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stage 4 endo bowel 100pc worse after Mirena coil
Hello everyone, first time poster here I’m going to try and keep it succinct.. I’ve had endo for 15 years. Lived with the pain, had two laps 6 months in zoladax and watch what I eat. Wasn’t really monitored over covid endo got worse. In April suspected cervical cancer (thankfully negative). In august
Hello everyone, first time poster here I’m going to try and keep it succinct.. I’ve had endo for 15 years. Lived with the pain, had two laps 6 months in zoladax and watch what I eat. Wasn’t really monitored over covid endo got worse. In April suspected cervical cancer (thankfully negative). In august
Ess1982
in
Endometriosis UK
2 years ago
bleeding
5 years ago upon diagnosis of OC, I had a full Hysterectomy and a round of paclitaxol and carboplatin, 3 years later had chemo again but didn't work, been gradually getting worse until May this year I tummy blew up and quite painful can't fit my jeans on anymore thought it was ascites only to have a
5 years ago upon diagnosis of OC, I had a full Hysterectomy and a round of paclitaxol and carboplatin, 3 years later had chemo again but didn't work, been gradually getting worse until May this year I tummy blew up and quite painful can't fit my jeans on anymore thought it was ascites only to have a
Melnie
in
My Ovacome
2 years ago
Pain im old stoma site
i had my stoma reversed 18 years ago and have slwats had the occasional pain but the ladt month it has been awful. The pain last for hours and either dull or sharp (luje a needle going through to my back) ended up at the hospital lsft week. They were wondering with blood test and CT scan and lucky that
i had my stoma reversed 18 years ago and have slwats had the occasional pain but the ladt month it has been awful. The pain last for hours and either dull or sharp (luje a needle going through to my back) ended up at the hospital lsft week. They were wondering with blood test and CT scan and lucky that
Totti10
in
Living with a Stoma
2 years ago
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new to all this
Hi there, I’m new to all this. This is all part of a bigger story. I already have a stoma after my gp left me for three years with bowel problems and did no investigation. My bowel burst, I ended up with septic shock and nearly died. Last year they found I had a peritoneal inclusion cyst which was
Hi there, I’m new to all this. This is all part of a bigger story. I already have a stoma after my gp left me for three years with bowel problems and did no investigation. My bowel burst, I ended up with septic shock and nearly died. Last year they found I had a peritoneal inclusion cyst which was
AndreaBabyC
in
Kidney Disease
2 years ago
Positive Laparoscopy Stories?
Hi everyone😊 I was diagnosed with Endo early last year (even though I’m certain I’ve had it for about 9 years). Basically they found an ovarian cyst on one of my ovaries last year, confirmed via MRI that it was an endometrioma and I was placed on the waiting list for surgery. After waiting around for
Hi everyone😊 I was diagnosed with Endo early last year (even though I’m certain I’ve had it for about 9 years). Basically they found an ovarian cyst on one of my ovaries last year, confirmed via MRI that it was an endometrioma and I was placed on the waiting list for surgery. After waiting around for
G_A_A
in
Endometriosis UK
2 years ago
late effects
rectal cancer 2008 chemo/radio.7yrs later sudden bleeding &mucous ,had 3 purastat treatments at Wythenshawe hospital.Bleeding stopped.Had tried hyperbaric no good. Also got stoma so diet won't make any diff. Radio destroys healthy tissue hence discharge. Seems to be no treatment but removal of rectum.Major
rectal cancer 2008 chemo/radio.7yrs later sudden bleeding &mucous ,had 3 purastat treatments at Wythenshawe hospital.Bleeding stopped.Had tried hyperbaric no good. Also got stoma so diet won't make any diff. Radio destroys healthy tissue hence discharge. Seems to be no treatment but removal of rectum.Major
Patience
in
Pelvic Radiation Disease Association
2 years ago
Frustrated and hopeless....
