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Pain around bikini line.
Looking for a possible explanation. Diagnosed Oct 2021. HG serous carcinoma stage 3c peritoneal/ovarian. I am on 4th line chemo carbo/gem ( I have found this the most challenging so far). Debulking was in March 2022 and I recovered extremely well. Since then I had some abdominal cramping just
Looking for a possible explanation. Diagnosed Oct 2021. HG serous carcinoma stage 3c peritoneal/ovarian. I am on 4th line chemo carbo/gem ( I have found this the most challenging so far). Debulking was in March 2022 and I recovered extremely well. Since then I had some abdominal cramping just
NewtonEmma1900
in
My Ovacome
26 days ago
Feeling rough!
Hi, I’m really suffering this evening with so much pain and discomfort and intermittently having to go to the loo. All I can put it down to is earlier I had a fry’s chocolate cream bar . I think it’s the richness of the dark chocolate and fondant cream. I started feeling really bloated and twinges of
Hi, I’m really suffering this evening with so much pain and discomfort and intermittently having to go to the loo. All I can put it down to is earlier I had a fry’s chocolate cream bar . I think it’s the richness of the dark chocolate and fondant cream. I started feeling really bloated and twinges of
JulieB5200
in
IBS Network
26 days ago
Some good news…
I’ve been trying to figure out some extreme lower back pain, and had another PSMA/PET scan today. I had visions of cancerous spread to my spine, and wanted to check things. Well, while it didn’t solve my back pain questions, it
did
gave me some
good news.
“There is no abnormal radiotracer
I’ve been trying to figure out some extreme lower back pain, and had another PSMA/PET scan today. I had visions of cancerous spread to my spine, and wanted to check things. Well, while it didn’t solve my back pain questions, it
did
gave me some
good news.
“There is no abnormal radiotracer
Jpburns
in
Advanced Prostate Cancer
26 days ago
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Nivolumab and Ipilimumab for Metastatic Prostate Cancer with an Immunogenic Signature: Phase 2 Trial
(UroToday.com) The 2024 American Society of Clinical Oncology (ASCO) annual meeting held in Chicago, IL between May 31 and June 4 was host to the Rapid Oral Abstract Session: Genitourinary Cancer - Prostate, Testicular, and Penile. Dr. Mark Linch presented results from the NEPTUNES (NCT03061539), a multi-centre
(UroToday.com) The 2024 American Society of Clinical Oncology (ASCO) annual meeting held in Chicago, IL between May 31 and June 4 was host to the Rapid Oral Abstract Session: Genitourinary Cancer - Prostate, Testicular, and Penile. Dr. Mark Linch presented results from the NEPTUNES (NCT03061539), a multi-centre
God_Loves_Me
in
Advanced Prostate Cancer
26 days ago
Best alternative PET for PSMA negative PCa
Asking for a friend. He was diagnosed 3 years ago with high risk high volume (Gleason 3+5) PCa. Treated with EBRT + LDRBT + ADT (18 months). His PSA was undetectable but is now rising (3+) but PSMA-PET was negative, even in the prostate - implying PSMA non-avid cancer. What would be the best non-PSMA
Asking for a friend. He was diagnosed 3 years ago with high risk high volume (Gleason 3+5) PCa. Treated with EBRT + LDRBT + ADT (18 months). His PSA was undetectable but is now rising (3+) but PSMA-PET was negative, even in the prostate - implying PSMA non-avid cancer. What would be the best non-PSMA
Vynbal
in
Advanced Prostate Cancer
26 days ago
diagnosis
Hi all, I’m new here just wanted to come somewhere for a bit of support! I haven’t yet been formally diagnosed, my consultant ‘suspects’ Endometriosis and the next step is a Laparoscopy. Has anyone else been through the wringer trying to get seen? It’s taken me years to get this far and I’m emotionally
Hi all, I’m new here just wanted to come somewhere for a bit of support! I haven’t yet been formally diagnosed, my consultant ‘suspects’ Endometriosis and the next step is a Laparoscopy. Has anyone else been through the wringer trying to get seen? It’s taken me years to get this far and I’m emotionally
DogLady91
in
Endometriosis UK
27 days ago
could be of interest for those on BAT
Extreme responses to immune checkpoint blockade following bipolar androgen therapy and enzalutamide in patients with metastatic castration resistant prostate cancer https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7585736/
Extreme responses to immune checkpoint blockade following bipolar androgen therapy and enzalutamide in patients with metastatic castration resistant prostate cancer https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7585736/
Maxone73
in
Advanced Prostate Cancer
27 days ago
feeling desperate.
