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coming off rotigotine patches
Hello, First post… Could someone please share their experience coming off rotigotine patches, and what helped you throughout this experience? Been on rotigotine for 4 or so years, and more recently started experiencing augmentation. Was on 2mg, in August GP suggested increasing to 3mg but that hardly
Hello, First post… Could someone please share their experience coming off rotigotine patches, and what helped you throughout this experience? Been on rotigotine for 4 or so years, and more recently started experiencing augmentation. Was on 2mg, in August GP suggested increasing to 3mg but that hardly
Artifcial
in
Restless Legs Syndrome
9 months ago
SUV-Max
Hello , Ive been on Eligard , Zytiga , predizone 26 months . Im oligo with 1 tumor in pelvic lymph node that was radiated , then 25 fractions across the pelvic region . The tumor they radiated was at SUV-MAX 24 . All labs are good , not much of side effects . I thought about stopping the meds after
Hello , Ive been on Eligard , Zytiga , predizone 26 months . Im oligo with 1 tumor in pelvic lymph node that was radiated , then 25 fractions across the pelvic region . The tumor they radiated was at SUV-MAX 24 . All labs are good , not much of side effects . I thought about stopping the meds after
reconjj
in
Advanced Prostate Cancer
3 months ago
HRT post ovarian cancer
Hi, does anyone have anything on HRT post ovarian cancer and radical hysterectomy? I’m 14 years post diagnosis and struggling with brain fog and fatigue. Is HRT an option?
Hi, does anyone have anything on HRT post ovarian cancer and radical hysterectomy? I’m 14 years post diagnosis and struggling with brain fog and fatigue. Is HRT an option?
ruthc
in
My Ovacome
3 months ago
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Dad 2nd BCR. Advice needed...
After a very late salvage radiation + 1 year Lupron. He has been off ADT for 1 year when PSA began to rise again. From 0.01 to 0.03 in less than 2 months then 0.05 after another 3 months. Is this indicative of an aggressive progression and metastasis? The oncologist said that the doubling time is not
After a very late salvage radiation + 1 year Lupron. He has been off ADT for 1 year when PSA began to rise again. From 0.01 to 0.03 in less than 2 months then 0.05 after another 3 months. Is this indicative of an aggressive progression and metastasis? The oncologist said that the doubling time is not
MsBoBo
in
Advanced Prostate Cancer
3 months ago
Menopause really sucks!!!
I am almost 51 & being absolutely battered by the perimenopause.i started running in my 40's in 2018 & absolutely loved it...I got so much from it.i have done C25K several times since then.in 2022 I injured myself...caused by the stupid lack of hormones & had to stop for 18 months.started HRT in March
I am almost 51 & being absolutely battered by the perimenopause.i started running in my 40's in 2018 & absolutely loved it...I got so much from it.i have done C25K several times since then.in 2022 I injured myself...caused by the stupid lack of hormones & had to stop for 18 months.started HRT in March
Notsonifty50
in
Menopause and Perimenopause Support
3 months ago
Here I am again!!!😳
I am almost 51 & being absolutely battered by the perimenopause.i started running in my 40's in 2018 & absolutely loved it...I got so much from it.i have done C25K several times since then.in 2022 I injured myself...caused by the stupid lack of hormones & had to stop for 18 months.started HRT in March
I am almost 51 & being absolutely battered by the perimenopause.i started running in my 40's in 2018 & absolutely loved it...I got so much from it.i have done C25K several times since then.in 2022 I injured myself...caused by the stupid lack of hormones & had to stop for 18 months.started HRT in March
Notsonifty50
in
Couch to 5K
3 months ago
Where Are My People?
I was diagnosed with major depressive disorder over 5 years ago. It started with speech therapy but didn’t seem to help. I’ve been medicated since then but it doesn’t feel like it’s doing its job anymore. The last couple years have been a rollercoaster with changing meds multiple times, worsening depression
I was diagnosed with major depressive disorder over 5 years ago. It started with speech therapy but didn’t seem to help. I’ve been medicated since then but it doesn’t feel like it’s doing its job anymore. The last couple years have been a rollercoaster with changing meds multiple times, worsening depression
RottieFlood37
in
Major Depressive Disorder (MDD) Support
9 months ago
5 aRIs and PCa and recurrence.