I just wanted to vent and share with people who might be going through something similar. I am nearly 35 and have been waiting for a date for my excision surgery since November. They think my endo is now stage 4 and in my bowels, bladder and ureters. Despite being at the top of this waiting list
I just wanted to vent and share with people who might be going through something similar. I am nearly 35 and have been waiting for a date for my excision surgery since November. They think my endo is now stage 4 and in my bowels, bladder and ureters. Despite being at the top of this waiting list
Hungry_armadillo
in
Endometriosis UK
2 years ago
mesh repair? [Thread contains photographs]
Am wondering if anyone has had this repair for parastomal hernia and outomes? Am considering getting this done. Saw colorectal surgeon- didn’t fill me with enthusiasm due to risk of it recurring. I am beginning to look like I have a fully inflated helium balloon lurking! I wish I had been advised on
Am wondering if anyone has had this repair for parastomal hernia and outomes? Am considering getting this done. Saw colorectal surgeon- didn’t fill me with enthusiasm due to risk of it recurring. I am beginning to look like I have a fully inflated helium balloon lurking! I wish I had been advised on
Laz66
in
My Ovacome
2 years ago
rectal cancer..
so almost a year ago I posted that i will be having a colonoscopy and later i posted that i was diagnosed with stage 3 rectal cancer. Since that day lots of things happened! I had to do fertility preservation which was not very successful probably due to all the stress i was having.. then i started
so almost a year ago I posted that i will be having a colonoscopy and later i posted that i was diagnosed with stage 3 rectal cancer. Since that day lots of things happened! I had to do fertility preservation which was not very successful probably due to all the stress i was having.. then i started
Ram9
in
Colon Cancer Connected
2 years ago
endometriosis on bowel
hi, I have had confirmed endo since 2008. Iv he’s many treatments since including 2 excisions. I am due to have another excision any time. This time tho they are wanting to do a bowel resection too. was wondering if anyone has had this too? And what the risks are etc and possibly ending up with a
hi, I have had confirmed endo since 2008. Iv he’s many treatments since including 2 excisions. I am due to have another excision any time. This time tho they are wanting to do a bowel resection too. was wondering if anyone has had this too? And what the risks are etc and possibly ending up with a
Hidden
in
Endometriosis UK
2 years ago
Feeling angry - stoma supplies and dignity
Just had a bad phone call and am feeling so angry - I need to vent. I ordered my stoma products as I have done every month for the last 18 months - through their online portal. Their system sends an email to the GP, they authorise, and the products are dispatched and arrive with me, usually not more
Just had a bad phone call and am feeling so angry - I need to vent. I ordered my stoma products as I have done every month for the last 18 months - through their online portal. Their system sends an email to the GP, they authorise, and the products are dispatched and arrive with me, usually not more
testarossa71
in
My Ovacome
2 years ago
Very Bad Timing
I had hoped to update you all on my first month on Xtandi. But that was complicated almost 3 weeks ago, when I was rushed into hospital for emergency surgery on aparastomal hernia causing a blockage. I was given a new stoma, and have spent the last three week recovering. Except...I don't feel like I
I had hoped to update you all on my first month on Xtandi. But that was complicated almost 3 weeks ago, when I was rushed into hospital for emergency surgery on aparastomal hernia causing a blockage. I was given a new stoma, and have spent the last three week recovering. Except...I don't feel like I
CrocodileShoes
in
Advanced Prostate Cancer
2 years ago
FYI BBC Invisible disability: Living with inflammatory bowel disease
What's it like living with an invisible disability in London? About 540,000 people have inflammatory bowel disease (IBD) in the UK and more than 69,000 of them are in the capital. Some sufferers say the lack of toilets is the worst thing about living in the city. Bethany Jacobs has Crohn's disease and
What's it like living with an invisible disability in London? About 540,000 people have inflammatory bowel disease (IBD) in the UK and more than 69,000 of them are in the capital. Some sufferers say the lack of toilets is the worst thing about living in the city. Bethany Jacobs has Crohn's disease and
Meleber
in
IBS Network
2 years ago
Treatment choices for severe endo (had first appt with BSGE centre at last!)
