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Ca125 creeping again..
Hello, Finished second round chemo for first recurrence in Feb, 2 surgeries, stoma. Now on Niraparib for 3 weeks, 100 mg initially due to blood counts. Doing ok on this so far. I have an inflammatory arthritis that came on very suddeny after final chemo, Rheumatology think chemo related. On steroids
Hello, Finished second round chemo for first recurrence in Feb, 2 surgeries, stoma. Now on Niraparib for 3 weeks, 100 mg initially due to blood counts. Doing ok on this so far. I have an inflammatory arthritis that came on very suddeny after final chemo, Rheumatology think chemo related. On steroids
Laz66
in
My Ovacome
2 years ago
Colitis, Terminal iletis or Crohns?
Hi, I had my gallbladder out in June 2021. Straight away I then suffered from urgent severe diarrhoea, bloating, yellow poo, fatigue, excessive flatulence and exhaustion. My GP ordered a calprotectin test in September which came back at 222 and I had a repeat one in December which came back at 430.
Hi, I had my gallbladder out in June 2021. Straight away I then suffered from urgent severe diarrhoea, bloating, yellow poo, fatigue, excessive flatulence and exhaustion. My GP ordered a calprotectin test in September which came back at 222 and I had a repeat one in December which came back at 430.
Sunita77
in
Crohn's and Colitis Support
2 years ago
Post Hysterectomy Support
Hi I have been through a pretty bad time with Endometriosis in the last few years after we decided to start a family. Turned out i had stage 4 (and beyond!) endo with a 15cm chocolate cyst on my ovary and stuck to my bowel. I was advised having a child would be very difficult and that a full hysterectomy
Hi I have been through a pretty bad time with Endometriosis in the last few years after we decided to start a family. Turned out i had stage 4 (and beyond!) endo with a 15cm chocolate cyst on my ovary and stuck to my bowel. I was advised having a child would be very difficult and that a full hysterectomy
catsrule40
in
Endometriosis UK
2 years ago
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Colonoscopy yesterday
Hi all. I'm 54 years old and had my colonoscopy yesterday when I was diagnosed with bowel cancer. I had my CT scan today and waiting to find out if it has spread. My biggest fear is needing a stoma bad after surgery. Help, I'm panicking!
Hi all. I'm 54 years old and had my colonoscopy yesterday when I was diagnosed with bowel cancer. I had my CT scan today and waiting to find out if it has spread. My biggest fear is needing a stoma bad after surgery. Help, I'm panicking!
ChrissiLea
in
Colon Cancer Connected
2 years ago
Introducing myself ( in a fashion ) ❤️
Hi , so I joined ages ago but a lot has happened since then ! I am now 50 ( time flies ) a nanny now to 2 gorgeous grandchildren who make me smile when sometimes I never think I will smile again x My physical health is awful atm which is having a huge impact on my mental health ! I had a Ileostomy a
Hi , so I joined ages ago but a lot has happened since then ! I am now 50 ( time flies ) a nanny now to 2 gorgeous grandchildren who make me smile when sometimes I never think I will smile again x My physical health is awful atm which is having a huge impact on my mental health ! I had a Ileostomy a
Pink17
in
Anxiety and Depression Support
2 years ago
Fnd and crps
So finally have a diagnosis of fnd and crps. Second time around with crps first with fnd. Peg fed as gut can only handle iceblocks. Fnd occured after mesh removal in2019 urostomy in 2020 diagnosis 2021 what foods have people successfully retained ok please. I live in new zealand im 56
So finally have a diagnosis of fnd and crps. Second time around with crps first with fnd. Peg fed as gut can only handle iceblocks. Fnd occured after mesh removal in2019 urostomy in 2020 diagnosis 2021 what foods have people successfully retained ok please. I live in new zealand im 56
Cherub1992
in
Functional Neurological Disorder - FND Hope
2 years ago
Are MRI's accurate in seeing endo in general? To operate or not?
