perhaps?
Hi everyone, I just wanted to post a little positivity on here! I know how difficult it is to live with endo (of course), so I wanted to share any positive experiences to anyone who might need it.I had my first laparoscopy (both diagnostic and therapeutic, in the end), in July, so I'm about 6 weeks out
Hi everyone, I just wanted to post a little positivity on here! I know how difficult it is to live with endo (of course), so I wanted to share any positive experiences to anyone who might need it.I had my first laparoscopy (both diagnostic and therapeutic, in the end), in July, so I'm about 6 weeks out
CaffeineCat
in
Endometriosis UK
10 months ago
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Pred and painkillers
Hi all Can you tell me what painkillers are safe to take with Pred. Is ibuprofen and aspirin off limits and if so what do you suggest for general aches and pains. Many thanks.
Hi all Can you tell me what painkillers are safe to take with Pred. Is ibuprofen and aspirin off limits and if so what do you suggest for general aches and pains. Many thanks.
Fredddie
in
PMRGCAuk
10 months ago
Lipoid pneumonia
Earlier this year I had serious nose bleeds resulting in hospital admissions and cautery. Subsequently seen by ENT consultant who advised daily insertion of Vaseline into nostrils to prevent them drying out and possible further bleeds. Since then I found on the internet (various reputable sites)
Earlier this year I had serious nose bleeds resulting in hospital admissions and cautery. Subsequently seen by ENT consultant who advised daily insertion of Vaseline into nostrils to prevent them drying out and possible further bleeds. Since then I found on the internet (various reputable sites)
FormerT
in
Lung Conditions Community Forum
7 months ago
Drugs.com FDA Investigating Serious Risk of T-cell Malignancy Following BCMA-Directed (CAR) T cell Immunotherapies
https://newsletters.drugs.com/l/HXdBAPWpNu8924jmwPHb3VvA/LQCEtlvhvlnyLNQoIP4Gfw/jLVV3dtGc2BI8hLRqrMq892g [i]"Although the overall benefits of these products continue to outweigh their potential risks for their approved uses, FDA is investigating the identified risk of T cell malignancy with serious
https://newsletters.drugs.com/l/HXdBAPWpNu8924jmwPHb3VvA/LQCEtlvhvlnyLNQoIP4Gfw/jLVV3dtGc2BI8hLRqrMq892g [i]"Although the overall benefits of these products continue to outweigh their potential risks for their approved uses, FDA is investigating the identified risk of T cell malignancy with serious
JerrysGirl3
in
CLL Support
7 months ago
Webinar: What causes photopsia and photophobia in patients with Stargardt and what impact does it have on their lives?
Flashing lights in vision (photopsia) or discomfort due to bright light or glare (photophobia) is often experienced by patients with Stargardt. However, little is understood about what causes these symptoms, their prevalence or the impact they can have on people’s lives. Omar Mahroo, consultant ophthalmologist
Flashing lights in vision (photopsia) or discomfort due to bright light or glare (photophobia) is often experienced by patients with Stargardt. However, little is understood about what causes these symptoms, their prevalence or the impact they can have on people’s lives. Omar Mahroo, consultant ophthalmologist
Carol_MacularSociety
Partner
in
Macular Society
7 months ago
Increased bleeding after first scan…
hi everyone, this is my first post. First IVF cycle. I have PCOS and my bleeds are [u]extremely[/u] unpredictable. I started my current cycle with very light murky bleeding and because there was nothing else to go on and none of my bleeds are the same, we started the protocol given by our doctor.
hi everyone, this is my first post. First IVF cycle. I have PCOS and my bleeds are [u]extremely[/u] unpredictable. I started my current cycle with very light murky bleeding and because there was nothing else to go on and none of my bleeds are the same, we started the protocol given by our doctor.
IchigoKeikaku
in
Fertility Network UK
10 months ago
Vitamin B2 Deficiency Can Cause B6 Toxicity! PWP Are Commonly Deficient In B2.
Vitamin B6 recycling. Image credit https://www.frontiersin.org/files/Articles/276491/fneur-08-00333-HTML/image_m/fneur-08-00333-g002.jpg From: https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2017.00333/full Vitamin B6 is a coenzyme required for over 100 different biochemical transformations
Vitamin B6 recycling. Image credit https://www.frontiersin.org/files/Articles/276491/fneur-08-00333-HTML/image_m/fneur-08-00333-g002.jpg From: https://www.frontiersin.org/journals/neurology/articles/10.3389/fneur.2017.00333/full Vitamin B6 is a coenzyme required for over 100 different biochemical transformations
park_bear
in
Cure Parkinson's
7 months ago
Macular Hole
Hi, long term PMR/GCA sufferer been on 4mg for long enough and staying there! However I developed a macular hole which needed surgery. Has anyone else had this problem, is there likely any association of cause with GCA /PMR or Pred? Surgery done now and I have to wait and see how successful it is.
Hi, long term PMR/GCA sufferer been on 4mg for long enough and staying there! However I developed a macular hole which needed surgery. Has anyone else had this problem, is there likely any association of cause with GCA /PMR or Pred? Surgery done now and I have to wait and see how successful it is.
doubtfully
in
PMRGCAuk
7 months ago
Urgent help needed. Extremely severe RLS, cannot identify cause.
