Hi
I have been through a pretty bad time with Endometriosis in the last few years after we decided to start a family. Turned out i had stage 4 (and beyond!) endo with a 15cm chocolate cyst on my ovary and stuck to my bowel. I was advised having a child would be very difficult and that a full hysterectomy would be the best option. After being on Zoladex for over a year during the pandemic while i waited for surgery (to stop cyst getting bigger), I eventually had my surgery which involved having a temporary stoma. I ended up staying in hospital for 3 weeks last Dec as I had complications with an infection etc. Sadly it all took its toll on our relationship and my partner left me the day i came out of hospital.
I'm 42 and would've loved to have had a family. Within 3 years i've gone from the excitement of trying for a baby to trying to come to terms with not being able to have children, my partner leaving and dealing with early menopause. To top that off as a result of my first surgery I developed a massive abdominal hernia and needed further surgery at the beginning of this year.
What I've found is that there's not a lot of support available post hysterectomy. It just felt like it was a case of 'you're all fixed now , be on your way'. When emotionally I'm far from fixed and i'm extremely depressed. The endo problem has been fixed (well I hope) but I wasnt offered any emotional support after my surgery. Does anyone know of any support available for women coping with never having the chance to be a mum. I know there's plenty of support for women who have had miscarriages or lost children but not much for those of us who never even got to be pregnant