Hiya, I'm asking this question because I've had very negative experiences of my adhesions showing. Following one mri which reported that I had one small area of endo, I had a lap to supposedly to remove only to find everything is stuck together, stage 4 endo with frozen pelvis. I'm now waiting in limbo
Hiya, I'm asking this question because I've had very negative experiences of my adhesions showing. Following one mri which reported that I had one small area of endo, I had a lap to supposedly to remove only to find everything is stuck together, stage 4 endo with frozen pelvis. I'm now waiting in limbo
Rhhh
in
Endometriosis UK
2 years ago
See a Professional Respiritory doctor
Morning everyone, hope your all keeping as well as can be. Seems so many of you have never had a proper respiritory check up by a Professional. How can this be, how can people diagnose respiritory illness without it. I asked my respiritory nurse why I had never been referred to chest clinic and asked
Morning everyone, hope your all keeping as well as can be. Seems so many of you have never had a proper respiritory check up by a Professional. How can this be, how can people diagnose respiritory illness without it. I asked my respiritory nurse why I had never been referred to chest clinic and asked
purdeyspringer
in
Lung Conditions Community Forum
2 years ago
Deciding on Surgery
I am currently under specialists at UCLH for severe endometriosis and am contemplating surgical intervention. I am 27 years of age, soon to be 28, and my partner and I are planning on starting a family soon. It has been suggested that we try and conceive soon as alongside endometriosis I have a very
I am currently under specialists at UCLH for severe endometriosis and am contemplating surgical intervention. I am 27 years of age, soon to be 28, and my partner and I are planning on starting a family soon. It has been suggested that we try and conceive soon as alongside endometriosis I have a very
Aardvarks
in
Endometriosis UK
2 years ago
Post laparoscopy
Hey everyone! I’ve got my laparoscopy on the 7th January! Few questions if anyone can help please! Will they take out things during the surgery if needed or would I need a separate surgery for that? What if they find it on my bowels would I have a stoma ? How did everyone cope after surgery? Did you
Hey everyone! I’ve got my laparoscopy on the 7th January! Few questions if anyone can help please! Will they take out things during the surgery if needed or would I need a separate surgery for that? What if they find it on my bowels would I have a stoma ? How did everyone cope after surgery? Did you
Chloe_neal
in
Endometriosis UK
3 years ago
Endometriosis spread to the kidney & ureter, nephrostomy fitted and more major surgery ahead… any advice or similar experience?
Since my last post I have been in and out of hospital ☹️ I had lots of blood in the urine and severe pain in my back and side. After tests and scans they found my left kidney wasn’t functioning and the ureter was blocked all down to growth of endometriosis. The surgeon confirmed in my previous surgery
Since my last post I have been in and out of hospital ☹️ I had lots of blood in the urine and severe pain in my back and side. After tests and scans they found my left kidney wasn’t functioning and the ureter was blocked all down to growth of endometriosis. The surgeon confirmed in my previous surgery
Greys90
in
Endometriosis UK
3 years ago
Reclaiming Christmas (sorry, long post)
I spent almost all of November and December 2020 in hospital. A couple of acute admissions (extreme unmanageable pain), a biopsy (took 5 days, rather than 4 hrs), and my debulking op (15 days, not 7). I was finally discharged on 22nd Dec with two carrier bags of medications, a new stoma and a nasty vomiting
I spent almost all of November and December 2020 in hospital. A couple of acute admissions (extreme unmanageable pain), a biopsy (took 5 days, rather than 4 hrs), and my debulking op (15 days, not 7). I was finally discharged on 22nd Dec with two carrier bags of medications, a new stoma and a nasty vomiting
testarossa71
in
My Ovacome
3 years ago
Severe Endometriosis, Hysterectomy and Bowel Resection
Have you had a bowel resection or were you at risk of one?? Please read. ♥️ 💛 So, nearly 26 years of extreme period pain, bleeding heavily, anaemia and impact on life.. was finally heard in 2017 when my endometrioma showed up and caused enough pain (so we knee stage 4 endometriosis). Prior to this
Have you had a bowel resection or were you at risk of one?? Please read. ♥️ 💛 So, nearly 26 years of extreme period pain, bleeding heavily, anaemia and impact on life.. was finally heard in 2017 when my endometrioma showed up and caused enough pain (so we knee stage 4 endometriosis). Prior to this
Endo_Jaded
in
Endometriosis UK
