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Opioid substitution treatment
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Pregabalin not working so well anymore
Hi, I wonder if anyone has some advice about this. I take 300mg pregabalin 3 hours before I go to sleep. It has worked really well for over a year but now not so well. My leg, sometimes one sometimes the other, keeps jumping in the air and waking me up. At the moment its at a level where I can cope with
Hi, I wonder if anyone has some advice about this. I take 300mg pregabalin 3 hours before I go to sleep. It has worked really well for over a year but now not so well. My leg, sometimes one sometimes the other, keeps jumping in the air and waking me up. At the moment its at a level where I can cope with
gobojo
in
Restless Legs Syndrome
3 years ago
New York Times article on the recent Lutetium-177–PSMA-617 study [VISION] + NEJM paper
NY Times piece below; full text of study paper under signature. ***
New Therapy for Aggressive Prostate Cancer Improves Survival
[i]The experimental treatment relies on radioactive molecules that seek out tumor cells, a strategy that may be useful against other cancers.[/i] Prostate cancer is
NY Times piece below; full text of study paper under signature. ***
New Therapy for Aggressive Prostate Cancer Improves Survival
[i]The experimental treatment relies on radioactive molecules that seek out tumor cells, a strategy that may be useful against other cancers.[/i] Prostate cancer is
pjoshea13
in
Advanced Prostate Cancer
3 years ago
Trapped in my own private hell
I am so anxious. Been awake since 5am and it's now 2pm and I have had a bad year. Lockdown, lost my voluntary job Huge problem for about 5months with a doctor. I phoned everyone for advice and it did work out because I was 💯 correct. SHE (the doctor) phoned me twice to apologise because I was 💯 correct
I am so anxious. Been awake since 5am and it's now 2pm and I have had a bad year. Lockdown, lost my voluntary job Huge problem for about 5months with a doctor. I phoned everyone for advice and it did work out because I was 💯 correct. SHE (the doctor) phoned me twice to apologise because I was 💯 correct
Chase888
in
Mental Health Support
3 years ago
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Stopping or not stopping Apixaban for dental treatment
I asked my GP surgery about Apixaban and dental work but they said ask the dentist. The dentist says ask then GP. Anyone else had this runaround and if so, what was the outcome?
I asked my GP surgery about Apixaban and dental work but they said ask the dentist. The dentist says ask then GP. Anyone else had this runaround and if so, what was the outcome?
SuziElley
in
Atrial Fibrillation Support
3 years ago
Augmentation
Hi I have come to some sort of impasse with my battle with rls having gone through the whole gambit with da’s and opioids as we’ll as supplements as well as suffering from augmentation over the year. I now take one 0.088mg pramipexole and two 75mg Pregabalin two to three hours before bedtime and sometimes
Hi I have come to some sort of impasse with my battle with rls having gone through the whole gambit with da’s and opioids as we’ll as supplements as well as suffering from augmentation over the year. I now take one 0.088mg pramipexole and two 75mg Pregabalin two to three hours before bedtime and sometimes
Hoochybaby
in
Restless Legs Syndrome
3 years ago
Pregabalin, gabapentin, AED, epileptic drug interactions with B12 processes
Hiya, Does anybody have information on why long term use of AEDs like Pregabalin and gabapentin affect B12. I am deficient as a result of ileum and large intestine surgery, not pernicious anaemia and IM inject myself daily. If the issue lies in intestinal/stomach absorption then I am inclined to continue
Hiya, Does anybody have information on why long term use of AEDs like Pregabalin and gabapentin affect B12. I am deficient as a result of ileum and large intestine surgery, not pernicious anaemia and IM inject myself daily. If the issue lies in intestinal/stomach absorption then I am inclined to continue
Duncan80
in
Pernicious Anaemia Society
3 years ago
Not doing enough
I am scared every day. My medication helps but I take it at night. Before lockdown I had a voluntary job which I loved but the place isn't there now. 2 days a week I helped my elderly friend and he died in 2020. I offered to cook Christmas dinner for his best friend and another person but had to cancel
I am scared every day. My medication helps but I take it at night. Before lockdown I had a voluntary job which I loved but the place isn't there now. 2 days a week I helped my elderly friend and he died in 2020. I offered to cook Christmas dinner for his best friend and another person but had to cancel
Chase888
in
Anxiety and Depression Support
3 years ago
RLS medication opioids constipation
Hi everyone I suffered very cruel RLS which was really kicked into fast forward from a bout of Shingles. After not sleeping , and being unable to even sit or lie downI was ready to implement my suicide plan. I traveled from Australias the John Hopkins also had appointments with other doctors and Professors
Hi everyone I suffered very cruel RLS which was really kicked into fast forward from a bout of Shingles. After not sleeping , and being unable to even sit or lie downI was ready to implement my suicide plan. I traveled from Australias the John Hopkins also had appointments with other doctors and Professors
Shumbah
in
Bowel Disease Support
3 years ago
Claimed improvement in symptoms following dental treatment.
