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Waiting for an appointment
Hi everyone, Just a little rant at the useless NHS again, I have been waiting for 3 years to be seen at the pain management clinic at my local hospital. I have contacted my doctor umpteen times and finally he got me an appointment, YIPPEE! I thought, it was short lived though. It turns out that the
Hi everyone, Just a little rant at the useless NHS again, I have been waiting for 3 years to be seen at the pain management clinic at my local hospital. I have contacted my doctor umpteen times and finally he got me an appointment, YIPPEE! I thought, it was short lived though. It turns out that the
Imagine1
in
Pain Concern
10 months ago
First Post
Hi all, although this is my first post I have visited this site for the last 2 1/2 years. I was diagnosed with RA. Just as covid hit, I went from a healthy 52 year old to literally not being able to get out of bed overnight. I have never experienced pain like it, and I spiralled quickly in to a very
Hi all, although this is my first post I have visited this site for the last 2 1/2 years. I was diagnosed with RA. Just as covid hit, I went from a healthy 52 year old to literally not being able to get out of bed overnight. I have never experienced pain like it, and I spiralled quickly in to a very
Ryshta
in
NRAS
10 months ago
Anti inflammatory pain killer
I am looking for recommendations for tolerable pain relief for hip bursitis please? So far I have only tried buprenorohine patches that did not help and turned me into a zombie overnight …couldn't stay awake and severe nausea ! Any experiences to share please I have atrophic gastritis ? thanks
I am looking for recommendations for tolerable pain relief for hip bursitis please? So far I have only tried buprenorohine patches that did not help and turned me into a zombie overnight …couldn't stay awake and severe nausea ! Any experiences to share please I have atrophic gastritis ? thanks
davina70
in
Pernicious Anaemia Society
10 months ago
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pain relief for rotator cuff injury
I am seeking honest answers regarding treatment for severe pain. My PBC is “evolving “. My liver biopsy was inconclusive but I was started on urso due to symptoms and progression of labs. I recently had an MRI that shows mild liver inflammation but nothing particularly concerning based on my interpretation
I am seeking honest answers regarding treatment for severe pain. My PBC is “evolving “. My liver biopsy was inconclusive but I was started on urso due to symptoms and progression of labs. I recently had an MRI that shows mild liver inflammation but nothing particularly concerning based on my interpretation
Donti
in
PBC Foundation
10 months ago
To Give Hope
n 2018 I could hardly walk, or get out of the bath without help, I did try a few drugs until finding the right one that worked, that being hydroxychloroquine don;t get me wrong I do have bad days but I have learnt to give in to it and rest,take pain killers,and that the flare will pass, I thought back
n 2018 I could hardly walk, or get out of the bath without help, I did try a few drugs until finding the right one that worked, that being hydroxychloroquine don;t get me wrong I do have bad days but I have learnt to give in to it and rest,take pain killers,and that the flare will pass, I thought back
VeronicaF
in
NRAS
10 months ago
Rythmol/Propafenone
Has anyone been prescribed this antiarrhythmic? Due to the flecainide not working for me, my doctor wants me to go on this drug. I’m really hesitant to try another drug because of the Flecainide not working. Just wondering if anyone has ever tried this medication and if so, did it work?
Has anyone been prescribed this antiarrhythmic? Due to the flecainide not working for me, my doctor wants me to go on this drug. I’m really hesitant to try another drug because of the Flecainide not working. Just wondering if anyone has ever tried this medication and if so, did it work?