3 years ago
Lap cancelled an hour before going down
Hi warriors, I'm feeling pretty low right now and needed somewhere to vent... I was due to have my lap yesterday to get rid of the superficial endo and endometrioma. (I have stage 4 but we decided not to touch the bowel stuff yet because of fertility). Unfortunately once I was there, and in my gown
Hi warriors, I'm feeling pretty low right now and needed somewhere to vent... I was due to have my lap yesterday to get rid of the superficial endo and endometrioma. (I have stage 4 but we decided not to touch the bowel stuff yet because of fertility). Unfortunately once I was there, and in my gown
elles3
in
Endometriosis UK
3 years ago
Limited Scleroderma, Skin Problems - Delayed Contact Dermatitis
Hello lovely people, a quick question please - I'm borderline Limited Scleroderma. Diagnosed in 2016, no heart or lung issues, slight Raynaud's (comes & goes), tho I've had dreadful gastro issues since June 2016 resulting in an emergency Ileostomy September this year 2021 in Oxford. I now have stoma
Hello lovely people, a quick question please - I'm borderline Limited Scleroderma. Diagnosed in 2016, no heart or lung issues, slight Raynaud's (comes & goes), tho I've had dreadful gastro issues since June 2016 resulting in an emergency Ileostomy September this year 2021 in Oxford. I now have stoma
beesmum
in
Scleroderma & Raynaud's UK (SRUK)
3 years ago
Side effects to niraparib
Hi everybody, I was diagnosed stage 3c ovarian cancer in March this year, I have read all posts but this is my first time writing. I have just finished treatment and have just started on Niraparib. I had a stoma bag fitted during my operation but since starting the tablets on Friday I have been having
Hi everybody, I was diagnosed stage 3c ovarian cancer in March this year, I have read all posts but this is my first time writing. I have just finished treatment and have just started on Niraparib. I had a stoma bag fitted during my operation but since starting the tablets on Friday I have been having
Edna1968
in
My Ovacome
3 years ago
PSPA Poll re urology and stoma product use
If you live with PSP or CBD or you have a loved one living with one of the conditions, we'd be keen to hear if you use urology or stoma products as part of your day to day life. Please leave a comment below or just like the post if you do use them.
If you live with PSP or CBD or you have a loved one living with one of the conditions, we'd be keen to hear if you use urology or stoma products as part of your day to day life. Please leave a comment below or just like the post if you do use them.
HelenPSPA
in
PSP Association
3 years ago
Hysterectomy, anemyosis, surgery next month, help and reassurance needed please
Im 39 and diagnosed stage 4 endometriosis plus anemyosis with endo largely spread to bowell and pouch of douglas and cysts on ovaries. A total mess!. I have been waiting for a surgery and was due for one on a waiting list in a year time. Due to latest results not being great i received a call tonight
Im 39 and diagnosed stage 4 endometriosis plus anemyosis with endo largely spread to bowell and pouch of douglas and cysts on ovaries. A total mess!. I have been waiting for a surgery and was due for one on a waiting list in a year time. Due to latest results not being great i received a call tonight
Anonymous83
in
Endometriosis UK
3 years ago
Living with Ovarian Cancer Podcast episode 13
Episode 13 is now available via the link or via all the usual podcast platforms. Helen talks in this episode about her diagnosis of Granulosa Cell Ovarian Cancer and how she woke from surgery with a stoma. Please write a review and share with family and friends. Thank you so much. Diane x https://anchor.fm
Episode 13 is now available via the link or via all the usual podcast platforms. Helen talks in this episode about her diagnosis of Granulosa Cell Ovarian Cancer and how she woke from surgery with a stoma. Please write a review and share with family and friends. Thank you so much. Diane x https://anchor.fm
Levanah
in
My Ovacome
3 years ago
Flank pain right side.
Hi , in desperate need to discover the cause of excruciating right flank pain which came, without injury, 6 weeks ago. Comes daily say, each afternoon, even when on prescribed rest. Pain lasts 6 to 8 hours and I get no relief even from opiate analgesia. No problem first thing following morning except
Hi , in desperate need to discover the cause of excruciating right flank pain which came, without injury, 6 weeks ago. Comes daily say, each afternoon, even when on prescribed rest. Pain lasts 6 to 8 hours and I get no relief even from opiate analgesia. No problem first thing following morning except
Ec1ruam
in
Pelvic Pain Support Network
3 years ago
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