As someone who is terrified of the dentist (with consequent rare attendance) I found this interesting. Particularly, as I now have to visit one very soon. In my experience, the Japanese are not prone to hyperbole/exaggeration... also you might prefer to skip the 'treatment' part of the video clip 😬
As someone who is terrified of the dentist (with consequent rare attendance) I found this interesting. Particularly, as I now have to visit one very soon. In my experience, the Japanese are not prone to hyperbole/exaggeration... also you might prefer to skip the 'treatment' part of the video clip 😬
Seamus6
in
Cure Parkinson's
3 years ago
RLS and now apnea
I've had RLS for over 5 decades now, and have survived by changing drugs when each one has become ineffective. The latest drug--a semi-opioid called buprenorphine--has been the best! However, I now have central sleep apnea greatly interfering with sleep. I wake up tired and am tired throughout the day
I've had RLS for over 5 decades now, and have survived by changing drugs when each one has become ineffective. The latest drug--a semi-opioid called buprenorphine--has been the best! However, I now have central sleep apnea greatly interfering with sleep. I wake up tired and am tired throughout the day
grandpianoman
in
Restless Legs Syndrome
3 years ago
Post 735 Embrace the challenge 29 Apr 2021
G’day my beloved ms family. Everybody is doing really well today. Had a great and restful nights sleep. No Relapsing-Remitting ms (RRms) demons disturbing “YOU”. It will happen eventually, I just have no idea when. After over 20 years they still can cause me grief for no discernible reason
G’day my beloved ms family. Everybody is doing really well today. Had a great and restful nights sleep. No Relapsing-Remitting ms (RRms) demons disturbing “YOU”. It will happen eventually, I just have no idea when. After over 20 years they still can cause me grief for no discernible reason
RoyceNewton
in
My MSAA Community
3 years ago
Pain management
Hi all, I just wanted to know what everyone found best for pain management! I’ve always relied heavily on cocodamol and I am currently trying to stop taking it for many reasons. However, I made this decision before I started to have a flare up of (suspected) endo, so I’m finding it quite difficult.
Hi all, I just wanted to know what everyone found best for pain management! I’ve always relied heavily on cocodamol and I am currently trying to stop taking it for many reasons. However, I made this decision before I started to have a flare up of (suspected) endo, so I’m finding it quite difficult.
JoanneCrow
in
Endometriosis UK
3 years ago
Benepali & Dental Treatment
Hi looking for some info on Benepali & dental treatment I was on biological meds before & was informed the unyielding time scale to stop meds before dental treatment was 3 weeks but I’m unsure of the time scale prior to dental procedures on Benepali I also take salphasalizine with the biological meds
Hi looking for some info on Benepali & dental treatment I was on biological meds before & was informed the unyielding time scale to stop meds before dental treatment was 3 weeks but I’m unsure of the time scale prior to dental procedures on Benepali I also take salphasalizine with the biological meds
CFergie
in
NRAS
3 years ago
Seizure vs. RLS
I have not seen anything about seizures and RLS. Could be I missed it but this hit me last night. Most of the strong meds for RLS are opioids and what were they first used for? Seizures. Now when your legs get moving on their own have you ever thought that they were going through seizures? So is
I have not seen anything about seizures and RLS. Could be I missed it but this hit me last night. Most of the strong meds for RLS are opioids and what were they first used for? Seizures. Now when your legs get moving on their own have you ever thought that they were going through seizures? So is
1Ginge1
in
Restless Legs Syndrome
3 years ago
Apnea due to opioid use?
