Hi warriors, I'm feeling pretty low right now and needed somewhere to vent...
I was due to have my lap yesterday to get rid of the superficial endo and endometrioma. (I have stage 4 but we decided not to touch the bowel stuff yet because of fertility).
Unfortunately once I was there, and in my gown and stockings, sitting on my bed, after talking to the anesthesiologist and having anti anxiety meds to calm down (I'd been sick all morning with the stress of it), they cancelled an hour before I was going down.
It turns out there was a communication issue and my endo is so bad on my bowel (and sitting too high) he wouldn't be able to get to the superficial endo below to excise it, or the endometrioma.
He said my next step is trying to fast track ivf (our goal was to clear enough for pregnancy/fertility) and then I will need a bowel resection and stoma quite soon. Apparently there's a 10% risk to fertility with the resection so that's why we want to do ivf first. Although we can't leave it too long because of it going through the bowel and obstruction etc... Has anyone had any experience with this?
Turns out it's pretty big and bad, although I could already feel that each flare up. 😢 Feeling emotionally pretty raw right now xx