Ok so I am hopefully going to be starting injecting every other day soon (possibly end of this week), but can’t just yet and I don’t know how to cope. I ain’t sleeping, I am peeing loads and have terrible bladder pain. Dr Klein says this does happen to some people. But I have also started seeing things
Ok so I am hopefully going to be starting injecting every other day soon (possibly end of this week), but can’t just yet and I don’t know how to cope. I ain’t sleeping, I am peeing loads and have terrible bladder pain. Dr Klein says this does happen to some people. But I have also started seeing things
Gobbozoid
in
Pernicious Anaemia Society
27 days ago
Essential read & listen (watch) resources for ALL PCa patients - The 2023 Walsh Guide & Peter Attia's podcast with Dr. Ed. Schaeffer -10/23
Two recent resources that all PCa patients should take the time to get/use/access. The first is the 2023 updated edition of the patient guide, [i]
Dr. Patrick Walsh's Guide to Surviving Prostate Cancer.
[/i] And the second is a [i]
Dr. Peter Attia podcast interview with Ed Schaeffer, MD & PhD[
Two recent resources that all PCa patients should take the time to get/use/access. The first is the 2023 updated edition of the patient guide, [i]
Dr. Patrick Walsh's Guide to Surviving Prostate Cancer.
[/i] And the second is a [i]
Dr. Peter Attia podcast interview with Ed Schaeffer, MD & PhD[
cujoe
in
Fight Prostate Cancer
28 days ago
Is there an "oligometastatic state" for prostate cancer (but not in breast cancer or lung cancer)?
The concept of an "oligometastatic state" is that there exists an early stage where metastases are few in number and are in some way different from metastases that develop later. It also means that there are no micrometastases in systemic circulation (in bone and lymph) and in reservoirs like bone, nerve
The concept of an "oligometastatic state" is that there exists an early stage where metastases are few in number and are in some way different from metastases that develop later. It also means that there are no micrometastases in systemic circulation (in bone and lymph) and in reservoirs like bone, nerve
Tall_Allen
in
Advanced Prostate Cancer
29 days ago
Perineural invasion increases soft tissue progression risk in metastatic castration-resistant prostate cancer post-abiraterone resistance
Background : Prostate cancer presents with soft tissue progression (STP) is highly aggressive. We analyzed the risk factor for STP in patients with metastatic castration-resistant prostate cancer (mCRPC) who developed abiraterone acetate (AA) resistance. Methods : This retrospective study included
Background : Prostate cancer presents with soft tissue progression (STP) is highly aggressive. We analyzed the risk factor for STP in patients with metastatic castration-resistant prostate cancer (mCRPC) who developed abiraterone acetate (AA) resistance. Methods : This retrospective study included
God_Loves_Me
in
Advanced Prostate Cancer
1 month ago
Please advise about treatment
I posted recently about my Dad’s PSA going up from 0.008 in December 2023 to 0.029 in March 2024. He had a PET Scan that showed some activity in a rib and prostate, MRI showed nothing. The PSA started dropping to 0.026 at the end of March and then 0.025 in April without any treatment. We didn’t anticipate
I posted recently about my Dad’s PSA going up from 0.008 in December 2023 to 0.029 in March 2024. He had a PET Scan that showed some activity in a rib and prostate, MRI showed nothing. The PSA started dropping to 0.026 at the end of March and then 0.025 in April without any treatment. We didn’t anticipate
Simonapo
in
Advanced Prostate Cancer
1 month ago
5 aRIs and PCa and recurrence.
I’m recurrent in prostate bed with three negative PSMA PET scans and essentially unchanged size of enhancing nodule over 18 months on three MRIs DUT and FIN began when PSA reached 0.36. In six weeks dropped to 0.26 after beginning DUT and FIN. they are affecting sensitivity of the PSMA scans. After
I’m recurrent in prostate bed with three negative PSMA PET scans and essentially unchanged size of enhancing nodule over 18 months on three MRIs DUT and FIN began when PSA reached 0.36. In six weeks dropped to 0.26 after beginning DUT and FIN. they are affecting sensitivity of the PSMA scans. After
LowT
in
Advanced Prostate Cancer
1 month ago
Confused! Adhesiolysis or Hysterectomy or Mirena!
