Post 714 It is not as bad as they say ... - My MSAA Community

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Post 714 It is not as bad as they say 30 Nov 2020

RoyceNewton profile image
10 Replies

Good Morning my beloved Relapsing-Remitting ms (RRms) family. As always I hope last night was restful and that today is full of contentment. It may hurt at times but that means “YOU” are alive. Take the good with the bad, make your own good and make it very good.

New to the family I am so sorry “YOU” had to join, but “YOU” are human and this is a human condition. No more no less. It happens to us, I have never learnt of a better reason why. So go with that theory I feel it might be easier to handle emotionally. “YOU” did nothing wrong to deserve this, “YOU” are not being punished for some crime that “YOU” do not remember committing. “YOU” are not at fault, this is not your fault. Somebody had to get ms and “YOU” are better able to handle it and live with it than most. Somebody had to get it, would “YOU” rather it was a sibling or a close relative. NO, I thought not, though I will admit some nights when my face is being stabbed with an ice pick for hours, I wish it was anybody else but me. Okay, that is a moment of weakness, usually, I just overdose on opioids. which I have done several times. That hurts nobody but me, even if it does scare she who must be obeyed and her Aunt. Do “YOU” see we ALL have moments of weakness, we do really dumb things. It is okay, it does not make you weak, mean that “YOU” are giving up. It means nothing, it is part of the human condition. Very few of us are perfect men or women of stone. Apply enough pressure and even stone crumbles. Or maybe, just maybe it changes. Over the years it toughens, changes into a diamond. A thing of beauty and hardness. Could this be “YOU”? Could “YOU” over your years change from a scared hurt human being into ??? something else. I do not know what, it is your choice, what do “YOU” choose? Beautiful butterflies were once ugly worms and they change, into butterflies of beauty, Why do “YOU” not change yourself. Perhaps not a butterfly, but something so much more than the outside world expect t “YOU” to be.

Come out of that cold dark pit that we are in when first diagnosed (Dx’d). Take your time, find your feet again and build yourself UP into something so much more than “YOU” thought “YOU” could ever be. This is RRms, there will be setbacks, obstacles and trials along your journey. Any great story has trials that the hero must overcome. This is your story, your great journey. There WILL be obstacles, setbacks. This is RRms, it is a progressive disease. Make the choice and do what “YOU” have to do to live your best life possible despite of it. This ms life does not have to be ass bad as is said.

I would suggest your first move would be to take the strongest Disease-Modifying Therapy (DMT) that “YOU” can legally get. Take it, and never stop. Give yourself time what to do next will come.

,

Royce (your ms writer and Brother)

next steps, diet. exercise plan, emotional plan. YOU CAN do this believe in yourself it does not have to be as bad as you fear. Choose a better ms life for yourself

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RoyceNewton
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10 Replies
twooldcrows profile image
twooldcrows

thank you for a great one ...really liked the one where if you feel pain at least you know your alive...hahahahhahaahha...that is the way to make it for we can laugh at it ...it really does help and can make things look better and that it isn't as bad as they thought ....love it ...take care and enjoy it also ...both of you have a great day and so many more to help us have some more humor in this world ....

RoyceNewton profile image
RoyceNewton in reply totwooldcrows

She who must be obeyed hates my thoughts on pain, but I like it so I get to say it. M y ms life is nowhere near as bed as I first thought.

in reply toRoyceNewton

"She who must be obeyed" 😂

RoyceNewton profile image
RoyceNewton in reply to

Think about it Sister

twooldcrows profile image
twooldcrows in reply toRoyceNewton

we are very lucky for here we are playing on here talking to each other ...yes at first i was really scared after going to my first visit to a meeting with others with MS...i thought wow am i going to be .....it was scary ....sure glad of the new meds well actually to have them....have a great funny day ...love and happiness....

hairbrain4 profile image
hairbrain4

If you are new here, RoyceNewton has a lot of good insights. Yep, we all have different aches and pains because we are different. Yep, it happens to all of us at some point. I was afraid that I would end up so crippled and blind that I wouldn't want to exist. Well, that was just my nightmare. I'm not crippled or blind. I need a cane from time to time and I may need a wheelchair later on. My eyesight is getting worse. But it's all ok. I'm on one of the strongest DMT's there is, and I'm doing everything I can to not exacerbate progression as it will progress fast enough on its own. Again, it's not that bad. I have learned to adapt and take it in stride as RoyceNewton suggests. Keep your attitude in check so it doesn't bog you down.

RoyceNewton profile image
RoyceNewton in reply tohairbrain4

Excellent strategy sounds right to me keep it up Sister

Amore55 profile image
Amore55

I worked in the drug addiction field for umpteen thousand years. I must comment that ANY opioid overdose is very serious and life threatening. Please consider speaking to your doctor about possible options, such as a pain pump. Went to literally hundreds of funerals of patients who overdosed.

RoyceNewton profile image
RoyceNewton in reply toAmore55

I am okay, I got the nerves in my face shaved and now take no medicine beyond Tecfidera. Admittedly I can not feel my face well, but that is life no big deal.

RoyceNewton profile image
RoyceNewton in reply toAmore55

Not about me but I AGREE 100% see your doctor

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