I read that one of the causes of central sleep apnea is opioid use. That puts the person at risk for stroke or heart issues. There apparently is no treatment for refractory RLS that doesn't have serious side effects. My question is this: Has anyone with RLS developed apnea as a probable result of opioids
I read that one of the causes of central sleep apnea is opioid use. That puts the person at risk for stroke or heart issues. There apparently is no treatment for refractory RLS that doesn't have serious side effects. My question is this: Has anyone with RLS developed apnea as a probable result of opioids
grandpianoman
in
Restless Legs Syndrome
3 years ago
The Removal of Opioid's from Sensible Chronic pain sufferers.
My Letter to British Pain Society. Mr Bhaskar. I read with intent your articles on Opioid analgesics. Firstly may I add. I am currently in the process of starting legal action against the MHRA and their guidance published a few months ago regards to the prescribing of these particular. As a carer who
My Letter to British Pain Society. Mr Bhaskar. I read with intent your articles on Opioid analgesics. Firstly may I add. I am currently in the process of starting legal action against the MHRA and their guidance published a few months ago regards to the prescribing of these particular. As a carer who
Bodstar11
in
Restless Legs Syndrome
3 years ago
Tramadol Prescription for Refractory RLS?
Has anyone used this as a treatment for RLS? If so, what type of experience have you had? Good/Bad? I have really bad refractory RLS, Periodic Limb Movement Disorder, Sleep Apnea & Narcolepsy. My Dr. has recently prescribed 50 mg of Tramadol to see if I can get the RLS/PLMD under control and I am really
Has anyone used this as a treatment for RLS? If so, what type of experience have you had? Good/Bad? I have really bad refractory RLS, Periodic Limb Movement Disorder, Sleep Apnea & Narcolepsy. My Dr. has recently prescribed 50 mg of Tramadol to see if I can get the RLS/PLMD under control and I am really
RLS_
in
Restless Legs Syndrome
3 years ago
Dopamine agonists and their aftermath - A Survey
Hello All I have been off dopamine agonists for more than two years now, thanks to methadone and buprenorphine. Both were - and are - a blessing (insofar as any drugs could be called such), as many of you will know. But I would like to know how many of us feel, even long after quitting dopamine agonists
Hello All I have been off dopamine agonists for more than two years now, thanks to methadone and buprenorphine. Both were - and are - a blessing (insofar as any drugs could be called such), as many of you will know. But I would like to know how many of us feel, even long after quitting dopamine agonists
Parminter
in
Restless Legs Syndrome
3 years ago
Recent articles on Cannabis - The jury is out while NICE dithers
Following on the heels of the first Scottish Medicinal cannabis clinic in Stirling the other day. While the current focus is on epilepsy you can see from the clinics site that chronic pain is a consideration. Article here: https://www.bbc.co.uk/news/uk-scotland-tayside-central-56475596 Within our community
Following on the heels of the first Scottish Medicinal cannabis clinic in Stirling the other day. While the current focus is on epilepsy you can see from the clinics site that chronic pain is a consideration. Article here: https://www.bbc.co.uk/news/uk-scotland-tayside-central-56475596 Within our community
desquinn
FMAUK Trustee
in
Fibromyalgia Action UK
4 years ago
If the benefits of AZ vaccine highly outweigh the risks, why is the position of GP's not to administer it with sedatives ASAP to my son?
My son has Autism and Rubinstein Taybi Syndrome, he is registered with his GP as Clinically vulnerable. As his main carer I was offered the Coronavirus Vaccine under the conditions of being a carer for a person that is clinically vulnerable. However, as he is so scared of needles and has a known history
My son has Autism and Rubinstein Taybi Syndrome, he is registered with his GP as Clinically vulnerable. As his main carer I was offered the Coronavirus Vaccine under the conditions of being a carer for a person that is clinically vulnerable. However, as he is so scared of needles and has a known history
Dunn62
in
Mencap
4 years ago
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