I attended a follow up appointment this morning which was booked straight after my lap in March. It was with the original team (let's call them Team A), as since then I was put under a different team for Laparoscopic Adhesiolysis after finding severe, dense, widespread adhesions. Team B refused to scan
I attended a follow up appointment this morning which was booked straight after my lap in March. It was with the original team (let's call them Team A), as since then I was put under a different team for Laparoscopic Adhesiolysis after finding severe, dense, widespread adhesions. Team B refused to scan
TallulaShark
in
Endometriosis UK
1 month ago
Bowel cramps?
I had a laparoscopy about 9 weeks ago. I had endometrioma's removed from my ovaries, lots of adhesions removed from right pelvic wall and endometriosis removed from surface of the bowel. I'm presuming it was excised but I won't know for sure until I see my consultant in two weeks. My question is, is
I had a laparoscopy about 9 weeks ago. I had endometrioma's removed from my ovaries, lots of adhesions removed from right pelvic wall and endometriosis removed from surface of the bowel. I'm presuming it was excised but I won't know for sure until I see my consultant in two weeks. My question is, is
Flutterby75
in
Endometriosis UK
1 month ago
Is My Urologist Telling Me the Truth About Prostate Biopsies, or is He "Painting a Rosy Picture" of them?
I have concerns about the discomfort and after-effects of a prostate biopsy scheduled soon. But my urologist seems to be saying [i]
"No worry. It'll only take 30-40 minutes and it'll be over so that you can return home. You'll have some soreness for a few days and you'll be okay."
[/i] Is this
I have concerns about the discomfort and after-effects of a prostate biopsy scheduled soon. But my urologist seems to be saying [i]
"No worry. It'll only take 30-40 minutes and it'll be over so that you can return home. You'll have some soreness for a few days and you'll be okay."
[/i] Is this
back2health
in
Advanced Prostate Cancer
1 month ago
The role of PSMA PET/CT in predicting downgrading in patients with Gleason score 4+4 prostate cancer in prostate biopsy - W Jour Uro 5/21/24
[i]An interesting investigation aimed at validating the use of PSMA PET/CT in patients to adjust the Gleason score (downward) of their cancer based on conventional pre-surgery biopsy, scans (ultrasound & MRI). In this instance the focus was on downgrading from a high-risk of 8 to an intermediate-risk
[i]An interesting investigation aimed at validating the use of PSMA PET/CT in patients to adjust the Gleason score (downward) of their cancer based on conventional pre-surgery biopsy, scans (ultrasound & MRI). In this instance the focus was on downgrading from a high-risk of 8 to an intermediate-risk
cujoe
in
Fight Prostate Cancer
1 month ago
bulge at the front of vagina / not prolapse
Hey so during ovulation I have crazy pain, and a sensation of buzzing / vibrating that is so strong. In march the vibrations were worse than ever then one morning I woke up and there was a feeling of pressure in my vagina. I looked and it looked like there was something partially blocking the hole.
Hey so during ovulation I have crazy pain, and a sensation of buzzing / vibrating that is so strong. In march the vibrations were worse than ever then one morning I woke up and there was a feeling of pressure in my vagina. I looked and it looked like there was something partially blocking the hole.
RGEB
in
Pelvic Pain Support Network
1 month ago
Leukocytes, protein and blood.
Hi all, my urine samples have started showing leukocytes protein and blood. I have GPA which mainly affects my lungs and now sinuses. I guess I just want to know if having these in my urine with no actual urine infection could mean that there's possibly now kidney involvement too?. Hope you're all keeping
Hi all, my urine samples have started showing leukocytes protein and blood. I have GPA which mainly affects my lungs and now sinuses. I guess I just want to know if having these in my urine with no actual urine infection could mean that there's possibly now kidney involvement too?. Hope you're all keeping
Vqueen
in
Vasculitis UK
1 month ago
Prostate biopsy from rib ?
My dad , 83 , diagnosed with pc with mets to bones as per mri and psma. Not done biopsy yet as nervous to put dad through it and one oncologist said it’s not needed as the treatment would be ADT but then 3 other oncologists say it’s good to get it done as we would know what exactly we dealing with
My dad , 83 , diagnosed with pc with mets to bones as per mri and psma. Not done biopsy yet as nervous to put dad through it and one oncologist said it’s not needed as the treatment would be ADT but then 3 other oncologists say it’s good to get it done as we would know what exactly we dealing with
Tinkudi
in
Advanced Prostate Cancer
1 month ago
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