Debjimmay
in
Atrial Fibrillation Support
12 days ago
Minor Calf Strains (Pulled Calf)
As many know by now, I've been firmly placed onto the injury couch again, so my next posts will not be about running, or walking, rowing, dancing, stretching, weightlifting 😩 but …. yes … recovery and rehabilitation. I’ll share my journey to hold myself to account, but also in case it helps anyone
As many know by now, I've been firmly placed onto the injury couch again, so my next posts will not be about running, or walking, rowing, dancing, stretching, weightlifting 😩 but …. yes … recovery and rehabilitation. I’ll share my journey to hold myself to account, but also in case it helps anyone
CBDB
Administrator
in
Strength & Flex
10 months ago
First Period after lap
Hello everyone. I had my laparoscopy for stage 4 endo 2 weeks ago and unexpectedly now have my period which is alot more painful than I ever imagined it would be. Has anyone experienced a more painful period after surgery? It’s worse than when I had endo! Has anyone also been on Ryeqo? If so, how
Hello everyone. I had my laparoscopy for stage 4 endo 2 weeks ago and unexpectedly now have my period which is alot more painful than I ever imagined it would be. Has anyone experienced a more painful period after surgery? It’s worse than when I had endo! Has anyone also been on Ryeqo? If so, how
lizh87
in
Endometriosis UK
10 months ago
DVLA eye test result
Two days ago I posted about waiting for my result of my eye test and was anxious it would drag on. On the 13th December I went to see my consultant, I made it obvious I was not happy with the lack of support during and after covid and that I knew my eyesight had deteriorated because of it. Two weeks
Two days ago I posted about waiting for my result of my eye test and was anxious it would drag on. On the 13th December I went to see my consultant, I made it obvious I was not happy with the lack of support during and after covid and that I knew my eyesight had deteriorated because of it. Two weeks
Ibstockblue
in
Glaucoma UK
6 months ago
Fear of getting ill (nosophobia)
Hello, does anyone else have the fear of getting ill? It's really crippling me at the moment. The other day I had a huge "floater" in my eye. I have been to the eye doctor and a retina specialist and everything is ok. But I'm still having extremely bad anxiety attacks. I'm finding it difficult to
Hello, does anyone else have the fear of getting ill? It's really crippling me at the moment. The other day I had a huge "floater" in my eye. I have been to the eye doctor and a retina specialist and everything is ok. But I'm still having extremely bad anxiety attacks. I'm finding it difficult to
Tobytime45
in
Anxiety Support
6 months ago
eye drops side effects
I am on monopost eye drops and now on Azopt eye drops as well as my eye pressure needs to come down. Does anyone have side effects from Azopt drops?
I am on monopost eye drops and now on Azopt eye drops as well as my eye pressure needs to come down. Does anyone have side effects from Azopt drops?
MadMorris
in
Glaucoma UK
26 days ago
Orbital Floor Depomedrone Injection
Hi All Has anyone had any experience of the above for TED? Been offered this or intravenous Methyldprednisolone. Thyroid Eye specialist has given me a week to make my mind up as to which way I would like to go. There are 3 options, the 2 I’ve just stated or do nothing and risk permanent bulging eyes
Hi All Has anyone had any experience of the above for TED? Been offered this or intravenous Methyldprednisolone. Thyroid Eye specialist has given me a week to make my mind up as to which way I would like to go. There are 3 options, the 2 I’ve just stated or do nothing and risk permanent bulging eyes
BlueSkiesAbove
in
Thyroid UK
6 months ago
Broken Shoulder
Hi, everyone. My 73 year old husband had a nasty fall playing walking football on Monday morning. It turned out that he broke his shoulder badly and most of his arm came out in a massive bruise. I took him straight to casualty hoping to get seen straight away because his shoulder didn't look right and
Hi, everyone. My 73 year old husband had a nasty fall playing walking football on Monday morning. It turned out that he broke his shoulder badly and most of his arm came out in a massive bruise. I took him straight to casualty hoping to get seen straight away because his shoulder didn't look right and
Imagine1
in
Pain Concern
10 months ago
Simbrinza eye drops
Does anyone using Simbrinza have problems with a side effect of blurriness? I was on Xalatan for 9 years without any problems, but my ophthalmologist changed me to Simbrinza 2 months ago hoping my eye pressure would not increase so rapidly after an eye injection.