It's so goddamn severe that at this point, I either have the most severe case of RLS in medical history or it's something else. I rate it 9 on the severity scale. Did every possible test related to RLS (iron, vitamin D, etc) except for for transferrin saturation and serum iron because it wasn't available
It's so goddamn severe that at this point, I either have the most severe case of RLS in medical history or it's something else. I rate it 9 on the severity scale. Did every possible test related to RLS (iron, vitamin D, etc) except for for transferrin saturation and serum iron because it wasn't available
RestlessDaily
in
Restless Legs Syndrome
10 months ago
Repost results
Im taking teva levothyroxine 100mcgThybon t3, 15mcg, split 3 x 5mcg dose Magnesium glycinate 650mg Vit D3,k2 mk-7, 5000iu Any advice very much appreciated 🌸🌸🌸🌸🌸🌸🌸
Im taking teva levothyroxine 100mcgThybon t3, 15mcg, split 3 x 5mcg dose Magnesium glycinate 650mg Vit D3,k2 mk-7, 5000iu Any advice very much appreciated 🌸🌸🌸🌸🌸🌸🌸
Geegee777
in
Thyroid UK
4 months ago
Sinemet Plus 25mg/100mg tablets Side effects?
My brother takes Sinemet plus 25mg/100mg tablets - One and a half tablets at 8am, 11am, 2pm, 5pm and 8pm. Half Sinemet CR 25mg/100mg tablets - one taken at bedtime. I have noticed after taking Sinemet plus he is unable to get out of chair or bed for up to an hour, dizziness and sleepiness. His vision
My brother takes Sinemet plus 25mg/100mg tablets - One and a half tablets at 8am, 11am, 2pm, 5pm and 8pm. Half Sinemet CR 25mg/100mg tablets - one taken at bedtime. I have noticed after taking Sinemet plus he is unable to get out of chair or bed for up to an hour, dizziness and sleepiness. His vision
Sarah106
in
Cure Parkinson's
7 months ago
Eye Prescription change
hi everyone, just come from the opticians today and my prescription as changed from R -1.25 / L -2.25 last time I went about 18 months ago to today R -1.75 / L - 2.75. I’m on Brinzolamide & Ganfort eye drops for Glaucoma. Last check up was last month and the eye hospital were happy and back in 6 months
hi everyone, just come from the opticians today and my prescription as changed from R -1.25 / L -2.25 last time I went about 18 months ago to today R -1.75 / L - 2.75. I’m on Brinzolamide & Ganfort eye drops for Glaucoma. Last check up was last month and the eye hospital were happy and back in 6 months
Welshsailor
in
Glaucoma UK
4 months ago
Endo history lesson!!!!
On a bored afternoon today, i thought i'd look up when Endo was first diagnosed. It was about 1860, here in England. I wonder how women coped then???. Was it getting drunk that helped numb the pain, cos there were no painkillers like we have today i think. I have endo at the minute, it feels like
On a bored afternoon today, i thought i'd look up when Endo was first diagnosed. It was about 1860, here in England. I wonder how women coped then???. Was it getting drunk that helped numb the pain, cos there were no painkillers like we have today i think. I have endo at the minute, it feels like
valgal76
in
Endometriosis UK
10 months ago
37 M, Functional Tremor, with hyperreflexia, dysphagia, SBD, and urinary incontinence. All diagnosed.
How can I have so many positive neurological findings and tests and be told that all of the stiffness/rigid feeling that has slowly developed and worsened the past 3 years be entirely FND? I was under the impression that FND, not just functional tremor, required a lack of positive neurogenic findings
How can I have so many positive neurological findings and tests and be told that all of the stiffness/rigid feeling that has slowly developed and worsened the past 3 years be entirely FND? I was under the impression that FND, not just functional tremor, required a lack of positive neurogenic findings
Hidden
in
Functional Neurological Disorder - FND Hope
10 months ago
Has the Pulsed Field Ablation technique increased success rate?
Although Flecainide 50mg bid has kept AF episodes to a much lower frequency, 6 in ‘23, I’d like to hear from a few more of you who have undergone this new procedure. What are the results; is the blanking period shorter; anyone had it done at Royal Bournemouth Hospital? I hear reports that it’s much
Although Flecainide 50mg bid has kept AF episodes to a much lower frequency, 6 in ‘23, I’d like to hear from a few more of you who have undergone this new procedure. What are the results; is the blanking period shorter; anyone had it done at Royal Bournemouth Hospital? I hear reports that it’s much
Racquet
in
Atrial Fibrillation Support
4 months ago
sjogens?
I have post PV Myelofibrosis. When I was dx with PV I took Pegasys from April 22 @ 45mg then 60mg then 90mg fortnightly. (On Jakavi since August 23) So took Pegasys for about 16 months After a couple of months on Pegasys I started to experience close vision problems which could not be corrected with
I have post PV Myelofibrosis. When I was dx with PV I took Pegasys from April 22 @ 45mg then 60mg then 90mg fortnightly. (On Jakavi since August 23) So took Pegasys for about 16 months After a couple of months on Pegasys I started to experience close vision problems which could not be corrected with
Yanico
in
MPN Voice
7 months ago
Ampyra
I have been on Ampyra/Dalfampridine for about 4 years. I am thinking of stopping as it is expensive. What effect may it have on my MS? does anyone have any thoughts?
I have been on Ampyra/Dalfampridine for about 4 years. I am thinking of stopping as it is expensive. What effect may it have on my MS? does anyone have any thoughts?
whwiechm
in
My MSAA Community
1 year ago
Recovery time
Hello folks, it's been a while since I posted, or had anything to post about. I have to retire to my bed or any horizontal surface these days as my fractured vertebrae are soon put to the test and become uncomfortable if I'm sitting or standing for a while. Speed bumps are a menace and I always have
Hello folks, it's been a while since I posted, or had anything to post about. I have to retire to my bed or any horizontal surface these days as my fractured vertebrae are soon put to the test and become uncomfortable if I'm sitting or standing for a while. Speed bumps are a menace and I always have
Gandalf2
in
Encephalitis International
11 months ago
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