I’m recurrent in prostate bed with three negative PSMA PET scans and essentially unchanged size of enhancing nodule over 18 months on three MRIs DUT and FIN began when PSA reached 0.36. In six weeks dropped to 0.26 after beginning DUT and FIN. they are affecting sensitivity of the PSMA scans. After
I’m recurrent in prostate bed with three negative PSMA PET scans and essentially unchanged size of enhancing nodule over 18 months on three MRIs DUT and FIN began when PSA reached 0.36. In six weeks dropped to 0.26 after beginning DUT and FIN. they are affecting sensitivity of the PSMA scans. After
LowT
in
Advanced Prostate Cancer
3 months ago
Hypo, HRT and weight gain?
Hi. Have people who are hypo and use HRT gained weight since starting it? Everything I read re HRT, claims it can cause weight gain, which to a Hypo/Hashi sufferer, this is the last thing you want to hear. What have been people's experience? Thanks, appreciate it.
Hi. Have people who are hypo and use HRT gained weight since starting it? Everything I read re HRT, claims it can cause weight gain, which to a Hypo/Hashi sufferer, this is the last thing you want to hear. What have been people's experience? Thanks, appreciate it.
MindfulMoments
in
Thyroid UK
3 months ago
Methylation to feel good
Hi Folks, Thank you for all the advice and words of encouragement. I’ve been reading a lot of papers on methylation and the effects on the body, below is an article that seems to sum it up if interested… https://draxe.com/health/methylation/ I’ve also been doing a lot of reading on higher incidences
Hi Folks, Thank you for all the advice and words of encouragement. I’ve been reading a lot of papers on methylation and the effects on the body, below is an article that seems to sum it up if interested… https://draxe.com/health/methylation/ I’ve also been doing a lot of reading on higher incidences
Karenedawson
in
Pernicious Anaemia Society
3 months ago
Coming Off Ropinirol
Hello RLS Community First off, I just want to thank so many of you for the amazing support you offer here. It’s not hyperbolic of me to say you are LIFE SAVERS. I really appreciate the feedback and responses I had to my previous post. 🙏💕🙏 On to my question: I would like to come off Ropinirol
Hello RLS Community First off, I just want to thank so many of you for the amazing support you offer here. It’s not hyperbolic of me to say you are LIFE SAVERS. I really appreciate the feedback and responses I had to my previous post. 🙏💕🙏 On to my question: I would like to come off Ropinirol
Chocolate123Lab
in
Restless Legs Syndrome
3 months ago
is this what CR looks like?
Starting Nov 20 last year, I began a relugolix on-cycle. Here’s the PSA readings from that point: Nov 20 : 3.10 Jan 8: 0.31 Feb 27: 0.13 Apr 15: 0.08 So up to this point, the PSA is dropping nicely, as it always has with on-cycles; and as I would expect, since I’ve been a strong responder
Starting Nov 20 last year, I began a relugolix on-cycle. Here’s the PSA readings from that point: Nov 20 : 3.10 Jan 8: 0.31 Feb 27: 0.13 Apr 15: 0.08 So up to this point, the PSA is dropping nicely, as it always has with on-cycles; and as I would expect, since I’ve been a strong responder
lokibear0803
in
Advanced Prostate Cancer
3 months ago
Both ovaries out or not?