Does anyone using Simbrinza have problems with a side effect of blurriness? I was on Xalatan for 9 years without any problems, but my ophthalmologist changed me to Simbrinza 2 months ago hoping my eye pressure would not increase so rapidly after an eye injection.
ANO_Health
in
Glaucoma UK
28 days ago
Check your Thyroid
For about a year I’ve been struggling. Fatigue getting worse, frozen shoulder, dry mouth and eyes, aching, brain fog, palpitations. It really got worse after last years autumn Covid booster when I thought I was having a heart attack. Heart all checked out fine. So I talked to my consultant at my clinic
For about a year I’ve been struggling. Fatigue getting worse, frozen shoulder, dry mouth and eyes, aching, brain fog, palpitations. It really got worse after last years autumn Covid booster when I thought I was having a heart attack. Heart all checked out fine. So I talked to my consultant at my clinic
Readlots
in
British Liver Trust
10 months ago
Tapering problem
Hi I am now down to 3.5mg Again.I got some chest painThat's settled down but I feel soo weak and tired.Im having problems with my toes going numb on me too.Im raising them up at night time .I don't know what the Dr can do.I think it's a nerve thing.I have told him many times about the numbness.I get
Hi I am now down to 3.5mg Again.I got some chest painThat's settled down but I feel soo weak and tired.Im having problems with my toes going numb on me too.Im raising them up at night time .I don't know what the Dr can do.I think it's a nerve thing.I have told him many times about the numbness.I get
Raewynne
in
PMRGCAuk
6 months ago
cryo-ablation update
hi everyone, Thought I would give an update. I had the cryo-ablation on the 13th of May. i felt fairly uncomfortable over the first few weeks, but thanks to all the support and info on here, I have got through it without panic. the main thing is pacing myself and not overdoing it. Get enough
hi everyone, Thought I would give an update. I had the cryo-ablation on the 13th of May. i felt fairly uncomfortable over the first few weeks, but thanks to all the support and info on here, I have got through it without panic. the main thing is pacing myself and not overdoing it. Get enough
Tilly1957
in
Atrial Fibrillation Support
30 days ago
Demodex Blepharitis treatments?
Hello, all. Glaucoma diagnosed late 2019. Initially drops tolerated ok think Latanoprost plus other.After a while developed bad red eyes, itching. Tried various drops since including preservative free, had both cataracts done. Tablets Azetazoloimide? Worked well, not able stay on them! Stopped taking
Hello, all. Glaucoma diagnosed late 2019. Initially drops tolerated ok think Latanoprost plus other.After a while developed bad red eyes, itching. Tried various drops since including preservative free, had both cataracts done. Tablets Azetazoloimide? Worked well, not able stay on them! Stopped taking
TVTech
in
Glaucoma UK
6 months ago
PV and AMD?
I've had PV since 2015 and have been on Jakafi for 18 months. I've recently been diagnosed with age-related macular degeneration and have been treated with intravitreous avastin. I've seen some papers suggesting that AMD is more common for people with MPNs. Has anyone else had this experience? Steve
I've had PV since 2015 and have been on Jakafi for 18 months. I've recently been diagnosed with age-related macular degeneration and have been treated with intravitreous avastin. I've seen some papers suggesting that AMD is more common for people with MPNs. Has anyone else had this experience? Steve
sbs_patient
in
MPN Voice
6 months ago
PIC - Punctate Inner Choroidopathy
Hi. I have just received a diagnosis for the above condition. I understand it’s extremely rare and would like to hear about other people’s experiences. I’m literally just on the journey and have had the first of 3 ‘rescue’ injections to prevent further sight loss. Would be good to connect with others
Hi. I have just received a diagnosis for the above condition. I understand it’s extremely rare and would like to hear about other people’s experiences. I’m literally just on the journey and have had the first of 3 ‘rescue’ injections to prevent further sight loss. Would be good to connect with others
Rome2023
in
Macular Society
6 months ago
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