Hey everyone! Hope the sun is shining where you are today 😀 I finally had my telephone appointment with someone from my chosen endo specialist centre, after a year of waiting, several cancellations and a last minute change from face-to-face back to a telephone call… I had an MRI in April to check the
Hey everyone! Hope the sun is shining where you are today 😀 I finally had my telephone appointment with someone from my chosen endo specialist centre, after a year of waiting, several cancellations and a last minute change from face-to-face back to a telephone call… I had an MRI in April to check the
Purple_Badgers
in
Endometriosis UK
2 years ago
Anterior resection
My sister had her cancerous womb removed in 1983. Followed by chemo/radiotherapy. Last year she was diagnosed with intestinal cancer, the consultant pointed out that this could have been caused by the radiotherapy she had in 1983. She had the affected section removed and lived with a stoma bag for 6
My sister had her cancerous womb removed in 1983. Followed by chemo/radiotherapy. Last year she was diagnosed with intestinal cancer, the consultant pointed out that this could have been caused by the radiotherapy she had in 1983. She had the affected section removed and lived with a stoma bag for 6
cc120
in
Womb Cancer Support UK
2 years ago
Chemotherapy then debaulking
I was diagnosed with OC stage 3C in early 2020. I had my debaulking operation followed by Chemotherapy which was Carboplatin/Paclitaxel and was in remission for almost 2 years. I have now found out I have an abdominal tumour and also a tumour on my bowelso surgery was discussed which involves bowel
I was diagnosed with OC stage 3C in early 2020. I had my debaulking operation followed by Chemotherapy which was Carboplatin/Paclitaxel and was in remission for almost 2 years. I have now found out I have an abdominal tumour and also a tumour on my bowelso surgery was discussed which involves bowel
kadabra12
in
My Ovacome
2 years ago
A 5 year survivor ……..
I hope this post gives many starting out on this journey hope . I was diagnosed with stage 3b PPC/ovarian cancer in may 2017. I have just had my 5 year check and my ca125 is holding at 13. I never ever dared dream I would be here 5 years later but I am and so far recurrence free. Life hasn’t been
I hope this post gives many starting out on this journey hope . I was diagnosed with stage 3b PPC/ovarian cancer in may 2017. I have just had my 5 year check and my ca125 is holding at 13. I never ever dared dream I would be here 5 years later but I am and so far recurrence free. Life hasn’t been
Eriksendi
in
My Ovacome
2 years ago
All SOC failing within 3 months of each treatment starting. Gleason 9 aggressive PCA -we need your help.
Dad has advanced aggressive pca failed all SOC treatments to date with most treatments only being effective for 2-3 months. has just had surgery for bowel obstruction and now has a stoma. Mets in liver spine lymph bladder and blocking the bowel. He has low protein and has effected the healing process
Dad has advanced aggressive pca failed all SOC treatments to date with most treatments only being effective for 2-3 months. has just had surgery for bowel obstruction and now has a stoma. Mets in liver spine lymph bladder and blocking the bowel. He has low protein and has effected the healing process
Mckelz
in
Advanced Prostate Cancer
2 years ago
Ive found support 😊
Hi, im new here, can't believe my luck to stumble on this site. Been feeling quite isolated for a while now. Im almost 60 birthday in June and am living with stage 4 occasionally dipping into 5 degenerative kidney disease. Was diagnosed about four years ago when a routine blood test result came back
Hi, im new here, can't believe my luck to stumble on this site. Been feeling quite isolated for a while now. Im almost 60 birthday in June and am living with stage 4 occasionally dipping into 5 degenerative kidney disease. Was diagnosed about four years ago when a routine blood test result came back
19Willow62
in
Kidney Disease
2 years ago
Frozen embryo cycle and Pregnancy complications with stage 4 endo
Hi everyone looking for some advice I have recently fallen pregnant(3 weeks) on my second round of IVF having had a terrible experience on my first round. On my first round the IVF after a successful pregnancy and a miscarriage the hormones caused a massive growth of an endometrioma on my ovary which
Hi everyone looking for some advice I have recently fallen pregnant(3 weeks) on my second round of IVF having had a terrible experience on my first round. On my first round the IVF after a successful pregnancy and a miscarriage the hormones caused a massive growth of an endometrioma on my ovary which
Sos100287
in
Endometriosis UK
2 years ago
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