Hi, its me again! So ive read my notes from my MDT meeting and noticed they want to take both my ovaries out when they do my hysterectomy and endo excision. One has a big endometrioma on it and as of last year the scan showed the other was healthy. My question is do I agree to them both coming out and
Hi, its me again! So ive read my notes from my MDT meeting and noticed they want to take both my ovaries out when they do my hysterectomy and endo excision. One has a big endometrioma on it and as of last year the scan showed the other was healthy. My question is do I agree to them both coming out and
Loveneige
in
Endometriosis UK
3 months ago
Dienogest withdrawal
Hi everyone,I could really do with some advice as I'm really struggling and don't know what to do. I've been in treatment for just over a year and my endo is shrinking nicely . I had Zoladex injections for 10 months with hrt. I struggled with the side effects and to find an hrt that didn't make me bleed
Hi everyone,I could really do with some advice as I'm really struggling and don't know what to do. I've been in treatment for just over a year and my endo is shrinking nicely . I had Zoladex injections for 10 months with hrt. I struggled with the side effects and to find an hrt that didn't make me bleed
Sheep2
in
Endometriosis UK
3 months ago
Results from 4 Genomic labs
3 years ago we received a Foundation ONE Report giving us the report he has CDK12 mutation. He has been on Lupron, NUBEQA, and Zytiga. Over time they have failed. Recently, 4 lymph nodes were removed for thorough testing to make sure C had not mutated into Neuroendocrine. It had not. Actually, the
3 years ago we received a Foundation ONE Report giving us the report he has CDK12 mutation. He has been on Lupron, NUBEQA, and Zytiga. Over time they have failed. Recently, 4 lymph nodes were removed for thorough testing to make sure C had not mutated into Neuroendocrine. It had not. Actually, the
JolleySprings
in
Advanced Prostate Cancer
3 months ago
Worried about pulmonary fibrosis if radiating the metastasis in my shoulder blade
When I saw my radio-oncologist a few days ago and asked what is the risk for my lungs if we use radiation against the metastasis in my right shoulder blade. He said that there is a risk that it could cause fibrosis but that it does not impact breathing and that I should not worry. Today I decided to
When I saw my radio-oncologist a few days ago and asked what is the risk for my lungs if we use radiation against the metastasis in my right shoulder blade. He said that there is a risk that it could cause fibrosis but that it does not impact breathing and that I should not worry. Today I decided to
Mascouche
in
Advanced Prostate Cancer
3 months ago
PALB2 Stage 4 A prostate cancer treatment plan.
My Partner has stage 4A prostate cancer spread to the nodules and has the PALB2 gene. How effective is internal and external radiation and ADT as the first line of treatment? Why can't the drs start with PARP inhibitors and chemo which is the standard of care as a second line treatment? Is it because
My Partner has stage 4A prostate cancer spread to the nodules and has the PALB2 gene. How effective is internal and external radiation and ADT as the first line of treatment? Why can't the drs start with PARP inhibitors and chemo which is the standard of care as a second line treatment? Is it because
SherryKahn
in
Advanced Prostate Cancer
3 months ago
Cabazitaxel treatment
A shock diagnosis almost seven years ago. Then the merrygoround of surgery, radiation, chemotherapy, hormone treatment and slowly but surely the cancer progresses. Here I am, wondering where to go next and contemplating if chemo with cabazitaxel is the way to go. Does anyone have any experience with
A shock diagnosis almost seven years ago. Then the merrygoround of surgery, radiation, chemotherapy, hormone treatment and slowly but surely the cancer progresses. Here I am, wondering where to go next and contemplating if chemo with cabazitaxel is the way to go. Does anyone have any experience with
Luylu
in
Prostate Cancer Network
3 months ago
Online/Meet ups for people with Hypertrophic Cardiomyopathy struggling with Mental Health?
Hi everyone, so my partner was diagnosed with HC when he was 14. Been in great shape and only having medication for his condition up until 2016/2017, then 41, he was advised to have an ICD. Since then he's had 3 occasions where the device has delivered shock therapy and unfortunately the last 2 occasions
Hi everyone, so my partner was diagnosed with HC when he was 14. Been in great shape and only having medication for his condition up until 2016/2017, then 41, he was advised to have an ICD. Since then he's had 3 occasions where the device has delivered shock therapy and unfortunately the last 2 occasions
Chunkiedog
in
British Heart Foundation
6 months ago
PCA Prognosis?
Hi All! I am due for my 4rd Lupron treatment and follow-up next week. My bloodwork is done and my PSA is still <.01 for 9 months now. I have BRCA 1 and 2. When my Urologist gave me my initial diagnosis after my biopsies (Gleason 4+3=7 and 11 of 12 biopsies positive). nHe gave me a full report
Hi All! I am due for my 4rd Lupron treatment and follow-up next week. My bloodwork is done and my PSA is still <.01 for 9 months now. I have BRCA 1 and 2. When my Urologist gave me my initial diagnosis after my biopsies (Gleason 4+3=7 and 11 of 12 biopsies positive). nHe gave me a full report
Sagewiz
in
Advanced Prostate Cancer
3 months ago
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